Why are you on dialysis?...in short?

[anja]

Alport's Syndrome, likely but not definite... Repeated bladder and kidney infections beginning when I was 13,  many family members have microhematuria at all times, Father is on hemo. I am on PD.

[Fighter]

Glomerulonephritis. Probably got it a young age, but thankfully I only learned the meaning of the word dialysis last year.

[Joe Paul]

Juvenile diabetes for 23 years.

Like epoman, my parents didn't help the situation much either.  They couldn't handle setting limits for my diet, so they left that up to me.  And what 13 year old is going to set her own limits?  Ahh, well, hindsight is 20/20. . . .

I cant blame my parents, they did the best they could, it was me who got me here, that and 32 years of type 1 diabetic, and partying.

[NY2FL]

SLE was my cause. Now, as for the SLE,  I kinda forget about that, since I have been fortunate
not to have, what I recognize as, a Lupus Flair up since 1985....
BUT if I had to pick any specific instances or situations.....

-At that time, my brother was going through serious drug addiction. With my Mom, a single
parent (having lost my father to emphysema 5 yrs earlier)my home was an extremely stressfull place.

-The summer before my first Lupus episode, I had a really bad sunburn.

There's a PRETTY good chance that stress(physical AND emotional) is a BAD thing...ya think?

[Russ]

Well, i knew i had diabetes and high blood pressure but always felt "fine" never went to the Dr. cuz I HATE THEM!!!  anywaaaaays,  i always say,   denial led me to dialysis 

This goes ditto for me.

[kitkatz]

Oh yeah, stress can kill you!

[MattyBoy100]

Alport's Syndrome, my uncle had it as well, caused by defective gene passed from female to males in the family.  Didn`t know til I was 34, bummer!

[Bajanne]

Diabetes, hypertension,( and the drugs used to control these which should have been monitored as they affect the kidneys!)

[kitkatz]

made a comment, but did not answer the question.  They think reflux may have caused it, who really knows?

[angieskidney]

made a comment, but did not answer the question.  They think reflux may have caused it, who really knows?

Reflux definately killed my kidneys because it was the constant infections I had for 9 years before it was discovered (infact when I was 16 my nephrologist in Toronto said that if my reflux had been repaired that I would have my original fully working kidneys today   )

[jasperkat]

My husband has had diabetes for years.  Controlled for the most part but still not enough.  I believe his kidney failure was expedited by a kidney biopsy gone wrong.  Of course no one will admit this!  Anyway, it is what it is and we are trying the to make the best of the situation.

[pigsty1953]

I was tired of peeing, so I yanked them out.
 


Oh, man I absolutely HAVE to respond to this one.  That is GREAT, just GREAT.  I used to feel the same way.  I hated to pee, to get up and have to go to the john, oh, man it was so much touble.

Now, I wish I could.  Darn it, I really wish I could.  I miss it so much...


Thank you for making me laugh, thank you...



Take care, Randy in Palm Harbor, FL

[sugapea]

Iga Nephrophy, led to esrd. didn't know I was sick until kidneys were almost gone.

[del]

My husband had kidney reflux not discovered until around age 10.  Had lots of infections.  Surgery was done when he was 10 or 12 to repair the reflux.  Always had high creatine and high blood pressure(probably due to kidney failure).  In Aug 1987 at 27 was diagnosed with nephritis Told would need dialysis or transplant within 2 -10 years- made it 10 years to Aug 1997 before starting dialysis. 

[devlinswife]

was either born with it or got it very young, went undiagnosed because my family doctor thought I was lazy ( I peed the bed, had headaches all the time and slept all the time). I got pregnant at 14 and they thought I had toxemia I actually have membranous glumerionephritis.

[Sluff]

Pre-Dialysis. Primary FSGS no way to tell what caused it. I had a lot of bladder infections as a kid. I worked with petroleum products alot. Your guess is as good as mine.

[okarol]

Jenna has a rare condition called a non-neurogenic neurogenic bladder dysfunction. It basically means
her brain never got the message the bladder was not fully emptying. The constant pressure damaged
the kidneys, with no symptoms at all until nighttime incontinence began at age 14. By then she had
only 25% function remaining. Took 3 more years for kidneys to fail completely.

[paris]

Sluff, I also have FSGS with no known reason. Diagnosed 2 years ago- have gone from 30% to 10% function in that time.  Transplant list for 1 year, 3 living donors who match, PRA of 100% - so no transplant. 

[virrat]

Reflux, which was caught when I was nine.  I, too, have been told that if it had been caught when I was younger, my kidneys would probably be okay.  Maybe healthcare professionals should test for it.

[goofynina]

For me,  who knows,  must've been all the "Drugs, Sex, Rap and Crap"  (well, i listened to more Rap than Rock) 

[boxman55]

Diabetes and High Blood Pressure are the roads that led to my kidney failure  Boxman55

[shay_pcb]

I was tired of peeing, so I yanked them out.

That's hilarious!!! 

I peed the bed

I did too until I was 14. The doctors told me to stop drinking carbonated drinks...I don't understand that!

I ended up on dialysis bc one of my kidneys never grew in, and the other one has renal dysplasia (sp?), meaning scar tissue all over it causing it to shrivel up and die. They found out when I was 11 and had my gall bladder out.

[aharris2]

they say ignorance is bliss.....somehow i don't think so...been a type 1 diabetic since i was 16 til i was diagnosed with esrf at age 39 and guess what? i'm still ignorant

cheers,

rolando

[brenda]

Small town "country bunpkin doctors......and oh ya, reflux. Totally fixable had somebody paid attention just one of the 3000! times my mom took me to the doctor from the time I was a baby. I think they got "sick" of seeing me.