Overnight therapy puts z's in dialysis for kidney patients

[monrein]

Kitsune, I think I react a little to your posts because it occasionally feels to me that you don't have much empathy for "old" people and their situations although of course you want, as do we all, our nurses and techs to have empathy for our situations.  It is not nice to want to take away from old people the control or choice over treatment and what works for them.  It isn't easy being old (I hope to get there myself though and I hope you will too)  and just because a person isn't very active anyway certainly doesn't mean that being hooked up to dialysis wouldn't be much different than what they'd be doing anyway.  It sounds pretty disrespectful and non-empathic to say that all they're doing is looking at photos of dead spouses or waiting for uncaring kids who never visit.  On top of being old and lonely you think they won't notice they're on dialysis?  My mother-in-law is almost 90 and I'm sure that despite the differences in our levels of activity, I can tolerate D better than her.  And yet this sweet soul would take this burden from me AND would love to give me her kidney.  I'd be pissed if she were on dialysis and got met with an attitude of "you're old so you won't mind what we tell you to do".  And pray tell, why should a person who has no partner or family be shoved into something THEY didn't want.  True compassion, it seems to me, is reaching out to understand those whose circumstances are different than our own.  It's harder than understanding what we already know.

I don't like generalizations about "young people today" from older people nor do I like reverse ageism towards old people.  We all need as much choice and control as we can exercise. 

Besides, where I am there aren't enough nocturnal spots for everyone that would like to do it so I don't know where the idea that people will be forced to do it came from.

But hey, I for sure get why YOU don't want to do nocturnal Kitsune and I'd always advocate for you to have as much latitude and flexibility as you could get with treatment so that you could have as full and satisfying life as you possibly could.  Including work, school, love, partying and anything else you wanted.

[del]

Nobody is "forced " to do any dialysis treatment.  It is a treatment of choice.  You can choose if you want not to do any dialysis of any type but we are know what happens if you need dialysis and refuse treatment. As for being forced into nocturnal I don't think anybody would be forced into it.  It IS a lot better treatment for your body but if you don't want it you are quite free to choose another option.  By the way I know a lot of "older" people 70+ who are on dialysis and I don't think they should be forced into any treatment they don't want.  They are living full lives as well as the "younger" people!!  There aren't any in center noctural units here.  There are 12 people doing nocturnal home hemo in Newfoundland and they love it (as much as you can love dialysis  )

[Rerun]

As far as "Nocturnal Dialysis" goes...... don't knock it until you've tried it.

As far as "Old People" go... You may be old too one day.  I am the 47 year old lady who lives alone with a dog and just pictures of my nieces who never visit.  But, one day long long ago I was married with a promising career and the want of a family..... then my kidneys failed.  Just wait sweetness!   

                                             

[kitkatz]

I just started Nocturnal dialysis.  I am one of the most vocal about how much I hate dialysis.  However my blood pressure was going to kill me off pretty quickly if I don't do something about it.  The pills were no longer working and stronger pills were in the offing.  I am trying it out for awhile.  Just got to learn to sleep in this new center.

[twirl]

Kitkatz,
I am excited for U and would love to try "sleep over" Dialysis, how is it getting up at 4am and going to school that day?
do you go home and eat breakfast and how do you feel during the day
if you said you mailed me something; I did not get it and if you didn't say that-----my bad
Mibarra mailed me a shark postcard and I never got it
so
please let me know about "slumber party" Dialysis and how U feel during the day
and ( I am living through you)
SIT DOWN, SHUT UP, I mean - be quiet, little darlings, WHEN IS THE BELL GOING TO RING, ARE THE BUSES HERE LATE, OH GOD,
BUS DUTY AGAIN, WHERE ARE THOSE FREAKING ARD PAPERS

[kitkatz]

I feel good during the day. I am sleepy in the mornings, but who isn't. The school days tarts at 6:45 a.m. for me.  I have a tremendous amount of energy now.  I will answer questions later, got to go hit the kids now.  Ohhh...I mean go to work!

[del]

So glad nocturnal is working for you kitkatz 

[Kitsune]

As far as "Nocturnal Dialysis" goes...... don't knock it until you've tried it.

As far as "Old People" go... You may be old too one day.  I am the 47 year old lady who lives alone with a dog and just pictures of my nieces who never visit.  But, one day long long ago I was married with a promising career and the want of a family..... then my kidneys failed.  Just wait sweetness!   

                                             

Could it be because you chased away your husband and any and all men who might want you with your overbearing attitude and your right-wing propaganda, and your whininess about dialysis?

Your aloneness most likely has nothing to do with dialysis, it was probably due to your self-righteous attitude and as for your claim that because I'm on dialysis, my husband will eventually leave, sorry but I got together with my husband after I started dialysis, so BOOM! there goes your theory, mon ami. Oh yeah, and please never call me "sweetness" again, I don't know you from Adam.

Oh, as for me I'm 31 and I've got a husband, friends in power metal bands, offers to model, and a 131 I.Q. What do you have?  Pictures of your nieces,  and a dog who probably fantasizes about running away but won't because you feed it. Woo hoo, quality of life right there.

Just because you're a bitter person who only has a dog for company and goes to nocturnal dialysis so that you can have people to keep you company at night doesn't mean I will be at your age.

Go on with your bad self,  stay on nocturnal, so that people like me who have a life don't have to be around you.

Enjoy your 3 day a week 8 hour long needles and blood pressure cuff sleepover. I mean, you like it so much, right?

[Adam_W]

All hell's gonna break loose when Rerun reads this.

Adam

[Zach]

Just because you're a bitter person who only has a dog for company and goes to nocturnal dialysis so that you can have people to keep you company at night doesn't mean I will be at your age.

Why are you so angry?

[monrein]

WTF?

Kitsune, that is one of the rudest, most uncalled for, unkindest, meanest and downright cruel posts I have seen.  

PS.  Did you have a really crap day by any chance?  If so, I'm sorry you did but don't take it out on us who really want to give a damn about you (and the other members of this board also).

[Kitsune]

That is my opinion on what was said to me. I do not take being talked to like I'm stupid, furthermore I'm tired of not being able to say what I feel without being censored or told that my opinion is wrong when it is just that, an opinion. I also don't appreciate basically being told that my feelings aren't valid because I don't express them in a nicey-nice way. If you don't like it, I'm sorry. But I will not hold words back, it isn't me to not say exactly how I feel..the way it is for me. Everyone get a grip, it's an internet forum, not real life. Get a hobby....outside this forum.

[kellyt]

 

[Babi68sBaby]

My mum does nocturnal and she likes it (well, as much as you can like dialysis, anyway!!)
She used to come home after doing it during the day at the center and sleep straight away for a couple of hours.
But now she's got heaps more energy. Nocturnal has helped her return to as normal as she can for the moment.
Also, my dad still sleeps in the same bed!! He's actually said that the noise of the machine 'soothes him' lol, and helps him get to sleep.
But obviously we have the advantage of nocturnal being offered in our area.
It would be a lot different for those people who had to go in to the center; but a thing one should remember is 'different strokes for different folks'!!! Everyone is different, has different preferences too!!
And note: My mum has no trouble whatsoever with needing to pee during the night - she hasn't actually peed (as I'm sure many of you know already, from your own experiences - or maybe she's told you all, I dunno!!) for 4 years now, so that's not a problem.
xx
Oh, and I know that my post is a little irrelevant considering the last few posts to which I replied, but I just thought I'd put this post out there.

[Babi68sBaby]

Also Kitsune, how can you possibly say that rerun is alone because of the way she types on here...like you said, this is an internet posting board, not real life

[babi68]

Hi all. I am back again.    Been away for a while.
I have now been doing nocturnal for nearly a year at home. I love it. I do eight hours every second night and I feel alot better. I have had no real serious problems (needles coming out, etc). It has freed up my days. I get to lie in my comfy bed, watch my tv, see my kids, catch up with my hubby. I started nocturnal as my son was going through chemo, and I needed to be home through the day for him when he was recovering. I now don't need to worry about childcare for my kids in the holidays as I am now home and can actually go and do things with them, instead of using up the whole day at the dialysis unit. Nocturnal isn't for everyone, but I am happy that I am. Liz

[okarol]

Hey babi and babi's baby!

Good to see you post again! I am happy you're feeling better.

How is your son doing now? Best wishes to all of you. 

[del]

Glad you are back babi.    Nocturnal is a great therapy isn't it. Hubby has been doing it for 2 years now and we really like it. A lot better than driving over an hr to the dialysis unit 3X a week.  Plus you feel so much better with the long gentle treatments.

[del]

That is my opinion on what was said to me. I do not take being talked to like I'm stupid, furthermore I'm tired of not being able to say what I feel without being censored or told that my opinion is wrong when it is just that, an opinion. I also don't appreciate basically being told that my feelings aren't valid because I don't express them in a nicey-nice way. If you don't like it, I'm sorry. But I will not hold words back, it isn't me to not say exactly how I feel..the way it is for me. Everyone get a grip, it's an internet forum, not real life. Get a hobby....outside this forum.

Kitsune we are all entitled to our opinions and are free to express them but we also need to respect other people's opinions.The purpose of this site is for all people to be able to express their opinions. Personal attacks are not the way to do this.   

[kitkatz]

I am on nocturnal because regular dialysis was killing me off.

[Russ]

I'll be doing nocturnal training in a couple months.

[kitkatz]

Oh sure, then have no life at all, ever, since you have to be on the machine for eight hours a night in clinic!  I would turn into a human popsicle in the freezer clinic I go to after eight hours!   When do you get to go out and do stuff?  If I had this arrangement I would go in at ten oclock at night and dialyze 10 to 5, then try to get to work on time by 7a.m. Hmmmmm.  I do not think I could do it and still work.  Are these people working a nine to five job, or are they on disability?

Now this is funny, because here I am on nocturnal at night and liking it!  Hehehe! It takes experience to really understand what happens  at nocturnal.  I am sleepy the next day but it is not bad at all. I feel better and it is working my labs out better than ever!. After almost ten years on dialysis here I am finally feeling a lot better!

 I would not be so adamant against it if I were some people on here.  Here I was several months back saying I would not ever do it, and here I am on nocturnal.  However I am not a party girl. Before you call me an old woman, I am 45 years old.  I have over half my life to lead. I have been on dialysis for almost ten years.  I think it took the reality of dialysis almost killing me off to make me change my modality over to nocturnal. I felt bad and my labs were horrible. 

[monrein]

It takes courage to admit that one wasn't as open about something as one could have been.  Main thing though is that you didn't cut your nose off to spite your face and just maintain how it wouldn't work for you.
And best of all, it's working really well and you're feeling better.  That's fantastic.

[kitkatz]

Sometimes it take a baseball bat across the head for me to get it. 

[del]

Hey hubby loves nocturnal (well as much as you can love dialysis).  He has had to do 2 treatments in center because of a machine breakdown. It has been a real pain in the butt.  I always like to say don't knock something until you have tried it!!!