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Author Topic: 2013 IHD "Let's get together in The UK!"  (Read 91946 times)
Sugarlump
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10 years on and off dialysis
« Reply #150 on: April 05, 2014, 06:24:08 AM »
Quote from: cariad on April 05, 2014, 04:32:42 AM
It looks like we owe you £70 for the activities, Sugar! If you want to PM me your bank account number and sort code I would be happy to pay you via BACS this weekend.
3 weeks!!!  :waving;
PSSSST Cariad you need to empty your inbox to receive any more pm's cos it's full  :o
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cariad
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What's past is prologue
« Reply #151 on: April 05, 2014, 12:43:54 PM »
Quote from: Sugarlump on April 05, 2014, 06:24:08 AM
Quote from: cariad on April 05, 2014, 04:32:42 AM
It looks like we owe you £70 for the activities, Sugar! If you want to PM me your bank account number and sort code I would be happy to pay you via BACS this weekend.
3 weeks!!!  :waving;
PSSSST Cariad you need to empty your inbox to receive any more pm's cos it's full  :o
D'oh! My secret's out! I am incredibly lazy about this. Don't think I've deleted more than a handful of PMs since I joined five years ago!!!!

I'll try to send you a PM with my personal email account. If that doesn't work, I start on the tedious task of deciding which PMs to ditch. Sorry for the hassle!
Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
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What's past is prologue
« Reply #152 on: April 05, 2014, 02:04:35 PM »
OK, Sugar, sent you a PM with my personal email address and it said it was successfully sent. Hope so! Please send me the BACs info as an email if you don't mind!  :beer1;
Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Sugarlump
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10 years on and off dialysis
« Reply #153 on: April 06, 2014, 12:15:09 AM »
Done and dusted whilst enjoying my breakfast  :2thumbsup;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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« Reply #154 on: April 07, 2014, 06:51:48 PM »
oh didn't realise we could order from the specials menu and I missed the soup. that sounds interesting....
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
KarenInWA
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« Reply #155 on: April 07, 2014, 08:13:58 PM »
I want the beer-battered cod!! :)

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Sugarlump
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10 years on and off dialysis
« Reply #156 on: April 08, 2014, 12:10:40 AM »
Quote from: RichardMEL on April 07, 2014, 06:51:48 PM
oh didn't realise we could order from the specials menu and I missed the soup. that sounds interesting....

You can change your mind Rich if you're quick but if you have the soup I wouldn't sit next to me as you might find it going down quicker than you expect  :rofl; :rofl; :rofl;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #157 on: April 08, 2014, 02:15:35 AM »
Hi I've got the menu- orders at last. Tony (that's hubby) will have the crispy squid, and the slow cooked belly pork (from the 'specials'). I'll have the avocado /spinach salad for starters and the same slow cooked belly pork.

Was it you SL who wanted  'easy to read, stress free' books to read? Than I'll bring some.

Love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis
« Reply #158 on: April 08, 2014, 05:31:00 AM »
Quote from: cassandra on April 08, 2014, 02:15:35 AM
Hi I've got the menu- orders at last. Tony (that's hubby) will have the crispy squid, and the slow cooked belly pork (from the 'specials'). I'll have the avocado /spinach salad for starters and the same slow cooked belly pork.

Was it you SL who wanted  'easy to read, stress free' books to read? Than I'll bring some.

Love, Cas
Thanks Cas, much appreciated. We munch though an amazing number of books aw week because of dialysis!!!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly
« Reply #159 on: April 08, 2014, 11:35:07 AM »


           :shy;


You don't happen to read in Dutch as well?   ;D
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #160 on: April 09, 2014, 10:52:15 AM »
Sadly no  ;D
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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Posts: 6154
« Reply #161 on: April 09, 2014, 11:56:23 PM »
I'll stick with the crab cakes and the suffolk pork chop :)
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #162 on: April 10, 2014, 04:13:51 AM »
Hey don't forget to bring your panama hat!!
Has anybody heard from Poppy????  :waving;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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Posts: 6154
« Reply #163 on: April 10, 2014, 10:34:47 PM »
How's that song go? "... A big Panama with a purple hat band...."

er.. no :)
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Iona
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Kidney disease since age 11 (2 Tx now on haemo)
« Reply #164 on: April 12, 2014, 06:34:49 AM »
Hello Sugarlump,
Your days out look alot of fun. Hope it's sunny!
Sorry for the delay in getting our orders to you but here they are;
Starters, for me -crispy squid, hubbie- bruschetta
and for mains, me- (another starter) crab/chilli cakes and side order of skinny fries and hubbie - beer battered cod please.
 I'd feel an awful lot less guilty if Sugar would have her vine tomato soup? (I will off course be sharing my fries with everybody!)
Really looking forward to this occasion and meeting you all.

 :thx; to Sugarlump for organising all this xx
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cassandra
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When all else fails run in circles, shout loudly
« Reply #165 on: April 12, 2014, 01:15:55 PM »
Ooo I'm really getting exited about meeting you all. Than I had some sort of nightmarish feeling that we were going to be wandering around Cambridge without actually meeting anyone till dinner, cos I have no idea what we look like (yes I know how I, and hubby look like   :blank:
, and of course Cambridge will be lovely, but.... Can we all have a recognisable feature or something?

Love, Cas
Logged
I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
RichardMEL
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Posts: 6154
« Reply #166 on: April 13, 2014, 12:32:34 AM »
Well Cassandra, not sure when you (plural) are arriving, but SL is having a meet and greet at the Holidy Inn from what 4-6ish Friday afternoon so we can all meet there. I know KarenINWA and I will be arriving at Camb by train just after 3 (bought the tickets) so should be there well in time for that. And there's the stud thing sat morning, but I suspect once that is done, I'm thinking 1 or 2.. maybe a laz afternoon for some, or a lateish lunch at a pub?

(SL how long is the stud tour? Could we fit in lunch after?). Maybe Cassandra and hubby could meet us all or some of us at a pub or something?

I suspect also if UK locals exchange phone numbers then it will be a lot easier to just say "hey we're at such-and-such" and connect up.

btw I'm the one that looks like the pic and with the funny accent  :rofl;
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #167 on: April 13, 2014, 09:20:06 AM »
Stud tour will finish about 1pm. Happy to exchange mobile number for texts over weekend.
How will you recognize me ... ask Rich if you find him first!!!!  ;D
I think I have everyones meal choices except Poppy and Poppy's blokey???
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Poppylicious
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Posts: 3023


WWW
« Reply #168 on: April 14, 2014, 05:22:50 AM »
Quote from: Sugarlump on April 13, 2014, 09:20:06 AM
I think I have everyones meal choices except Poppy and Poppy's blokey???

Sorry! Will get them to you asap. Haven't been on for ages due to stuff, so ... Also, not sure I'll be able to make the Sunday now. But definitely still up for Bill's, in a nervous way.

 ;D
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Poppylicious
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WWW
« Reply #169 on: April 14, 2014, 12:53:13 PM »
Quote from: Iona on March 09, 2014, 07:36:57 PM
Last thing -if anybody wants to dialyse on Friday morning (8am) at Addenbrooke's you are welcome to have my slot..I'm sure I could make the afternoon one, or evening maybe? The unit is friendly, nurses lovely, tea and lime juice(mmm), ice-cubes, biscuits, rolls and sarnies provided.

If he ever has to go back on dialysis Blokey will be pleased about the sandwich situation ... at the same time as he had his transplant he was told by Dr. Sexy Neph that they were stopping the sandwiches!! He was livid, until he realised it didn't affect him anymore.  I'm guessing other people were livid too.

 ;D

Sugar, you'll probably have read my PM that I'm about to send you before you read this. It will have menu choices!
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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10 years on and off dialysis
« Reply #170 on: April 14, 2014, 01:30:28 PM »
God bless Dr.Sexy neph, he must have saved the day!!!
Although you@d think saving transplants rather than sandwiches would be more likely!!!
I jest because actually, he did try bloody hard to save mine and tried everything humanly possible. Who knows, maybe a 3rd will appear one day  :P
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
Elite Member
*****
Offline Offline

Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #171 on: April 14, 2014, 01:37:32 PM »
Quote from: cariad on April 05, 2014, 04:32:42 AM
It looks like we owe you £70 for the activities, Sugar! If you want to PM me your bank account number and sort code I would be happy to pay you via BACS this weekend.

Here are our orders for Bills:

Me - halloumi and hummus burger. (Could I be a pain and get the yoghurt sauce on the side?)
Gwyn - sugar and spice marinated chicken
Aidan - BBQ pork ribs (do you happen to know if these are spicy? Aidan does not tolerate more than a touch of heat.)
Dylan - chicken skewers with cous cous (kids menu)

Starter - crispy lemon squid for Gwyn and the kids

We are going to leave it there, hopefully if we want to add a bread starter that will be doable on the day. Am I right that we don't have to order dessert in advance? We also would find it difficult to predict if we will want dessert or not until after we've eaten.

3 weeks!!!  :waving;

11 days!!!!  :waving;
Just sorting out email to Bills with our choices.
Question do you want 1 or 3 portions of crispy squid ? I am assuming 1 but correct me if I am wrong  :Kit n Stik;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
KarenInWA
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Gender: Female
Posts: 1041
« Reply #172 on: April 14, 2014, 08:10:42 PM »
A good friend of mine is throwing me a British send off this Friday night. I am bringing Heinz Spotted Dick, because we all just can't get over the name. How common is that over there? Do any of you Brits enjoy it? It's always good for a laugh, isn't it?

:P

KarenInWA
Logged
1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #173 on: April 15, 2014, 05:21:59 AM »
Quote from: KarenInWA on April 14, 2014, 08:10:42 PM
A good friend of mine is throwing me a British send off this Friday night. I am bringing Heinz Spotted Dick, because we all just can't get over the name. How common is that over there? Do any of you Brits enjoy it? It's always good for a laugh, isn't it?

:P

KarenInWA
:rofl;
Yep you can still buy Spotted Dick in tins though my partner says do check you can take it back with you okay through customs. Lots of countries have regulations about various products.
It does contain dried fruit but it is cooked.
You really don't want to get arrested for possession of spotted dicks!!!!!
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cariad
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*****
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Gender: Female
Posts: 4208


What's past is prologue
« Reply #174 on: April 15, 2014, 11:08:02 AM »
Quote from: Sugarlump on April 14, 2014, 01:37:32 PM
Just sorting out email to Bills with our choices.
Question do you want 1 or 3 portions of crispy squid ?
You're right, just the one portion please!

Quote from: RichardMEL on April 13, 2014, 12:32:34 AM
btw I'm the one that looks like the pic and with the funny accent  :rofl;
Coincidentally, I also look like my avatar pic and have a funny accent. ;D
Logged
Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
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