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Author Topic: Husband 45 with no dialysis for 6 days-says he's quitting  (Read 98839 times)
AnnieB
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« Reply #150 on: September 02, 2012, 06:44:37 PM »
 :clap;
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Marsh
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« Reply #151 on: September 02, 2012, 07:35:53 PM »
 :bandance;
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lmunchkin
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"There Is No Place Like Home!"
« Reply #152 on: September 02, 2012, 07:51:50 PM »
CHERISH this time with him!  Its truly a gift!

So glad he has you there with him.

God Bless,
lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
MaryJoe
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« Reply #153 on: September 02, 2012, 08:08:37 PM »
Just checking in to see how you are doing.  I'm glad John is getting a break from the vomiting and pain and I hope you can get some much needed rest.  You're right, he is a strong man, and you are a strong woman to be able to stand by him through this difficult time.   :grouphug;   
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Whether the glass is half empty or half full is not as important as being thankful there's a glass and grateful there's something in it.
Jean
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« Reply #154 on: September 03, 2012, 12:36:12 AM »
So happy for you. Even if this is only temporary, at least it is a little more time with him.  Enjoy it. God Bless you both.
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One day at a time, thats all I can do.
Leanne
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« Reply #155 on: September 03, 2012, 04:29:51 AM »
Just checking in.  So glad he has a break from the vomiting and stuff.  A much needed relief for you both.  You continue to be in my thoughts and prayers.   :grouphug;
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Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
johnswife
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« Reply #156 on: September 06, 2012, 03:38:48 AM »
Hi guys. Well the vomiting returned yesterday and to make matters worse; he feel 2 days ago really hard because of being weak. He hit his back on a metal tire hub so he's had a really rough couple of days. But he's still here; def lost about another 5 lbs. but no dialysis for well over 5-6 weeks. 

Will keep ya updated
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bevvy5
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« Reply #157 on: September 06, 2012, 09:04:08 AM »
Thank you for the update.  I think everyone here is checking and hoping that things are going as easy as they can for you both.

Take care of each other and yourself.  I hope you're getting some rest when you can. 

Bev
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willowtreewren
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My two beautifull granddaughters

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« Reply #158 on: September 06, 2012, 11:39:33 AM »
Just sending hugs.....

 :grouphug; :grouphug; :grouphug; :grouphug;

Aleta
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Wife to Carl, who has PKD.
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Carl transplanted with cadaveric kidney, February 3, 2011. :)
Poppylicious
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« Reply #159 on: September 06, 2012, 02:14:56 PM »
*huggles* for all of you ...
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
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Everything was beautiful, and nothing hurt.
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« Reply #160 on: September 06, 2012, 02:29:10 PM »
 :grouphug; :grouphug; :grouphug;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Leanne
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« Reply #161 on: September 06, 2012, 04:02:59 PM »
 :grouphug; Hoping you both are doing ok.  Thinking of you...







EDITED: Fixed tag error- kitkatz, Moderator
« Last Edit: September 15, 2012, 05:09:24 PM by kitkatz » Logged
Leanne

I am more than a patient.  I am a mama, friend, wife, sister, and most of all a person.

41 years old, hemo since November 2011, trained for PD and tried numerous times.  PD did not work for me , it was a nightmare :(
Roxy
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« Reply #162 on: September 06, 2012, 10:00:16 PM »
 :grouphug;  :grouphug;  :grouphug;
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #163 on: September 06, 2012, 10:59:28 PM »
Starting on approx. July 16 - looks like it's been 7 1/2 weeks.
Sorry to hear he fell, poor guy.
I hope you and your family have help.
Sending lots of {{{HUGS}}} your way.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
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Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
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cdwbrooklyn
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« Reply #164 on: September 07, 2012, 09:46:56 AM »
 :grouphug;  :pray;
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Dailysis patient for since 1999 and still kicking it strong.  I was called for a transplant but could not get it due to damage veins from extremely high blood pressure.  Have it under control now, on NxStage System but will receive dailysis for the rest of my life.  Does life sucks because of this.  ABOLUTELY NOT!  Life is what you make it good, bad, sick, or healthy.  Praise God I'm still functioning as a normal person just have to take extra steps.
boswife
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us and fam easter 2013
« Reply #165 on: September 07, 2012, 01:30:11 PM »
 :pray;  :pray;  :pray;  for comfort for all....  :cuddle; :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Jean
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« Reply #166 on: September 08, 2012, 01:05:32 AM »
 Your husband is an amazing man. God Bless you both.
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One day at a time, thats all I can do.
YellowRose
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« Reply #167 on: September 08, 2012, 11:18:14 PM »
hi Johnswife, watching your journey with your husband. I can  not help but think he is luck to have you being there for him. I am sure it is not a easy road to take for both of you.
Me as a kidney failure patient, I think I may one day will face the same choice he made when dialysis is too much to take. Without the support like you provide, I do not know if I would be able to really make the right decision for me.
Well... praying less suffering for him, strength and comfort for you.
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Dec 1993 start with CAPD
May 1995 1st transplant
Jan 2007 start with CCPD
April 2011 start with Hemo
Sept 2012 2nd transplant
AnnieB
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« Reply #168 on: September 09, 2012, 02:55:49 PM »
 :cuddle; You're both in my thoughts and prayers.  :grouphug;
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WishIKnew
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Alports, dialysis '07-'12,cancer'11,transplant '12
« Reply #169 on: September 09, 2012, 05:03:23 PM »
Thinking of you all.
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Hazmat35
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« Reply #170 on: September 11, 2012, 05:26:37 AM »
HI JOHNSWIFE! 

I can only imagine what you and he; and your entire family are going through.  I can't say any more, nor can I say it enough, that anyone hasn't already said, but our thoughts and prayers are with you and your husband. 

How lucky he is, to have someone like you stainding by his side, day after day, after day.  I too, am lucky, as my girlfriend of 12 years, stands next to me, too, as I struggle with this awful disease.  She is my inspiration and my strength; as I am sure that you are to your husband. 

As I can not say that I agree with his decision to stop Dialysis, I know where he is coming from and can CLEARLY see his point of view.  I do not think that I have the courage that he does, to make that decision.  I would not wish Dialysis on my worst enemy.  I have gone through so many physical and emotional changes the past few years, it just wears me out.  Not to mention the stress and strain that it has put on my family. 

God Bless you and your husband.  We are ALL thinking of him; and YOU!  Just remember, you are never alone, we are all here for you and John. 
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Brother Passed away - 1990 - Liver Disease
Diagnosed w/ Polycystic Kidney Disease - 1998
Mother passed away - Feb. 1999 - PKD
Sister passed away - Feb. 2006 - PKD
AV Fistula / Upper Left Arm - September 2009
Father passed away - September 2009
In-Center Hemo Dialysis - April 2010
Broken Knee Cap - January 2015
Diagnosed w/ A-Fib October 2017
Surgery to repair Hiatal Hernia 2018
Multiple Fistula Grams / Angioplasty's since then!


Hating Dialysis since Day 1 and everyday since then!!!!  :)
Jean
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« Reply #171 on: September 13, 2012, 12:27:11 AM »
Is he in any pain???
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One day at a time, thats all I can do.
Frances42
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« Reply #172 on: September 13, 2012, 01:35:53 AM »
Quote from: jbeany on September 06, 2012, 02:29:10 PM
:grouphug; :grouphug; :grouphug;
:-*
good luck
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Jean
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« Reply #173 on: September 14, 2012, 12:30:16 AM »
Every day I come here to see if there is any news. Silence makes me worried.
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One day at a time, thats all I can do.
bleija
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« Reply #174 on: September 14, 2012, 05:28:30 AM »
me too :waiting;

Quote from: Jean on September 14, 2012, 12:30:16 AM
Every day I come here to see if there is any news. Silence makes me worried.
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