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Author Topic: Did you accomplish anything today?  (Read 329034 times)
cassandra
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When all else fails run in circles, shout loudly

« Reply #1625 on: January 31, 2014, 02:51:51 AM »

Made green pea soup with bacon, smoked sausage en tomato. My own fusion concoction which is absolutely delicious, and it's atrocious outside, and my K+ is way too. The nurse is coming in a sec to bring my increased amount of Tinzaparine. I'm very impressed with their service this week
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
galvo
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« Reply #1626 on: January 31, 2014, 07:44:53 PM »

Oh! Cassandra! That soup sounds so delicious! Hope your K settles down.
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Galvo
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« Reply #1627 on: February 01, 2014, 04:14:42 PM »

Made green pea soup with bacon, smoked sausage en tomato.

Ooooh, yum ... that sounds divine!
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- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
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« Reply #1628 on: February 01, 2014, 06:52:09 PM »

41 degrees again to-day! Same yesterday! Same to-morrow! I've had it!
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Galvo
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« Reply #1629 on: February 02, 2014, 12:32:59 AM »

I'll trade with you, Galvo... if you don't mind trudging through a foot of snow..
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Sugarlump
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10 years on and off dialysis

« Reply #1630 on: February 02, 2014, 12:35:48 AM »

Or high winds, never-ending rain and flooding everywhere in England? Might need to bring a boat if gets any worse!  :boxing;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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« Reply #1631 on: February 02, 2014, 12:37:50 AM »

We had the high winds here last week, Sugarlump.... they must have jumped across the pond to you...
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Dialysis - Feb 1991-Oct 1992
transplant - Oct 1, 1992- Apr 2001
dialysis - April 2001-May 2001
transplant - May 22, 2001- May 2004
dialysis - May 2004-present
PD - May 2004-Dec 2008
HD - Dec 2008-present
Sugarlump
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10 years on and off dialysis

« Reply #1632 on: February 02, 2014, 12:42:53 AM »

Apparently this bout of weather has stretched across the Atlantic from you and is now circling around and round us. They have had to bring in the Army to help out in worst flooded areas. It's crazy
crazy weather!!! I need some sun  :urcrazy; but snow would be a break from the endless rain  :waving;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
natnnnat
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« Reply #1633 on: February 02, 2014, 02:33:21 AM »

Took me about an hour to find this link by digging into the past on facebook.
http://earth.nullschool.net/
its the wind systems, I think?  Live.  Spin the globe and check out where you are (and compare to the antarctic, there's some wind down there).
xn
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Natalya – Sydney, Australia
wife of Gregory, who is the kidney patient: 
1986: kidney failure at 19 years old, cause unknown
PD for a year, in-centre haemo for 4 years
Transplant 1 lasted 21 years (Lucy: 1991 - 2012), failed due to Transplant glomerulopathy
5 weeks Haemo 2012
Transplant 2 (Maggie) installed Feb 13, 2013, returned to work June 17, 2013 average crea was 130, now is 140.
Infections in June / July, hospital 1-4 Aug for infections.

Over the years:  skin cancer; thyroidectomy, pneumonia; CMV; BK; 14 surgeries
Generally glossy and happy.

2009 - 2013 PhD research student : How people make sense of renal failure in online discussion boards
Submitted February 2013 :: Graduated Sep 2013.   http://godbold.name/experiencingdialysis/
Heartfelt thanks to IHD, KK and ADB for your generosity and support.
Sugarlump
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10 years on and off dialysis

« Reply #1634 on: February 06, 2014, 02:32:56 AM »

I finally bought a dishwasher!!! And it is being installed today.
My wonderful partner has removed the cupboard and :urcrazy; drawer to the left of the sink and drilled a hole for the pipes in readiness ... but there is just one problem!!!!
What do I do with all the stuff that was in the cupboard and drawer!!!! Now stacked on my kitchen table.
What sort of stuff you ask?
Dog food, cat food, dog brushes and shampoo,bird food, fat balls and a load of product instructions and guarantees!!!
And don't even get me started on the contents of the drawer!!!
It's my junk drawer. Every kitchen has a junk drawer. But where can i put the junk now???
I have 4 other drawers, one for teatowels and potholders, one for kitchen tools, one for cutlery and one for foil, clingfilm, plastic freezer bags and ecowaste brown bags....
I need a new kitchen  :urcrazy;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cassandra
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When all else fails run in circles, shout loudly

« Reply #1635 on: February 06, 2014, 02:55:54 PM »


   :rofl;   Oops
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I started out with nothing and I still have most of it left

1983 high proteinloss in urine, chemo, stroke,coma, dialysis
1984 double nephrectomy
1985 transplant from dad
1998 lost dads kidney, start PD
2003 peritineum burst, back to hemo
2012 start Nxstage home hemo
2020 start Gambro AK96

       still on waitinglist, still ok I think
renalwife
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« Reply #1636 on: February 06, 2014, 03:55:25 PM »

put the tea trowels in the linen closet and put the pot holders next to the cooker.  But if the linen closet is upstairs that would be an inconvenience so  you could throw out the stuff in the junk drawer, clean it up good, and put your tea towels in it.  However!!!  You will have a dishwasher, and not only does it wash the dishes but it dries them, too.  So you won't need the tea towels. 

If you don't want to eat standing up, all the stuff on your tables will have to be put somewhere.  I suggest that you pack your pots and pans tightly in the bottom cupboard and put the dog and cat food and the warranties and such stuff in there with the pots and pans. LOL.
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Sugarlump
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« Reply #1637 on: February 07, 2014, 01:04:12 AM »

put the tea trowels in the linen closet and put the pot holders next to the cooker.  But if the linen closet is upstairs that would be an inconvenience so  you could throw out the stuff in the junk drawer, clean it up good, and put your tea towels in it.  However!!!  You will have a dishwasher, and not only does it wash the dishes but it dries them, too.  So you won't need the tea towels. 

If you don't want to eat standing up, all the stuff on your tables will have to be put somewhere.  I suggest that you pack your pots and pans tightly in the bottom cupboard and put the dog and cat food and the warranties and such stuff in there with the pots and pans. LOL.
Can I hire you for a week to reorganise my house!!!
You are right about the teatowels though...good plan  :clap;
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
Poppylicious
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« Reply #1638 on: February 07, 2014, 03:06:24 AM »

But where can i put the junk now???

Could you get rid of the dishwasher; it would free up enough space for a cupboard and a drawer.

 ;D
Logged

- wife of kidney recepient (10/2011) -
venting myself online since 2003 (personal blog)
grumbles of a dialysis wife-y (kidney blog)
sometimes i take pictures (me, on flickr)

Everything was beautiful, and nothing hurt.
cariad
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What's past is prologue

« Reply #1639 on: February 07, 2014, 05:20:24 AM »

But where can i put the junk now???

Could you get rid of the dishwasher; it would free up enough space for a cupboard and a drawer.
:rofl;

Yesterday I accomplished more than I have in weeks, which only means more than nothing. I walked my younger son into his school (after Gwyn dropped me off at a friend's house in the neighbourhood, we didn't start off from home) First time I've done this since before the meningitis. I briefly talked to his teacher about catching him up on homework. Then Gwyn picked me up and we went to the doctor's appointment. He dropped me at home about 10:30 and in the afternoon I made lunch, did a sink full of dishes, started up a huge load of laundry, slept a fair bit, and in the evening we all went to watch Aidan compete in a speech contest with his debate team. They lost, but Aidan couldn't stop going on about how much fun the whole experience was. We always said he'd be a politician, he is quite the charmer, so perhaps this is just the start. Considering their instructors only suggested they enter this contest a few weeks ago and they only picked a topic early last week, I think they did magnificent work up there.

Side note: Their topic was whether modern music was a bad influence. Aidan asked for my help with his speech, so we had some wonderful discussions about the importance of freedom of art. I did something I never thought I would do - showed my eleven-year-old the video of a hologram of the late Tupac Shakur singing Hail Mary at Coachella 2012. (Check it out if you want: http://www.youtube.com/watch?v=TGbrFmPBV0Y) Plenty of offense to be had there, from the harsh language to the frequent pop-up adverts to the $10million spent on this 5 minutes of entertainment! As we viewed it I think Aidan watched my face more than he watched the video. He seemed to be wondering "Are you sure this is OK, Mom?"

Today I am paying for that minimal bit of exertion from yesterday. Taking it easy now, but tomorrow I have non-stop activities from 10AM-10PM and Gwyn will be off in London on his own. :sos;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
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What's past is prologue

« Reply #1640 on: February 12, 2014, 02:24:47 PM »

I had such a setback with my recovery today, for no reason that I could suss out, I hardly had the energy to get out of bed let alone accomplish anything. I managed the dishes and to empty the wet laundry into a basket to put by the door. (Our dryer currently resides in our garage and I couldn't even muster the energy to get there.)

We had to go to a parents evening tonight to hear how Dyl is doing and it turned a draggy, depressing, water-logged day positive. Dylan has two teachers and they both were raving about him. They said he is respected in class for working hard and having the intelligence to solve problems, but, and I quote "He's also a lad". They both agreed that you would never guess that he'd only been at the school since the beginning of the year, and amazingly they said he loves to joke around but knows when to stop. (Does he??!! This was news to his parents!) These are the types of compliments that are routinely paid to Aidan, but for years it's seemed like some crazy pipe dream to ever think we'd hear Dylan described in such glowing terms.  :yahoo;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
MooseMom
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« Reply #1641 on: February 12, 2014, 02:33:54 PM »

I hope you're feeling better soon, cariad.  I can only imagine how much you miss being able to haul wet laundry out to the garage.   :P (My dryer was down the steps and out to the shed. Ugh.)
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"Eggs are so inadequate, don't you think?  I mean, they ought to be able to become anything, but instead you always get a chicken.  Or a duck.  Or whatever they're programmed to be.  You never get anything interesting, like regret, or the middle of last week."
cariad
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What's past is prologue

« Reply #1642 on: February 28, 2014, 02:15:16 AM »

Feeling pretty accomplished already and doubt I'll be good for much more today. Woke up and my husband was in a mood (Yay! Let the fun begin!) I felt a sore throat coming on last night, and it came on full force this morning. Made the tea, coffee and sandwiches and we were off. Gwyn needed to be nearly an hour away by 9AM which left me without a car in the freezing rain. He dropped the 3 of us outside Dyl's school at about 8:20 and they don't even open the doors at Dyl's school until 8:45. We walked halfway to Aidan's school, then much to Aidan's relief we turned around and walked back. I saw Dyl off and then trudged through the rain back home. It's only about a mile, but the cold and damp certainly didn't help my energy levels.

On the way back I saw someone throw what looked like a pen out her car window. As I got close enough to see it lying in the middle of the road, I could see it wasn't a pen. It was a home pregnancy test. Whatever it said, I guess it was the wrong result. Life is filled with these weird moments.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
cariad
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What's past is prologue

« Reply #1643 on: March 11, 2014, 11:09:18 AM »

This won't sound like much, but it's the most I've managed since the year began:

Dropped Dyl off, Aidan bikes to school these days. Dropped by the tea room where I'm working now to get a copy of the menu to study. Arrived back home, suited up, armed myself with chemicals and attacked the tip that our bathroom has become. Got all but the walls/floors clean. Did some washing of delicates in the newly cleaned sink. Stripped all the beds and washed and dried the sheets. Emailed the owner of the tea room, went to Aidan's school for some sort of fair they were holding where they made items out of recycled material and then sold them to earn money for charity. Wow! I thought I was scared at Mbare. (The largest open market in Africa, and an experience we feel lucky to have survived.) Children were wandering the room, shoving their wares at unsuspecting parents such as myself, using whatever emotional weaponry they had at their disposal. I am not sure how I avoided buying anything except Aidan's work, but my Aussie friend was certainly not as strong nor determined as I was. She walked in with £2.50 and I wouldn't be the least bit surprised if they got her to write a check.

I escaped somehow, ran into Aidan's form tutor and said I needed a word about his marks for the past term. Something isn't right there, we'll discuss later in the week. Collected Dyl, brought him home for an hour, put some laundry away, and dropped him at choir practice. No idea what we should do for dinner but I haven't felt dizzy nor nauseous all day so I think that's a victory!

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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
galvo
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« Reply #1644 on: March 11, 2014, 10:02:04 PM »

cariad, that's a big day! Fair wore me out, just reading about it!
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Galvo
Sugarlump
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10 years on and off dialysis

« Reply #1645 on: March 13, 2014, 01:11:20 AM »

Giggles  :rofl;
I am off to Norwich to do some shopping and buy my partner/carer lunch (after winning an incredibly long shot at 33-1 at Cheltenham) and because he deserves it!!!
I am enjoying a good spell when I actually feel like shopping  :bow; long may it last!
Logged

10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
cariad
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What's past is prologue

« Reply #1646 on: March 13, 2014, 12:16:11 PM »

cariad, that's a big day! Fair wore me out, just reading about it!
Cheers, galvo!
I am off to Norwich to do some shopping and buy my partner/carer lunch (after winning an incredibly long shot at 33-1 at Cheltenham) and because he deserves it!!!
I am enjoying a good spell when I actually feel like shopping  :bow; long may it last!
Sounds like a perfect way to spend your lucky winnings! And a burst of energy to go with it, even better. :yahoo;

I cleaned around the house and reported to work for three hours. Very slow day, but I think I've got the hang of the coffee machine. Hopefully I'll be fully proficient before the warm weather and rush of tourists hits our town.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Sugarlump
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10 years on and off dialysis

« Reply #1647 on: March 13, 2014, 01:32:40 PM »

Coffee is always good cariad!
We bought a Tassimo coffee pod machine in John Lewis's sale and it took me more than a month to work out how to
get a cup of coffee out of it!!!!  :rofl;
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
galvo
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« Reply #1648 on: March 13, 2014, 04:33:35 PM »

Bloody 33/1 winner! At the moment I can't pick my nose!
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Galvo
Sugarlump
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10 years on and off dialysis

« Reply #1649 on: March 13, 2014, 05:55:43 PM »

@ Galvo plus two third placed horses, and today another winner @ 14-1!!!! I am on a roll  :bandance;

But I wish I could accomplish something called sleep. It's 1am and am wide awake and frustrated...
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10 years of half a life
3 years HD 1st transplant Feb 08 failed after 3 months
Back to HD 2nd transplant Dec 10 failed after 11 months
Difficult times with a femoral line and catching MSSA (Thank you Plymouth Hospital)
Back on HD (not easy to do that third time around)
Fighting hard (two years on) to do home HD ... watch this space!
Oh and I am am getting married 1/08/15 to my wonderful partner Drew!!!
The power of optimism over common sense :)
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