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Sluff
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« Reply #100 on: November 11, 2007, 07:17:29 PM » |
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okarol
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« Reply #101 on: November 11, 2007, 08:06:32 PM » |
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 Glad everything is going well!
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Wattle
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« Reply #102 on: November 11, 2007, 10:27:53 PM » |
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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vandie
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« Reply #103 on: January 15, 2008, 07:36:29 AM » |
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My neph changed one of my bp meds. On day two I started to feel like I was getting the flu. It's going around so I didn't think anything of it. I stayed home for three days, in bed, totally useless. I couldn't get into either my primary or my neph so they sent me to waste my time at urgent care. I explained my post transplant situation and my concerns. He gave me an antibiotic and sent me on my way. I knew after a few days of symptoms that it was more than the flu.
On day 7 in bed, my neph calls with my latest labs. My Prograf levels were at 32.6. It seems the new bp med interacted with the Prograf to the point I was toxic. I didn't take the Prograf for a day and a half and started a lower dose on day three. I started to feel better a few days later. The new med was Cardizem.
I am a little embarrassed by it all. I am usually so on top of my care that it's irritating. Had I researched it myself I may have been able to avoid being so sick.
I don't want anyone else to go through this. Please be aware of reactions between meds. You can't always count on the doctors to do it for you.
xoxo
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
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paris
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« Reply #104 on: January 15, 2008, 07:58:27 AM » |
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Vandie, hope things are getting better. Take care of yourself  |
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 It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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okarol
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« Reply #105 on: January 15, 2008, 08:59:51 AM » |
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I was wondering where you've been Vandie - I hope you're feeling better. Jenna's docs took her off BP meds for a couple weeks to see how she would do, and her BP has been normal since. What has your's been? It's hard not to just rely on the doctors that hand you a prescription, assuming that they will be aware of the complications it might cause! I appreciate you posting this. Good reminder!!  |
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Sluff
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« Reply #106 on: January 15, 2008, 09:25:12 AM » |
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Glad to hear from you Vandiegirl, Hope things will smoothen out for you. |
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willieandwinnie
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« Reply #107 on: January 15, 2008, 09:33:54 AM » |
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Thanks Vandie for the heads up on Cardizem. Len was also on it right after his transplant and things went horrible. They stopped the Cardizem at the same time they stopped the Cellcept. You just never know with all these medications, and the doctors get pissed at me when I ask about side affects. They tell me all drugs have side affects. Well no shit, but they should be able to tell me what to look out for, after all, I'm with him 24/7. It is so frustrating sometimes. Good to see you posting and hope you feel much better soon. |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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KT0930
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« Reply #108 on: January 15, 2008, 10:37:03 AM » |
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Glad you're starting to feel better and that the source was found. Thanks for the update on the interaction...we've gotta help each other out, that's only one reason this site was started, right?  |
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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goofynina
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« Reply #109 on: January 15, 2008, 02:02:07 PM » |
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Aye yi yi Muchacha  What are we going to do with you? I hope your feeling better by now and this doesnt happen again,  we need our strength for whenever we meet up at Olvera Street   |
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vandie
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« Reply #110 on: January 28, 2008, 12:31:51 PM » |
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Six-month clinic visit I had my check up this morning. Everything is back on track. Creatinine is 1.1 and Prograf levels are where they should be. They reduced my prednisone to 5, which is great. And also stopped the Valcyte. Any fewer medications and I am a happy girl. During my little Prograf OD, my creatinine went up to 1.5, which was a little hinky. Docs and I were pleased to see things back on track. My h/h counts are still a tad low, but I had a bone marrow biopsy and it showed nothing serious. My insurance will not approve the epo shots any longer because my hemoglobin is over 10. I'm feeling great so I will make 10.9 work. Meds I'm still on: Cellcept Prograf Prednisone Septra magnesium 2 BP meds xoxo EDITED: Fixed format tags - okarol/moderator |
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« Last Edit: January 28, 2008, 03:22:44 PM by vandie »
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
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Joe Paul
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« Reply #111 on: January 28, 2008, 12:46:37 PM » |
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Sounds great Vandie, hoping all continues to go well for you  |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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okarol
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« Reply #112 on: January 28, 2008, 01:47:30 PM » |
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 That's great Vandie - so happy for you!
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KT0930
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« Reply #113 on: January 28, 2008, 02:56:40 PM » |
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Sounds great, Vandie. Congrats on 6 wonderful months - keep it up for a long time! |
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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charee
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« Reply #114 on: January 28, 2008, 02:57:04 PM » |
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so happy for you vandie |
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Home Hemo 18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia
Live donors rock
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paris
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« Reply #115 on: January 28, 2008, 04:37:51 PM » |
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Vandie, so glad things are on track. I told my co-ordinator your transplant journey and how I want to walk the same path! I can't believe it has already been six months. |
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It's not what you gather, but what you scatter that tells what kind of life you have lived. |
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lola
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« Reply #116 on: January 28, 2008, 04:58:00 PM » |
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Vans so glad things are back on track
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Sluff
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« Reply #117 on: January 28, 2008, 06:59:46 PM » |
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So Vandie girl will I see you this year at the IHD 2nd Annual?  |
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vandie
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« Reply #118 on: January 28, 2008, 07:50:25 PM » |
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So Vandie girl will I see you this year at the IHD 2nd Annual?
Absolutely. Wouldn't miss it. |
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
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Wattle
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« Reply #119 on: January 28, 2008, 10:58:57 PM » |
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Great news Vandie!! I hope it continues like this for years and years to come.
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Sluff
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« Reply #120 on: January 29, 2008, 03:49:48 AM » |
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So Vandie girl will I see you this year at the IHD 2nd Annual?
Absolutely. Wouldn't miss it.
WooHoo!! |
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Bajanne
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« Reply #121 on: January 29, 2008, 05:52:31 AM » |
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Because of my horrible computer experiences  these days they are some important thread that I am coming in on late. So I have had to read this from the first page. I am so pleased with your transplant journey so far, Vandie. This is wonderful! My caring thoughts are with you as you continue to do well. I also appreciate your using your experiences to be a help to others on this site. Keep on keeping on. |
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith" I LOVE my IHD family! |
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tamara
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« Reply #122 on: February 01, 2008, 11:02:17 AM » |
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ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
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tweetykiss
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« Reply #123 on: February 11, 2008, 09:22:37 AM » |
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Husband started hemo dialysis on July 30, 2007
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vandie
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« Reply #124 on: July 31, 2008, 11:57:03 AM » |
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One Year Update.
All I have to say is RIGHT ON!!
I had my one year check up today. My counts are perfect. Everything is going along famously.
This has been the most humbling experience for me. To be able to hang out with my daughters and be a good mom, to be able to be productive and on the ball at work, and to again be the good friend I was before I got sick is such an amazing and incredible feeling.
If anyone has any doubts about getting a transplant, please, please reconsider. It has changed my life and the lives of all the people I love so much for the better.
Much love to all
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
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I Hate Dialysis Message Board
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