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Author Topic: I LOVE OKAROL ( not what you think)  (Read 18475 times)
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #25 on: May 05, 2010, 01:29:26 PM »

A big ditto to all that everyone has said.  Having had the special privilege of meeting Okarol I need to say that she is a beautiful person inside and out.
Love you loads, Karol, and appreciate you loads more! :cuddle;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #26 on: May 05, 2010, 05:11:14 PM »

 :-* :-* :-* :-* :-*
I just got off the phone - trying to get Meals on Wheels for my mom - boy I hope it works.
I am behind in my census work - hope the Feds don't stop by to check on me.
My cold is almost better, whew!
Anyway, all I have to do is come read this thread and I feel better!!
 :-* :thx; :-*
 :shy;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #27 on: May 06, 2010, 07:46:41 AM »

I've told her before, but she won't listen, She should take a break or a vacation from the pc, but she is addicted to it ;D
If she was on Survivor (If that show is still around), she would be the first to try to be kicked off so she can have computer access to keep in contact with everyone.  :rofl;
 
Your much appreciated around here Karol, but family and you come first. Take a break at times and get as much rest as possible.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Ang
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« Reply #28 on: May 06, 2010, 05:56:58 PM »

don't  get  on  here  to often,  but  agree  wholeheartily :bow;


sorry  to  hear  about  jenna
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live  life  to  the  full  and you won't  die  wondering
Mimi
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For any who do not like me I use - prayer.

« Reply #29 on: May 06, 2010, 08:11:41 PM »

I just said yesterday we need to guve you an award.  I don't know how you have the energy to do all you do.  You are a most lovely helper and friend.  Prayers and cares to you, Jenna and the rest of your family.

Love, Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
aharris2
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Volcan Pacaya, Guatemala

« Reply #30 on: May 07, 2010, 12:45:40 AM »

 :clap; okarol
 :cuddle;
Just for you, I wish the Lakers much success in the playoffs!  :cheer:
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Life is like a box of chocolates...the more you eat the messier it gets - Epofriend

Epofriend - April 7, 1963 - May 24, 2013
My dear Rolando, I miss you so much!
Rest in peace my dear brother...
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #31 on: May 07, 2010, 09:05:10 AM »

 :flower; Thank you.  :shy;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #32 on: May 11, 2010, 05:57:35 PM »

Everyday I plan on posting here.  But, I keep trying to find the right words.  I feel like Okarol has been a part of my life forever.  She is always just a click away.  We have shared some special moments together.  Sluff's Vegas wedding!  Holding hands during Goofynina's service. We were holding tight and crying and then after the nun said "Jeesuuuuussss" for the 100th time, we started giggling!  You know how it is when you are so incredibly sad and something strikes you as funny and you just can't help but smile? That is what happened to us. Vandie was there and was doing the same thing!  I have met Jenna and she has met Beth, so we feel very connected as Mothers.  And who could forget Chicago?  Chris and Patton with all the phones, GPS's and laptops!    Simply put - I love Okarol.  She has made this disease so much easier to deal with.  She is my Hero, my inspiration and guiding light.   I would walk through fire for her.   My heart aches for the trials she's going through right now. I lift her in prayer and ask God to hold her tight right now. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #33 on: May 12, 2010, 09:45:05 PM »

Sluff, lola, st789, monrein, glitter, Darthvadar, breezysummerday, jbeany, galvo, kitkatz, jean, Zach, RichardMEL, MooseMom, sunny, paul.karen, del, Rerun, Jie, YLGuy, ODAT, peleroja, harley08, thegrammalady, Bajanne, Chris, Ang, Mimi, aharris2, paris

 :cheer: Thank you!  :cheer: Thank you!  :cheer: Thank you!


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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #34 on: May 13, 2010, 06:41:31 AM »

Everyday I plan on posting here.  But, I keep trying to find the right words.  I feel like Okarol has been a part of my life forever.  She is always just a click away.  We have shared some special moments together.  Sluff's Vegas wedding!  Holding hands during Goofynina's service. We were holding tight and crying and then after the nun said "Jeesuuuuussss" for the 100th time, we started giggling!  You know how it is when you are so incredibly sad and something strikes you as funny and you just can't help but smile? That is what happened to us. Vandie was there and was doing the same thing!  I have met Jenna and she has met Beth, so we feel very connected as Mothers.  And who could forget Chicago?  Chris and Patton with all the phones, GPS's and laptops!    Simply put - I love Okarol.  She has made this disease so much easier to deal with.  She is my Hero, my inspiration and guiding light.   I would walk through fire for her.   My heart aches for the trials she's going through right now. I lift her in prayer and ask God to hold her tight right now.

Very beautifully expressed, Paris.  It brought tears to my eyes (as well as a smile).
I just love my IHD family!!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
boswife
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us and fam easter 2013

« Reply #35 on: May 13, 2010, 09:46:51 PM »

How amazingly loved you should feel :-)  I hope life is giving you some rest by now and that it's looking up.  Bless ya, and thank you for all you do and share of yourself...  Amazing woman, mother, friend...  Thanks!
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im a california wife and cargiver to my hubby
He started dialysis April 09
We thank God for every day we are blessed to have together.
november 2010, patiently (ha!) waiting our turn for NxStage training
January 14,2011 home with NxStage
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #36 on: May 13, 2010, 11:56:33 PM »

How amazingly loved you should feel :-) 

I do, thank you!  :thx;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Slywalker
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« Reply #37 on: May 14, 2010, 08:06:12 AM »

Just saw this thread and what fun it was to read it. 
OKarol - smile for your are so loved by so many, including me.  You touch people's lives in ways you don't even know about.  You are one big solid rock for IHD. 

Thank you OKarol for everything you do for this online community.   :thx;  :thx;  :thx;

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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #38 on: August 06, 2010, 12:54:12 PM »

I just took look at this again, made me smile.  :)
We do what we do here on IHD because we love all of you!
There's nothing like the support and understanding you get from someone who has been in your place.
The forum would be nothing without the mods and members who participate here.
And the fact that we can laugh and cry together makes it even better.
Have a great day IHD!!! \ :flower;

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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Zach
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"Still crazy after all these years."

« Reply #39 on: August 06, 2010, 01:52:58 PM »

 :wine; :-*
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #40 on: August 06, 2010, 03:05:59 PM »

:wine; :-*
;) :beer1; :-*
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Jess21
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« Reply #41 on: August 06, 2010, 09:32:02 PM »

 :bandance;:bandance; K :bandance;:bandance;:bandance;:bandance;:bandance;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #42 on: August 06, 2010, 09:44:25 PM »

 :-* J :-* E :-* S :-* S :-*
     :thx; :thx; :thx;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Sluff
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« Reply #43 on: August 08, 2010, 08:48:17 PM »

Hope things are getting better, now that Jenna had a bit of good news for a change.   :grouphug;
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RichardMEL
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« Reply #44 on: August 08, 2010, 09:43:46 PM »

Well bugger it.. I LOVE OKAROL (and yes it's what you think!). She's a gem and a hell of a mum, and I loved hearing her on kidney talk!!!

 :shy;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #45 on: August 08, 2010, 09:48:28 PM »

 :cheer: Yes, good news is a welcome change Sluffbunny.  :bunny:

 :-* :-* :-* :-* :-* Thanks Richard. I love you too!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
tamara
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WOO HOO NEW KIDNEY PEEING !!!(Transplant 23/10/07)

« Reply #46 on: August 10, 2010, 02:39:28 AM »

Just caught on to this thread and all I will say is :

 :guitar:

Okarol's the best
Chuck out the rest

repeat

Okarol's the best
Chuck out the rest

repeat

Okarol's the best
Chuck out the rest

repeat

Okarol's the best
Chuck out the rest

 :guitar:

well you get the idea.......  love ya xxx ooo

Logged

ABO Incompatible Transplant from my loving Partner 23/10/07
after over four years on the D Machine 

                                                                                                                  
Dialysis Sucks and Transplants Don't.................So Far Anyway !!!!!
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #47 on: August 10, 2010, 09:47:00 AM »

 :rofl; thanks Tamara
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ken Shelmerdine
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Life's a bitch and then you go on dialysis!

« Reply #48 on: August 10, 2010, 06:55:02 PM »

Just read this thread and I wholeheartedly agree with all the posts. Karol is the rock of IHD. I've had telephone conversations with her and she has a knack of making you feel completely at ease. Karol for all you do for IHD, a big thank-you. If you were in England I'd nominate you for an MBE.
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Ken
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #49 on: August 10, 2010, 07:17:06 PM »

 :2thumbsup; Thanks Ken!
What's an MBE?  :secret;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
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