THIS is how you remind me of what I really am...

[carla13]

Hey Sugarlump,

Just read this thread, hope things work out for you, so worrying when things don't go the way you want them to...

Noticed you were in the UK, whereabouts where you transplanted?

Hugs x

Carla

[Sugarlump]

East Anglia that flat place!!!

[carla13]

Hey,

East Anglia huh? England's a**e? Sorry, couldn't resist, I'm from the North West, which has areas that SHOULD be referred to as England's A**e!!

Keep us updated on your progress!

hugs,

carla
x

[Poppylicious]

Awww, Sugar.  Many, many *huggles* for you and Sidney. 

[Sugarlump]

Thanks Pops not over yet but wish it could have been better news. I nearly fell asleep at the wheel on A14 yesterday morning, following behind a lorry and started to nod off in boredom...that scared the f*** out of me ( never mind the biopsy) falling asleep behind the wheeel at 70 miles an hour is never a good idea!
Miracles do still happen (in Hong Kong x) 

[Brightsky69]

Sugar - I hope things improve tremendously for your kidney. 

[Sugarlump]

I cant go on anymore
The steroids have made me totally lloopy
All my new friends hate me
Just want to lie down and get it over forever
Sorry folks probably the strangest goodbye ever but can't go on
pretending anynore
Sugar xxx

[Chris]

Wish I had some advic other than hang in there it will get better, but that's over used. Call doctor and let them know what is going on, this does not sound good. It is not the normal you, so a dosage change or something maybe neded or eliminated. You can contact me if you want, I'm up most of the time

[Poppylicious]

I hope you've taken Chris's advice and contacted the doc.  I can't offer you anything but *huggles* at the moment, but I'm thinking of you. 

 

[Brightsky69]

   Dont give up.

[Sugarlump]

Thanks for your best wishes.
The doc did come out to me and has took one of my tablets off the list as the culprit but I despair of all these drugs fighting each other.
I lived to see another dawn though didn't sleep last night except few hours of daylight. Now being hassled to have an angiogram to look at renal artery to transplanted kidney which has significantly narrowed.
Me? I just want to pack my bags and run ...Australia...Hong Kong...California...Chicago...Colorado falls to name but a few... and never stop
running

Such a lonely life being a transplant patient...

[Chris]

Take a ruler aand draw a straight line on either side to see where you might go. As for the look n see of the renal artery, I would have that done unless you are eager to go on dialysis. Hang in there, take one day at a time and soon it will be a month, then a year.

[Sugarlump]

Thanks Chris its easy to get overwhelmed by sense of panic ....hold my hand for a moment 
Thats what I need Thanks x

[Des]

Hi,

I have been so wrapped up with my own problems that I have missed this thread - I just want to say that I know "hang in there" is not really a chear to live by but what else can we do but just go on day by day?

I am thinking of you and I hope that you can get all of this resolved SOONER than later.

Just wanted to let you know that I know what you are going through ( at least a little) 

 

[Sugarlump]

Thanks Des
Testing me more than i ever thought i could be tested right now.
But hanging on for grim death
Really worried about angiogram 2 people have told me about dangerous side effects that i may have heart attack first.
i am really big coward 

[RichardMEL]

i'm  a  big  coward  too! If  the  procedure  is  needed  to  help  you  overall  then    you  need  it.  as  or  side  effects  they  affec  everyone  differently  or  not  at  ll.  just  look  at  how  everyone  has  different  responses  to    preds.
Remember  you  are  at  a  low  point  now  for  several  reasons and  that  will  add  to  your  anxiety.  Be  heartened  that  you  have  come  this  far  shows  you  have  much  more  strength  than  you  give  yourself  credit  for.
Things  will  improve!

[albiecl]

Best of luck to you Sugarlump, I'm in the UK too so I'm sending you as many positive thoughts as I can from London.  Sounds like it has been a very difficult time for you.  Hope everything works out in the end x 

[Sugarlump]

i'm  a  big  coward  too! If  the  procedure  is  needed  to  help  you  overall  then    you  need  it.  as  or  side  effects  they  affec  everyone  differently  or  not  at  ll.  just  look  at  how  everyone  has  different  responses  to    preds.
Remember  you  are  at  a  low  point  now  for  several  reasons and  that  will  add  to  your  anxiety.  Be  heartened  that  you  have  come  this  far  shows  you  have  much  more  strength  than  you  give  yourself  credit  for.
Things  will  improve!

Thanks Rich I have Tiffany and Leila with me today which is helping me stay in touch with reality and keeping me sane.
Hope you are doing ok too and that the high dose preds aren't making you hyper I had them on Day5 post transplant, made me
shaky. Can't be that bad if your flirting with the patients/nurses
Keep me posted.
Sugar x

[rsudock]

sugar girl thinking of you and holding your hand!!!
 how are things?
xo,
R

[Sugarlump]

Feel very disassociated with the whole thing right now ... as if its happening to someone else and that ignoring it might make it go away...
I know the truth is it won't but need time to deal with all the issues ... Need feeling as lively these days perhaps I should up the steroids again.
My dancing with the hoover days are well and truly over!
          

[boswife]

It's good to see you sugar    Are things heading somewhere good yet?    I wanna see you happy Sugarlump...wishing you wellness! 

[Chris]

So your the one on YouTube dancing with the vaccum cleaner!
 
Hope you feel better soon.