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Author Topic: Chris is in the hospital  (Read 41589 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: July 26, 2013, 02:17:52 PM »

Just spoke with Chris. Still in hospital and looks like they can't fix the fistula, too much thrombosis. He's having some other tests tomorrow and may be in the hospital all weekend.
Hang in there Chris!!  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Darthvadar
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« Reply #1 on: July 26, 2013, 03:35:54 PM »

Poor Chris!...

Thinking of you, my friend....

Love....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
paris
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« Reply #2 on: July 26, 2013, 05:56:32 PM »

Healing prayers for Chris.  He has had to deal with so many problems.  I bet he is missing Whitley.  She is the best thing that has happened to him.    Feel better,Chris -- thinking of you all the time.    :cuddle;
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jbeany
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Cattitude

« Reply #3 on: July 26, 2013, 06:45:12 PM »

 :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.

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« Reply #4 on: July 27, 2013, 01:14:20 AM »

Thinking of you chris and hope you feel better soon.    :flower;
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cassandra
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When all else fails run in circles, shout loudly

« Reply #5 on: July 27, 2013, 09:09:04 AM »

I hope you feel better soon Chris

          :flower;



Lots of love, and strength Cas
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Big E
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« Reply #6 on: July 27, 2013, 10:06:51 AM »

Get well soon, Chris. We want to see you in Vegas!
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
Joe
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« Reply #7 on: July 27, 2013, 06:26:30 PM »

Chris, hope you're out of there soon.
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Live simply. Love generously. Care deeply. Speak kindly.
Leave the rest to God...
boswife
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us and fam easter 2013

« Reply #8 on: July 27, 2013, 06:39:51 PM »

wishing you well and for good things to come your way soon.. my  :pray; are with you... hope to hear some good news soon  :grouphug;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MooseMom
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« Reply #9 on: July 28, 2013, 08:41:03 PM »

May I ask if Chris has said exactly why he is in the hospital?  Is he going to be OK?  Best wishes, Chris!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #10 on: July 28, 2013, 08:59:49 PM »

this is not good.. and who is looking after poor Whitley?!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
galvo
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« Reply #11 on: July 28, 2013, 11:26:27 PM »

Best wishes to you, Chris!
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Galvo
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Going through life tied to a chair!

« Reply #12 on: July 29, 2013, 11:07:59 AM »

Chris, hope you are doing better today.

             :cuddle;
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renalwife
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« Reply #13 on: July 29, 2013, 09:17:25 PM »

Best wishes ro you, Chris,  Prayers for the doctors and nurses to take good care of you.  Get well soon.
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Chris
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« Reply #14 on: July 29, 2013, 11:14:46 PM »

Due to Hospital concerns with insurance, confusion between docs, nurses, and lack of communication the hospital told me I was going home, so I arranged to be picked up. I was/ still am unsteady walking and get dizzy, so the nurse did a blood pressure test sitting and standing. There was a difference, but still told I was going home. My ride shows and now the nurse can not get a hold of my doc to get release signature. She called three times and on the third attempt his partner called back. He was going to keep me but the nurse persuaded him to give the ok for me to go home. I wasn't ready, the thearapist didn't think I was ready, but hospital manager sure was over concerns Medicare would not approve payment. So not p.t. for home care or out patient ordered, which will be brought up when I call for follow up.
 
All this started due to my graft clotting suddenly. It started out by waking up with minimal pain and I shrugged it off and got my day going. As the day was going, it was becoming more prominent. After having my bi weekly labs my mom noticed my arm was swollen, so not knowing who to call I called my local neph while I was in the hospital parking lot hoping to save a trip. Since it was lunch time, figured might as well get a couple things done in the area. Well tired of waiting we went home and then the back and forth call backs between two different nurses at my docs office (I miss my old nurse who knew her stuff) and told to take temp while they wait to hear back from the doctor and to describe the color of my arm.  Temp was 99.2 and doctor told me to go to the ER ASAP and to tell them she sent me there. I started feeling worse and pain was even more. Get to the ER doc take one look, orders scans, blood work, and pain killers before scans are done.. Never take pain killers on an empty stomach! I was in sleep mode now and once back from the scan they get an IV going, start antibiotic for infection and then proceeded to give me morphine for who knows why. I ask what they  were pushing, but it was to late as they pushed the morphine. Now I feel worse! Not given anything to drink or eat. When I get up to my hospital room and asked how I was feeling, I told them and why. They then asked what flavor of microwave dinner I would like and I'm thinking what happened to the usual cold turkey sandwich, chips, cookie, and juice. After that I was out. The next day they were still looking for a surgeon to get involved, proceeded by disagreements on what to do. My two doctors (pcp & neph) urged surgery to remove the darn thing and I was onboard with that, but surgeon thought otherwise. "Your not using it, why do anything" he said and I'm thinking thank's for calming my fears you a&$hat! I liked having a back upplan, transplants do not last forever you blank blank! And for all that time I was not to get out of bed while treating infection, pain, then stomach issues. Stomach issues requirred a endoscope. On to many meds, so when they asked me if I feel sleepy yet and I said no, not yet clear as day they had to give me more. Well they found the problem, but really didn't need a test for that if they would just listen and let me just eat like I do at home and not 3 meals a day on their schedule. Their schedule made my blood sugars get out of wack and drop every morning to cause problems.
 
So I get home and Whitley just wagged her tail for a bit and then just laid beside me, later the mae cat sat by my lap, and finally both Whitley and Bailey laid in my room after I petted him. I just didn't want his 89 pounds laying on me due to bone problems, which is another complicated issue that meds are not helping.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #15 on: July 30, 2013, 02:12:06 AM »

So glad you are home and can have some pet therapy! Sounds like that will do you more good than the hospital, poor guy.
So did they ever do anything to fix your arm?








« Last Edit: July 30, 2013, 11:54:54 PM by okarol » Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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« Reply #16 on: July 30, 2013, 01:07:34 PM »

Doesn't sound fun, Chris. At least it's over, huh? Were you back at NMH, or was this a local hospital?

IHDers, what is with so many of you ending up in hospital as of late? And cut it out! A person can only take so much worry!  :grouphug;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

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MooseMom
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« Reply #17 on: July 30, 2013, 02:06:51 PM »

Well, this story is just too full of weirdness.

I'm glad you're home, though!  Like Okarol, I'd like to know whatever happened with your arm.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
paris
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« Reply #18 on: July 30, 2013, 03:04:15 PM »

What a mess!  How does the arm feel?  Is it still hurting?  Thinking of you.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Chris
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« Reply #19 on: July 30, 2013, 10:57:28 PM »

Okarol, no nothing was done with my arm.
Cariad, this was at my local hospital, but will p/u labs and doctor notes  to take to Northwester.
 
As far as pet therapy it is hard to take Whitley out without getting dizzy or lightheaded. I was going to call the doctor Wednesday because I thought the office was closed on Tuesday's and I was wrong. I slept the day away after taking Whitley out and she slept by me as I laid on the floor. Was awoken by her when she licked me on my lips followed by Bailey. He actually acted like a normal non hyperactive dog and laid calmly next to me. After he left Patches came in to sit next to me on my bed.
 
Even sitting at the computer is causing a little lightheadedness.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Big E
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« Reply #20 on: July 31, 2013, 01:56:38 PM »

Hi Chris! At least you're well enough to post, and that's a relief. I hope you feel better and that the graft issue will resolve by itself.
 :cuddle;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
MooseMom
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« Reply #21 on: July 31, 2013, 02:59:39 PM »

I'm really sorry, but I'm confused.  I've reread this whole thread, and what I am understanding is that you went into the hospital because your graft had clotted.  As various docs were faffing about, your blood sugar got all out of whack due to all of the meds and tests and general non-adherence to your schedule, and all of this became one big classic cluster****.  Is that right?  So now you have to be at home to recover from being in the hospital?  No surprise there.

I hope you are feeling better soon. :cuddle;
Logged

"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #22 on: July 31, 2013, 11:10:28 PM »

I'm really sorry, but I'm confused.  I've reread this whole thread, and what I am understanding is that you went into the hospital because your graft had clotted.  As various docs were faffing about, your blood sugar got all out of whack due to all of the meds and tests and general non-adherence to your schedule, and all of this became one big classic cluster****.  Is that right?  So now you have to be at home to recover from being in the hospital?  No surprise there.

I hope you are feeling better soon. :cuddle;

Pretty much.
I am still getting dizzy and lightheaded around the house and taking Whitley out, so I remembered to email one of my doctors at Northwestern to get the ball rolling. You know your not right when even the hyper dog still is not hyper when he comes upstairs to come see you and just sits there or lays there on the floor next to you. Laying on the floor is so much better for me than laying on a bed right now.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #23 on: August 03, 2013, 12:06:07 AM »

Well got a message from Northwestern, but did not check my app on the phone for messages till I got on the pc a few minutes ago and they want me to come in Monday in the afternoon with any paperwork I have from the hospital. They will do some test if I can get squeezed in and may admit me. So Whitley maybe staying with me through the night if they do. I hate carrying a heavy backpack in the city.
Logged

Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly

« Reply #24 on: August 03, 2013, 03:25:11 PM »

I do hope they can sort you out there Chris.
And forget the backpack, take a shopping trolley (the ones you pull behind you)

Good luck for Monday , and enjoy a 'cuddly' weekend.

Lots of love Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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