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Author Topic: Spinning while on dialysis  (Read 7803 times)
Rerun
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Going through life tied to a chair!
« on: August 27, 2014, 02:20:22 PM »
My Social Worker asked me to post a question.

If you peddle or spin while on dialysis (like ride a bike only you are in the chair) what is the best brand to get?  The one we have no one likes. 

Brand, where to buy it, cost etc.

Thank you!     :thumbup; 
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Rerun
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Going through life tied to a chair!
« Reply #1 on: August 29, 2014, 10:36:30 PM »
 :bump;
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natnnnat
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« Reply #2 on: August 30, 2014, 08:36:14 PM »
Quote from: Rerun on August 27, 2014, 02:20:22 PM
If you peddle or spin while on dialysis (like ride a bike only you are in the chair) what is the best brand to get?  The one we have no one likes. 
Now my mind is blown.  And yet, what a good idea.  I am imagining one of those bicycles you lie down on... get it up off the floor so the front wheel spins freely, lose the back wheel entirely.  A job for a home-handyperson and a home dialysis set up perhaps?
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Rerun
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Going through life tied to a chair!
« Reply #3 on: September 01, 2014, 08:54:44 AM »
Our center has one but I've only seen one person use it.  Once he was hooked up, he put his feet down and sat there and peddled. 

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talker
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« Reply #4 on: September 01, 2014, 11:09:58 AM »
Don't turn or twist the arm with the fistula while on dialysis .
Stay still, don't move or even talk when the blood pressure cuff is in action.
Unclench the fist of the arm that the needles are in.
Pow, the dialysis tech, uncrosses my (at the ankles) crossed feet.

Did question all of the above.                  :boxing;
All were / had plausible answers.     ::)
All did make sense.             :bow;

                       BUT   :oops;
how can one do the 'spinning' as mentioned in this thread, and comply with the request 'NOT' to do, as in my opening statements!         :Kit n Stik;

What am I overlooking in this event?   :secret;

Truth of the matter is:..................
This should have been in the original spinning thread, as this thread is about type of or brand, sorry.
« Last Edit: September 01, 2014, 11:17:56 AM by talker » Logged
Be Well

"Wabi-sabi nurtures the authentic by acknowledging three simple realities: nothing lasts, nothing is finished, and nothing is perfect."

Don't ever give up hope, expect a miracle, pray as if you were going to die the next moment in time, but live life as if you were going to live forever."

A wise man once said, "Yesterday's the past, tomorrow's the future, but today is a gift. That's why it's called the present."
Zach
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« Reply #5 on: September 01, 2014, 11:23:25 AM »
There has been research on cycling while on hemodialysis before I began (1982).
However ignorance at the center staff level is not unexpected.

Exercise Training During Hemodialysis Improves Dialysis Efficacy and Physical Performance
http://www.albertahealthservices.ca/ps-rs-sarp-gen-exercise-efficacy.pdf

Aerobic Exercise Improves Physical Capacity in Patients under Chronic Hemodialysis
http://www.scielo.br/pdf/abc/v94n6/en_aop03910.pdf

http://www.scsepf.org/doc/260704/paper%204.pdf

http://www.guysandstthomas.nhs.uk/resources/patient-information/therapies/physiotherapy/Exercising-during-dialysis.pdf

http://www.kidneyhealth.ca/wp/wp-content/uploads/MRP_RECCBROCHURE_FINAL.pdf

http://tdn.com/news/local/dialysis-patients-improve-energy-treatment-through-cycling/article_90a03ce2-1aa0-11df-ac61-001cc4c03286.html

http://www.sciencedaily.com/releases/2006/05/060515100138.htm
« Last Edit: September 01, 2014, 11:53:19 AM by Zach » Logged
Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
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Jean
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« Reply #6 on: September 01, 2014, 12:22:54 PM »
Looks like it could be fun!!!
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One day at a time, thats all I can do.
Rerun
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Going through life tied to a chair!
« Reply #7 on: September 01, 2014, 09:22:02 PM »
Thank you Zach   :-*

I take it no one actually does this at dialysis??
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Treasure
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« Reply #8 on: December 03, 2014, 10:13:13 AM »
Rerun, I used to cycle during dialysis, pretty close to three hours. This was at Satellite centers in the SF and Monterey Bay Areas. I asked my current Fresenius center near Austin if they would get a cycle for me to use, and they dragged some sorry excuse for a cycle out of storage. I told them, before hand, what type of cycle works best with a dialysis chair, but the didn't listen. I even offered to buy and donate an appropriate cycle to the center. But they wanted me to use the ancient piece of crap they had. I did a couple of times to show them why what they had wouldn't work, and ended up blowing my knee out on the damned thing. :thumbdown;
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Rerun
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Going through life tied to a chair!
« Reply #9 on: December 04, 2014, 06:31:52 AM »
Quote from: Treasure on December 03, 2014, 10:13:13 AM
Rerun, I used to cycle during dialysis, pretty close to three hours. This was at Satellite centers in the SF and Monterey Bay Areas. I asked my current Fresenius center near Austin if they would get a cycle for me to use, and they dragged some sorry excuse for a cycle out of storage. I told them, before hand, what type of cycle works best with a dialysis chair, but the didn't listen. I even offered to buy and donate an appropriate cycle to the center. But they wanted me to use the ancient piece of crap they had. I did a couple of times to show them why what they had wouldn't work, and ended up blowing my knee out on the damned thing. :thumbdown;

What brand do you recommend?
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Michael Murphy
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« Reply #10 on: December 04, 2014, 07:35:22 AM »
What scares me is the companies attaching a generator and expecting us to power the dialysis machine.  Added to talkers list of admonitions would be pedal faster your clearance is too low.  I am attached to the system for too bloody long as it is.  If I cane sleep for two hours it cuts my 4 hour season in half.
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Rerun
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Going through life tied to a chair!
« Reply #11 on: December 05, 2014, 10:08:20 AM »
Quote from: Michael Murphy on December 04, 2014, 07:35:22 AM
What scares me is the companies attaching a generator and expecting us to power the dialysis machine.  Added to talkers list of admonitions would be pedal faster your clearance is too low.  I am attached to the system for too bloody long as it is.  If I cane sleep for two hours it cuts my 4 hour season in half.

   :rofl;
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PrimeTimer
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« Reply #12 on: December 05, 2014, 07:32:20 PM »
Quote from: Michael Murphy on December 04, 2014, 07:35:22 AM
What scares me is the companies attaching a generator and expecting us to power the dialysis machine.  Added to talkers list of admonitions would be pedal faster your clearance is too low.  I am attached to the system for too bloody long as it is.  If I cane sleep for two hours it cuts my 4 hour season in half.
In no way do I want to inject politics into this but that sounds like Agenda 21 to me. Next will come the lemming hamster wheels.   
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
cassandra
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« Reply #13 on: December 08, 2014, 10:10:55 AM »


       :rofl;
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
PrimeTimer
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« Reply #14 on: December 08, 2014, 11:56:00 PM »
Quote from: cassandra on December 08, 2014, 10:10:55 AM


       :rofl;
THAT'S rolling on the floor laughing. They said SPINNING!  :clap;
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Husband had ESRD with Type I Diabetes -Insulin Dependent.
I was his care-partner for home hemodialysis using Nxstage December 2013-July 2016.
He went back to doing in-center July 2016.
After more than 150 days of being hospitalized with complications from Diabetes, my beloved husband's heart stopped and he passed away 06-08-21. He was only 63.
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