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Author Topic: Why are you on dialysis?...in short?  (Read 16245 times)
jedimaster
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« on: November 02, 2006, 12:38:02 PM »

I'm sure this question is in all introductions...I get quite often the question: What did YOU do to get into dialysis?....My answer changes depending on my humor and who asks the question, but in short is "A doctor was treating my Chron's and overdose me with ASACOL"....so in my head it is "doctor's incompetence"...what's yours in short? ???
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Epoman
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« Reply #1 on: November 02, 2006, 01:13:21 PM »

p*ckED UP PARENTS! Bottomline.

They were to busy killing each other to notice I was not a normal teenager.
« Last Edit: November 02, 2006, 01:39:25 PM by Epoman » Logged

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Stacy Without An E
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« Reply #2 on: November 02, 2006, 01:36:08 PM »

I have a wonderfully annoying kidney disease called, "Progressive Glomurulonephritis."  This is associated with an inflammation of the internal kidney structures (glomeruli).

Some individuals with this disease which is mild and can be alleviated in an effort to kick start the kidneys back to functioning.

Unforunately, mine led to ESRD.

Stacy Without An E
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Stacy Without An E

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2nd Kidney Transplant: January 1996
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Dialysis.  Two needles.  One machine.  No compassion.
Rerun
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Going through life tied to a chair!

« Reply #3 on: November 02, 2006, 01:50:23 PM »

Screwing around as a teenager (18) and getting bladder infections.  This is God's way of punishing me for "sex before marriage".  I haven't told too many people that before, so NOW I'm going to have to kill you! 

 :banghead;
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jbeany
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Cattitude

« Reply #4 on: November 02, 2006, 01:51:08 PM »

Juvenile diabetes for 23 years.

Like epoman, my parents didn't help the situation much either.  They couldn't handle setting limits for my diet, so they left that up to me.  And what 13 year old is going to set her own limits?  Ahh, well, hindsight is 20/20. . . .
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kitkatz
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« Reply #5 on: November 02, 2006, 03:20:47 PM »

I had reflux disease from two to ten years old, then nothing until the kidneys just went into ESRD all by themselves eight years ago.
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #6 on: November 02, 2006, 03:32:30 PM »

Allergic reaction to Vancomyacin, the antibiotic.  I had such a bad reaction to it it gave me vasculitis and aplastic anemia. 
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kitkatz
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« Reply #7 on: November 02, 2006, 03:43:13 PM »

I had a big reaction in the emergency one night when they gave me Vancomycin. They gave it to me too fast.  They called it Red Man Syndrome.   Awful feeling. I tired to get up out of bed while feeling dizzy and out of breath. They whopped me full of Benadryl and told me to chill out. I finally listened to someone who said to lie down why was I trying to get up when I felt like fainting.  I was in a panic.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #8 on: November 02, 2006, 03:52:11 PM »

I had a big reaction in the emergency one night when they gave me Vancomycin. They gave it to me too fast.  They called it Red Man Syndrome.   Awful feeling. I tired to get up out of bed while feeling dizzy and out of breath. They whopped me full of Benadryl and told me to chill out. I finally listened to someone who said to lie down why was I trying to get up when I felt like fainting.  I was in a panic.

That Vacno is some strong stuff.  They called the redness I had Red Neck syndrome.  I was talking to one of the nurses one day and telling her about it and she told me Vanco was very toxic to the kidneys.  They're supposed to take levels of it in bloodwork whenever you receive it, it has something called troughs?? (sp)  And you're supposed to get it wih a slow drip, not fast. 
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Jill D.
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« Reply #9 on: November 02, 2006, 07:28:20 PM »

Discovered I was spilling protein when I was pregnant. Diagnosed with FSGS - my form is called idiopathic, meaning "no known cause". So literally God only knows why this happened.  ???
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Diagnosed with FSGS in1990.
Started hemodialysis in April 2006.
Received a new kidney from my sister on Dec. 5, 2006.
Transplant rejection in March, 2009
Approved for second transplant in May 2009
Sister-in-law approved as donor in Dec 2009
Sara
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« Reply #10 on: November 02, 2006, 07:51:42 PM »

Joe's is probably due to uncontrolled diabetes.   :(
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Sara, wife to Joe (he's the one on dialysis)

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Joe died July 18, 2007
goofynina
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He is the love of my life......

« Reply #11 on: November 02, 2006, 10:09:54 PM »

Well, i knew i had diabetes and high blood pressure but always felt "fine" never went to the Dr. cuz I HATE THEM!!!  anywaaaaays,  i always say,   denial led me to dialysis  :-\
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Amanda From OZ
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« Reply #12 on: November 02, 2006, 11:54:50 PM »

I have a family history with medullary Cystic Disease............... Just bad genes i guess  >:(
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AlasdairUK
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« Reply #13 on: November 03, 2006, 07:15:03 AM »

My kidneys where too small and one day they decided the workload was too much and went on strike.

Allergic reaction to Vancomyacin, the antibiotic. I had such a bad reaction to it it gave me vasculitis and aplastic anemia.

I'm also allergic to vancomycin, but every doctor always assumes that it was just given to me too quickly and I had the normal reaction. They try give it to me and I have to refuse point blank and not let them administer it. I used want to be a good patient , but now I realize being a good patient does not always mean you get good care.

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94 - PD for 3 months
94 - HD Permcath for 3 months
95 - RLD Transplant 10 years
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kevno
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« Reply #14 on: November 03, 2006, 08:47:40 AM »

Reflux from birth not found out until 6 years old. To late by then :-\
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ahamner
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« Reply #15 on: November 03, 2006, 09:52:43 AM »

My kidneys failed from Polycystic Kidney Disease which is a function of genetics.  If one of your parents has it then you have a 50% chance of also having it.  My father had it and two of three of his children also have it. One of two of my children also has it.
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Bette
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« Reply #16 on: November 03, 2006, 11:00:33 AM »

My kidneys failed in 1987 due to FSGS - also no known cause.  I was 19 at the time. 


My parents were health food nuts, all organic foods, vegetarian, the whole deal.  My nephrologist thought that my diet kept my kidney functioning much longer than they normally would have had I been eating a regular diet.
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Zach
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"Still crazy after all these years."

« Reply #17 on: November 03, 2006, 12:49:36 PM »

I was tired of peeing, so I yanked them out.
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Epoman
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« Reply #18 on: November 03, 2006, 12:50:12 PM »

I was tired of peeing, so I yanked them out.

 :beer1;  ;D
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- Epoman
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Zach
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"Still crazy after all these years."

« Reply #19 on: November 03, 2006, 12:50:47 PM »

 :beer1;
Back at ya Epoman!
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Fox_nc
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« Reply #20 on: November 03, 2006, 02:57:37 PM »

Reflux not found until age 5 ....
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Ginger
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« Reply #21 on: November 04, 2006, 09:39:31 AM »

Polycystic Kidney Disease
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paris
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« Reply #22 on: November 04, 2006, 11:19:33 AM »

Just like Jill D, idiopathic FSGS.  Cannot find any real cause.
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angieskidney
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« Reply #23 on: November 04, 2006, 12:30:39 PM »

Just like Fox, Reflux not found until age 9
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diagnosed ESRD 1982
PD 2/90 - 4/90, 5/02 - 6/05
Transplant 4/11/90
Hemo 7/05-present (Inclinic Fres. 2008k 3x/wk MWF)
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i am awesome.

« Reply #24 on: November 04, 2006, 01:27:34 PM »

Lupus, (SLE) and I like to add-in the fact that i was denied chemo to possibly reverse my kidneys due to no insurance, I blame the goverment!!

Angela
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Live Donor Transplant From My Mom 12/14/1999
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