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Author Topic: THIS is how you remind me of what I really am...  (Read 13817 times)
Sugarlump
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10 years on and off dialysis
« on: April 07, 2011, 01:45:35 PM »
Once a kidney transplant patient ... always a kidney transplant patient.

My blood pressure is sky high tonight 160/107. I'm on my 6th set of different blood pressure medication combos to try and control it.
Not working. Resorted to drowning my sorrows in a gin and tonic in the hope it just might help...
Tired of all the hassle. Left message for my kidney doc. (He's off sick !!!)
Everyday it remains high can damage the transplanted kidney.

For just once, could it all work as its supposed to...and allow me to forget...

 :boxing;


PS>Apologies to Nickleback  8)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #1 on: April 07, 2011, 02:15:32 PM »
Nickle who?  :-[ :rofl;
 
Ittook a long tiome for the doctors to figure my bp meds out with a lot of different combinations. Some worked for awhile, but then had to change again. Last change was 3 years ago. We are just a pain to be controlled. Drinking alone is not good also, but hopefully doctor can figure the right combination soon.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
MooseMom
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« Reply #2 on: April 07, 2011, 02:38:17 PM »
I love that song!

I'm so sorry you are having these problems.  Nothing's easy... ::)
Logged
"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
Sugarlump
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10 years on and off dialysis
« Reply #3 on: April 07, 2011, 04:29:00 PM »
Hello moosey my friend it came on my ipod and i thought how appropriate!!!
Its a bugbear that won't go away!

                                                  :Kit n Stik;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
galvo
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« Reply #4 on: April 07, 2011, 05:38:45 PM »
It's one bloody thing after another, is it not? Hang in there, kiddo.
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Galvo
willowtreewren
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My two beautifull granddaughters

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« Reply #5 on: April 07, 2011, 05:54:30 PM »
Awww.

Not good to hear....

 :cuddle;
Logged
Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Sugarlump
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10 years on and off dialysis
« Reply #6 on: April 07, 2011, 10:39:40 PM »
After a good nights sleep checking bp now and da dah its 141/94... guess I'll have to ring in today otherwise when I turn up
for biopsy, it will be too high for op...
BTW I am NOT spending Grand National weekend in hospital no way no sir
My favourite betting weekend of the year!!!!!!

  :yahoo;  :yahoo;  :yahoo;
Thanks for all's your support it really helps to know you're out there keeping an eye on me  8)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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« Reply #7 on: April 07, 2011, 11:27:41 PM »
Still need to get it a little lower or is 141 ok for you?
 
Mine is high when I go to the docs and finally woken up from a long wait and hurrying to exam room.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
rsudock
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will of the healthy makes up the fate of the sick.
« Reply #8 on: April 07, 2011, 11:29:42 PM »
I was on 3 different types of BP meds and  they weren't working...finally started on Norvasc and that one alone is keeping it under control 130s or lower!!  :yahoo;  Have you tried it?  Hang in there!!!

xo,
R
Logged
Born with autosomal recessive polycystic kidney disease
1995 - AV Fistula placed
Dec 7, 1999 cadaver transplant saved me from childhood dialysis!
10 transplant years = spleenectomy, gall bladder removed, liver biopsy, bone marrow aspiration.
July 27, 2010 Started dialysis for the first time ever.
June 21, 2011 2nd kidney nonrelated living donor
September 2013 Liver Cancer tumor.
October 2013 Ablation of liver tumor.
Now scans every 3 months to watch for new tumors.
Now Status 7 on the wait list for a liver.
How about another decade of solid health?
Sugarlump
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10 years on and off dialysis
« Reply #9 on: April 08, 2011, 01:37:16 AM »
The diastolic (second) figure should be 85 max  having come back from dog walk and taken meds is now da dah oooh 123/78 result!!!!!
First time under in 3 days put the flags out  :ukflag; :ukflag; :ukflag; :ukflag; :ukflag; :ukflag;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Sugarlump
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Posts: 2160


10 years on and off dialysis
« Reply #10 on: April 08, 2011, 05:45:30 AM »
That didn't last long now 153/109 at 13.45pm Oops.
Better stop chatting up a certain person and think calm thoughts!!!!          :oops;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Jie
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« Reply #11 on: April 08, 2011, 10:55:02 AM »
High BP seems to be common for transplant patients. At my post-transplant class, almost everyone except me is taking BP medicines. The prograf and morfortic seem not do any thing for my BP. I am more worrying about the low BP than high BP. This morning, my BP is 96/61, crossing the threshold for calling the transplant center.
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Brightsky69
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« Reply #12 on: April 08, 2011, 11:25:08 AM »
Jie - My BP has been pretty normal since my transplant...weird. Usually runs 118/77 ish  It's weird because I know my donor was just starting on BP medications. (she passed from a brain aneurysm ) While I had my 1st transplant I stayed on BP medications.
Now with this kidney it's in the normal range.
Logged
Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
wj13us
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Paul's ride 2011
« Reply #13 on: April 08, 2011, 11:48:02 AM »
Been there, done that.

Took a couple of months before it was all worked out.  Had everything from headaches, swollen feet and ankles, and so low almost fanted a few times and everything in between.

But in the end they figured me out and been fine ever since...I'd say about 8 years now.

Bill
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Poppylicious
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« Reply #14 on: April 08, 2011, 11:56:06 AM »
Awww, Sugar.  Don't let those horses get you too excited this weekend.  (And maybe you should keep away from the men for a while too.)

 ;D

Hope it all sorts out for you soon.

*huggles*
Logged
- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
angela515
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i am awesome.
« Reply #15 on: April 08, 2011, 11:59:54 AM »
That sucks.... I hope you get it sorted quickly.

If mine ran that high I would have a seizure... eek.

Good luck :)

Angie <3
Logged
Live Donor Transplant From My Mom 12/14/1999
Perfect Match (6 of 6) Cadaver Transplant On 1/14/2007
Sugarlump
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10 years on and off dialysis
« Reply #16 on: April 08, 2011, 12:08:07 PM »
Quote from: Poppylicious on April 08, 2011, 11:56:06 AM
Awww, Sugar.  Don't let those horses get you too excited this weekend.  (And maybe you should keep away from the men for a while too.)

 ;D

Hope it all sorts out for you soon.

*huggles*
Unfortunately Poppy, I'm addicted to both species.  :rofl;  :rofl;  :rofl;
3 decent winners this afternoon and a lot of excitement!!!! Can't live in a darkened room for the rest of my life!!!  :P
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
RichardMEL
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« Reply #17 on: April 08, 2011, 08:26:25 PM »
My BP seems to over around 130-140/85-90 when they do it, but then again last few times at clinic they've had students doing the BP taking. Docs don't seem overly concerned at this point. At the start of my transplant journey I actually had the funny/odd situation where when the really good looking female registrar would take my BP it would be low/normal (like 125/65!) and when the male one would take it it would be like 150/90 (!!!) it kind of became a bit of a fun joke for a bit. Both regs have moved on now so I seem to have settled down - higher than lower alas!  :rofl; :rofl; :rofl; :rofl; :rofl;
Logged


3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Sugarlump
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10 years on and off dialysis
« Reply #18 on: April 08, 2011, 08:55:28 PM »
High blood pressure does damage the kidney and they won't do a biopsy if its high either so somehow I need to get it down  ?

 :boxing;  :boxing;  :boxing;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Gender: Male
Posts: 9219


WWW
« Reply #19 on: April 08, 2011, 11:12:00 PM »
I've got nothing to input. Mine was low today cmpared to other times at doctor offices. Maybe due to exercise that wore me out the day before?
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #20 on: April 08, 2011, 11:31:46 PM »
Morning starting the day with 154/99 eek on Grand National Day!!!!
Come on Sidney sort it out  ???

Anyone got any suggestions on lowering it less fluid or more fluid?
                                                            exercize?
                                                            alcohol (worked the other night?)
                                                            laying flat with legs in the air?    :urcrazy;

 :sos;  :sos;  :sos;
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Chris
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Posts: 9219


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« Reply #21 on: April 08, 2011, 11:50:39 PM »
legs in the air draws blood to chest, so no I would think, exercise supose to, and alcohol I can not remember.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Sugarlump
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Gender: Female
Posts: 2160


10 years on and off dialysis
« Reply #22 on: April 09, 2011, 02:28:23 AM »
 
Quote from: Chris on April 08, 2011, 11:12:00 PM
I've got nothing to input. Mine was low today cmpared to other times at doctor offices. Maybe due to exercise that wore me out the day before?
         
???
Good workout then ?

Mine still really high today.  :banghead;
« Last Edit: April 09, 2011, 03:13:32 AM by Sugarlump » Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: April 09, 2011, 02:59:08 AM »

Ok I know this is going to sound like a dumb question - but are you doing ok controlling your salt intake?
Just had to ask.
 :waving;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sugarlump
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10 years on and off dialysis
« Reply #24 on: April 09, 2011, 03:11:08 AM »
Its not a dumb question but I haven't really changed salt levels from pre-transplant dialysis levels so should be alright.
Might watch that though in case I can lower intake more.
I think its related to the drugs more than anything as bp was fine on dialysis !!!! My kidney doc is still off sick so will probably wait til Monday and hope
he returns then. My gp won't touch my drugs without other kidney doc's say so and if I ring in, I just know they'll make me go in even if temporarily.
Not today. Monday if still very high, will have to phone in regardless.
I walked dog after taking meds and its now lower 133/74 was 166/111 earlier. Its very unstable but the new bp med they're trying propranol is a slow release one so its making it go up and down rather than keeping it steady. (Only been on these 10 days)
Logged
10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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