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Author Topic: Chris is in the hospital  (Read 41582 times)
Chris
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« Reply #75 on: September 17, 2013, 09:57:27 PM »
Quote from: MooseMom on September 17, 2013, 09:41:09 PM
How did your PT go?  Have you had lab results back yet?
I am sore and more worn out. It is painful to do the exercises and shows how bad I have gotten. My left knee seems to have fared the worst. It is like I had no knee surgery at all with the functionality and pain scale it has.
 
 I will pick lab results Thursday before I go to therapy because I willneed them Friday for a doctors appointment.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Shaks24
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« Reply #76 on: September 23, 2013, 03:45:10 PM »
Hope you get better soon Chris.
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Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
MooseMom
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« Reply #77 on: September 23, 2013, 04:40:39 PM »
How were your labs, Chris?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Chris
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« Reply #78 on: September 23, 2013, 10:40:34 PM »
Quote from: MooseMom on September 23, 2013, 04:40:39 PM
How were your labs, Chris?

I do not know, I never looked at them after picking them up. I picked them up after p.t. and fell asleep. Went to a doctors appointment, gave him the results, and he ordered more labs. I will do my monthly labs again next week.
 
P.T. just wears me out and makes me more sore, liver area is uncoimfortable still.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #79 on: September 26, 2013, 11:15:08 PM »
Maybe they can fax you a copy of the labs.
Hope you're improving my friend! Miss seeing you posting!  :waving;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #80 on: October 06, 2013, 11:55:02 PM »
Had different labs taken and depending on those results I may have a liver biopsy performed.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
natnnnat
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« Reply #81 on: October 07, 2013, 04:30:40 AM »
Checked into IHD to see how you are Chris.  Not so good I see.   :cuddle;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
natnnnat
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« Reply #82 on: October 07, 2013, 04:32:13 AM »
More hugs:   :cuddle; :grouphug; :cuddle; 
Hope you are feeling less bleah just now.
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
cassandra
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When all else fails run in circles, shout loudly
« Reply #83 on: October 07, 2013, 11:43:48 AM »
Chris how u doing? Any results?
Thinking of you, love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Chris
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« Reply #84 on: October 11, 2013, 12:27:25 AM »
I have had two seperate lab draws for various kinds of test to determine if a liver biopsy should be done and both times the hospital lab has messed up. This time when I get the orders I will go to my local hospital.
 
A lot of stress around here and I need a vacation!
 
« Last Edit: October 11, 2013, 12:41:14 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Shaks24
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Posts: 923
« Reply #85 on: October 11, 2013, 12:33:09 AM »
Hang tough Chris.
Logged
Congestive heart failure 2011
Currently about 19% Kidney Function
September 11, 2013 PD Catheter and Fistula Surgery
September 27, 2013 Started PD
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly
« Reply #86 on: October 12, 2013, 06:17:33 AM »

   :rant;   Stay  strong!!

  Love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #87 on: October 12, 2013, 04:36:29 PM »
Quote from: Chris on October 11, 2013, 12:27:25 AM
I have had two seperate lab draws for various kinds of test to determine if a liver biopsy should be done and both times the hospital lab has messed up. This time when I get the orders I will go to my local hospital.
 
A lot of stress around here and I need a vacation!

 :banghead; I don't understand how they could screw up TWICE!
Best wishes that you get answers soon.  :cuddle;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MaryJoe
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« Reply #88 on: October 13, 2013, 04:48:49 PM »
I hope all this waiting for answers is over soon. Wish you could come vacation with us in Vegas next weekend.   :'(  I was looking forward to meeting you.
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
willowtreewren
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My two beautifull granddaughters

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« Reply #89 on: October 13, 2013, 05:16:23 PM »
Just awful, Chris, I'm sure you feel like this;

 :Kit n Stik;

Aleta
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
natnnnat
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« Reply #90 on: October 30, 2013, 04:30:08 PM »
Any news from Chris?
Logged
Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
kristina
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« Reply #91 on: November 10, 2013, 03:59:52 AM »
Any news from Chris ?
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
willowtreewren
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My two beautifull granddaughters

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« Reply #92 on: November 10, 2013, 05:28:14 AM »
Chris is posting on Facebook and seems to be all right. He is logging in lots of walking with Whitley.

 :2thumbsup;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
cassandra
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #93 on: November 10, 2013, 01:34:42 PM »
Thanx for your update
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
kristina
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Posts: 5530
« Reply #94 on: November 11, 2013, 12:59:35 AM »
Quote from: willowtreewren on November 10, 2013, 05:28:14 AM
Chris is posting on Facebook and seems to be all right. He is logging in lots of walking with Whitley.

 :2thumbsup;

Thanks for the update, it is very much appreciated.
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Chris
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« Reply #95 on: November 11, 2013, 07:42:07 PM »
I have no updates really. I am still getting lab work with each medication change. Some days my liver feels swollen, but it's not consistent. I haven't had any alcohol since early this year and I would like a beer on my birthday, but I am not going to push my luck. Physical therapy ended last week and I have worked up to walking Whitley to 3.77 miles according to my gps dog walk app. I was in pain halfway through and after I ended. I still get worn out with activity and nap for long periods of time which is the biggest aggravation.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kristina
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Posts: 5530
« Reply #96 on: November 17, 2013, 01:17:36 AM »
Hello Chris,

I do hope you feel better soon
and I send you my best wishes and kind regards,

Kristina  :waving;
Logged
Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
Sluff
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« Reply #97 on: November 18, 2013, 01:54:17 PM »
Chris, you need to ride Whitley. It would make for easier walks for you.  :P
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Chris
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« Reply #98 on: December 21, 2013, 11:26:32 PM »
Went to my transplant clinic and I was told there is not much they can do due to all the medical complications I have. So even though they have lowered my liver levels, they do not want to stop any of the medications that maybe causing it. My liver has to be monitored more frequently. I have been switched to a different bone infusion med (side effects suck!), other specialist have to monitor respective levels they deal with, and a different arthritis med maybe used after they figure out what is going on with my ankles.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
cassandra
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*****
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Gender: Female
Posts: 4974


When all else fails run in circles, shout loudly
« Reply #99 on: December 22, 2013, 03:03:31 AM »
Sounds like the 'rock, and the hard place' scenario . But I wish you all the best in general, and a Great Chrismas, and an extra stroke for Whitley!

Lots of love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
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