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Author Topic: Jenna - one of the lucky ones - let's hope it continues  (Read 24135 times)
RuthWells
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« Reply #25 on: May 13, 2012, 02:47:24 PM »
Karol, I'm sending all good thoughts for Jenna.  It's a tough struggle.
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vandie
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« Reply #26 on: May 16, 2012, 11:36:16 AM »
Jenna and her amazing mama are always in my thoughts.
Love you both!
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Life is the journey, not the destination.
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I received a kidney transplant on August 4, 2007.
Sluff
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« Reply #27 on: May 16, 2012, 03:41:51 PM »
 :grouphug;
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Sunny
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Sunny
« Reply #28 on: May 21, 2012, 10:37:46 PM »
I hold you, Jenna and your family in my thoughts and prayers. I have two children about Jenna's age and I think what you are going through must be very difficult. You have done so well for her in the past and I know you will continue to do so going forward. Hugs.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
MomoMcSleepy
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My son Roddy McSleepy at 6 months! sry pic sidewz
« Reply #29 on: May 25, 2012, 10:36:09 AM »
I  will be praying for her.  I, too think it's wonderful that she had so many potential donors, but of course it is devastating to not have a good match.  She is young, though, and I hope that new technology comes along that can give her a kidney that lasts indefinitely, and doesn't reject.....maybe they can grow her one like her native kidney,like those hamburgers they're working on!  That's what I'm waiting for, my clone kidney!

I will pray that she can eek out some good time with this generously-donated kidney as well.
 :grouphug;
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35 years old, first dx w/  chronic renal insufficiency at  28, pre-dialysis

born with persistent cloaca--have you heard of it?  Probably not, that's ok.

lots of surgeries, solitary left kidney (congenital)

chronic uti's/pyelonephritis

AV fistula May 2012
Kidney Transplant from my husband Jan. 16, 2013
Howard the Duck
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #30 on: May 29, 2012, 11:33:48 AM »
Jenna & Karol think of you both often...it is hard to be around the 4.5ish range...I remember thinking to myself I'm halfway there...Jenna stay tough. I know it is hard...the days that you are sad, its okay to feel that way...surround yourself with others that make you feel happy, strong, and positive too!

xoxo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #31 on: January 16, 2013, 03:17:06 PM »
It was six years ago today that Jenna received a kidney from stranger-turned-friend Patrice! While we hoped it would last longer, this Brave Little Kidney has continued to hang in there even after chronic rejection had the doctor saying she would be back on dialysis 3 years ago! This kidneyversary will always be a special day. We are forever grateful to you Patrice for giving Jenna 6 wonderful and healthy years!

I will make a cake and post it later!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jbeany
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Cattitude
« Reply #32 on: January 16, 2013, 04:08:40 PM »
 :bestwishes;
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Rerun
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« Reply #33 on: January 16, 2013, 04:44:15 PM »
 :bestwishes;  :birthday; 

What was her last creatinine.  Just curious. 
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: January 16, 2013, 06:58:28 PM »
Creatinine is 4.2 and GFR is 13.

She is still too sick with this cold so I am going to try and make her cake tomorrow.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Lexxtech18
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Be good to yourself when nobody else will.
« Reply #35 on: January 16, 2013, 07:10:53 PM »
Quote from: okarol on January 16, 2013, 06:58:28 PM
Creatinine is 4.2 and GFR is 13.

She is still too sick with this cold so I am going to try and make her cake tomorrow.

Oh dear. She's definitely a fighter and so is that brave little kidney. She has been beating the odds for a long time now and I'm sure it's wearing her out. I'm sending healing vibes your way and keeping you both in my thoughts!! She has a lot of love and support at home and here on the forum!  :grouphug;
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Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #36 on: January 16, 2013, 07:49:37 PM »
 :2thumbsup; :thx; :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
MooseMom
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« Reply #37 on: January 16, 2013, 07:57:10 PM »
Oh, I'm so sorry to hear Jenna has a bad cold.  It's not the flu, is it?  I hope she feels better soon.  How are her spirits?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
boswife
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us and fam easter 2013
« Reply #38 on: January 16, 2013, 08:03:33 PM »
Get better Jenna... sending love and prayers and happy kidneversary :)
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
GoingThere
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« Reply #39 on: January 18, 2013, 05:45:08 AM »
I hope that Jenna will be ok soon. I watched a movie on youtube about Jenna: Are you my type. Wonderful video.
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1995 - kidney biopsy - IgA
2002 - BP 220/140 - hospitilized
2004 - stage 3 of kidney failure
2005 - stagae 4of kidney failure
2009 - on the edge of stage 5
july 2010 - stage 5
14 july 2010 - catheter inserted and first D session
15 july 2010 - AV fistula created
dec. 2012 - tx with major rejection (plasmapheresis, atg, prednisone pulses)
apr 2013 - kidney function stable
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #40 on: January 20, 2013, 01:05:01 AM »
Quote from: MooseMom on January 16, 2013, 07:57:10 PM
Oh, I'm so sorry to hear Jenna has a bad cold.  It's not the flu, is it?  I hope she feels better soon.  How are her spirits?

I don't think it's the flu. She had sore throat, stuffed nose and cough. No fever or chills or body aches. She's been sick for 6 days so she's pretty tired of it. I got her a steam vaporizer going now so I hope it helps the cough.  :thx;
« Last Edit: January 20, 2013, 01:06:12 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Lexxtech18
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Be good to yourself when nobody else will.
« Reply #41 on: January 21, 2013, 02:18:02 PM »
Ms. Karol, I've been keeping both you and Jenna in my thoughts lately. Even though I've never met the little lady I feel a real connection with her through your posts. I think you and my own momma would have lots to talk about and have many stories to share. lol And I know what it's like to be sick with a transplant, I think it makes you feel 20x worse; even with a common cold. I sure hope Jenna starts feeling better soon. Send her our love.

 :grouphug;
Logged
Diagnosed with Bilateral Hypoplastic Kidney Disease - 1990
First Livinig Donor Transplant (from my mommy!) - October 3, 1996
Transplant Failed/Put on Hemodialysis - May 2005
Second Kidney Transplant (deceased donor) - July 2010
Transplant Failed/Restart In-Center Hemodialysis - February 2011
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #42 on: January 21, 2013, 09:27:14 PM »
Here are Jenna and her sister Becca volunteering at the Renal Teen Prom held yesterday in Los Angeles, CA. Jenna is still recovering but feeling better.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
jeannea
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« Reply #43 on: January 22, 2013, 12:45:00 AM »
They look great! Glad she got to go.
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thegrammalady
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« Reply #44 on: January 22, 2013, 11:09:10 AM »
april and i think of you guys often. facebook and ihd help to know what's going on. just wish we lived closer so i could give you a big hug.   :cuddle;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #45 on: January 22, 2013, 12:32:32 PM »
Quote from: boswife on January 16, 2013, 08:03:33 PM
Get better Jenna... sending love and prayers and happy kidneversary :)

Quote from: GoingThere on January 18, 2013, 05:45:08 AM
I hope that Jenna will be ok soon. I watched a movie on youtube about Jenna: Are you my type. Wonderful video.


Quote from: Lexxtech18 on January 21, 2013, 02:18:02 PM
Ms. Karol, I've been keeping both you and Jenna in my thoughts lately. Even though I've never met the little lady I feel a real connection with her through your posts. I think you and my own momma would have lots to talk about and have many stories to share. lol And I know what it's like to be sick with a transplant, I think it makes you feel 20x worse; even with a common cold. I sure hope Jenna starts feeling better soon. Send her our love.

 :grouphug;
Quote from: jeannea on January 22, 2013, 12:45:00 AM
They look great! Glad she got to go.

Quote from: thegrammalady on January 22, 2013, 11:09:10 AM
april and i think of you guys often. facebook and ihd help to know what's going on. just wish we lived closer so i could give you a big hug.   :cuddle;

Quote from: MooseMom on January 16, 2013, 07:57:10 PM
Oh, I'm so sorry to hear Jenna has a bad cold.  It's not the flu, is it?  I hope she feels better soon.  How are her spirits?

 :grouphug; :thx; :thx; :thx;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #46 on: February 01, 2013, 12:59:51 AM »
Finally got to celebrate Jenna's SIX YEAR KIDNEYVERSARY!
The cake tasted a lot better than it looked! She is wait listed for a new transplant as hers is only working at 13%, and puttering out. Each day is a gift. Love all our kids for coming to celebrate.
Nothing lasts forever - here's her kidney search page https://www.facebook.com/WantedKidneyDonor
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."
« Reply #47 on: February 01, 2013, 04:27:58 AM »
Quote from: okarol on February 01, 2013, 12:59:51 AM
Finally got to celebrate Jenna's SIX YEAR KIDNEYVERSARY!
The cake tasted a lot better than it looked! She is wait listed for a new transplant as hers is only working at 13%, and puttering out. Each day is a gift. Love all our kids for coming to celebrate.
Nothing lasts forever - here's her kidney search page https://www.facebook.com/WantedKidneyDonor

 :cuddle;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Jean
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« Reply #48 on: February 01, 2013, 11:31:25 AM »
Hope Jenna gets lucky and soon!!! She is such a beautiful young woman and she deserves a better youth. Prayers for both of you my midnight friend.    :grouphug;
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One day at a time, thats all I can do.
AguynamedKim
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« Reply #49 on: February 01, 2013, 10:30:52 PM »
 :cuddle;
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