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Author Topic: Chris is in the hospital  (Read 39764 times)
natnnnat
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« Reply #25 on: August 03, 2013, 05:52:42 PM »
Are you eating properly now Chris?  Why all this lightheadedness and lying on the floor  ???
Hopefully you aren't admitted again, is that the right way to hope?  I know Gregory will usually prefer to stay out of hospital but it depends on his state of health.
Big love  :cuddle;
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
natnnnat
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« Reply #26 on: August 03, 2013, 07:16:31 PM »
Quote from: natnnnat on August 03, 2013, 05:52:42 PM
Are you eating properly now Chris?
I guess that's a dumb questions, my apologies.  I'm worried about you being so lightheaded all the time though.  ???
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Chris
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« Reply #27 on: August 03, 2013, 11:12:54 PM »
Quote from: natnnnat on August 03, 2013, 07:16:31 PM
Quote from: natnnnat on August 03, 2013, 05:52:42 PM
Are you eating properly now Chris?
I guess that's a dumb questions, my apologies.  I'm worried about you being so lightheaded all the time though.  ???

No not dumb, but it is more like am I eating the way I am use to natnnnat.
 
I am drinking 64 oz bottles of juice along with other fluids, but stopped drinking  Ensure products, but still getting dizzy. I attempted to do some house cleaning on one floor only, but had to sit or lay down. Laid down outside with both dogs for a bit to.
 
Monday is not coming by fast enough.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
billybags
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« Reply #28 on: August 04, 2013, 02:46:07 AM »
Chris, I hope things go well for you to-morrow. Poor thing you sound like you are going through alot. Have you some one who can go with you to hospital?
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Chris
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« Reply #29 on: August 04, 2013, 01:55:36 PM »
Cass, I have to look for one of those shopping trollies online, I was talking to my mom about how they use to sell them in the grocery stores a few days ago because it was mentioned on a facebook page for guide dog users. I do not see them around where I am or taken to now days.
 
billybags, I prettymuch do everything on my own. My dad will not go, but that is what I like anyway. He doesn't like sitting around. My mom will go to local doctors since she is driving me, but will not go downtown with me, yet complains she hasn't been there in years :urcrazy; ??? , It's not like she has to sit there and wait, there are plenty of things to walk to in the city, but she will not  take the bus which would get her to more places. :banghead;  This from a person who use to work downtown all the time!
 
In the end it is better for me and relaxing to be on my own. When I am feeling bad, I just push myself to get there. I have done that many times and have been admitteds after seeing the doc or transplant clinic.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Chris
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« Reply #30 on: August 22, 2013, 01:19:23 PM »
Went to doc in city for follow up and concerns Monday. Went for labs and back to office for results, collapsed on doc, sent down to ER at 2:30 pm, seen in ER 12 hrs later (long story), transferred to hospital room Tuesday after 7 am, Stress test done and cancelled due to bp, anemic more than usual, some other lab level extremely low and they are looking for initial cause of that. Nonstop hiccups since lunch Wednesday making things worse, CT scan today, stress test to be redone, not going home soon and this is the short short version!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Big E
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« Reply #31 on: August 22, 2013, 02:53:05 PM »
I'm so sorry to hear you're still not feeling well, Chris. It's really been a tough year for a lot of IHDers. I hope you'll be better again soon.

 :cuddle;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
galvo
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« Reply #32 on: August 22, 2013, 03:28:39 PM »
 Sorry to hear this, Chris. Rotten news! I hope the situation improves rapidly!!
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Galvo
natnnnat
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« Reply #33 on: August 22, 2013, 06:02:59 PM »
More of this falling down / having to lie down business.  I hope they can work out what is going on.
Quote
My dad will not go, but that is what I like anyway. He doesn't like sitting around.
Reminds me of my father in law!  You take him somewhere, as soon as we get there he wants to come home.  And he gets annoyed with crowds, all the people in the way.  Pretty funny considering he doesn't move that quickly himself.   When we go to visit Gregory if he's in hospital, Don always wants to come, but doesn't want to stay, and its a long drive home.  I make him bring his crossword puzzle book and a novel.   ;)
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
MooseMom
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« Reply #34 on: August 22, 2013, 08:39:41 PM »
I'm sorry to hear that things haven't improved yet.  Does anyone have any idea what's going on?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #35 on: August 23, 2013, 01:14:38 AM »
The docs are taking one problem at a time, but new ones pop up. BP has stayed in 150's all day Thursday and at 1:50 am it was 173 something and dizziness has not subsided. I wonder if bp and dizziness correlate when bp is elevated. My biggest fear right now is with my kidney and constant high bp. Vision is worse off to even higher zoom on iPhone not helping, still blurry.


This is the concerned/ worried I have been since by transplant 13 yrs ago. I feel like I am going to loose the kidney or both kidney and pancreas due to this.


Still gonna try to be a smartass though if I can be in the mood to do so.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Big E
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« Reply #36 on: August 23, 2013, 06:26:16 AM »
Chris,   :grouphug;
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PKD diagnosed June 1996
Started in-center hemodialysis May 2010
okarol
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« Reply #37 on: August 23, 2013, 10:15:52 AM »
 :waving; Hey Chris, Hope you get some answers soon, although it sounds like a challenge. Love ya my friend!  :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willowtreewren
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My two beautifull granddaughters

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« Reply #38 on: August 23, 2013, 10:24:48 AM »
 :grouphug;  Chris, try not to succumb to the worry. That doesn't help!  :cuddle; I know, I know, easier said than done.

I will be thinking of you and pulling for everything to be sorted out!

 :grouphug;

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
billybags
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« Reply #39 on: August 23, 2013, 11:35:00 AM »
Ok Chris , what are you messing about at, I thought you would be out of the hospital by now. Have they not figgered out what is going on yet. Try not to be negative about your transplant failing. They will get you sorted out. I am thinking about you.
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Chris
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« Reply #40 on: August 23, 2013, 02:41:31 PM »
Morning did not start well. Shift change and me waking up set off medical scare. Severe nausea, dizziness start after new nurse comes to introduce herself. She comes back quick after call light is pressed and has my zofran, then severe chills and shakes begin, doctor called in asap, temp & bp checked, blood cultures ordered, urine sample ordered, IV fluids started. BP 179, temp 98.7 after being 96.3 all day Thursday, so doc suspects infection or med reaction possibly from prednisone. Two hours later a urine sample finally could be collected, bp down to 145, so rest is all I can do. Worn out due to shakes, nausea, and breathing, but have not seen 1 doctor since this began. Feels like they went home for the weekend already and it is already past 4:30 pm!
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
willowtreewren
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My two beautifull granddaughters

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« Reply #41 on: August 23, 2013, 05:46:19 PM »
Awwww, Chris. Man, you need a break.

 :grouphug;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
natnnnat
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« Reply #42 on: August 23, 2013, 10:44:18 PM »
I was thinking of you today and mentioned you to Gregory, about you were worried for your kidney/pancreas.  He says have faith in your kidney, it will pull you through.  I say, ANTIBIOTICS
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Chris
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Posts: 9219


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« Reply #43 on: August 25, 2013, 04:45:11 AM »
Quote from: natnnnat on August 23, 2013, 10:44:18 PM
I was thinking of you today and mentioned you to Gregory, about you were worried for your kidney/pancreas.  He says have faith in your kidney, it will pull you through.  I say, ANTIBIOTICS
I have had several issues with kidney function due to various health issues in the hospital and within the last year a half issues with pancreas numbers. I do not know how much more they can take, thus my concern.


Another concern they have is me not having a bowel movement, no feeling to need to go, I have eaten at times, but 6 days without anything has added more to their plate of things to check into.
Haven't gotten up yet so I am hoping that I do not have a third day of bizarre morning medical issues to make nurses run for help.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
natnnnat
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Posts: 1281


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« Reply #44 on: August 25, 2013, 05:06:53 AM »
Be careful Chris.  I'll keep checking in for updates.
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
willowtreewren
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Posts: 6928


My two beautifull granddaughters

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« Reply #45 on: August 25, 2013, 08:17:52 AM »
From FB I see that Chris is having another bad day.  :thumbdown;

This is very worrisome.

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Chris
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« Reply #46 on: August 27, 2013, 08:14:02 PM »
A lot has and hasn't happened. More scans ordered and still waiting for MRI. Was told MRI Dept is having problems. Doesn't look like I am getting out this week.


Darn iv fluid push increased
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #47 on: August 27, 2013, 09:56:56 PM »
Hey Chris! Are you in pain or your labs are off? Are you eating? Any luck with a bm? Poor guy, I hate that you're in the hospital for so long!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cassandra
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When all else fails run in circles, shout loudly
« Reply #48 on: August 28, 2013, 10:56:32 AM »
I'll be thinking of you Chris, lots of strength, and love, and hugs. Cas

    :grouphug;
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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« Reply #49 on: August 29, 2013, 10:47:01 AM »
Sorry, updating on FB is a lot easier to do than here using a phone. If someone wants to copy and paste is fine.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
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