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Author Topic: Dialysis newbie  (Read 5989 times)
karen547
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« on: September 03, 2007, 08:29:10 AM »
Hey my name is karen and I'm 22 years old. I was diagnosed with kidney disease at age 13, and was told I would most likely need a kidney transplant sometime in my 20s. Well as it turned out the doctors were right and I am indeed on the list. I started dialysis in April 2007. My goal was to do PD, but due to the fact that I have Spina Bifida, that was not an option- well it turned out that it wasn't an option AFTER I had surgery!!! Needless to say my doctor at the time completely screwed me over- he claimed that he didn't know I had a shunt and that is something I DON'T believe, but needless to say I had a hard time dealing with him and his 'mistake'. I now do hemodialysis and had my surgery for the AV fistula June 28th and will soon be using it- yay! Some days are easier than others and honestly there have been times where I cannot handle it- but that's normal and I do know I'm lucky in lots of ways and I appreciate things more. More later





EDITED: Moved to Proper Section - Sluff/ Admin
« Last Edit: September 03, 2007, 08:39:51 AM by Sluff » Logged
Sluff
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« Reply #1 on: September 03, 2007, 08:43:54 AM »
Welcome to ihatedialysis.com Karen,

I'm so glad you found us. Hopefully you will gain confidence in your care by reading through the posts in this site. Read and post as often as you like. Ask questions if you have them. This is the right place for you to be. You are in control of your health care, it's your body so research and make informed decisions.

Take time out to have fun too.

Glad you are here.

Sluff/ Admin
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MyssAnne
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« Reply #2 on: September 03, 2007, 09:01:59 AM »
Welcome aboard Karen! :welcomesign;  Find a topic, and respond, we LIKE people to jump in, the more the merrier!   :beer1;
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Joe Paul
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« Reply #3 on: September 03, 2007, 09:02:56 AM »
Welcome Karen, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Adam_W
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Me with Baron von Fresenius
« Reply #4 on: September 03, 2007, 09:40:35 AM »
 :welcomesign; to IHD, Karen.
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
Hawkeye
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« Reply #5 on: September 03, 2007, 09:55:20 AM »
Hello and  :welcomesign; Karen.  Spina Bifida and kidney disease, sounds like you really got a raw deal.  My little brother (Well not so little he's 28) also has Spina Bifida so I am familiar with all the things you must deal with on that front as well.  You have found the best place in the world for information on dialysis so look around, ask some questions, and keep on keeping on.
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It's not easy being green.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #6 on: September 03, 2007, 11:11:39 AM »
:waving; Hi Karen,
I am glad to see you and hope you find a lot of friends and support here.
I an sorry about your unnecessary surgery - sometimes it feel like the doctors are clueless!
Take care and welcome!


okarol/moderator
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Laurie
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May 13, 2008
« Reply #7 on: September 03, 2007, 12:52:25 PM »
 :welcomesign; Glad you found this site.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
Razman
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« Reply #8 on: September 03, 2007, 01:36:55 PM »
Its great that you joined and I hope that everything works out OK with the surgery in June.    :canadaflag;
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Wattle
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« Reply #9 on: September 03, 2007, 03:45:09 PM »



 :waving;  Welcome Karen
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
Ohio Buckeye
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« Reply #10 on: September 03, 2007, 06:49:34 PM »
Welcome Karen to the IHD Family!
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If I must do this to live, I must strive to live
while I am doing this.
kitkatz
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« Reply #11 on: September 03, 2007, 09:37:42 PM »
Welcome to the site.  Take a look around and join in on some discussions.




kitkatz,moderator
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
keefer51
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« Reply #12 on: September 04, 2007, 02:52:09 AM »
 :welcomesign; Karen. I hope you enjoy this site. :waving;
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i am a 51 year old male on dialysis for 3 years now. This is my second time. My brother donated a kidney to me about 13 years ago. I found this site on another site. I had to laugh when i saw what it was called. I hope to meet people from all over to talk about dialysis.
RichardMEL
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« Reply #13 on: September 04, 2007, 08:58:14 AM »
Welcome Karen!! I'm sorry you were screwed around by your doctor.. but it sounds like you have the right attitude in approaching and dealing with dialysis!!! I hope you get that transplant soon!

Welcome!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #14 on: September 04, 2007, 10:59:51 AM »
Welcome to our community!  There is a place here just waiting for you!  We are so glad that you joined us.  This is the place to be for all facing this renal challenge.  As you have probably seen already, there is lots going on here.  In fact, we have become a genuine caring and sharing family.  This site is the best thing that happened to lots of us when we were diagnosed with kidney failure.
There is lots to read, but don't just read.  You need to post, and often, and let us know exactly what is going on with you.  When you want to vent and rage, this is the place to do it.  Here you will find people who REALLY know what you are going through.  This site has been developed to be a home away from home (and in fact, a home in your home!)  So take advantage of all this site has to offer, even the games arcade!

Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
brenda
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« Reply #15 on: September 06, 2007, 08:48:44 PM »
 :canadaflag; Welcome Karen!
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Life is what happens while your making other plans.
angela515
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i am awesome.
« Reply #16 on: September 06, 2007, 08:56:04 PM »
 :welcomesign;
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Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
charee
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« Reply #17 on: September 06, 2007, 09:01:17 PM »
 :welcomesign;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
fluffy
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Fluff!
« Reply #18 on: September 07, 2007, 09:40:18 PM »
 :welcomesign; hey there
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kidney4traci
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« Reply #19 on: September 11, 2007, 07:20:59 AM »
 :welcomesign;  see ya around!
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Married - three children.
Alports female, diagnosed ESRD 10/04
11/04  Hemo in clinic
6/07 hemo at HOME! 
2/3/09 - Transplant from an angel of a friend!!!
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!
« Reply #20 on: September 18, 2007, 06:27:13 AM »
 :welcomesign;
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Ken
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