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Author Topic: We have a date!  (Read 2588 times)
Angiepkd
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« on: January 14, 2014, 08:44:52 PM »
I am happy to say that my hubby and I are scheduled for transplant on February 18th. I am beyond excited!  Unfortunately, I am not allowed to keep my catheter and had to use my graft today. It was not pleasant. Tomorrow I get to try to self-cannulate.  I am a nervous wreck about it. Nothing ever comes easy for me, but I was hoping these last 5 weeks would be uneventful. Guess we will see how it goes tomorrow. The good news is I only have 25 more treatments (not that I am counting)!  I am going to stop being a baby about the arm and be thankful for this wonderful gift. I know I am blessed to have only done 1 year of D.  Hope my next post is asking to be put on the list of people who have received transplants! Thank you all for the help and support over this last year. You have all been so kind to me!  I truly appreciate it!   :bow;
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PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #1 on: January 15, 2014, 03:00:01 AM »
 :waving; Congrats!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
nursey66
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« Reply #2 on: January 15, 2014, 04:43:18 AM »
I feel your excitement !!! My hubby has an appt. with a specialist today, a stress test next week, then a hernia repair, then if he gets through those hurdles, the transplant will be scheduled !! All of the appts. and surgery in a large transplant hospital 100 miles away from home. Since we live in Minnesota, I am hoping for good weather, as well. Like I said, I feel your excitement and this is why. It is such a long road to get to this point. So happy for you !!!!
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Angiepkd
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« Reply #3 on: January 15, 2014, 07:31:29 AM »
Quote from: nursey66 on January 15, 2014, 04:43:18 AM
I feel your excitement !!! My hubby has an appt. with a specialist today, a stress test next week, then a hernia repair, then if he gets through those hurdles, the transplant will be scheduled !! All of the appts. and surgery in a large transplant hospital 100 miles away from home. Since we live in Minnesota, I am hoping for good weather, as well. Like I said, I feel your excitement and this is why. It is such a long road to get to this point. So happy for you !!!!

Hang in there and never give up. My husband had to lose 40 pounds, and repeat multiple tests over 6 months before finally being accepted to donate. I was ready to quit, but he kept on trying. My thoughts and prayers are with you. Hurray for awesome husbands! Keep us posted on your progress!
Logged
PKD diagnosis at 17
Cancer May 2011, surgery and no further treatment but placed on 2 year wait for transplant
October 2011 first fistula in left wrist
April 2012 second fistula in upper arm, disconnect of wrist
January 2013, stage 5 ESRD
March 2013 training with NxStage home hemo
April 2013 at home with NxStage
April 2013 fistula revision to reduce flow
May 2013 advised to have double nephrectomy, liver cyst ablation and hernia repair. Awaiting insurance approval to begin transplant testing. Surgery in June.
June 2013 bilateral nephrectomy.
August 2013 finishing testing for transplant, 4 potential donors being tissue typed.
January 2014 husband approved to donate kidney for me
March 4th 2014 received transplant from awesome hubby. Named the new bean FK (fat kidney) lol!  So far we are doing great!
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