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Author Topic: 2013 IHD "Let's get together in The UK!"  (Read 91940 times)
Sugarlump
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10 years on and off dialysis

« Reply #175 on: April 15, 2014, 11:33:42 AM »

I have fluffy red hair and funky green glasses!!!!  8)

PS. One portion of crispy squid duly noted!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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10 years on and off dialysis

« Reply #176 on: April 16, 2014, 10:29:54 AM »

I have had confirmation back from Bills that they have our orders (Yay) and etickets for Punting and Stud Tour.
All we need now is to arrive next Friday/Saturday and have fun!!!
If anyone wants my mobile number please pm me.
NINE DAYS to go  :bandance;  :bandance;  :bandance;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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10 years on and off dialysis

« Reply #177 on: April 20, 2014, 02:45:28 AM »

WHOA  :bandance; :bandance; :bandance; Only 5 days to go!
I have some very special news but am saving it for when we meet  ;D
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cariad
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What's past is prologue

« Reply #178 on: April 20, 2014, 11:54:26 AM »

WHOA  :bandance; :bandance; :bandance; Only 5 days to go!
I have some very special news but am saving it for when we meet  ;D
Oooooh, I don't wait for 'special news' easily! You'll have to forgive me if I skip the pleasantries and go straight to 'Hi, it's cariad, now spill it!' ;D You're not going to make us all wait until we're assembled at Bills, are you?

Cannot wait to hear what it is!  :flower;
Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
RichardMEL
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« Reply #179 on: April 21, 2014, 04:38:24 AM »

I'm not pregnant - just sayin'

yeah it's getting a lot closer now. I'm flying out in about 30 hours from now so yeah it's all getting much closer.

will be great to meet everyone. it will be a lot of fun.

but as a reminder to those thinking I recognise people... i'm blind... and that's before we get to the pub!!! lol
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Poppylicious
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« Reply #180 on: April 21, 2014, 08:54:09 AM »

I have some very special news but am saving it for when we meet  ;D

Is this the news you spilled the beans about on Fb?!

 ;D
Logged

- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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10 years on and off dialysis

« Reply #181 on: April 21, 2014, 09:12:09 AM »

I have some very special news but am saving it for when we meet  ;D

Is this the news you spilled the beans about on Fb?!

 ;D

SSSSShhhhhhhush  ::)
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
KarenInWA
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« Reply #182 on: April 21, 2014, 05:55:09 PM »

I have British pounds! I have my Oyster card!!! Now I just need to tidy up my house and pack, and I'll be ready to go!!!! Tomorrow I have a 90 minute massage after work, Wednesday morning I've scheduled a chiropractic adjustment, and I take off from Seattle late in the afternoon! I'm finally flying abroad!!!! YIPEEEEEEEE!!!!!!  :bandance;  :bandance;  :bandance;

KarenInWA
Logged

1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
RichardMEL
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« Reply #183 on: April 21, 2014, 06:53:25 PM »

Got to say the weather forecast is looking a bit dodgy specially for Sunday morning (I see ~14 and some rain) ..... what are the terms with the punting?

Anyway weather aside it should be a great time :)
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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10 years on and off dialysis

« Reply #184 on: April 22, 2014, 08:48:15 AM »

Punting continues except in heavy rain  :cheer:
I have to say we have only had very light showers over the last few days so fingers crossed and pack a hat!!!
They do supply cushions and umbrellas in the punts  ;D

See those that make it on Friday in the HE Inn lounge/bar about 4.30-5pm onwards.


Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cariad
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What's past is prologue

« Reply #185 on: April 23, 2014, 12:41:17 AM »

I'm not pregnant - just sayin'
Well there goes my first guess!

Got to say the weather forecast is looking a bit dodgy specially for Sunday morning (I see ~14 and some rain) ..... what are the terms with the punting?

Anyway weather aside it should be a great time :)
We'll make the best of it and have a blast. Last year I went through the stress of planning an outdoor party in England. I constantly checked the weather in the week leading up to it and I also learnt that when they give a forecast such as '50% chance of rain' they only need a ridiculously small amount of rain to fulfill that prediction. It was something like it means there is a 50% chance that there will be 1/100th of an inch of rain during that time period. Also, they can really only predict weather with any accuracy four or less hours in advance, so anything could happen. (And that party was wonderful, and we had nothing but sunshine and warm temps.)

Looking forward to meeting/reconnecting with you all!  :waving;
Logged

Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Sugarlump
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10 years on and off dialysis

« Reply #186 on: April 23, 2014, 10:55:23 AM »

Punting in the rain could be funny (as long as boat doesn't sink!)
I had visions of flowery dresses and champagne, maybe jeans b cowboy hats!!!
I shall pack both  ;D
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Poppylicious
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Posts: 3023


WWW
« Reply #187 on: April 23, 2014, 12:59:58 PM »

Sugar, please can you PM me your mobile number?! Cheers, duck. Also, are you planning on meeting anywhere for a drink BEFORE Bill's? We can be in Cam at anytime after six (cheaper parking costs!).  See you all on Saturday! Have a blast on Friday!

 ;D
Logged

- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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10 years on and off dialysis

« Reply #188 on: April 24, 2014, 07:32:16 AM »

Wow  :cheer: It's tomorrow!!!  :cheer:
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cariad
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Posts: 4208


What's past is prologue

« Reply #189 on: April 24, 2014, 09:38:08 AM »

Wow  :cheer: It's tomorrow!!!  :cheer:
Sweet! Although we have hit a minor snag. I did not deal with Romeo (cat) in a timely manner and while I have found a cattery to board him, they won't take him if we do not have his vaccination certificate. Neither Gwyn nor I can recall getting that from his previous people, but we have their contact details and will see what can be done. Otherwise, we may have no choice but to leave him on his own for roughly 48 hours. Not the end of the world, specially if we can leave a window open, but there are two concerns: He is a HUGE eater and drinker so not sure how to deal with the food water situation, because even though he wants to eat and drink constantly, he is also really fussy and insists on freshness with all his edibles. I'm sure you cat owners know what I'm talking about. Also, he gets lonely very easily. Oh, and if the litter tray were to get too dirty for His Majesty, not sure what would happen.

If we have to leave him on his own, we'll do it, but probably will leave Cambridge immediately after the punting to get home by mid-afternoon. Be a bit of a shame to feel rushed, but we do need to get back by early evening to prep the kids for school the next day anyhow.

See some of you tomorrow night I hope!  :beer1;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
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What's past is prologue

« Reply #190 on: April 24, 2014, 10:21:16 AM »

May have a solution to the cat issue. I put Gwyn on it because I was getting too overwhelmed with it, he was telling me what he had found out in discussing further with cattery, but was in the car and we got cut off. Should be home with news any minute.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Sugarlump
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10 years on and off dialysis

« Reply #191 on: April 24, 2014, 10:37:42 AM »

I leave my cat Smokey on her own for a weekend, if it isn't cold, outside with a bed in the shed with door wedged open. She will quite happily sleep in there and leave food in there and on garden table. we also leave a dog bowl size of rainwater (which she prefers to tap!) and she knows the neighbors leave outside food for their cats, so if she fancies a change!! she can hop over the fence  :o
I have left her indoors during winter, with a litter tray, huge bowl of biscuits and dogbowl of water. She seemed quite content to have house to herself for 48 hours... without those pesky dogs.

You could fill up several bowls of water and put them in different places.
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly

« Reply #192 on: April 24, 2014, 02:04:41 PM »

I used to use some catbowl with flap which you can program to open after 24/48 hours (at pet shop)
All of you going tomorrow: have a great time, and we'll see you Saturday!!

Lots of love, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
cariad
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What's past is prologue

« Reply #193 on: April 25, 2014, 06:09:03 AM »

Thanks for the suggestions, you two. Amazingly I was able to schedule a last minute vaccination, and the woman who owns the cattery allowed us to bring him in because although he won't have proper immunity, the risk is to him not the other cats. He has faced that same risk just wandering around our neighbourhood. Wish the previous owners had been clearer about that, but it wouldn't have changed our decision to adopt him.

So, Romeo's at a luxury cattery right now, we are doing the million last minute tasks that need to be completed and then jumping in the car and heading east. Wish it weren't tipping it down right now, but hoping that the sky will get that out of its system and we can get a little bit of sunshine in Cam.

If we don't manage to make it to the bar tonight, see you at the stud tour!  :beer1;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
RichardMEL
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« Reply #194 on: April 25, 2014, 08:13:24 AM »

We're here... and the rain is lovely....
:)

Can't wait to see everyone!
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly

« Reply #195 on: April 25, 2014, 10:28:08 AM »

Welcome back to England Rich, and so glad you've got Romeo sorted Carriad.

     :yahoo;

No idea what time we'll arrive in Cam, but we'll definetely make it to Bills.
NB I sort of hoped the rain would stay around here, but hay hoe

See y'all tomorrow

          :cheer:
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
monrein
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Might as well smile

« Reply #196 on: April 25, 2014, 02:56:01 PM »

I want you all to know that I really wish I were going to be joining you there for the meet up. It would be so nice to see those I've already met and meet the others. Have a great weekend together and know that I'm toasting you all from currently rainy Toronto, Canada.  :wine;
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
cassandra
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When all else fails run in circles, shout loudly

« Reply #197 on: April 26, 2014, 12:44:34 AM »

Thanx Monrein, wish you were here too. I'm now on machine, still 2hrs15 to go, than we're on our way.

Karen how's your experience in light rain with some sun, so far? Aha I'll here soon.

 Love, Cas
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #198 on: April 26, 2014, 06:54:34 AM »

So far so good... :waving;
Not much rain at all

We are all sexed out  ;D been round Newmarket and The National Stud ... all that sex and money is mind boggling!
Time for afternoon nap and then get ready for Bills!  :bandance;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #199 on: April 27, 2014, 07:29:27 AM »

A very big thank you to Richard, Karen, Cariad and Gwyn and the boys, Cassandra and Tony, Poppy and Paul and my other half Drew for making it such an amazing weekend!
It was great from start to finish, hilarious at times but wonderful to connect and to join in with like minded people, from The meal at Bills, to the stud tour and the punting on the River Cam
and even down to the 6am fire alarm!!! Cheers and I hope someone has some good pictures to post on here... :clap;  :clap;  :clap;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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