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Author Topic: 2013 IHD "Let's get together in The UK!"  (Read 91945 times)
Sugarlump
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10 years on and off dialysis

« Reply #75 on: February 26, 2014, 09:47:05 AM »

Its a goer!
I have booked Friday 25th and Saturday 26th nights at The Holiday Inn Express at Cambridge, booked a table at Bills for Saturday night at 7.30pm
I need to know numbers for the National Stud Tour at Newmarket (planned for Saturday morning) as have to book in advance.
Seeing when we can fit bus sightseeing tour in (punting planned for Sunday morning) so don't forget to bring your punting clothes (Panama hat? Or a wetsuit!!!!)
Looking forward to it  :waving;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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« Reply #76 on: February 26, 2014, 03:19:36 PM »

Count me in for all. I'm booking flights to get into the UK on 24th and leave on the 28th, so will train up to Cambridge on fri 25th woohooo!

Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Poppylicious
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« Reply #77 on: February 27, 2014, 03:30:01 PM »

 :P

Count me in for all. I'm booking flights to get into the UK on 24th and leave on the 28th, so will train up to Cambridge on fri 25th woohooo!



Whoop!

Sugar, I won't join you for the National Stud Tour, but will definitely pop into Cambridge on the Friday afternoon/evening to meet you, and Blokey has agreed to come to Bill's on the Saturday night! Yay! He's not up for punting, but has said he'll make sure to drop me off so I can get tinto Cambridge via the Guided Busway ... the longest in the world! Ha ha ... on the Sunday.

 ;D
Logged

- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
Sugarlump
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10 years on and off dialysis

« Reply #78 on: February 28, 2014, 08:17:02 AM »

I reckon on Sunday morning we could combine the open topped bus tour of Cambridge with the punting.
As it stops at all  the right places! (£14 a head for the on off bus and goes every 20 minutes)

i am actually getting quite excited!!! :ukflag;
« Last Edit: February 28, 2014, 08:18:20 AM by Sugarlump » Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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« Reply #79 on: March 02, 2014, 11:08:05 PM »

I'm booked :)

I fly into Thiefrow Thursday morning 24th April (flying from Melbourne via Hong Kong and Helsinki - I scratched Doha lol) and I'm flying out Monday evening 28th April back home via Dubai.

I'm planning the Thursday night in London to get some London time in, and have a proper sleep (Finnair is not known for their comfort, even in Business Class :( ) and then intend to catch the train up from Liverpool Street on the Friday probably early afternoon (there seem to be trains at very regular intervals), but not too late to hit a peak. Prob around 1pm.

Then make my way to the hotel (unless some kind sugaery type person wants to pick me up :) ) and stay there Fri/Sat/Sun nights - head back to London/Heathrow on the Monday.

One way or another, I'm coming to the UK - woot! :)
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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10 years on and off dialysis

« Reply #80 on: March 03, 2014, 09:27:05 AM »

That "sugary" person only gets off dialysis about 12.30pm so we are more likely to appear about 3pm ish.... in time to miss the rush hour traffic, check into hotel and enjoy a drink in the bar.... (a small one)  :P
 :bandance;  :bandance;  :bandance;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
KarenInWA
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« Reply #81 on: March 03, 2014, 08:14:29 PM »

Count one first-time-traveling-abroad-American to this group! I just booked my trip!!!  :yahoo; I'll be traveling with the crazy Aussie, so if anyone picks him up, you have to pick me up too.....  :waving;

KarenInWA
Logged

1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
RichardMEL
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« Reply #82 on: March 03, 2014, 10:46:33 PM »

Er well I was looking at a train arriving between 2 and 3 at Cambridge Railway Station - still 6 quid (or 12 in "First Class" lol) advance purchase from Liverpool St :)
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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Posts: 2160


10 years on and off dialysis

« Reply #83 on: March 03, 2014, 11:55:10 PM »

Er well I was looking at a train arriving between 2 and 3 at Cambridge Railway Station - still 6 quid (or 12 in "First Class" lol) advance purchase from Liverpool St :)

errr first class doesn't mean a lot on our trains!!!!  :rofl;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #84 on: March 03, 2014, 11:58:26 PM »

Count one first-time-traveling-abroad-American to this group! I just booked my trip!!!  :yahoo; I'll be traveling with the crazy Aussie, so if anyone picks him up, you have to pick me up too.....  :waving;

KarenInWA

 :welcomesign;
Welcome to the party Karen  :ukflag; great to have another international member joining us.
 Hope you are ready for England's quaintness and having traveled to the US myself, how small everything is in comparison!!!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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Posts: 6154


« Reply #85 on: March 04, 2014, 04:59:58 AM »

Er well I was looking at a train arriving between 2 and 3 at Cambridge Railway Station - still 6 quid (or 12 in "First Class" lol) advance purchase from Liverpool St :)

errr first class doesn't mean a lot on our trains!!!!  :rofl;

I know lol. more hoping for easier storage for suitcase hahahaa. and a slightly comfier seat.
besides everyone knows I go First :p (kidding)
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
RichardMEL
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« Reply #86 on: March 04, 2014, 05:01:37 AM »

So all you UK folks who have expressed interest please show up or there might be more internationals than locals!!!!  :rofl; :rofl;
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Poppylicious
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« Reply #87 on: March 04, 2014, 01:47:15 PM »

Count one first-time-traveling-abroad-American to this group! I just booked my trip!!!  :yahoo; I'll be traveling with the crazy Aussie, so if anyone picks him up, you have to pick me up too.....  :waving;

KarenInWA

Okay, now I'm scared ...

 :P

So, at the weekend we were trying to think of dates to take my MiL out and we settled on the 25th. Blokey said that the date seemed familiar, did we already have something on? I checked my diary. Nope, we're good to go, I said.  Today we received an email from my BiL to say he'd booked the place we're going to. I thought nothing of it. I've just turned to him and told him why the date seemed familiar.

Why do I have a diary if I don't put things in it?!

It means I can't meet up with you on the Friday. I'm (we're) still up for the Saturday and I'm definitely coming on the Sunday. I am starting to get nervous because of my fear of social situations. Sugar, I may have to insist you meet me at some point beforehand, and I'm trying to think if I'll be down your way and may be just before Easter.  We should synchronise our diaries!

 ;D
Logged

- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
RichardMEL
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« Reply #88 on: March 04, 2014, 06:11:26 PM »

Poppy *huggles* it's OK. we're harmless. Well I am... I think Sugar can get a bit feisty haha

the best thing about IHD meets I have been to (gee, 3 now plus a mini one in Sydney years back) is that everyone is so friendly and relaxed.

:)
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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Posts: 2160


10 years on and off dialysis

« Reply #89 on: March 06, 2014, 01:29:27 AM »

Count one first-time-traveling-abroad-American to this group! I just booked my trip!!!  :yahoo; I'll be traveling with the crazy Aussie, so if anyone picks him up, you have to pick me up too.....  :waving;

KarenInWA

Okay, now I'm scared ...

 :P

So, at the weekend we were trying to think of dates to take my MiL out and we settled on the 25th. Blokey said that the date seemed familiar, did we already have something on? I checked my diary. Nope, we're good to go, I said.  Today we received an email from my BiL to say he'd booked the place we're going to. I thought nothing of it. I've just turned to him and told him why the date seemed familiar.

Why do I have a diary if I don't put things in it?!

It means I can't meet up with you on the Friday. I'm (we're) still up for the Saturday and I'm definitely coming on the Sunday. I am starting to get nervous because of my fear of social situations. Sugar, I may have to insist you meet me at some point beforehand, and I'm trying to think if I'll be down your way and may be just before Easter.  We should synchronise our diaries!

 ;D
Don't be nervous Poppy
I am kinda normal, friendly chatty (feisty indeed!!!!)
More than happy to meet up for a coffee beforehand so you know someone if it helps  :beer1;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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Posts: 6154


« Reply #90 on: March 06, 2014, 11:39:44 PM »

OK so I have booked at that HI Express for Apr 25-28

can't wait to get over there :)
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Iona
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Kidney disease since age 11 (2 Tx now on haemo)

« Reply #91 on: March 07, 2014, 09:49:34 AM »

 :Kit n Stik; Woah!

You're all coming to Cambridge?  :welcomesign;
(I'd invite you all round for tea but we live in a wee Georgian house and you'd get up, close and personal very quickly!)

Cariad pointed me in this direction and I cannae believe you are coming all the way over here - you are an amazing support group! And Sugarlump - you're a near local.

I would love to meet you all...perhaps I can be useful to Sugarlump in some way as I live in the city centre. I might be able to organise cheaper punts for you as I have a kind friend who helps run the punts (not scudamore's but they still give you cushions! BUT you'd need several willing volunteers to punt?

If at all possible I would like to meet you - even for just one of your events.
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Sugarlump
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10 years on and off dialysis

« Reply #92 on: March 07, 2014, 09:58:05 AM »

Hi Iona You are more than welcome to join in with our event...the more the merrier!!!  :waving;
Bills Restaurant on Saturday night at 7.30pm?
I'll let you know about the punting as i think we'd need a large guided punt and the hotel offers a discount with Scudamores. or a combo ticket with the hop on/hop off bus.. but keep me posted.
All Cambridge info gratefully received.

Friday late afternoon/evening we will be found in the bar of The Holiday Inn Express deciding where to eat probably!!!

I am indeed local-ish to you an hour to the south-east (just before you hit the sea!!!)
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cariad
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What's past is prologue

« Reply #93 on: March 07, 2014, 10:38:40 AM »

Iona, please do come meet us! I've been to the annual meet in Vegas once and it's quite amazing how quickly everyone feels like old friends. And you cannot have too many of those! Most of us have never met before, either, so it will be an adventure.

I finally contacted a cottage owner in Cambridgeshire, just waiting on a reply. If that isn't available then I think we'll stay at the hotel with everyone else. Rest of the self-catering places are either too expensive or require minimum stays that are too long for us. Did I read there are two Holiday Inn Express in Cambridge?

Punting, is that different to crew? The four of us would be in for that, the boys would be happy to row (or whatever you call it in that sport, 'to punt' I should think) but no promises that we'd go forward or even stay afloat.  ;D Crew always woke up too early for me at prep school so I never joined, please tell me that punting for tourists occurs during reasonable hours.

We will also be at Bills. Everything else I'll have to see how we go. I have promised to buy Dyl a pair of proper inline skates (he's using my 100-year-old ones at the moment) and there appears to be a friendly, well-stocked skate shop in town centre, so I've promised him a trip there, probably Saturday. Forget what it's called.... Iona? Any idea what I'm talking about?

Very exciting indeed, and cannot believe Karen's joining us! The Americans may outnumber the English!

THERE IS NO ESCAPING US!!! BWAH-HAHAHAHAHA! :usaflag;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Sugarlump
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10 years on and off dialysis

« Reply #94 on: March 07, 2014, 12:55:46 PM »

The Holiday Inn Express, Normans Way, Camb about 2m east of station is the one we're booked into.
They have free parking there.

As for the punting, since Richard declined to punt us around I had looked into a guided punt (they seat up to 12 people and have cushions and umbrellas.
Good way to see the backs of the colleges from the river. A very english thing to do!!!! Hats optional  :rofl; but the boys could probably have a separate rowing boat or punt if they wanted.










































« Last Edit: March 07, 2014, 12:57:07 PM by Sugarlump » Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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Posts: 6154


« Reply #95 on: March 07, 2014, 05:31:37 PM »

Iona!! Yes please come!!! It will be great to have more people there - the more friends to meet and hear all about!!!!

Hey, I never said I wouldn't go punting... you just wouldn't want me standing on the back tying to steer the thing. Wait is that punting or doing the gondola thing?! Either way I'd be useless!!! :)

Apart from meeting everyone and enjoying Bills, the punt etc, I'm so excited to return to a city I did spend some weeks in just over 25 years ago as a "student"  - I adore Cambridge (Go the Blues!) and it will be lovely to come back. We slept out all night by Kings' for the carols, and cycled the streets at 2am after being kicked out the pub... such memories!!!

And *so* England. I love it.

I can't wait to see Cariad and Glyn too of the most loveliest people I know, and meet sugar FINALLY after so many years, and everyone else.

yay!!
Logged



3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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Posts: 2160


10 years on and off dialysis

« Reply #96 on: March 08, 2014, 12:20:23 AM »

I decided it would be safer to have someone who knew what they are doing on a punt!!!  :clap;
It will amazing to finally meet people I have known for years, particularly Rich (all the way from Australia)
and Poppy (a near neighbour yet we've never met!!! and to put faces to names of Cariad, Karen and co...
I am sure i have missed someone off this list ... Anyone else who wants to come please shout now and
Iona please come along too.
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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*****
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Gender: Female
Posts: 2160


10 years on and off dialysis

« Reply #97 on: March 08, 2014, 12:30:42 AM »

Cassandra!!!! I hadn't forgotten you!  ::)
Are you still coming?
Which activities would you like to join in with?

We have (loosely arranged)
Meet and greet Friday 25th 4-6pm in The Holiday Inn Express Bar ( and eat somewhere afters if hungry!!!)
Sat am Tour of National Stud (Newmarket)  evening: Bills Restaurant for dinner 7.30pm
Sun am Hop on hop off sightseeing tour/Punting along The Backs

And plenty of time for wandering around town or shopping  :2thumbsup;

Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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Posts: 4974


When all else fails run in circles, shout loudly

« Reply #98 on: March 08, 2014, 01:36:11 PM »


  8)  yeah still coming    :yahoo;

We booked the Saturday night in HI, so in time for Bill's, and the sightseeing bus, and the times in between.

Can't wait to meet you all.    :cuddle;


 :cheer:     :cheer:
Logged

I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
Sugarlump
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10 years on and off dialysis

« Reply #99 on: March 09, 2014, 01:17:30 AM »

Wonderful!!! That makes 12 for Bills.
If I have missed you off my list, please shout loudly!

Sugar and Drew
Rich
Cariad, Hubby and her 2 boys
Poppy and Blokey
Cassandra and hubby
Karen

Apologies for not knowing hubbys names!!!You'll have to fill me in...

And 12 for punting? (on/off sightseeing bus optional) (Sunday morning)
I have just Rich (as well as me and Drew) currently for National Stud tour. (Saturday morning)

And Friday night meet and greet at the HI will be informal...all welcome.  8)
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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