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Author Topic: Husband 45 with no dialysis for 6 days-says he's quitting  (Read 98826 times)
Lillupie
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« Reply #200 on: September 26, 2012, 11:32:28 AM »
Quote from: Joe on September 26, 2012, 09:06:05 AM
This is such a tough road for you to travel. Do make sure you are taking care of yourself.

John's itching is likely due to his potassium levels getting all wonky. I have that problem when I stray from what I'm supposed to do  ::) 

Just know we are thinking of you.

I thought the itching came from the high levels of phos?? Just saying. I dont think I heard of high potassium doing that.
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Joe
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« Reply #201 on: September 26, 2012, 03:06:26 PM »
Quote from: Lillupie on September 26, 2012, 11:32:28 AM
Quote from: Joe on September 26, 2012, 09:06:05 AM
This is such a tough road for you to travel. Do make sure you are taking care of yourself.

John's itching is likely due to his potassium levels getting all wonky. I have that problem when I stray from what I'm supposed to do  ::) 

Just know we are thinking of you.

I thought the itching came from the high levels of phos?? Just saying. I dont think I heard of high potassium doing that.

You're likely correct, I mix the two of them up constantly.
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okarol
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« Reply #202 on: September 26, 2012, 07:09:51 PM »
My friend just finally called hospice for her hubby. She had avoided it because he didn't want it. Now that they are there she wishes she had called sooner. They are so gentle and sweet to her husband and while there are no rescue attempts to change the outcome, they are bathing him and doing everything on earth to make each day comfortable.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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MooseMom
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« Reply #203 on: September 26, 2012, 07:12:15 PM »
Quote from: okarol on September 26, 2012, 07:09:51 PM
My friend just finally called hospice for her hubby. She had avoided it because he didn't want it. Now that they are there she wishes she had called sooner. They are so gentle and sweet to her husband and while there are no rescue attempts to change the outcome, they are bathing him and doing everything on earth to make each day comfortable.

If your days are numbered, they should at least be as pain-free as possible.  I am so glad your friend called hospice.  They can lift so much of the burden from the shoulders of family members who should be made free to spend quality time with their loved one.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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« Reply #204 on: September 27, 2012, 05:58:11 PM »
If any loved one of mine is in their last days, Hospice is the way to do it. They were there for my mother & father, and they will be there for me & my husband when the time has come. They have a way about them that Dignifies the passing. They take care of it ALL, and it goes so much smoother for the ones left to Grieve.

Please keep us posted on how John is doing.  So many prayers are being said for you all.

God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
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6/2010 to present.  NxStage at home
waltswife
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« Reply #205 on: September 28, 2012, 08:48:13 PM »
Hello Johnswife,

I have been following the struggle you, your husband and family are going through.  And I wanted to let you know I say prayers for you every day. 
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willowtreewren
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« Reply #206 on: September 29, 2012, 06:12:51 AM »
Thinking of you.

 :grouphug; :grouphug;
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
MaryJoe
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« Reply #207 on: September 29, 2012, 09:08:09 AM »
Thinking of you today and hoping you are taking care of yourself as well as John.  Sending hugs and good thoughts your way.  I hope John has some relief from the terrible itching and back pain. :cuddle;
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billyM
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« Reply #208 on: September 29, 2012, 03:00:27 PM »
good luck !
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Leanne
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« Reply #209 on: September 29, 2012, 08:44:09 PM »
 Still praying for you both... :grouphug;
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
The Lady
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« Reply #210 on: October 02, 2012, 08:38:40 PM »
Updates???
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MomoMcSleepy
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« Reply #211 on: October 03, 2012, 12:33:33 PM »
Johnswife, thinking about you.  Have have been off a while, and wanted to check up on you first. 

  :grouphug;
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

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Jean
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« Reply #212 on: October 04, 2012, 01:29:18 AM »
Been thinking of you and of course, worried too. Hope things are as okay as can be for you and DH.
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« Reply #213 on: October 04, 2012, 09:19:15 AM »
This is one of the first threads I turn to - my caring thoughts continue to be with you all.  :grouphug;  Let us know how things are going.
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billybags
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« Reply #214 on: October 04, 2012, 11:20:50 AM »
Me too Bajanne it seems ages since we heard how thinks are going.
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AnnieB
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« Reply #215 on: October 04, 2012, 12:57:23 PM »
You and John are still in my thoughts and prayers. I always check for updates when I come here.   :cuddle;
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TramFan31
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Greetings!

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« Reply #216 on: October 06, 2012, 03:07:44 PM »
I always check this thread out first: being of a similar age, I wish the best for this couple.  God bless. :bestwishes;
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MaryJoe
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« Reply #217 on: October 06, 2012, 03:27:42 PM »
Johnswife, thinking of you, praying for you.  Come back to us when you are ready.   :grouphug;
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
willowtreewren
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« Reply #218 on: October 06, 2012, 04:27:42 PM »
Sending hugs....

 :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Leanne
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« Reply #219 on: October 06, 2012, 10:13:09 PM »
I always check...please take care of yourself.  Still praying for ease and comfort for you both. Hugs to you  :grouphug;
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
Wat76
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« Reply #220 on: October 07, 2012, 04:40:25 AM »
praying that all is well with you and family. 
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Lillupie
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« Reply #221 on: October 16, 2012, 08:22:32 PM »
Has anyone heard anything??? It has been quite awhile, and havent heard a peep.

 :sos; :sos;
Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
Joe
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« Reply #222 on: October 17, 2012, 09:38:25 AM »
Keeping them in my prayers for all that is needed.
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mtnland
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« Reply #223 on: October 18, 2012, 02:46:00 PM »
That was inhumane of the docs to leave those infected catheters in.  It's such a simple procedure to remove them.  Would have been the more well mannered thing to do since they likely gave him the infections when they put them in  (and made a cool $10,000 bucks).  He would have had a lot more peace with them out.  I know from having a staph infection in my chest catheter and my friend had an infected peritoneal catheter--they are pure misery!   
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Cynna66
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« Reply #224 on: October 18, 2012, 03:40:29 PM »
I don't think I've said a word here, but I have been silently following. I have been keeping you both in my thoughts and in my prayers to give you strength and peace.
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