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Author Topic: Tests have been scheduled!  (Read 13139 times)
kitkatz
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« on: December 18, 2006, 08:36:49 PM »
The waiting is coming to a close soon!  The loopogram is scheduled for this Thursday at 3p.m.  The CT scan is scheduled for Jan 4 at 2pm.  Plus an ultrasound at 3 of the av graft same day at 3:30.   Wish me luck!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #1 on: December 18, 2006, 08:40:21 PM »
Good Luck!!   I'm thinking happy thoughts. Just don't tell the guys in the little white coats that I'm having happy thoughts...k
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jbeany
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Cattitude
« Reply #2 on: December 19, 2006, 12:00:10 AM »
 :clap;
 :grouphug;


Keeping my fingers crossed for you!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Amanda From OZ
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« Reply #3 on: December 19, 2006, 12:23:09 AM »
Good Luck.  :)
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angela515
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i am awesome.
« Reply #4 on: December 19, 2006, 07:00:15 AM »
Good Luck!!!  :grouphug;
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Live Donor Transplant From My Mom 12/14/1999
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mallory
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« Reply #5 on: December 19, 2006, 10:25:26 AM »
Best of luck, Kitkatz!  We'll be thinking of you and praying for you!   :grouphug;
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
goofynina
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He is the love of my life......
« Reply #6 on: December 19, 2006, 11:53:58 AM »
This is it girlfriend,  the beginning of the rest of you life ;)   no worries, i am sure you will do just fine, i'll have you in my prayers  :angel;  Remember, we are with you ALL THE WAY!!! :grouphug;
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....and i think to myself, what a wonderful world....

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kitkatz
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« Reply #7 on: December 19, 2006, 06:22:42 PM »
OKay Goofynina, You show up Thursday and do the Loopogram! :rofl; :rofl; :rofl;  Thanks for the warm wishes and prayers.  I am going to need them in order not to scream at people on Thursday!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
mallory
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« Reply #8 on: December 20, 2006, 08:45:49 AM »
Ummmmm, if it's not too personal, what is a loopogram?  I thought I'd had about every test there is, but I've never heard of a loopogram.  Whatever it is, I feel sorry for you having to have it!
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Sluff
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« Reply #9 on: December 20, 2006, 08:58:02 AM »
Hope this helps.

http://www1.wfubmc.edu/NR/rdonlyres/8DCA4247-A160-4408-839C-C28FEDB1747F/0/loopogram.pdf
« Last Edit: December 20, 2006, 09:09:24 AM by sluff » Logged
mallory
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« Reply #10 on: December 20, 2006, 09:22:58 AM »
Thanks, Sluff.  Now I really feel for you, Kitkatz!  Best of luck to you!
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Sometimes the light’s all shinin’ on me;
Other times I can barely see.
Lately it occurs to me what a long, strange trip it’s been.
                                  - Jerry Garcia
Sluff
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« Reply #11 on: December 20, 2006, 09:55:13 AM »
Glad I could help. I just wish I could help Kitkatz.  Take care Kit I'm rootin for you.  :cuddle;
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BigSky
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« Reply #12 on: December 20, 2006, 10:20:54 AM »
Best of Luck. :)
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kitkatz
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« Reply #13 on: December 20, 2006, 08:38:13 PM »
Sluff you want go for me tomorrow?  Goofynina said no when I asked her.  *sniff* *sniff*  I will let you all know how this turns out. I remember doing this test eight years ago when the kidneys shut down.  They just want to look around and see if everything is okay with the urostomy first.  I am going to attempt not to kick the X-ray tech in the balls tomorrow afternoon!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #14 on: December 20, 2006, 09:00:39 PM »
Kitkatz relax get some rest. I hope the best for you tomorrow and will  be awaiting your next post as to how things went.

Good thoughts . :grouphug;
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anja
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« Reply #15 on: December 20, 2006, 09:41:34 PM »
Best of luck to you tomorrow, Kitkatz  !  Be thinking good thoughts... :2thumbsup;
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charee
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« Reply #16 on: December 20, 2006, 10:35:28 PM »
Good Luck tomorrow Kitatz thinking of you  :cuddle;
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Home Hemo  18 months
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from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
paris
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« Reply #17 on: December 21, 2006, 11:41:07 AM »
Hope you do well - will be saying prayers for you.
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Bajanne
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« Reply #18 on: December 21, 2006, 12:33:11 PM »
Please don't forget you are our resident superwoman.  You always win out in the end, however dastardly the foe.  My prayers and caring thoughts are with you.
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kitkatz
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« Reply #19 on: December 21, 2006, 07:53:25 PM »
Okay...so what can I say about an X-ray test that did NOT hurt, but was inconclusive.  The urostomy showed no sign of reflux, that they could tell from it, but they could not get the stuff to go up into the loop so they could see the loop and kidneys in the pictures.   They even called in a second specialist to have fun with the catheters and even changed out the catheters.  He just made more of a mess all over me. They had contrast all over me by the time we were finished with it all. 
    Surprised the hell out of me when I show up for a loopogram and they wanted a cystogram too. I told them they were getting one test at a time on me and they could do the loopogram, but the cystogram could be rescheduled. I can only do one thing at a time at the hopsital or else I will FREAK out. I know they do not want me screaming and yelling, running down the maze of halls at Kaiser!  They let me reschedule the cystogram to the day after Christmas.  What fun! I had the X-ray tech tell me exactly what a cystogram was.  It sounds like loads of fun!  They put a catheter in the bladder and fill it with contrast to take a look at it.   Then they have you pee all over your self and take pictures.  Sheez!  I am just looking forward to that one!
     So there it is, a funny little test that did not work on me.  Why does everything have to go the hard way for me at these things?
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Sluff
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« Reply #20 on: December 21, 2006, 07:57:14 PM »
Hey Survivor they gotta test all this stuff out on somebody.  :D 
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kitkatz
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« Reply #21 on: December 21, 2006, 08:30:12 PM »
Thanks Sluff!   Why Me??
 :rofl;
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
kitkatz
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« Reply #22 on: December 26, 2006, 09:58:01 PM »
Okay, so when I am completely insane you people will come visit me in the insane asylum, right?  Either that or I am going to take up drinking! :wine;
Here is today's news.  I went to Kaiser X-ray for the cystogram today. Yep, I pulled on my woollies and screwed up my courage and went in for another test at Kaiser!  How about that!  So I am lying on the X-ray exam table and the tech can't catheterize me.  It hurt like hell and I hollered at the tech.  She asked me if it was pressure or if it hurt. It is not supposed to hurt.  If I say it hurts, it hurts, lady!  So the tech, who was very nice and did not want to continue hurting me,so she goes to call the nurse.  It takes fifteen minutes for the nurse to finally show up. Meanwhile I am freezing my ass off in a cold X-ray room. And I HATE being left alone in an X-ray room for too long. They do that all the time, leave you all alone with the machine. (I am going to start talking to X-ray equipment when they leave me alone in the rooms now!Then they will certify me crazy!)  So anyway the nurse shows up and she tries to catheterize me three different times with three different size catheters.  They use Lidocaine on the catheters so it would not hurt so much for me.  The pain pretty much went away but she could not catheterize me either.  She said she could see where it was supposed to go, but there was a stricture there preventing it. Now what in the hell it is they do not know. So they are going to write up a radiology report that was inconclusive and I get to call the transplant coordinator and explain it all to her. They will probably send me to urology at Kaiser where they have specialized equipment to do whatever they need to do to me. *Sigh*  :banghead;
I am sore from them trying to catheterize me.  It was not fun and I was extremely frustrated when I left Kaiser.  :banghead;
     I had already had dialysis this morning from 5 to 9 and then went at 1p.m. for this test.  I stopped on the way home from Kaiser and had Del Taco french fries and a diet coke with lots of ice and some lunch! The on the Walgreens to resupply the ice age at home.  I arrived home frustrated and pissed at myself and at everything.  I hate having to go back and forth with doctors and tests and stuff.  I am thinking about giving transplant stuff up!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
nextnoel
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« Reply #23 on: December 27, 2006, 08:23:24 AM »
I'm so sorry you had such a horrible experience!  I can't offer any advice, but I can offer my good thoughts and prayers, and you got 'em! :grouphug;
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I can't reach the hill like I used to, but I'm not at a standstill yet!
paris
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« Reply #24 on: December 27, 2006, 10:16:51 AM »
Don't give up the testing -- it is truly a pain and it goes on for months, but it is a way to get to your goal. And they always seem to find just one more test to do!  Hugs  :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
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