smartcookie
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« Reply #50 on: May 26, 2017, 06:41:28 AM » |
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YAY!!! I hope everything turns out great!  |
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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Xplantdad
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Health is not valued till sickness comes. T.Fuller
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« Reply #51 on: May 26, 2017, 01:27:44 PM » |
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Awesome!
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My name is Bruce and I am the caregiver for my daughter Holly who is 31 years old and received her kidney transplant on December 22, 2016  Holly's Facebook Kidney page: https://www.facebook.com/Hollys.transplantpage/Holly had a heart transplant at the age of 5 1/2 months in 1990. Heart is still doing GREAT!  Holly was on hemodialysis for 2.5 years-We did NXStage home hemo from January 2016 to December 22, 2016 Holly's best Christmas ever occurred on December 22, 2016 when a compassionate family in their time of grief gave Holly the ultimate gift...a kidney! |
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justagirl2325
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« Reply #52 on: June 01, 2017, 11:04:10 AM » |
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Thanks everyone, they said 6-8 weeks but got me in much earlier. I go June 12 now. Tissue typing, more blood work, chest x-ray, CT scan, donor education, and social work.
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smartcookie
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« Reply #53 on: June 01, 2017, 12:15:54 PM » |
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Yes!! Keep us updated! I know you are ready to be off that stupid machine!
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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willowtreewren
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« Reply #54 on: June 01, 2017, 05:45:46 PM » |
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This is wonderful news. I hope the long wait is over soon.  Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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coravh
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« Reply #55 on: June 09, 2017, 03:05:28 PM » |
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June 12 is just around the corner.....chin up!  |
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justagirl2325
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« Reply #56 on: June 13, 2017, 08:37:21 AM » |
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I had my apt yesterday and the worst part was the CT scan. They injected me with a dye that helped the machine see all of my blood vessels. It was an horrible experience. Glad it only lasted about half hour and that I am done my medical testing. So as long as they don't find anything wrong with me (which they won't) and as long as our blood doesn't fight each other on the cross matching test (which they better not  ) I go back to Toronto again in 3-4 weeks to meet with their nephrologist as the final step in the donor process. Then we pick a date. |
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smartcookie
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« Reply #57 on: June 13, 2017, 09:51:57 AM » |
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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cassandra
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« Reply #58 on: June 13, 2017, 11:33:16 AM » |
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Well done girl!!  Love, luck and strength, Cas |
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I started out with nothing and I still have most of it left
1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96
still on waitinglist, still ok I think
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Michelle2016
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« Reply #59 on: June 13, 2017, 08:01:24 PM » |
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Great.
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justagirl2325
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« Reply #60 on: July 06, 2017, 08:47:29 AM » |
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Going back to Toronto July 13 to meet the nephrologist and surgeon.
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PrimeTimer
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« Reply #61 on: July 06, 2017, 11:05:04 AM » |
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 Here's hoping for good things to happen for you guys in Toronto!
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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smartcookie
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« Reply #62 on: July 06, 2017, 02:41:29 PM » |
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Yeeessss!! I am so excited for you to get a kidney!!  |
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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justagirl2325
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« Reply #63 on: July 14, 2017, 07:18:56 AM » |
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So it's official. He only has 3% PRA and our cross match was negative (good). This means that I can donate my kidney to him. The nephrologist there (who called himself the final step, the "gatekeeper" ) said I was extremely healthy and it was one of the easiest reviews he's had in a long while.
I was unable to meet with the surgeon yesterday (he had an emergency) but it will just be a formality as he has to check the box that he explained the risks to me before hand.
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smartcookie
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« Reply #64 on: July 14, 2017, 07:45:46 AM » |
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Yes!!!!!!! I am so excited for both of you! I will keep you in my prayers and can't wait to hear when the date is!
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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kickingandscreaming
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« Reply #65 on: July 14, 2017, 07:47:55 AM » |
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The way is cleared. Congratulations.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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justagirl2325
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« Reply #66 on: July 24, 2017, 10:16:08 AM » |
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So apparently to get listed takes forever, but surgery yikes they want it done asap. They called and asked if we could do it August 21. That would be awesome but he wants to wait until November or December of this year. Have to admit, waiting makes me nervous.
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MooseMom
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« Reply #67 on: July 24, 2017, 02:28:19 PM » |
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Excellent news!!
Why does he want to wait until later in the year?
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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justagirl2325
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« Reply #68 on: July 25, 2017, 06:08:20 AM » |
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His daughter is getting married at the end of October and we know we will have to be 1,000 miles away from home for a month or so after the transplant as we are required to stay close to the hospital. So the wait is just in case.
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MooseMom
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« Reply #69 on: July 25, 2017, 02:17:32 PM » |
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His daughter is getting married at the end of October and we know we will have to be 1,000 miles away from home for a month or so after the transplant as we are required to stay close to the hospital. So the wait is just in case.
Good reason! |
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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smartcookie
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« Reply #70 on: July 26, 2017, 08:03:15 AM » |
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Wow! That wedding will be special. Not just celebrating marriage, but life and giving, as well! I am so happy for you both!
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I am a renal social worker. I am happy to help answer questions, but please talk to your clinic social worker for specifics on your particular situation.
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justagirl2325
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« Reply #71 on: October 11, 2017, 07:08:02 AM » |
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We have a date. Our surgery has been scheduled for November 8th.  |
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iolaire
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« Reply #72 on: October 11, 2017, 07:27:52 AM » |
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We have a date. Our surgery has been scheduled for November 8th.
Congratulations! |
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Transplant July 2017 from out of state deceased donor, waited three weeks the creatine to fall into expected range, dialysis December 2013 - July 2017. Well on dialysis I traveled a lot and posted about international trips in the Dialysis: Traveling Tips and Stories section.
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MooseMom
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« Reply #73 on: October 11, 2017, 07:51:42 AM » |
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That's less than a month away! How wonderful is this news! I'm thrilled to bits for you!
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
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kickingandscreaming
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« Reply #74 on: October 11, 2017, 11:26:32 AM » |
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Best of luck. Hope it goes well.
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Diagnosed with Stage 2 ESRD 2009
Pneumonia 11/15
Began Hemo 11/15 @6%
Began PD 1/16 (manual)
Began PD (Cycler) 5/16
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