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Author Topic: My LONG wait is over after 7 years IM getting a kidney on Thursday!!  (Read 10750 times)
Neo
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Dont let dialysis stop you...
« on: October 19, 2010, 01:48:13 AM »
I know this is the dialysis bored but I have always been on here when I talk to you guys and most of my friends on here patrol this board. So Yea i cant believe its finally happening I am 93% sensitized and my friend matched me about a year ago and weve been through a ton of tests and just a lot of obstacles because of a really bad transplant center, But its actually happening on Thursday..Going to the hospital Wednesday Morning. Than the surgery is Thursday morning! Thank you all for always lending an ear! IM still going to school to be a physician assistant, so Ill have a lot more time for school. I just turned 32 so its a pretty great present! I missed out on my 20's so ill be making up for that very soon..LoL You all have helped me through some very tough times... THANKS!! And remember to always have hope. The impossible CAN happen!!!


Edited: Moved to transplant section - okarol/admin
« Last Edit: October 29, 2010, 12:34:35 AM by okarol » Logged
lou
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« Reply #1 on: October 19, 2010, 01:56:15 AM »
 :clap; Such wonderful news, best of luck neo! wishing you a fantastic 30's!!  :bandance; :bandance; :bandance;
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Rerun
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Going through life tied to a chair!
« Reply #2 on: October 19, 2010, 02:27:22 AM »
Hey, best of luck and stay with this board because we have a whole Transplant Experience section.

                :yahoo;
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Zach
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"Still crazy after all these years."
« Reply #3 on: October 19, 2010, 07:25:46 AM »
 :beer1; :beer1; :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
RichardMEL
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« Reply #4 on: October 19, 2010, 07:36:11 AM »
Great news!!!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Poppylicious
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« Reply #5 on: October 19, 2010, 07:55:06 AM »
Fabulous news Neo. Hope it all goes swimmingly.

 ;D
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
YLGuy
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« Reply #6 on: October 19, 2010, 08:01:48 AM »
 :bandance;
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jbeany
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Cattitude
« Reply #7 on: October 19, 2010, 08:07:43 AM »
 :bandance; :bandance; :bandance;

You still can stick around, you know!  We have a great transplant board here as well - and believe me, when you start dealing with the meds, you will want to compare notes with someone who has been through it already.

Congrats!
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"Asbestos Gelos"  (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter".  A term used by Homer for invincible laughter in the face of death and mortality.
Marina
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God Bless my donor family!! :)
« Reply #8 on: October 19, 2010, 08:19:24 AM »
Neo,

wonderful  news  to share with us    :bandance;.   I'll keep you and  your  donor   in  my  thoughts  and  prayers  for  a  speedy  recovery.
I'm  so  happy  for you!!!!!!!!!!!!    :beer1;    :cuddle;

I  wanted  to  give you  some  green  for  good  luck    but  looks  like  my  choices  are  very minimal,  so  I  will give you  a   :christmastree;  yeah  whole  lot  better  than  the  puking  guy    :urcrazy;

Please do  come  back and  share your  experience,  I'm  awaiting  a  kidney  and  pancreas, and  like  to hear  what  other  patients  experience  so  I  can  know  what  to  expect.
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"Anything is possible, if  you  BELIEVE....."  ~~~Joel  Osteen

"Yesterday is history, Tomorrow is a mystery, Today is a gift..... That is why it is called the present"

*************************************************
 Nov 1979 ~ Diabetes 
Apr. 2004- Nov 2010 ~ CAPD
Nov 9, 2010 ~  Received the  THE  GIFT OF LIFE at 
California Pacific  Medical  center  (CPMC)  in San  Francisco,  CA
Sluff
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« Reply #9 on: October 19, 2010, 09:38:26 AM »
Great news Neo!
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boswife
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us and fam easter 2013
« Reply #10 on: October 19, 2010, 09:59:42 AM »
how wonderfuly exciting..   :yahoo;   you know your going to have to keep in touch and give all the news  ;)  Im very excited.. the "30's" are going to be GREAT!!!!!  all the best..and cant wait to hear more..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
MooseMom
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« Reply #11 on: October 19, 2010, 10:08:49 AM »
Yes, please do keep posting after your transplant as you will have a whole new set of experiences you can share and we can learn from!  This is wonderful news, and I am so grateful to your donor.  This is just so great!!!  I can't wait to hear more!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
galvo
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« Reply #12 on: October 19, 2010, 12:38:32 PM »
Onya, Neo!
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Galvo
FindingNeverland
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« Reply #13 on: October 19, 2010, 12:42:20 PM »
Congrats!!  :yahoo;
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~*Laughter is the Language of the Soul*~
KICKSTART
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In da House.
« Reply #14 on: October 19, 2010, 12:43:05 PM »
You can tell how excited you are ..you've put 'fetting' instead of 'getting'  :2thumbsup; Dont forget the 30's are the new 20's !  :rofl;  :clap; :clap; :clap;
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OH NO!!! I have Furniture Disease as well ! My chest has dropped into my drawers !
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #15 on: October 19, 2010, 12:56:57 PM »
WONDERFUL.............the best new today.....good luck to you
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
Neo
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Dont let dialysis stop you...
« Reply #16 on: October 19, 2010, 03:11:34 PM »
Thanks guys! I'm nervous about the surgery but excited about the future! And ill be posting for a long time. You guys are great! And i will be in touch. I guess I can look forward to contributing to the transplant section. Don' :yahoo;t hesitate to keep in touch with me either.. Thanks again everyone and ill update as soon as I'm able to..
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lola
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I can fly!!!
« Reply #17 on: October 19, 2010, 04:22:05 PM »
WOOOOOOOOOOOHOOOOOOOOOOOO NEO!!!!!! OMG I'm so happy for you!!!!!
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paris
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« Reply #18 on: October 19, 2010, 04:47:43 PM »
Neo!!! I am so thrilled for you!!  We will all be with you in thoughts and prayers.   I am about 6 weeks ahead of you.  The surgery is not bad at all. They asked if I wanted to see the new kidney in the operating room.  I said YES!   The pain afterwards was much less than I anticipated.  I was in ICU the first day, and only used the morphine pump 4 times in 24 hours. (apparently 16 times is normal)  Use it and stay on top of the pain.  Then percocet easily controlled the pain.  I never got above a 3 out of 10 pain level.  Getting up and walking wasn't hard either.  I was ready to try while still in ICU. It felt good to stretch and sit in a chair.  I do think the "high" you have after surgery helps a lot. I just couldn't believe it happened and couldn't stop smiling.     If I could suggest taking something with you, it would be lip balm and tic-tacs!  Dry lips and mouth was my biggest problem.  And that can't count as a problem compaired to kidney failure!!     But, do take things easy and rest. Your body needs sleep to help heal itself.   I know I am rambling, but I am so excited for you I can hardly stand it.

Is there anyone who could post here for you so we know how you are doing?   You know someone has to post a picture of you holding your "golden liquid" bag before you leave the hospital?!  That is the shot we all want to see!

Good luck, Neo.  Your world is going to change in a couple of days.  You deserve this.    :cuddle;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: October 19, 2010, 07:05:56 PM »
 :flower; WooohOOOOOOOOOOO!

Great news!

I PM'd you neo.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
chook
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« Reply #20 on: October 19, 2010, 07:10:46 PM »
All the best for the transplant, Neo, for you and your donor firiend (read 'hero' for friend!)  :cheer:
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
kellyt
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« Reply #21 on: October 19, 2010, 08:15:15 PM »
Congratulations Neo!  I'm thrilled for you!  God Bless your friend.  Please keep in touch!  The surgery isn't bad at all.  I slept through the whole thing.   ;)
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
natnnnat
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« Reply #22 on: October 19, 2010, 11:29:53 PM »
Gosh Neo, I guess its nearly time for you to go into hospital now.  So happy to hear your news, and can't wait to hear from you on the "other side".  Hope everything goes smoothly for you and your fabulous friend.  A big hug coming your way:    :cuddle;
and this one is for your donor:   :grouphug;
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
glitter
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« Reply #23 on: October 20, 2010, 07:32:10 AM »
Tomorrow is the BIG DAY!!  :flower; :flower; :cheer: :cheer: :cheer: :bandance; :bandance;
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Sluff
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« Reply #24 on: October 20, 2010, 08:34:35 AM »
Woo!Hoo!  tomorrow we will be thinking of you Neo!!
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