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Author Topic: Tribute to Walter C. Stone- Del's Husband  (Read 12924 times)
willowtreewren
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« on: February 02, 2016, 06:07:39 AM »
I am crying. My friend, and Del's lovely husband has died. I wish I could change this. I want to go back in time and make this go away, but I can't. I know Del is devastated, because I am. Life just isn't fair.
« Last Edit: February 03, 2016, 07:09:15 PM by kitkatz » Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #1 on: February 02, 2016, 06:15:20 AM »
I am so terribly sorry to hear this. Thanks for letting us now WillowTreeWren. Don't know what to say really. Tell Del we're thinking of her.

Lots of love and strength to all of you, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Vt Big Rig
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« Reply #2 on: February 02, 2016, 06:15:56 AM »
Damn.

Rest in peace Walt.

Del, we can only offer our condolences. I am very sorry to hear about Walt.
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
Rerun
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Going through life tied to a chair!
« Reply #3 on: February 02, 2016, 07:15:12 AM »
I am so sorry to hear this Del.  Please take comfort in knowing we all care and love you.

               :'(
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Charlie B53
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« Reply #4 on: February 02, 2016, 07:25:19 AM »

Sincere condolences to Dell.


It is absolutely maddening that in this day modern medicine still fails and many infections are still have such devastating effect in such a short time.

Hopefully the Dr's will have further labs done and learn enough from this to make a positive difference on the next.
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MooseMom
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« Reply #5 on: February 02, 2016, 09:03:13 AM »
Oh no!  I am so saddened by this.  I lost both of my parents to blood infections.

Del, you are in my prayers.  I wish I had the power to change the world for you.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Zach
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« Reply #6 on: February 02, 2016, 10:13:57 AM »
Dear Del,

My prayers are with you and Walt.

Love,
--Zach
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
iolaire
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« Reply #7 on: February 02, 2016, 10:19:51 AM »
Sorry, stay strong Del.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
kitkatz
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« Reply #8 on: February 02, 2016, 11:37:59 AM »
This saddens my heart.  My love and prayers are sent Del's way to help her deal with things.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kickingandscreaming
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« Reply #9 on: February 02, 2016, 04:02:07 PM »
Oh. I'm so sorry, Del.  That is such a profound loss (I lost my husband too, so I know).  I wish you well.
KickingandScreaming
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
PrimeTimer
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« Reply #10 on: February 02, 2016, 08:11:35 PM »
This news breaks my heart. So very very sorry, Del.
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
monrein
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« Reply #11 on: February 03, 2016, 04:54:20 AM »
Such sad sad news. I hope that Del can take some small comfort in knowing how many of us are thinking of her and sending our love. Life is definitely not easy nor is it fair.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
kitkatz
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« Reply #12 on: February 03, 2016, 03:06:56 PM »
http://www.centralfuneralhomes.ca/book-of-memories/2372391/Stone-Walter/service-details.php


Walt's details
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #13 on: February 03, 2016, 07:13:39 PM »
For Walt

It is funny how
when someone lives with us
they enrich our lives in ways
we do not even notice
until they are gone.
Their idiosyncrasies,
Their weird ways that drive us crazy,
Endearing them to us in memories.
Laughter echoes in our minds
From things said and done.
Friendships made, lost, and made again.
Relationships that came and went,
Some that lasted so long they became
Part of the lives shared between.
Lives led over the years.
Memories made for the keeping.

The universe embraces and enfolds
The soul in starlight.
Returning it to where it began.
How do we know they continue?
They return and wander through
Our hearts and minds
Every now and again.
Remembering of them
Brightens our lives.
Keeps us living in the light
That is our universe.


By Katherine Soto
c. February 3, 2016
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Vt Big Rig
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« Reply #14 on: February 04, 2016, 04:48:59 AM »
Very nice Kit.

I hope Del can take comfort in knowing many of us, who never even met she or Walt except on line, are truly sorry for her loss. :(
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VT Big Rig
Diagnosed - October 2012
Started with NxStage - April 2015
6 Fistula grams in 5 months,  New upper fistula Oct 2015, But now old one working fine, until August 2016 and it stopped, tried an angio, still no good
Started on new fistula .
God Bless my wife and care partner for her help
SooMK
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« Reply #15 on: February 04, 2016, 04:51:34 AM »
So very sorry.
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SooMK
Diagnosed with Uromodulin Kidney Disease (ADTKD/UMOD) 2009
Transplant from my wonderful friend, April 2014
Volunteering with Rare Kidney Disease Foundation 2022. rarekidney.org
Focused on treatment and cure for ADTKD/UMOD and MUC1 mutations.
willowtreewren
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My two beautifull granddaughters

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« Reply #16 on: February 04, 2016, 07:23:25 AM »
Kit, thank you so much for adding the link. And your poem is lovely. Thank you, thank you.

Walt was a rock. And funny, and sensitive, and just so very, very special.

Del will have to be so strong, and having us behind her will help. It isn't everything, but it is something.

And thanks to whomever split this off as a separate thread. I'm still so devastated.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
stayingalive
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« Reply #17 on: February 04, 2016, 07:59:02 AM »
Am sorry of this passing.  God Bless their family through their difficult time. 
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SMILE!!  CAPD since June 2014
Polysystic kidney disease
Michael Murphy
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« Reply #18 on: February 04, 2016, 04:01:51 PM »
My condolences and prayers.  The only bad thing about this place is the knowledge of the fine folks who have passed.  For his wife I hope she can cherish the years they were together. 
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del
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del and willowtreewren meet
« Reply #19 on: February 04, 2016, 06:19:19 PM »
Thank you all so much for the kind words.  I have been surrounded by family and friends.I keep thinking about what he would have wanted.  I can hear him saying " I'm gone give up the crying and move on" of course there would be a few other words mixed in there!!  He was my husband and my best friend and I loved him dearly and I will miss him everyday of my life .  He always told me he did not ever want me to be along and to move on with my life and enjoy myself.  it will be hard but I will try to do my best to do what he wanted me to do.  My plan is to move closer to family -absolutely no family where I live now. I have at least a 4 hour drive to visit a family member.  For a while I will just visit different people until I decide where I want to live.  It will be a very different life style for me but I will adapt. Who knows, I may do some traveling and come visit some of you guys.  Thank you.  Your kind words really help a lot.  :grouphug;
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Don't take your organs to heaven.  Heaven knows we need them here.
charee
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« Reply #20 on: February 05, 2016, 01:09:11 AM »
So sorry  Del. Thinking of you.  Xox
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
kristina
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« Reply #21 on: February 05, 2016, 06:03:12 AM »
I am very sorry to hear this and thanks for letting us know WillowTreeWren.
I am so sorry Del and I am thinking of you
and I send you my kind regards
from Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
willowtreewren
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My two beautifull granddaughters

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« Reply #22 on: February 05, 2016, 01:19:54 PM »
Quote from: del on February 04, 2016, 06:19:19 PM
Thank you all so much for the kind words.  I have been surrounded by family and friends.I keep thinking about what he would have wanted.  I can hear him saying " I'm gone give up the crying and move on" of course there would be a few other words mixed in there!!  He was my husband and my best friend and I loved him dearly and I will miss him everyday of my life .  He always told me he did not ever want me to be along and to move on with my life and enjoy myself.  it will be hard but I will try to do my best to do what he wanted me to do.  My plan is to move closer to family -absolutely no family where I live now. I have at least a 4 hour drive to visit a family member.  For a while I will just visit different people until I decide where I want to live.  It will be a very different life style for me but I will adapt. Who knows, I may do some traveling and come visit some of you guys.  Thank you.  Your kind words really help a lot.  :grouphug;

You are ALWAYS welcome here!  :cuddle;

xoxoxox

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile
« Reply #23 on: February 06, 2016, 05:21:50 AM »
You are most welcome here in Toronto too Del.  :cuddle;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
amanda100wilson
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« Reply #24 on: February 09, 2016, 02:07:54 PM »
Del was my Secret Santa, and I have only just read this.  I am so very sorry to read this.  another one of our Warriors loses their battle.  I am so sad,
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ESRD 22 years
  -PD for 18 months
  -Transplant 10 years
  -PD for 8 years
  -NxStage since October 2011
Healthy people may look upon me as weak because of my illness, but my illness has given me strength that they can't begin to imagine.

Always look on the bright side of life...
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