Jenna - one of the lucky ones - let's hope it continues

[okarol]

I haven't posted much about Jenna as it taps in to that frightened voice inside me that whispers "I am scared."
We have known her transplant has been rejecting, bit by bit the function is getting less and less.
Why is she one of the lucky ones?
She was diagnosed at 15 years old, on dialysis at 18, transplanted at 21. She's young, which is hard, but she will also see major improvements in kidney issues in her lifetime.
She spent 3 years on in-center dialysis, and even though it kicked her butt, and made her feel like her "life was on pause," she did not have any major incidents or hospitalizations.
It was tough to have 9 potential donors found to be unsuitable, but then she was given a kidney by an altruistic donor, a woman we met online, who came to Calif. from Ohio to donate, and wanted nothing in return.
Even though she is losing this kidney after undergoing intense rejection rescue to save it, the Brave Little Kidney has lasted 2 years since then.
So I feel like for each difficulty, there's been some really lucky outcomes.
Please help by keeping her in your thoughts as dialysis seems to loom in the near future.
Thank you. 

[big777bill]

 I'll be keeping her in prayer.

[jbeany]

 

[Sue]

   God bless her and you.

[paris]

 

[jeannea]

It's so hard having this many problems at a young age. I hope she can get another transplant soon. I know you said her antibodies were 100%. I recently got one and I had 97% antibodies. I hope she can be as lucky as I was.

[glitter]

I think knowing when you are lucky in life is a rare gift. I hope with all my heart she gets another transplant soon.

[Jean]

I hope she gets another transplant soon too. I think of you and Jenna often and will keep you in prayers. I cant imagine how hard it must be to see your child go thru this.

[Traveller1947]

God bless you and Jenna both! 

[galvo]

My thoughts are with you and Jenna.

[lainiepop]

So good that u see things that way, does Jenna feel the same? Im quite new here but have read some of your posts, I hope Jenna is able to get another transplant soon, is she listed already? that must've been rough having 9 donors not suitable i dont think id even get 9 people wanting to donate to me lol. It must be tough for u too, how do u deal with it all, how old is Jenna now? I'm 30 and have had this hanging over me all my life, (my parents too obviously!) my parents were told i would die when born as i had only one imperfect kidney and no bladder. Ive had bladder ops and check ups etc all my life, but in view of what u r saying i am so so lucky as my kidney has lasted 30 years and i have a 4 yr old son and 10mth old daughter. In 2 weeks my dad is giving me one of his kidneys. I am incredibly lucky that he is a good match (was slightly better than mum) and at 66 healthy enough to do it!! Apparently he has superb kidney function his kidneys think he's 40 not 60 Your post had made me feel slightly better as i was really down this morning as i have another uti (had none for 7 mths and now have one this is the 3rd time its come back, does it every time time i stop antibiotics, this time i got to 5 days after). My kids are having ultrasounds on monday just to check their renal set up is normal , i have no idea how i will deal with it if one of them is not ok with everything else that is going on with me!!
I really love your comment about how jenna will see improvements in kidney issues in her lifetime, as this is something, i , being relatively young hold on to. My ultimate is that dad's kidney lasts long enough for dialysis to be obselete and no-one else will need to donate to me (the artificial kidney i read about on here!) or the other thing i read on here about not needing anti-rejection drugs meaning in theory good matchs are not a problem so maybe my hubby could donate (ive already told him to start working out for it lol!!)
I also think its amazing how Jenna's donor came forward like that to give to a stranger, restores your faith in humanity, are u still in contact? Is altruistic donation more common in the US than the UK? I think my centre have done about 3 altruistic donations compared to 80 related/friend ones per year. Or maybe not per year that sounds a lot!
Sorry gone on a bit, i wish u and jenna all the best and hope her kidney hangs in as long as it can, august last year after i had my daughter i was at 10% and they said id need dialysis in weeks, well here i still am feeling fine eating fine and not on dialysis functions at 8% but only dropped in the last 6 weeks so u never know Jennas might have a couple more years left in it!!
Marie xx

[Rerun]

You and Jenna are in my prayers.  What is her creatinine at this point?

   

[WishIKnew]

Thinking of you both!

I had heard that once you had a transplant, if you lost it, you were automatically back at the top of the list.  Is that true ore just wishful thinking on my part?

Hope today is a good day for you both!

[rsudock]

My continous love and support for you both!


xo,
R

[jeannea]

If you have had a previous transplant you are not auto matically at the top of the list. However, there's a kind of points system and various things give you points that move you up on the list. A previous transplant is one of those things. So is the 100% antibody level. The theory is that you're so tough to match that if a match actually comes you should get it ahead of someone who has more possible matches. I think that my antibody level figured into my match coming earlier than expected.

[Poppylicious]

*huggles* for your whole lovely family!

[bleija]

Thinking of you both!

I had heard that once you had a transplant, if you lost it, you were automatically back at the top of the list.  Is that true ore just wishful thinking on my part?

Hope today is a good day for you both!

i thought it was if you donated one, and then went into renal failure and if u needed a kidney u would be put on top of the list.... bc if it was if u had a transplant and lost it, u would put top list, the fi4rst timers, like me, ould never get one

[monrein]

Karol, you and Jenna are regular fixtures in my thoughts and especially since her trx started to go downhill.  Always hoping for the best and most especially a new chance at a transplant.   

[Joe]

Will keep you both in our thoughts and prayers.

[MooseMom]

I wish I had a magic wand.  I'd wave it over you both and command that Jenna's kidney would heal itself.  But in the meantime, I'll give you both my love, support and prayers for a new kidney that will enable her to avoid dialysis altogether.

[deniferfer]

I will be keeping you both in my thoughts. I hope it a works out for Jenna. 

[Bajanne]

Please be assured of m caring thoughts and prayers. We have been with you and Jenna for this entire journey and we will continue to hold your hands.      Definitely praying that she would be kept from D as long as possible.

[lou]

  I often look for posts about how Jenna is doing after reading some of your lovely posts when I was on dialysis. I think you are such a strong person and always share such a wonderful attitude/outlook (even if you dont always feel it on the inside!) Hoping for a positive future for you and Jenna x x 

[boswife]

Just letting you know im sending prayers.   

[okarol]

Thank you everyone, the support is much appreciated.

You and Jenna are in my prayers.  What is her creatinine at this point?

Last month it was 3.8 - labs this week show it's jumped to 4.6.