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Author Topic: Should I let it go??  (Read 12316 times)
rsudock
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will of the healthy makes up the fate of the sick.

« on: September 22, 2011, 01:37:38 AM »

Hey friends this has been weighing heavily on my mind and I am not convinced what I should do...

As some of you know last July was the first time ever to start dialysis...I also started a new teaching job in August. I really overestimated how challening and life alternating dialysis would be....I realized that I needed some sort of accomodation to continue doing my job...I went to the superintendent and asked for the following things to help 1) an aid  2) split my teaching day with another teacher (even offering to take a 50% pay cut) 3) stop requiring me to go to every extra meeting under the sun after school

Anyways they did nothing to help, no one cared so I ended up quitting....at the time it was a very gutsy thing to do; not being sure how I would pay for things and be able to afford a transplant (wasn't even sure I was getting one at that time either) but everything worked out and I have a great job now...BUT I just feel like I need to write that school a letter and express how disappointed I am in them....but maybe I don't even have a leg to stand on....maybe it's ridiculous to expect any help (even though the place I work at now do allow teachers to split their contracts and working days) I know it will not change the situation but maybe the next person with ESRD it would help. Maybe they will take a minute to think twice before just sweeping the problem and the plea for help under the rug. And also at the core of it I think it would help me just have closure too...I don't know...what do you folks think?? Me as a person it is hard for me not to express how I feel and keep things bottle inside.....

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Desert Dancer
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« Reply #1 on: September 22, 2011, 05:36:08 AM »

It's a shame you quit. Seems to me they violated the Americans with Disabilities Act by refusing you reasonable accommodation to do your job. It's very likely you could have forced the issue.  I'd probably write the letter and point this out to them in the process. Maybe they'll realize they dodged a legal bullet and will be more accommodating the next time.
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August 1980: Diagnosed with Familial Juvenile Hyperurecemic Nephropathy (FJHN)
8.22.10:   Began dialysis through central venous catheter
8.25.10:   AV fistula created
9.28.10:   Began training for Home Nocturnal Hemodialysis on a Fresenius Baby K
10.21.10: Began creating buttonholes with 15ga needles
11.13.10: Our first nocturnal home treatment!

Good health is just the slowest possible rate at which you can die.

The glass is neither half-full nor half-empty. The glass is just twice as large as it needs to be.

The early bird may get the worm but the second mouse gets the cheese.
paris
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« Reply #2 on: September 22, 2011, 08:30:00 AM »

I taught at a private school and they "didn't renew my contract" because of health reasons.  After 20 years.  And the school was part of our church.  So the board was made up of friends of mine.  Since it was private schooling, I wasn't covered by any laws.     I wrote mental letters but never sent one.  I wish I had.  Three weeks before this notice, I had my yearly evaluation. Scale of 1-4, I had 4's across the board.  No mention of needing improvement in any department.   A heads up would have been nice instead of a letter.   

Write to them.  They were wrong.  Maybe it will help someone else with a disability in the future.   I'm glad the new job has worked out so well.   Let us know what you write to them.   Thanks for sharing this. 
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Poppylicious
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« Reply #3 on: September 22, 2011, 10:20:32 AM »

Write the letter. 

Once you've written it you're under no obligation to send it, but you'll have vented yourself on paper and it may give you the closure you need to see all your disappointments and frustrations written down. 

I was going to ask whether they fell foul of anti-discrimination laws regarding health, but realised you chose to leave your position (and I imagine that it was the right thing to do, especially as you now have a job you love!)  Perhaps a letter would help them to understand how and why they let you down so badly, and it may help if people have similar situations in the future.  Just make it a 'nice' letter ... (I'm thinking references and/or needing a position in the future?)
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- wife of kidney recepient (10/2011) -
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boswife
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us and fam easter 2013

« Reply #4 on: September 22, 2011, 10:51:49 AM »

Agreed to write the letter.  A nice letter i also agree with. :) It's not to make a battle of something that you've already taken care of, but....  Some people need educating and it's important for those who can do that, or help them along, go for it.

this is probably a lame example, but ... I too have been under the 'wing' of the ADA, and i tell ya, it was a constant educating of the public for a good while.  See,  I use a service dog for a very disabling but invisible condition.  She's not your typical looking "service" animal and im not blind.  But i tell you, my whole city (and im VERY shy/withdrawn basically) is now accepting of me and my different looking service dog. Some of the meanest people, once educated, are now the most protective of me when they see me and i dont have to stand up for myself hardly ever.  I say, get it off your chest, and educate in the meantime....  :2thumbsup;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
mcclane
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« Reply #5 on: September 22, 2011, 11:12:48 AM »

i agree with poppylicious, write the letter but under no obligation to send it.

That is a tough one, but from a job perspective only, you kinda don't want to 'burn your bridges' either.  Where I work, it is a pretty close knit area, so any reputations (good/bad) spread like wildfire.  When you get your transplant, you may turn back to them for employment, so you don't want to leave a bad taste in that respect.
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MooseMom
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« Reply #6 on: September 22, 2011, 03:06:11 PM »

I suggest writing a letter where you say every mean and nasty thing you are feeling.  Vent away.

But, don't send it.

Then, sit down with the letter and edit it.  Take out the emotional components and make it sound like you are doing them a favor in taking your precious time to educate them for when the next teacher comes along that has a problem much like yours.  Tell them how nice it is to be teaching at a school that takes care of its employees and thinks creatively in order to accomodate their staff when unusual problems crop up.  You're a teacher...teach them.

I think it is important that we look after those who come after us. 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
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« Reply #7 on: September 22, 2011, 04:24:48 PM »

I would write it and send it, after editing out the swear words.  :rofl;
Just don't expect a response.
Oh and send a copy of the letter to the Dept. of Education for your state.
If no one speaks up, nothing changes.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
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sullidog
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« Reply #8 on: September 22, 2011, 07:41:12 PM »

I would send a letter explaining your concerns in a nice way. Also I believe this is a violation of the ADA.
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May 13, 2009, went to urgent care with shortness of breath
May 19, 2009, went to doctor for severe nausea
May 20, 2009, admited to hospital for kidney failure
May 20, 2009, started dialysis with a groin cath
May 25, 2009, permacath was placed
august 24, 2009, was suppose to have access placement but instead was admited to hospital for low potassium
august 25, 2009, access placement
January 16, 2010 thrombectomy was done on access
lmunchkin
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« Reply #9 on: September 22, 2011, 08:17:50 PM »

Rachael, Im so glad your current job is doing you well.  When one door closes, God always opens another one!  A better one!

You need closure!  They hurt you by what they did and they should hear it from you.  Get this off your chest and put it behind you once & for all. I agree with others, write the letter, edit and send it with a copy to School Board or Dept. of Educ. as Karol suggested.

You may not get a response, but someone will read the letter!!!!


lmunchkin

 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #10 on: September 22, 2011, 09:32:35 PM »

I will write the letter and share it with you folks!! As always thank you for your love and support dear friends!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Jean
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« Reply #11 on: September 23, 2011, 12:57:08 AM »

I agree with every one else about writing the letter. One word of caution ( okay, maybe 2 or 3 ) . As long as your former employer is on your resume, if they are called, they can always say " not eligible for rehire". Boy, that can cover up a multitude of sins, not necessarily yours and can seriously affect your interviews. One never knows, and you really need to keep your options open.
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One day at a time, thats all I can do.
jazzin11
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Keep on going...It can't get any worse, can it?

« Reply #12 on: September 23, 2011, 08:27:35 PM »

Rachel, as you know I'm a former teacher, and was upset at how you were treated by the administration.  I really recommend that the letter be written (tastefully) and sent not only to the Superintendent, but cc'd to the head of the School Board, and the State Department of Education Director/Superintendent. This would be notated on the District Super's copy.  I imagine he might then do a little backpedaling, or may cover it up somehow, but your message would be heard.  I hope you stay in education. We need good teachers!

John (jazzin11)
« Last Edit: September 23, 2011, 08:52:37 PM by jazzin11 » Logged

Lost the left kidney to a large kidney stone 1995
Cardiac Catheterization 12/11/2007 The contrast dye took out the right kidney!
Cardiac Quadruple Bypass 12/14/2007
AV Fistula done 4/2008
Diagnosed ESRD 9/11/2008 Started in center Hemo the same day.
Buttonhole access not without problems!
Living Donor transplant at UWMC Seattle June 29, 2011
Wenchie58
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« Reply #13 on: September 23, 2011, 08:49:04 PM »

Be sure to mention the Americans With Disabilities Act and Section 504.  Working part time is covered under "Reasonable Accommodation".  Public entities are required to follow these standards.  Sounds like quitting and moving on was your best bet at the time, but for others..these key words can make an organization that gets government funding shake in their boots.

Good luck!
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
jazzin11
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Keep on going...It can't get any worse, can it?

« Reply #14 on: September 23, 2011, 08:51:53 PM »

Be sure to mention the Americans With Disabilities Act and Section 504.  Working part time is covered under "Reasonable Accommodation".  Public entities are required to follow these standards.  Sounds like quitting and moving on was your best bet at the time, but for others..these key words can make an organization that gets government funding shake in their boots.

Good luck!

Absolutely!  Thank you Wenchie! I forgot to put that in last post!

John (jazzin11)
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Lost the left kidney to a large kidney stone 1995
Cardiac Catheterization 12/11/2007 The contrast dye took out the right kidney!
Cardiac Quadruple Bypass 12/14/2007
AV Fistula done 4/2008
Diagnosed ESRD 9/11/2008 Started in center Hemo the same day.
Buttonhole access not without problems!
Living Donor transplant at UWMC Seattle June 29, 2011
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #15 on: November 23, 2011, 11:53:49 AM »

still working on the letter...I can't seem to write it without sending like a sad, pathetic, hostile jerk.....I keep thinking to myself, "Ok use your educated words Rachel!"

oh my....

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
fearless
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« Reply #16 on: November 23, 2011, 06:48:18 PM »

when I have an important letter to write - i just get everything all out on paper.  Then I put it aside for a while - then edit, revise, etc.  Then, if I can, i have my good friend read it and make comments.  If it's an important letter, it's worth a little time to make it the best it can be.  I find that if I can separate from the emotion, and appeal to whatever's common between myself and whoever I'm addressing, good things can come of it.
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rsudock
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will of the healthy makes up the fate of the sick.

« Reply #17 on: November 28, 2011, 11:46:53 AM »

great advice fearless!!

xo,
R
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
rsudock
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will of the healthy makes up the fate of the sick.

« Reply #18 on: January 07, 2012, 05:11:14 AM »

Oh my goodness you would be proud of me...after thinking about this letter and how despicable they treated me I contacted a lawyer. I will post what I wrote below:

Hello,
 Fall 2010 I took a job at -------- --------- City Schools in the suburbs
of ---------. Rough school district beginning of the year constantly
bombarding us with meetings, NEVER had time to work in the classroom
to get it ready. Constant pressure to do high quality lesson but NEVER
gave us any money for supplies. Encourage to use our own money
instead.

I was stuck with a team teacher who didn't want to work as a team or
even talk. (No one else in the building wanted to work with him so I
was pawned off on him. He would scream at me in front of the kids. The
kids were continuously fighting and throwing desks....bottom line No
support/no Help.

The twist of the story is that I was on dialysis (End Stage Renal
Disease) which is seen as a disability per Social Security
Administration. The assistant superintendent (---------- ---------) told
me, "whatever you need we will help." I ended up in the
superintendent's office with the assistant super as well (no union
rep) and I explained to them dialysis and the stress this job was
taking on me. The kids are off the walls, I get no support from my team
teacher and I don't have enough money to keep buying all these
supplies. I asked them to make an ACCOMODATION for my disability like
split my contract, change my position, or give me an aid...all
reasonable that other schools do make. NO HELP, NO CHANGE!!!

I went on suffering and feeling trying to teacher in December on break
sadly a woman died in childbirth. She was a title one teacher, much
easier position, less responsibility. They could have switched me
there was an open spot but they did not. I ended up pushing to resign
in Jan 2011. The union even wrote the letter for me....

I want to sue these folks. It is not right what they did to me when
they had the means to make the situation better. I have a right as an
working American with a disability. Americans with Disabilities Act
protects me....the local union and NEA national level of Education
union basically made me feel like I was being nuts asking for help.
Everyone is so afraid to help someone...

I want the rest of my money from my contract I would have earned (if I
would have finished the year) and the 5 months of  COBRA insurance I
paid out of pocket.

Please help me....they shouldn't be able to get away with this!

Sincerely,
Rachel ---------------
phone number
email address



so there it is...that employer doesn't even get a change or honor of a letter....I taking it to the legal system! I feel so much better already!!!
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Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
KarenInWA
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« Reply #19 on: January 07, 2012, 02:45:27 PM »

Good for you, Rachel, for sticking up for yourself! The way they treated you was awful! It angers me to hear stories like yours. What do they think, that you *wanted* this lot in life???

I am just so happy that you now have a job helping renally-challenged children.  That is a win-win for both you and them! What a wonderful way to use both your teaching skills and your personal life experiences in one special job.  :)

KarenInWA
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
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My two beautifull granddaughters

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« Reply #20 on: January 07, 2012, 03:25:34 PM »

 :2thumbsup; :2thumbsup; :2thumbsup;

Good for you! Let's hope this will help someone in the future!

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
lmunchkin
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"There Is No Place Like Home!"

« Reply #21 on: January 07, 2012, 04:26:04 PM »

Way to go Rachael!  I was wondering what you decided to do about the way they treated you.  It wasnt right what they did and now they may have to pay.  Thanks so much for doing this, Rachael, because employers need to be more understanding.  Your doing this, may encourage others who have been mistreated to Stand up for themselves too!  Its not like you werent doing your job to your best.

Im proud of you and all whom do stand up for themselves, especially those whose who suffer chronic diseases!

By the way, how is your Brother doing?

God Bless You, Rachael.  I know you have struggled with this, since it happened.  You go girl!!!!!

lmunchkin
 :kickstart;
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11/2004 Hubby diag. ESRD, Diabeties, Vascular Disease & High BP
12/2004 to 6/2009 Home PD
6/2009 Peritonitis , PD Cath removed
7/2009 Hemo Dialysis In-Center
2/2010 BKA rt leg & lt foot (all toes) amputated
6/2010 to present.  NxStage at home
fearless
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« Reply #22 on: January 07, 2012, 07:13:34 PM »

I think it was really smart to get a lawyer.  Congratulations on coming to a decision and for standing up for yourself and what's right.  I hope it really straightens them out at the school, and that you're compensated for the mistreatment you were given.

Thanks for fighting the good fight!
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boswife
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us and fam easter 2013

« Reply #23 on: January 08, 2012, 08:13:16 AM »

 :yahoo;  GOOD for you Rach!!!    :2thumbsup;  VERY proud of you  :cheer:  Keep at it and let us know...  I went through a 'sort' of situation like that, with different outcome, but i wish i had done more for others who may incounter this as well.. ya doen a good thing!!   Let us know how things are going with it   :cuddle;
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
billybags
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« Reply #24 on: February 13, 2012, 10:58:03 AM »

Rachael, I am really proud of you.
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