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Author Topic: THIS is how you remind me of what I really am...  (Read 13814 times)
RichardMEL
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« Reply #25 on: April 09, 2011, 07:00:47 AM »
Yeah I've found my BP more unstable because I'm on a different med (Daltizen) which apparently is what you go on post-tx vs my pre-tx ace inhibitor (coversyl) which I took the minimum dose of and my BP was awesome. They did say at some point they will switch me back as it has something to do with absorbsion of cyclosporin or something. fun stuff all these damn meds that conflict! Guess they have to form an unholy alliance to get everything to more or less work.....
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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10 years on and off dialysis
« Reply #26 on: April 09, 2011, 07:38:43 AM »
Mine must be a VERY unholy alliance then more like a holey one!!!!  ;D  ;D  ;D
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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10 years on and off dialysis
« Reply #27 on: April 10, 2011, 04:43:25 AM »
Quote from: rsudock on April 07, 2011, 11:29:42 PM
I was on 3 different types of BP meds and  they weren't working...finally started on Norvasc and that one alone is keeping it under control 130s or lower!!  :yahoo;  Have you tried it?  Hang in there!!!

xo,
R
I looked up the english brand name which is AMLODOPHINE but unfortunately have had allergic reactions to FELODOPINE and NIFEDOPINE which are all part of the same group so unable to have this. They make my face go bright red, pounding heart, headache and faint! Makes you feel like you're having a heart attack on the spot! Unfortunately I seem to react with a lot of these drugs.   :thx;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #28 on: April 10, 2011, 01:54:30 PM »
Quote from: Sugarlump on April 10, 2011, 04:43:25 AM
Quote from: rsudock on April 07, 2011, 11:29:42 PM
I was on 3 different types of BP meds and  they weren't working...finally started on Norvasc and that one alone is keeping it under control 130s or lower!!  :yahoo;  Have you tried it?  Hang in there!!!

xo,
R
I looked up the english brand name which is AMLODOPHINE but unfortunately have had allergic reactions to FELODOPINE and NIFEDOPINE which are all part of the same group so unable to have this. They make my face go bright red, pounding heart, headache and faint! Makes you feel like you're having a heart attack on the spot! Unfortunately I seem to react with a lot of these drugs.   :thx;


sorry Slump that sucks! hopefully your neph can pull a BP pill that works out of his hat!!!

thinking of you...

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
RichardMEL
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« Reply #29 on: April 11, 2011, 01:03:05 AM »
Quote from: Sugarlump on April 10, 2011, 04:43:25 AM
I looked up the english brand name which is AMLODOPHINE but unfortunately have had allergic reactions to FELODOPINE and NIFEDOPINE which are all part of the same group so unable to have this. They make my face go bright red, pounding heart, headache and faint! Makes you feel like you're having a heart attack on the spot! Unfortunately I seem to react with a lot of these drugs.   :thx;

Wait a minute, aren't those symptoms almost exactly what happens when you see a bloke you like a lot????  :rofl;  >:D

(sorry, just couldn't resist that one!)
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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10 years on and off dialysis
« Reply #30 on: April 11, 2011, 04:26:25 AM »
He would have to be "some" fella to do all that!!!!!!!!!!!  ;D
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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10 years on and off dialysis
« Reply #31 on: April 12, 2011, 10:40:07 AM »
Blood pressure is worse 166/111 today. Waiting (still) for call back from hospital.
Never going to do biopsy if its that high.

And I checked my machine (Rich! i used a control reading from normal non kidney failure person and got  reading 107/65 so it is correct)
having a g and t and thinking calm thoughts well trying!!!! ( >:D >:D :P :P :P )
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
MooseMom
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« Reply #32 on: April 12, 2011, 04:43:14 PM »
Gosh, this is rather unsettling.  I'm really sorry you're having such a worrying time with your bp.  I'm very curious to know what's going on; let us know what the hospital has to say, OK?
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
RichardMEL
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« Reply #33 on: April 13, 2011, 02:19:37 AM »
Some links for thought:
http://www.highbloodpressureinfo.org/high-blood-pressure-and-alcohol.html
http://www.mayoclinic.com/health/blood-pressure/AN00318
http://en.wikipedia.org/wiki/Hypertension

Seems like one G&T a day is okay! :)
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #34 on: April 13, 2011, 02:32:31 AM »
Are you suggesting I drink too much Mr M !!!!!!!!! :beer1;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Brightsky69
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« Reply #35 on: April 13, 2011, 11:09:09 AM »
I wonder about my BP machine sometimes. Last night right before bed I got a reading of 118/90 then about a half hour later when I was in bed and relaxing my BP was 98/76.
I am so not use to it.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
Chris
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« Reply #36 on: April 13, 2011, 06:05:28 PM »
I had a different reaction when I was on Niefedopine compared to Norvasc and the Amlodopine Besylate generic version. Not all generics react the same to me.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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10 years on and off dialysis
« Reply #37 on: April 14, 2011, 01:25:37 AM »
Supposed to be trying Remapril today when they sort it out btwn hosp and gp, on top of Propranol.
Turn me upside down and shake me to hear me rattle!!!!  ;D
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Posts: 9219


WWW
« Reply #38 on: April 14, 2011, 03:29:46 AM »
I have had that bed test, tilt table test.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
buffalogal855
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« Reply #39 on: April 14, 2011, 04:44:13 AM »
Sugarlump - I'm new to this site, but wanted to give a BIG hug today.
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Sugarlump
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10 years on and off dialysis
« Reply #40 on: April 14, 2011, 05:54:22 AM »
Thanks hon  :cuddle; accepted x
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Posts: 9219


WWW
« Reply #41 on: April 14, 2011, 08:56:19 PM »
Hopefully doc visit works out ith new theory.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #42 on: April 15, 2011, 10:59:03 AM »
No improvement in bp  :urcrazy;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #43 on: April 15, 2011, 06:08:08 PM »
That sucks, but maybe in a couple days?
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #44 on: April 16, 2011, 12:09:50 AM »
Biopsy 10am Monday?
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #45 on: April 16, 2011, 12:42:56 AM »
Hate those, but luckily always out after first one on liver was so nerve racking.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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*****
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #46 on: April 18, 2011, 07:14:28 PM »
Not good news I'm afraid.
Awaiting biopsy results wed am at clinic but creatinine risen to 210
Stopped new medication and trying yet another. May have acute antibody mediated rejection. Again.
Uncontrolled high bp. Possible narrowing of renal artery.
Not looking good for Sidney.

Anyone got a spare miracle I could have ... :waiting;  :waiting;  :waiting;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Posts: 9219


WWW
« Reply #47 on: April 18, 2011, 07:32:48 PM »
I can "spare a square"
 
Sorry to hear of possible bad news Sugarlump.
« Last Edit: April 19, 2011, 01:05:35 AM by Chris » Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
galvo
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Posts: 7252
« Reply #48 on: April 18, 2011, 11:51:26 PM »
Not good, sugar. My thoughts are with you.
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Galvo
Sugarlump
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10 years on and off dialysis
« Reply #49 on: April 19, 2011, 12:11:21 AM »
Thank you galvo its a bummer  :'(
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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