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Author Topic: Kidney/Pancreas transplant  (Read 31629 times)
Michelle2016
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« Reply #75 on: October 11, 2017, 12:02:29 PM »
Awesome news!
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Xplantdad
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Health is not valued till sickness comes. T.Fuller
« Reply #76 on: October 11, 2017, 01:01:35 PM »
Great to hear!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016 :)
Holly's Facebook Kidney  page: https://www.facebook.com/Hollys.transplantpage/

Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  :thumbup;
Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016
Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney!
PrimeTimer
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« Reply #77 on: October 11, 2017, 08:38:54 PM »
Will send prayers and well wishes north to you guys!  :canadaflag; 
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
smartcookie
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LMSW
« Reply #78 on: October 12, 2017, 07:12:16 AM »
 :yahoo;  Woohoo!! 
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I am a renal social worker.  I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
cassandra
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When all else fails run in circles, shout loudly
« Reply #79 on: October 14, 2017, 03:22:35 PM »
In my diary, great news,


Lots of luck, love and strength for the both of you, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
justagirl2325
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« Reply #80 on: November 09, 2017, 06:00:09 PM »
We are one day post transplant here. I'm doing so well the docs might release me tomorrow. My husband who I've only seen for an hour is apparently doing quite well too. The kidney picked up and and started working right away.
« Last Edit: November 09, 2017, 06:01:10 PM by justagirl2325 » Logged
cassandra
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When all else fails run in circles, shout loudly
« Reply #81 on: November 09, 2017, 09:34:05 PM »
Such fantastic news!!!! I'm so proud of you.
Wishing you both a speedy total recovery


Lots of love, luck and strength, Cas


   :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #82 on: November 09, 2017, 10:02:57 PM »
That's great to hear! Hope you both recover fast and live well! Just in time to ring in a new year for a new beginning! Best wishes! :bestwishes;  :canadaflag;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
iolaire
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« Reply #83 on: November 10, 2017, 04:09:47 AM »
Congratulations!
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
kickingandscreaming
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« Reply #84 on: November 10, 2017, 05:10:45 AM »
Wow! Congratulations!
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
kristina
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« Reply #85 on: November 10, 2017, 09:12:57 AM »
Great news!!! Congratulations!!! I send you both my best wishes & a speedy recovery & the best of luck for the future !!!
Kristina. :grouphug;
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
justagirl2325
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« Reply #86 on: November 11, 2017, 06:46:09 PM »
I was indeed discharged after a two night stay.  My worst part is severe shoulder pain.  Apparently all the gas they insert into me travels up to my shoulders.  Its being treated with T3s.

As for my hubby, we have a different measure of creatinine in Canada - normal is 70 to 110.  His was 877 before the transplant. It has dropped to 193 as of this morning.  Almost in the normal range already.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #87 on: November 12, 2017, 12:56:32 AM »
Fantastic news!!!! Thanx for the update.



Lots of luck, love and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Paul
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That's another fine TARDIS you got me into Stanley
« Reply #88 on: November 26, 2017, 06:16:37 PM »
Just discovered your story. Congratulations and good luck for the future. And if, in Canada, they remove the stent in the same way they remove it in Britain, I wish him strength with that.
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Whoever said "God does not make mistakes" has obviously never seen the complete bog up he made of my kidneys!
justagirl2325
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« Reply #89 on: December 11, 2017, 11:21:23 AM »
The doc gave him the green light and we are home :)

Back to work, get ready for xmas.

His kidney function is now in the normal range - creatinine is 108

We do go back on the 21st for yes that awful stent removal.

But we are both doing great.  He will be officially listed for a pancreas transplant in 2018. 

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iolaire
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« Reply #90 on: December 11, 2017, 11:41:13 AM »
Quote from: justagirl2325 on December 11, 2017, 11:21:23 AM
We do go back on the 21st for yes that awful stent removal.

The stent removal was not too bad for me and went quick. I did take an pain pill as recommended an hour before.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
justagirl2325
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« Reply #91 on: December 23, 2017, 09:16:10 AM »
He said it wasn't as bad he had feared, he made it worse in his mind.   He saw the transplant team the next day and everything still going well.   The plan is to get him relisted in about 3 months and his nurse said he would have a pancreas within 6 months of that or she'll come to our town and buy him dinner.  I liked her a lot.  She introduced herself as "Hi I'm Andrea and I'm here to make sure you die of old age."

on a side note, just before we left the dialysis machine was packed up and taken back to the hospital (we don't own them in Canada, not sure what the US is like).  It was surreal seeing it packed up and I actually cried...I think I had prepared myself to see that one day at the end of a much different process.  Of everything we've been through it was weird how hard that hit me.
« Last Edit: December 23, 2017, 09:20:28 AM by justagirl2325 » Logged
cassandra
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When all else fails run in circles, shout loudly
« Reply #92 on: December 23, 2017, 09:21:14 AM »



   :clap;  I agree Andrea sounds very likeable.


 Glad all went well, and keep us informed on upcoming pancreas transplant news.


Lots of love, luck and strength, Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
UkrainianTracksuit
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« Reply #93 on: February 17, 2018, 05:14:46 PM »
Hi, I know this is an older thread but I received a k/p at once as well. Both took off working right away however in early days still, with drug changes, I panic when my blood glucose gets near the higher limit. It is stressful. I figured out that number shows up when my Prednisone is peaking.

My wait was short and testing straight forward. It was the tx team that offered the opportunity otherwise I had planned only for a kidney.

My HBA1C was very well controlled previously but the team said it offered a better quality of life. So far, so good but very early in it.
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cassandra
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When all else fails run in circles, shout loudly
« Reply #94 on: February 17, 2018, 11:12:17 PM »
So good to hear from you AND with such fantastic news!!!


Enjoy an extra drink from me, and keep doing well girl!!!


   :flower;    :cheer:    :flower;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
UkrainianTracksuit
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« Reply #95 on: February 18, 2018, 05:52:29 AM »
Thanks! I will definitely have an extra drink for you as trying to make 2L a day is harder than I thought!  :stressed; I am glad to see some familiar people here! Hope you are well!
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justagirl2325
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« Reply #96 on: February 20, 2018, 09:53:45 AM »
That's pretty cool.  My guy should be relisted for the pancreas transplant by the end of May (six months after the kidney).  He's not looking forward to the second operation but it is a go.  I was worried for a bit as right after the kidney transplant he thought he would turn it down (due to the hard recovery from the kidney transplant) but he's recovered and back on board.  It's crazy to try and drink 2L a day all of a sudden :) congrats!
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justagirl2325
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« Reply #97 on: May 18, 2018, 08:19:02 AM »
He's officially listed for the pancreas transplant.  And the coordinator told us that all of her other type Os have 100% antibodies (his is only 3%) so he will be number 1....all he has to do is call them once he has lost 10 pounds.  For future reference for anyone considering this transplant the doc's want your stomach to be flat when you are lying on your back. 
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justagirl2325
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« Reply #98 on: September 18, 2018, 02:18:50 PM »
we had a bump in the road where he had to deal with his first acute kidney rejection that delayed this a bit but that was cleared up and last Thursday they called and said to be prepared he's close to top of list.  Well they called today so we are on our way to the hospital for the pancreas transplant.  Thoughts with the young man/woman/child's donor family at this time and very anxious.
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iolaire
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« Reply #99 on: September 18, 2018, 07:32:02 PM »
That’s good news. Best wishes for the transplant.
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017.

Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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