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Author Topic: Where are the professionals?  (Read 28326 times)
MooseMom
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« on: January 10, 2012, 12:03:53 PM »
Remember the various professionals who had joined IHD?  People like "Nephrologista", et al?  Where have they all gone?  Why don't they ever stick around?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
lmunchkin
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« Reply #1 on: January 10, 2012, 04:48:24 PM »
Thats a good question, MM?  Where is ReneePa?  Wasn't she a D. nurse or something?  Come to think of it, the last question I asked her about Needlephobic's situation, but don't know that she ever responded.  I will go back and check!

lmunchkin
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
Desert Dancer
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« Reply #2 on: January 10, 2012, 08:57:13 PM »
I wonder if half of them don't subconsciously think - intros to the contrary - that they're going to 'educate' us poor slobs, then bug the hell out when they see what they're dealing with!
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
MooseMom
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« Reply #3 on: January 10, 2012, 09:43:07 PM »
Quote from: Desert Dancer on January 10, 2012, 08:57:13 PM
I wonder if half of them don't subconsciously think - intros to the contrary - that they're going to 'educate' us poor slobs, then bug the hell out when they see what they're dealing with!

Or maybe they see how patients REALLY feel about dialysis and decide they can't handle the truth.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
YLGuy
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« Reply #4 on: January 10, 2012, 09:55:47 PM »
nursewratchet has not posted since May of last year.  I enjoyed her input.  One of her last posts:
Hi all!!!  Long time no post, and I'm sorry.  My company blocked the site from my work computer, which is also my home laptop.
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MooseMom
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« Reply #5 on: January 10, 2012, 09:57:47 PM »
I'm always very interested in what other elements in the dialysis equation have to say.  I wonder if many nephs/renal professionals lurk here.  I'd like to think so.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
KraigG
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« Reply #6 on: January 10, 2012, 11:29:22 PM »
None of the techs/nurses at my clinic had ever heard of this site before. My guess is that when they're off work, they're OFF work.
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First bout on dialysis: June, 1990
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kporter85db
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« Reply #7 on: January 11, 2012, 12:10:30 AM »
Quote from: MooseMom on January 10, 2012, 09:57:47 PM
I'm always very interested in what other elements in the dialysis equation have to say.  I wonder if many nephs/renal professionals lurk here.  I'd like to think so.

 I mentioned this site to one of my center nurses a couple months ago. I told her how it has helped me. My next visit she told me that she and some other nurses looked at the site and said it was "eye-opening." She also said they had no idea sites like this existed. I'm sure they are still lurking. I do hope they would join the discussion. They're very good nurses.

BTW- At my last visit with my Nephrologist he had to give me a little lecture about how I needed to be very careful about what I read on the internet. So I guess I'll keep my mouth shut from now on.
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May/2010 Sulfa based antibiotics killed my already weakened kidneys, almost
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Ken
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« Reply #8 on: January 11, 2012, 06:40:28 AM »
For what it's worth, the intro packet I received when I started at my center listed this site on its helpful resources page.  So, at least the person that put the packet together thinks it's a good thing!   :)
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Rerun
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« Reply #9 on: January 11, 2012, 08:51:18 AM »
It would be great, really great, if you guys would PM the ones that have not posted in a few months to just say "hi" and that we miss them.

It only takes a minute and maybe they would come back. 

                  :secret;
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Desert Dancer
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« Reply #10 on: January 11, 2012, 09:53:41 AM »
Quote from: kporter85db on January 11, 2012, 12:10:30 AM
BTW- At my last visit with my Nephrologist he had to give me a little lecture about how I needed to be very careful about what I read on the internet. So I guess I'll keep my mouth shut from now on.

This really pisses me off. Not that it doesn't have ANY merit (some people really are naive) but they act as though NO patient can tell the difference between the National Institutes of Health website and 'Joe Blow's Kidney Korner'. My dialysis nurse gave me the same lecture. Mind you, this is a woman who self-admittedly can't even figure out email. I think it says more about their lack of ability to assess their patients' intelligence than anything else.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
MooseMom
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« Reply #11 on: January 11, 2012, 10:49:09 AM »
Quote from: Desert Dancer on January 11, 2012, 09:53:41 AM
This really pisses me off. Not that it doesn't have ANY merit (some people really are naive) but they act as though NO patient can tell the difference between the National Institutes of Health website and 'Joe Blow's Kidney Korner'.

Oh no!  I'd bookmarked "Joe Blow's Kidney Korner"!  I should have been skeptical since he can't spell "phosferus".
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
rsudock
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« Reply #12 on: January 11, 2012, 11:38:55 AM »
Quote from: MooseMom on January 11, 2012, 10:49:09 AM
Quote from: Desert Dancer on January 11, 2012, 09:53:41 AM
This really pisses me off. Not that it doesn't have ANY merit (some people really are naive) but they act as though NO patient can tell the difference between the National Institutes of Health website and 'Joe Blow's Kidney Korner'.

Oh no!  I'd bookmarked "Joe Blow's Kidney Korner"!  I should have been skeptical since he can't spell "phosferus".


seriously I almost just peed my pants from laughing....oh moosey how I love your pithy/witty commentary....always catches me off guard (in a good way)!  I am still loving the comment about "Going straight to the top." you were going to take a concern to the president!  :rofl;


xoxox,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Joe
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« Reply #13 on: January 11, 2012, 11:41:39 AM »
That is too funny MM!! Thanks for the laugh, I really needed one today.
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Live simply. Love generously. Care deeply. Speak kindly.
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MooseMom
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« Reply #14 on: January 11, 2012, 12:31:14 PM »
Quote from: rsudock on January 11, 2012, 11:38:55 AM

...you were going to take a concern to the president!  :rofl;


Actually, I DID write to the President and got a nice reply in the form of one of those ubiquitous form letters.  To be fair, though, I didn't expect the President to have any answers; mainly, I just ranted. :rant; But it sure felt good.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
fearless
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« Reply #15 on: January 11, 2012, 07:17:12 PM »
hip hip hurrah!
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KraigG
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« Reply #16 on: January 12, 2012, 09:03:10 PM »
Quote from: MooseMom on January 11, 2012, 10:49:09 AM
Oh no!  I'd bookmarked "Joe Blow's Kidney Korner"!  I should have been skeptical since he can't spell "phosferus".

Isn't that a porn site?  :)
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First bout on dialysis: June, 1990
Kidney/Pancreas transplant: August, 1990
Pancreas removed (hospital error): January, 2001
Kidney fails: August, 2011
Second round of dialysis: August, 2011
fearless
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« Reply #17 on: January 12, 2012, 09:36:35 PM »
shame on you KraigG ha ha haha
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MooseMom
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« Reply #18 on: January 12, 2012, 10:00:00 PM »
Quote from: KraigG on January 12, 2012, 09:03:10 PM
Quote from: MooseMom on January 11, 2012, 10:49:09 AM
Oh no!  I'd bookmarked "Joe Blow's Kidney Korner"!  I should have been skeptical since he can't spell "phosferus".

Isn't that a porn site?  :)

Oh, SNAP!!  Maybe THAT's why he couldn't spell "phosferus"!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
KraigG
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« Reply #19 on: January 12, 2012, 10:01:58 PM »
The pictures didn't give it away? :)
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First bout on dialysis: June, 1990
Kidney/Pancreas transplant: August, 1990
Pancreas removed (hospital error): January, 2001
Kidney fails: August, 2011
Second round of dialysis: August, 2011
MooseMom
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« Reply #20 on: January 12, 2012, 10:04:21 PM »
I thought that was a sclerotic kidney!!!!   :o

My bad.
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
KraigG
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« Reply #21 on: January 12, 2012, 10:48:48 PM »
Love it when you talk dirty :)
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First bout on dialysis: June, 1990
Kidney/Pancreas transplant: August, 1990
Pancreas removed (hospital error): January, 2001
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Second round of dialysis: August, 2011
kitkatz
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« Reply #22 on: January 14, 2012, 08:58:09 AM »
Quote from: MooseMom on January 12, 2012, 10:00:00 PM
Quote from: KraigG on January 12, 2012, 09:03:10 PM
Quote from: MooseMom on January 11, 2012, 10:49:09 AM
Oh no!  I'd bookmarked "Joe Blow's Kidney Korner"!  I should have been skeptical since he can't spell "phosferus".

Isn't that a porn site?  :)

Oh, SNAP!!  Maybe THAT's why he couldn't spell "phosferus"!



That is his stripper name!
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Take it one day, one hour, one minute, one second at a time.

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Joe
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« Reply #23 on: January 14, 2012, 09:34:29 AM »
Quote from: kitkatz on January 14, 2012, 08:58:09 AM
Quote from: MooseMom on January 12, 2012, 10:00:00 PM
Quote from: KraigG on January 12, 2012, 09:03:10 PM
Quote from: MooseMom on January 11, 2012, 10:49:09 AM
Oh no!  I'd bookmarked "Joe Blow's Kidney Korner"!  I should have been skeptical since he can't spell "phosferus".

Isn't that a porn site?  :)

Oh, SNAP!!  Maybe THAT's why he couldn't spell "phosferus"!



That is his stripper name!

What's the mater with my web site!!!! and I can too spell fosferus.
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jbeany
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« Reply #24 on: January 14, 2012, 12:59:17 PM »
Maybe they all saw our response to the idiotic renal social worker we shredded a while back and have been afraid to open their mouths since!

I got the same line when I first mentioned IHD at my clinic.  "You don't REALLY believe everything you read on line, do you?"  No, I'm not an idiot, thankyouverymuch.  I'm on here talking to other patients, not snake oil salesmen. 

Although watching us as a group take down yet another creep offering a cure is always entertaining!   ;D
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