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I LOVE OKAROL ( not what you think)
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Topic: I LOVE OKAROL ( not what you think) (Read 18770 times)
Sluff
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I LOVE OKAROL ( not what you think)
«
on:
May 02, 2010, 02:40:07 PM »
I have been thinking a lot lately about Karol and her family. Not in an overwhelming way but I realized that not a lot of people here understand what all Karol is going through in her life. I'm not going to say it all here but I just want everyone here to send some thanks and an encouraging word to Karol either here in this thread or PM. She is dealing with probably more than most of us have had to deal with lately and yet she comes here regardless, to take care of IHD and its members. No one loves you all or this site more than Karol I can promise you this.
Love you Karol and Thank you for everything you do here on IHD. It will never go unappreciated.
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lola
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I can fly!!!
Re: I LOVE OKAROL ( not what you think)
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Reply #1 on:
May 02, 2010, 02:55:16 PM »
You always have a way of making me feel better.
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www.caringbridge.org/visit/ottomachado
st789
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Re: I LOVE OKAROL ( not what you think)
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Reply #2 on:
May 02, 2010, 03:02:15 PM »
Concur. She is always informative.
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monrein
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Might as well smile
Re: I LOVE OKAROL ( not what you think)
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Reply #3 on:
May 02, 2010, 03:19:27 PM »
Absolutely right on the money Sluff. I think of her as a good friend even though we've never met in person (I feel this way about many other members too) and I wish I could lighten the stress she's under currently by even a little bit.
Thanks Karol for all you do...for IHD and for awareness about kidney disease, for members individually and for showing, by example, how to lend support not only to your family and friends but indeed to complete strangers.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
glitter
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Re: I LOVE OKAROL ( not what you think)
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Reply #4 on:
May 02, 2010, 03:20:31 PM »
I appreciate her always having a kind word for everyone.
THANK YOU!!
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER
caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
Darthvadar
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Re: I LOVE OKAROL ( not what you think)
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Reply #5 on:
May 02, 2010, 03:39:44 PM »
Yep...
Kerol's always been very supportive to me when Mum's not well...
Hope everything works out for you and Jenna, Karol
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Cared for my late mum, Elsie who had Kidney Failure... Darling mum died on July 15th 2014... May her gentle soul rest in peace....
breezysummerday
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Re: I LOVE OKAROL ( not what you think)
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Reply #6 on:
May 02, 2010, 04:13:46 PM »
Thank You Karol, for all that you do. You are truly appreciated!
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caregiver to Ray
renal failure 6/08
listed 7/09
~thank you epoman~
jbeany
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Cattitude
Re: I LOVE OKAROL ( not what you think)
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Reply #7 on:
May 02, 2010, 05:10:05 PM »
Karol, hon, you are a gem!
When I was in the hospital, she called, sent cards, and even took time out of her trip to Paris to send me a post card and best of all, light a candle for me in Notre Dame. How cool is that?
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.
galvo
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Re: I LOVE OKAROL ( not what you think)
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Reply #8 on:
May 02, 2010, 06:03:42 PM »
Okarol is the best!!!
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Galvo
kitkatz
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Re: I LOVE OKAROL ( not what you think)
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Reply #9 on:
May 02, 2010, 07:14:34 PM »
Okarol is a friend. And I have met her. She takes really good care of us, even though she has a lot going on right now. Hugs my friend.
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lifenotonthelist.com
Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5
Remember your present situation is not your final destination.
Take it one day, one hour, one minute, one second at a time.
"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jean
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Re: I LOVE OKAROL ( not what you think)
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Reply #10 on:
May 02, 2010, 07:32:51 PM »
I too have met Karol. She always makes you feel as if you are old friends. We do appreciate everything she does for us, not only in the information field, but her compassion for others, no matter what is going on in her own life.
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One day at a time, thats all I can do.
Zach
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"Still crazy after all these years."
Re: I LOVE OKAROL ( not what you think)
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Reply #11 on:
May 02, 2010, 07:53:11 PM »
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant. Not yet, anyway. Only decided to be listed on 11/9/06. Inactive at the moment.
I make films.
Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat 5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600; Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -): 2,450 Calories, 84 grams Protein/day.
"Living a life, not an apology."
RichardMEL
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Re: I LOVE OKAROL ( not what you think)
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Reply #12 on:
May 02, 2010, 08:03:26 PM »
Well said Sluff! Totally agree with you. Karol often puts aside the stuff she has to deal with, which is considerable, to put into IHD, and support our members as much as she can- and most of it without a lot of thanks or appreciation shown. This is one way to show it! Thanks for taking the lead Sluff!
3 cheers for Karol!!! Hip Hip Hooray!
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!!
BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
MooseMom
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Re: I LOVE OKAROL ( not what you think)
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Reply #13 on:
May 02, 2010, 08:15:32 PM »
I wish there was a more concrete way we could be of more practical help to Karol and her family. If anyone can think of anything, let me know. I know about Jenna having difficulty keeping her transplant, but I confess to not knowing if there are other complications in Okarol's life. ESRD rarely happens in a vacuum, and it tends to just exacerbate other difficulties and make them that much harder to deal with. But Okarol always has time for all of us, and that is a rare thing; I appreciate her so much and wish I could do more to help. Thank you for starting this thread; it is always nice to show our gratitude. Thank you, Okarol, for everything. You know we have your back. All our love to Jenna and the rest of your family, too. Life is not easy for any of you, we know. Please let us support you in any way you see fit.
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"Eggs are so inadequate, don't you think? I mean, they ought to be able to become anything, but instead you always get a chicken. Or a duck. Or whatever they're programmed to be. You never get anything interesting, like regret, or the middle of last week."
Sunny
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Sunny
Re: I LOVE OKAROL ( not what you think)
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Reply #14 on:
May 02, 2010, 10:21:03 PM »
Thanks Karol for everything you do for this site.
I particularly like all of the articles you find and post. I appreciate all of your work here and the efforts you give to all of us, even when your own life must be so filled with issues.
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Sunny, 49 year old female
pre-dialysis with GoodPastures
okarol
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Photo is Jenna - after Disneyland - 1988
Re: I LOVE OKAROL ( not what you think)
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Reply #15 on:
May 02, 2010, 11:47:10 PM »
Ok that made me cry. Thanks so much.
I know life is not always smooth, but with Jenna's rejection, my mom's lung cancer, the economy affecting my kids employment, and having another daughter all the way in NY at college, it's a rollercoaster lately. Then, of course, I worry about all of you, and Jenna's donor, and other family members... eeek, start listing stuff and it can make you crazy!
Thanks for the kind words. Thank you Sluff, for being my rock.
I love you all.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story --->
https://www.facebook.com/WantedKidneyDonor
Please watch her video:
http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock!
http://www.livingdonorsonline.org
-
News video:
http://www.youtube.com/watch?v=J-7KvgQDWpU
paul.karen
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Re: I LOVE OKAROL ( not what you think)
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Reply #16 on:
May 03, 2010, 07:26:51 AM »
To Okarol.
Who can find the good in everyone
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
del
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del and willowtreewren meet
Re: I LOVE OKAROL ( not what you think)
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Reply #17 on:
May 03, 2010, 04:26:04 PM »
A toast to okarol!
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Don't take your organs to heaven. Heaven knows we need them here.
Rerun
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Going through life tied to a chair!
Re: I LOVE OKAROL ( not what you think)
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Reply #18 on:
May 03, 2010, 04:31:38 PM »
Karol you are one of the smartest women I know. And if you don't know something or we don't know something you find out for us.
We love you!
Thank you for spending your time on us.
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Jie
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Re: I LOVE OKAROL ( not what you think)
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Reply #19 on:
May 03, 2010, 10:39:03 PM »
Best wishes!
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YLGuy
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Re: I LOVE OKAROL ( not what you think)
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Reply #20 on:
May 04, 2010, 07:25:50 AM »
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ODAT
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Nala - Mom's Cat
Re: I LOVE OKAROL ( not what you think)
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Reply #21 on:
May 05, 2010, 10:30:52 AM »
Want to add my hugs too! Seriously, does anyone have as many posts as Okarol?! Amazing, caring, and thoughtful woman who brings comfort and answers to everyone on IHD.
I pray things start smoothing out for you and your family.
Kim
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As is your sort of mind, so is your sort of search: you will find what you desire.
peleroja
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I have 16 hats, all the same style!
Re: I LOVE OKAROL ( not what you think)
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Reply #22 on:
May 05, 2010, 10:50:32 AM »
I agree. I get a lot of good info from Karol to give to my support group. Thanks for all your good work, Karol, in spite of what is going on in your life.
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harley08
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Re: I LOVE OKAROL ( not what you think)
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Reply #23 on:
May 05, 2010, 11:36:08 AM »
Since the first day I came to this site before you were a moderator I thought of how wonderful and understanding and what a great friend you are to so many people. You are the rock for not just your family!!!! I pray things up for you soon.
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thegrammalady
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Re: I LOVE OKAROL ( not what you think)
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Reply #24 on:
May 05, 2010, 11:48:52 AM »
karol is one of the neatest people i've ever met! it's an honor to count you among my friends. thanks for everything you do for this site. you are loved.
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s
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If you can smile when things go wrong, you have someone in mind to blame.
Lead me not into temptation, I can find it myself.
Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.
Some mistakes are too much fun to only make once.
Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
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