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| | | |-+  Tragic news, Karen547 has passed away
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Author Topic: Tragic news, Karen547 has passed away  (Read 35151 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« on: May 26, 2011, 08:50:46 AM »

It's hard for me to write this. It is with great sadness that I tell you we've lost one of our younger members, Karen547. She has had a challenging year with the good news of getting a transplant last August, to the low of losing her mom to cancer in November. She had difficulties with infections and we hadn't seen her post since January. She was 25 years old.

Note from her sister on facebook:
Karen Polmenteer
This is karens sister kate posting...we are having a service for karen this saturday at 11am. 92 fenton rd at our dads home. Thank you for all your kind words.

Thank you monrein, for letting me know.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Darthvadar
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« Reply #1 on: May 26, 2011, 08:57:19 AM »

How terribly sad...

May she rest in peace.....

Love and best wishes to her family and friends....

Darth....
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
carol1987
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« Reply #2 on: May 26, 2011, 09:07:53 AM »

 :'(
Just terrible..... prayers for her family and friends.... much too young...
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Diagnosed with  PKD July 2002 (no family history)
Fistula placed April 2009
Placed on Transplant list April 2009
Started HD 10/6/10
Transplanted 1/6/11 (Chain Transplant My altruistic donor was  "Becky from Chicago" , and DH Mike donated on my behalf and the chain continued...)
Meinuk
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« Reply #3 on: May 26, 2011, 09:14:48 AM »

So sad. Karen added a great voice to IHD. She will be missed. 

Here is her introduction post: http://ihatedialysis.com/forum/index.php?topic=4818.0
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Research Dialysis Units:  http://projects.propublica.org/dialysis/

52 with PKD
deceased donor transplant 11/2/08
nxstage 10/07 - 11/08;  30LS/S; 20LT/W/R  @450
temp. permcath:  inserted 5/07 - removed 7/19/07
in-center hemo:  m/w/f 1/12/07
list: 6/05
a/v fistula: 5/05
NxStage training diary post (10/07):  http://ihatedialysis.com/forum/index.php?topic=5229.0
Newspaper article: Me dialyzing alone:  http://ihatedialysis.com/forum/index.php?topic=7332.0
Transplant post 11/08):  http://ihatedialysis.com/forum/index.php?topic=10893.msg187492#msg187492
Fistula removal post (7/10): http://ihatedialysis.com/forum/index.php?topic=18735.msg324217#msg324217
Post Transplant Skin Cancer (2/14): http://ihatedialysis.com/forum/index.php?topic=30659.msg476547#msg476547

“To doubt everything or to believe everything are two equally convenient solutions; both dispense with the necessity of thought.” - Henri Poincare
Deanne
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« Reply #4 on: May 26, 2011, 10:16:46 AM »

It's always hard to hear of someone passing, but someone so young....!  :'(
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Deanne

1972: Diagnosed with "chronic kidney disease" (no specific diagnosis)
1994: Diagnosed with FSGS
September 2011: On transplant list with 15 - 20% function
September 2013: ~7% function. Started PD dialysis
February 11, 2014: Transplant from deceased donor. Creatinine 0.57 on 2/13/2014
billybags
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« Reply #5 on: May 26, 2011, 10:46:02 AM »

This is so sad, she was so young. My condolences to the family. She will be missed on this site.
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Poppylicious
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« Reply #6 on: May 26, 2011, 11:20:44 AM »

Oh gosh, that is so sad.  How terrible for her family.  Sending them lots of virtual love.
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
greg10
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« Reply #7 on: May 26, 2011, 12:38:06 PM »

She was so young.  I am sorry I didn't get to know her better.  My condolences to her friends and family.

Karen547's profile
http://ihatedialysis.com/forum/index.php?action=profile;u=2304

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Newbie caretaker, so I may not know what I am talking about :)
Caretaker for my elderly father who has his first and current graft in March, 2010.
Previously in-center hemodialysis in national chain, now doing NxStage home dialysis training.
End of September 2010: after twelve days of training, we were asked to start dialyzing on our own at home, reluctantly, we agreed.
If you are on HD, did you know that Rapid fluid removal (UF = ultrafiltration) during dialysis is associated with cardiovascular morbidity?  http://ihatedialysis.com/forum/index.php?topic=20596
We follow a modified version: UF limit = (weight in kg)  *  10 ml/kg/hr * (130 - age)/100

How do you know you are getting sufficient hemodialysis?  Know your HDP!  Scribner, B. H. and D. G. Oreopoulos (2002). "The Hemodialysis Product (HDP): A Better Index of Dialysis Adequacy than Kt/V." Dialysis & Transplantation 31(1).   http://www.therenalnetwork.org/qi/resources/HDP.pdf
lou
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« Reply #8 on: May 26, 2011, 12:52:05 PM »

I'm so so shocked and so sad to read this. Karen was someone I always saw on IHD last year and I always loved seeing her posts. I feel absolutely gutted.  :'( Hope so much her family and friends are ok. Will make sure I am thinking of her on Saturday and just hope she is at peace.   :(
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thegrammalady
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« Reply #9 on: May 26, 2011, 12:59:51 PM »

may her family find peace. she will be missed here.
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

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willowtreewren
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My two beautifull granddaughters

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« Reply #10 on: May 26, 2011, 01:51:16 PM »

This is terribly shocking.... :'(

What a loss for her family.

She will certainly be missed.

Aleta
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
monrein
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Might as well smile

« Reply #11 on: May 26, 2011, 02:54:00 PM »

Rest in Peace dear Karen.  What a terribly difficult few years this poor family has had.    :'( :'( :'(
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
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wedding 12-10-11

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« Reply #12 on: May 26, 2011, 03:08:23 PM »

Wow
 Im surprised. She was even younger then me. Didnt she get a transplant at somepoint soon? Gosh. Does anyone know what happened? What made her pass away so soon?

Lisa
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Check out my Facebook profile for CKD "Help Lisa Spread Awareness for Kidney Disease"

It is my utmost dream and desire to reach out to other kidney patients for them to know that they are not alone in this, also to reach out to those who one day have to go on dialysis though my book i am writing!

dx with lupus nephritis 5/99'
daughter born 11/2005
stage IV CKD 11/2005-6/2007
8/2007- PD cathater inserted
9/2007- revision of PD Cathater
10/2007 started PD
breezysummerday
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« Reply #13 on: May 26, 2011, 05:07:16 PM »



Rest in Peace Miss Karen
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
glitter
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« Reply #14 on: May 26, 2011, 05:55:57 PM »

I am so sad to hear this. I hope she rests in peace, my heart goes out to her family and to all of us here. She will be missed. I always liked to read the posts from the younger kids, very sad to hear this.
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
kitkatz
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« Reply #15 on: May 26, 2011, 07:15:53 PM »

May her soul rest in peace.  My sympathies and prayers go out to her family and her friends.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Chris
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« Reply #16 on: May 26, 2011, 08:09:35 PM »

WOW, this is a shock. She was funny when we were in the chat room
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
st789
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« Reply #17 on: May 26, 2011, 08:45:33 PM »

 :grouphug;
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boswife
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us and fam easter 2013

« Reply #18 on: May 26, 2011, 09:16:31 PM »

This is tragic news.  It breaks my heart for her and her family, and this family here.  Im shocked and hurt..  Im so sad  :'(
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Ang
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« Reply #19 on: May 26, 2011, 09:27:59 PM »

sad news indeed :(
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live  life  to  the  full  and you won't  die  wondering
YLGuy
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« Reply #20 on: May 26, 2011, 10:42:32 PM »

Karen will very much be missed.  As losing someone is the hardest part of of this community, losing someone so young is especially tragic.  My thoughts and prayers go out to her family and may she rest in peace.  :'(
 :grouphug;
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bluesgirl
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« Reply #21 on: May 26, 2011, 11:15:45 PM »

I'm quite the newbie, so I never had the pleasure of getting to know her, which I feel a bit sad about, especially considering she had the same disability i hav eSpina bifida. I hope she is at peace and that in time her family can find peace too.
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RichardMEL
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« Reply #22 on: May 27, 2011, 12:24:00 AM »

This news has really hit me. I am quite in shock.

I know Karen wasn't posting much, but I didn't realise things were that dire.

I read this news as I celebrate my six month anniversary and this is a stark reminder just how short and precious our lives are and that we just do not know what is around the corner.

I am pretty bummed. I didn't know Karen well, but I did read her posts and wanted to know what was going on with her.

So young. such a tragic loss.

I am sad :(

my thoughts go to her sister and family.
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kristina
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« Reply #23 on: May 27, 2011, 01:44:45 AM »


What a shock!
 
I thought she was busy studying and things went well.

I had no idea that she was struggling so badly.

I shall miss her.

My thoughts are with her family.

Kristina.
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Bach was no pioneer; his style was not influenced by any past or contemporary century.
  He was completion and fulfillment in itself, like a meteor which follows its own path.
                                        -   Robert Schumann  -

                                          ...  Oportet Vivere ...
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« Reply #24 on: May 27, 2011, 03:54:42 AM »

This is very sad news.  I was hoping she was off, living it up.  Very sorry to read this sad news.
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
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