RLS, Restless Legs Syndrome. Here's a new drug you might want to try.

[Epoman]

http://www.requip.com/

I just saw the commercial for the first time. Ask you doctor about it. But it is for people who have 15+ episodes a month. It sounds promising let us know if any of you try it out.

[Sluff]

I went to the Neph today and asked him about the restless legs and cramping all the time. He told me to try drinking a little tonic water. Remember though, I'm not on Dialysis so I don't have to watch my intake yet.

[angieskidney]

oh ya I saw that commercial on TV advertising it!

[Sluff]

Epoman have you tried requip yet? Does it work?

[Epoman]

Epoman have you tried requip yet? Does it work?

No, sorry I don't get it that often anymore. I usually get RLS only once or twice a month now.

[angieskidney]

does it get a lot better on daily/nightly dialysis?

[Mom3]

That tonic water is for the traces of quinine in it. Quinine is an old drug that works for leg cramps.

Mom 3

[Bajanne]

That tonic water is for the traces of quinine in it. Quinine is an old drug that works for leg cramps.

Mom 3

I am so glad to hear that.  I would not say that I have definite RLS, but sometimes before I go to sleep they do get a bit restless.  The other thing is that I really like tonic water.

[JerseyGirl]

One of my cycler patients use this and he says it really helps him.

[angieskidney]

I only get RLS mainly when I am feeling crappy or have too much fluid on me or am overly tired .. okay .. that is a lot of the time .. but I don't get RLS as much as other people seem to and I don't know why.

[nkviking75]

This probably won't be appropriate for everyone, but I deal with RLS (no formal diagnosis of that, by the way) by pedalling on a set of bicycle pedals.  They're just pedals mounted on a frame.  I've bought two over the years, the first for $55 and the second for $30.  It helps me burn off my restlessness, it gives me an excuse to change positions, and I get a little exercise to boot.  The staff at my unit is fine with it.  In fact, they encourage me to use the pedals.

[Black]

This probably won't be appropriate for everyone, but I deal with RLS (no formal diagnosis of that, by the way) by pedalling on a set of bicycle pedals.  They're just pedals mounted on a frame.  I've bought two over the years, the first for $55 and the second for $30.  It helps me burn off my restlessness, it gives me an excuse to change positions, and I get a little exercise to boot.  The staff at my unit is fine with it.  In fact, they encourage me to use the pedals.

Where did you buy them?

[nkviking75]

This probably won't be appropriate for everyone, but I deal with RLS (no formal diagnosis of that, by the way) by pedalling on a set of bicycle pedals.  They're just pedals mounted on a frame.  I've bought two over the years, the first for $55 and the second for $30.  It helps me burn off my restlessness, it gives me an excuse to change positions, and I get a little exercise to boot.  The staff at my unit is fine with it.  In fact, they encourage me to use the pedals.

Where did you buy them?

Medical supply stores.  The first set was at a chain called American Home Patient, the second set at a local store that just started up a few months ago.

[angieskidney]

I thought all units have those! Mine does! It helps the body remove 20% more toxins from the body during dialysis to use the peddles.

[nkviking75]

I thought all units have those! Mine does! It helps the body remove 20% more toxins from the body during dialysis to use the peddles.

Not that I doubt you, but do you have any evidence to back that up?  I'd like some documentation for the nurses at my unit.

[angieskidney]

I thought all units have those! Mine does! It helps the body remove 20% more toxins from the body during dialysis to use the peddles.

Not that I doubt you, but do you have any evidence to back that up?  I'd like some documentation for the nurses at my unit.

Yes, but I will have to search the D&T City forums again for it. I will post it when I find it again. Wait .. I have it in my Copernic backups ..

http://www.medicalnewstoday.com/medicalnews.php?newsid=43306

[livecam]

What is a copernic backup?

[angieskidney]

What is a copernic backup?

Copernic Search Software and by backup I meant past search results I have saved in it.

[nkviking75]

Thanks for the link, Angie.

[angieskidney]

Thanks for the link, Angie.

No problem! Anytime

I also have a list of search engines lol

So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt

[nkviking75]

So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt

I only had time to skim it.  I intend to look at it more closely.  I showed it to our dietician today and she was quite excited about it.  I believe she'll share it with the staff.  Not sure what will come of it.  They've always encouraged me to pedal just for the exercise, but with a kt/v stuck around 1, anything that improves my results is crucial.  (Low kt/v is why I do four days.)




EDITED:  Fixed Quote Tag - Goofynina/Moderator

[angieskidney]

So anyway, did you read that article that I mentioned earlier? It proves that biking during dialysis helps remove more toxins. What did you think about it? I am not sure if it actually helps with RLS but it can't hurt

I only had time to skim it.  I intend to look at it more closely.  I showed it to our dietitian today and she was quite excited about it.  I believe she'll share it with the staff.  Not sure what will come of it.  They've always encouraged me to pedal just for the exercise, but with a kt/v stuck around 1, anything that improves my results is crucial.  (Low kt/v is why I do four days.)

Wow my kt/v is always around 1.7+! But I DO bike When I printed that out and brought it to my unit the nurse just put it in my "bin" so I actually had to take it and pin it up on the board myself 

I was hoping any of the other patients would read it but it seems I am the ONLY one in the "Self Unit" who cares to learn more .. the others just want to get in .. do their time .. and leave. 

[imacrash]

very interresting topic.  I always thought that I too suffered from RLS until my neph doc had me see a neurologist who Dx me with Myoclonic jerks(seizures).  He said it was due to the BUN levels changing during dialysis.  I take 1 Rx everyday, an anti-convulsant...and 1 Rx on dialysis days.  Most days at dialysis are controlled now, and the jerking at night isn't so bad anymore.  Now if I could just get my phosphorus under control and stop all this itching!!!!!!

[kitkatz]

Scratch scratch! I send a scratch to you. I itch too.

[Panda_9]

very interresting topic.  I always thought that I too suffered from RLS until my neph doc had me see a neurologist who Dx me with Myoclonic jerks(seizures).  He said it was due to the BUN levels changing during dialysis.  I take 1 Rx everyday, an anti-convulsant...and 1 Rx on dialysis days.  Most days at dialysis are controlled now, and the jerking at night isn't so bad anymore.  Now if I could just get my phosphorus under control and stop all this itching!!!!!!

What is Rx?