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Author Topic: My LONG wait is over after 7 years IM getting a kidney on Thursday!!  (Read 10748 times)
Sunny
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Sunny
« Reply #25 on: October 20, 2010, 05:57:17 PM »
Your big day is here!
Good luck to both you and your donor.Hope all goes well and you are able to begin a renewed life.
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Sunny, 49 year old female
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Jean
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« Reply #26 on: October 21, 2010, 01:19:40 AM »
Such wonderful news. You have made every bodys day with this. Hope it all goes well for you.   :bandance;
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One day at a time, thats all I can do.
Sluff
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« Reply #27 on: October 21, 2010, 07:15:55 AM »
Well today is the Big Day Neo and I hope all is well and goes smoothly. You are in my thoughts and prayers today.
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YLGuy
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« Reply #28 on: October 21, 2010, 12:16:37 PM »
Thinking about you today.  :pray;  :bandance;
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Bajanne
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« Reply #29 on: October 21, 2010, 01:00:32 PM »
Lots of love and caring thoughts going your way.  Please let us know SOON how you are doing.
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kellyt
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« Reply #30 on: October 21, 2010, 01:51:40 PM »
You're in my thoughts, Neo!   I hope you and your donor are sleeping soundly, and I hope you have a full bag of urine hanging off the side of your hospital bed!


Only on this site can we say "urine" and no one is grossed out.   :rofl;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
MooseMom
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« Reply #31 on: October 21, 2010, 01:57:18 PM »
Yes, urine is very important to us here on IHD! :2thumbsup;

Can't wait to hear from Neo! 
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
chook
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« Reply #32 on: October 21, 2010, 05:40:47 PM »
Thinking of you, Neo. But I get confused with the time difference: here in Oz I think our Friday is the US Thursday. (Thinking about it makes mt head ache   ??? Anyway......hope all is going well for you
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
okarol
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« Reply #33 on: October 29, 2010, 12:30:40 AM »
Got a note from Neo. He says the surgery went great. Everything is working and creatinine is 1.4. Slight problem is trouble urinating without the catheter - but he didn't pee for 6 years while on dialysis so the surgeon says hes pretty positive his bladder just needs time to strengthen up.

 :waving; I hope Neo will post soon.

Congrats!!  :bandance;
« Last Edit: October 29, 2010, 12:32:02 AM by okarol » Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jean
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« Reply #34 on: October 29, 2010, 12:41:56 AM »
Thats very good news!!! Hope it starts up really good soon.   :bandance;
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One day at a time, thats all I can do.
kellyt
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« Reply #35 on: October 29, 2010, 07:57:31 AM »
Great news!  As always, thanks for the update, Karol!!!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Riki
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« Reply #36 on: October 29, 2010, 08:51:12 AM »
That's awesome... Thanks for the update.. I had the catheter in for a few days afterwards after both my transplants.  It's the learning how to hold it again that's hard to do.. *L*
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
lola
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I can fly!!!
« Reply #37 on: October 29, 2010, 08:53:44 AM »
WooooooooooooHooooooooooooooo Neo!!!!!
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MooseMom
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« Reply #38 on: October 29, 2010, 10:33:21 AM »
Another IHD member with a new lease on life...how fantastic!
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
natnnnat
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« Reply #39 on: October 29, 2010, 04:32:57 PM »
Gregory often tells me with great pride about the day he wet the bed - when his new kidney started working.
 :thumbup; :thumbup;
Wishing you an easy time in recovery Neo (not fun once the morphine wears off).  Gregory says it hurt for about 5 days.  Maybe Neo is out climbing buildings and dodging bullets already, its more than 5 days now (gratuitous Matrix reference)
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
boswife
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us and fam easter 2013
« Reply #40 on: October 29, 2010, 05:09:12 PM »
YEAH!! thanks for the update!!  Cant wait to hear someore..
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
Neo
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Dont let dialysis stop you...
« Reply #41 on: October 31, 2010, 12:55:02 AM »
Hey guys! I'm finally home now.. I have a full bag of urine..lol kidney is making tons of it.. I joked with my donor and said damn you pee a lot.. LoL well so far everything has went great no problems the kidney is working great. It's just that I had the catheter out after the 5th day, peed ok for a few hours but than it got tougher to go and I had a huge urge to go. I went just only 75cc at a time. They seem to think it has to do with the fact I hadn't peed in 7 years, and the anesthesia may have affected the prostate temporarily enlarged it a bit so I'm on flomax. I had to get a catheter put back in cuz the pressure on my bladder was pretty painful and they didn't want to mess anything up. The docs say it's no biggie. They said my bladder will "wake up" soon.. I'm got home after 8 days in the hospital Thursday with a foley.. I get it out Monday so I'm hoping I can go ok cuz I really dot want another one put in.. Anyone else with a tranplant have that problem urinating? However they said everything looks great and they fully expect me to be just fine, they said this happens. And the important part is everything is going perfect. So hopefully Monday I'm done with this damn catheter cuz i feel great.. THANKS SO MUCH FOR THE KIND WORDS THE MEAN ALOT!! I'm so excited about the future!!!
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Jean
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« Reply #42 on: October 31, 2010, 12:58:31 AM »
So very happy for you Neo. Did you give your new little bean a name yet?
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okarol
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« Reply #43 on: October 31, 2010, 01:03:37 AM »
 :cheer: Yay PEE!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Joe Paul
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« Reply #44 on: October 31, 2010, 02:33:04 AM »
Quote from: Neo on October 19, 2010, 01:48:13 AM
I know this is the dialysis bored but I have always been on here when I talk to you guys and most of my friends on here patrol this board. So Yea i cant believe its finally happening I am 93% sensitized and my friend matched me about a year ago and weve been through a ton of tests and just a lot of obstacles because of a really bad transplant center, But its actually happening on Thursday..Going to the hospital Wednesday Morning. Than the surgery is Thursday morning! Thank you all for always lending an ear! IM still going to school to be a physician assistant, so Ill have a lot more time for school. I just turned 32 so its a pretty great present! I missed out on my 20's so ill be making up for that very soon..LoL You all have helped me through some very tough times... THANKS!! And remember to always have hope. The impossible CAN happen!!!


Edited: Moved to transplant section - okarol/admin
  WOW NEO!!!! Congratulations Brother !  So glad to be browsing my old turf, and running into this news -I got chills when I read you got another chance at living!! All I can say is welcome back, and have a great chance at making up for life on pause. You will recall things you have thought about, but most of all, please remember to thank GOD as you may know him. Be nice to keep in touch, never really got to know you Peace out
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
chook
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« Reply #45 on: October 31, 2010, 03:16:23 AM »
 :2thumbsup; Great news, Neo. Hope all continues to go well
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Diagnosed PKD 1967, age 8
Commenced PD June 2010
Commenced APD July 2010
Transplant March 2011 - so lucky!
"To strive, to seek, to find...and not to yield!"
lou
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« Reply #46 on: October 31, 2010, 02:42:04 PM »
 :yahoo; :yahoo; :yahoo; Yay brill news!!!!  :clap; :clap; Sooooo happy for you x x x  :bandance; :bandance; :bandance;
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Sunny
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Sunny
« Reply #47 on: October 31, 2010, 04:33:03 PM »
I am thrilled to hear your transplant went well. Hope your donor is doing well too. Congratulations.
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Sunny, 49 year old female
 pre-dialysis with GoodPastures
RichardMEL
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« Reply #48 on: October 31, 2010, 06:01:42 PM »
ahem. Where is the required picture of you with the pee bag??!!! COME ON YOU ARE SUPPOSED TO THINK OF US!!!  :rofl;

Great news that it is all going so well - you must feel wonderful.

About your bladder - yes, I have also been told about this. When you have to restrict fluids for so long your bladder actually shrinks quite a bit.. when you suddenly try and pump so much more through it, it has to enlarge again, and this process takes time to get things back to normal.

Good luck with getting that catheter out!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Neo
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« Reply #49 on: November 01, 2010, 02:27:39 PM »
Ok catheter is out I'm at home waiting to pee... It just came out please keep your fingers crossed.. I'm so nervous I don't want another catheter I'm terrified oF mot peeing again..  :pray;
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