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Author Topic: How many IHD family members have you met personally?  (Read 17872 times)
kitkatz
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« Reply #25 on: September 06, 2009, 11:26:09 AM »
Come to Vegas this year! You will meet IHD.com members!
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Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
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« Reply #26 on: September 06, 2009, 01:43:41 PM »
Quote from: okarol on September 05, 2009, 11:41:15 PM
Quote from: Chris on September 05, 2009, 08:18:24 PM
Only way that happened was when olarol took one while I was drinking a beer and one out of surprise on my blind side. :o

I did NOT get him all liquored up so I could shoot him!  :rofl;
The picture WAS taken in your hotel room....  :rofl;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
Chris
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« Reply #27 on: September 06, 2009, 04:35:03 PM »
Quote from: okarol on September 05, 2009, 11:41:15 PM
Quote from: Chris on September 05, 2009, 08:18:24 PM
Only way that happened was when olarol took one while I was drinking a beer and one out of surprise on my blind side. :o

I did NOT get him all liquored up so I could shoot him!  :rofl;
:rofl; :rofl; :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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« Reply #28 on: September 06, 2009, 05:27:40 PM »
Quote from: Jess21 on September 06, 2009, 01:43:41 PM
Quote from: okarol on September 05, 2009, 11:41:15 PM
Quote from: Chris on September 05, 2009, 08:18:24 PM
Only way that happened was when olarol took one while I was drinking a beer and one out of surprise on my blind side. :o

I did NOT get him all liquored up so I could shoot him!  :rofl;
The picture WAS taken in your hotel room....  :rofl;

Hey - you're right -- there was no beer involved!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Chris
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« Reply #29 on: September 06, 2009, 05:56:40 PM »
Ught Ohh! And there's video evidence  :rofl; :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Jess21
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« Reply #30 on: September 07, 2009, 09:40:13 PM »
 :rofl; :rofl; :rofl; :rofl; :rofl;
Logged
Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
kitkatz
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« Reply #31 on: September 08, 2009, 06:22:49 AM »
I just remembered
Boxman
Sluff
Mrs. Sluff
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
brenda
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« Reply #32 on: September 08, 2009, 06:31:52 AM »
None yet. But will hopefully be meeting Zach in NY on friday!  :clap;
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Life is what happens while your making other plans.
Bajanne
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« Reply #33 on: September 08, 2009, 07:46:43 AM »
Quote from: brenda on September 08, 2009, 06:31:52 AM
None yet. But will hopefully be meeting Zach in NY on friday!  :clap;

PICTS!!! :pics;
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
okarol
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« Reply #34 on: September 08, 2009, 08:08:33 AM »
Quote from: brenda on September 08, 2009, 06:31:52 AM
None yet. But will hopefully be meeting Zach in NY on friday!  :clap;

Oh boy!!  :yahoo;
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Adam_W
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Me with Baron von Fresenius
« Reply #35 on: September 08, 2009, 11:16:58 AM »
The only other IHD member that I've "met" personally is Phurball, because she is my grandmother. (She doesn't post much here, though).

Adam
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-Diagnosed with ESRD (born with one kidney, hypertension killed it) Jan 21st, 2007
-Started dialysis four days later in hospital (Baxter 1550-I think, then Gambro Phoenix)
-Started in-centre dialysis Feb 6th 2007 (Fres. 2008H)
-Started home hemo June 5th 2007 (NxStage/Pureflow)
-PD catheter placed June 6th 2008 (Bye bye NxStage, at least for now)
-Started CAPD July 4th, 2008
-PD catheter removed Dec 2, 2008-PD just wouldn't work, so I'm back on NxStage
-Kidney function improved enough to go off dialysis, Feb. 2011!!!!!
-Back on dialysis (still NxStage) July 2011 :(
-In-centre self-care dialysis March 2012 (Fresenius 2008K)
-Not on transplant list yet.


"Don't live for dialysis, use dialysis to LIVE"
cariad
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What's past is prologue
« Reply #36 on: September 08, 2009, 06:32:08 PM »
None, but I seem to live near an IHD cluster, so am hopeful I will get the chance soon.
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Chris
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« Reply #37 on: September 08, 2009, 10:08:32 PM »
When you come to Northwestern again, can try to plan to meet there.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #38 on: September 09, 2009, 01:10:38 AM »
I've just realised I have met Mollyrox - she's my daughter though, so that's cheating lol.
Logged
Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
cariad
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What's past is prologue
« Reply #39 on: September 11, 2009, 02:24:17 PM »
Quote from: Chris on September 08, 2009, 10:08:32 PM
When you come to Northwestern again, can try to plan to meet there.

Awesome!

Hey, Chris, do you know anything about The Metro venue in Chicago? THE band from Wales, the Manic Street Preachers, will be there October 1 and my husband so wants to go and support his countrymen. They are not a very well known group outside of the US, but in Wales only Tom Jones can compete in popularity (and they appeal to two entirely different crowds). I am trying to decide if it is worth the effort and hassle to get babysitters and head down for an evening. I worry about having to stand all night, too. Any seats there at all, or is it just an open ballroom style?

 :thx;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
Ken Shelmerdine
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« Reply #40 on: September 11, 2009, 02:41:46 PM »
None unfortunately but I did have a telephone conversation with our much loved and an sadly missed Goofynina and also OKarol.

It was so funny when I first phoned Susie (Goofynina) she obviously couldn't understand my northern english accent and I think she thought it was a wierdo phone call because she hung up. So I redialed and put on my best Queen's English accent and then she understood.

We spent most of the brief phone call laughing at the misunderstanding. I'm so pleased that I got to meet her at least verbally. And Karol it was great talking to you also. I do so wish I could meet more people on this forum.
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Ken
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« Reply #41 on: September 11, 2009, 03:26:39 PM »
Quote from: cariad on September 11, 2009, 02:24:17 PM
Quote from: Chris on September 08, 2009, 10:08:32 PM
When you come to Northwestern again, can try to plan to meet there.

Awesome!

Hey, Chris, do you know anything about The Metro venue in Chicago? THE band from Wales, the Manic Street Preachers, will be there October 1 and my husband so wants to go and support his countrymen. They are not a very well known group outside of the US, but in Wales only Tom Jones can compete in popularity (and they appeal to two entirely different crowds). I am trying to decide if it is worth the effort and hassle to get babysitters and head down for an evening. I worry about having to stand all night, too. Any seats there at all, or is it just an open ballroom style?

 :thx;

I'll look into it at the train station on Monday when I go to Northwester. I'll be going to Chicago each week this month starting Monday and there is usually something posted about what's going on downtown. The stuff I had I sent to kitkatz and didn't keep spares of 2009 events.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
okarol
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Posts: 100933


Photo is Jenna - after Disneyland - 1988

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« Reply #42 on: September 11, 2009, 07:20:55 PM »
Quote from: Ken Shelmerdine on September 11, 2009, 02:41:46 PM
None unfortunately but I did have a telephone conversation with our much loved and an sadly missed Goofynina and also OKarol.

It was so funny when I first phoned Susie (Goofynina) she obviously couldn't understand my northern english accent and I think she thought it was a wierdo phone call because she hung up. So I redialed and put on my best Queen's English accent and then she understood.

We spent most of the brief phone call laughing at the misunderstanding. I'm so pleased that I got to meet her at least verbally. And Karol it was great talking to you also. I do so wish I could meet more people on this forum.

It was a nice surprise to speak with Ken!
I will be in UK in Oct. - maybe we will meet!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
cariad
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What's past is prologue
« Reply #43 on: September 11, 2009, 09:04:54 PM »
Quote
I'll look into it at the train station on Monday when I go to Northwester. I'll be going to Chicago each week this month starting Monday and there is usually something posted about what's going on downtown. The stuff I had I sent to kitkatz and didn't keep spares of 2009 events.

Please don't go to too much trouble, Chris! If you do happen to see something, I would of course appreciate the info.

Thanks so much!  :thx;
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Be kind, for everyone you meet is fighting a great battle. - Philo of Alexandria

People have hope in me. - John Bul Dau, Sudanese Lost Boy
thegrammalady
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« Reply #44 on: September 13, 2009, 12:25:46 PM »
deanne, we usually meet for lunch when i'm in oregon.
okarol
kitkatz and hubby
bajanne
lil bajanne
kelly t
extrememoosetrax and lina (twice!)
epowife
epokid
paris
aloha beth
florida flyer
aharris2 (both of them)
sluff (twice)

and i've talked on the phone to chris and boxman

(hope i didn't leave anyone out)
« Last Edit: September 14, 2009, 11:39:26 AM by thegrammalady » Logged
s
......................................................................................
If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
Chris
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« Reply #45 on: September 13, 2009, 03:25:09 PM »
I forgot to mention that I talked to you when I posted.

I have also texted Wenchie, KarenWA, AlohaBeth

 Oh and talked to Kitkatz briefly on the phone.
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
brenda
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« Reply #46 on: September 18, 2009, 09:26:16 PM »
 :2thumbsup; Ok now I can say 1!!!!
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Life is what happens while your making other plans.
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« Reply #47 on: September 19, 2009, 08:38:51 AM »
Quote from: Ken Shelmerdine on September 11, 2009, 02:41:46 PM
None unfortunately but I did have a telephone conversation with our much loved and an sadly missed Goofynina and also OKarol.

It was so funny when I first phoned Susie (Goofynina) she obviously couldn't understand my northern english accent and I think she thought it was a wierdo phone call because she hung up. So I redialed and put on my best Queen's English accent and then she understood.

We spent most of the brief phone call laughing at the misunderstanding. I'm so pleased that I got to meet her at least verbally. And Karol it was great talking to you also. I do so wish I could meet more people on this forum.

Only just saw this and just had such a good feeling, remembering talking to Goofynina on the phone.  Sir Ken, I am happy that you got to laugh with the Damn Dame!
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
kitkatz
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« Reply #48 on: September 19, 2009, 11:47:37 AM »
I also met Big Steve in Palm Springs one day at an RSN meeting.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
YLGuy
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« Reply #49 on: November 03, 2009, 09:42:55 AM »
Quote from: kitkatz on September 19, 2009, 11:47:37 AM
I also met Big Steve in Palm Springs one day at an RSN meeting.
and now me!  :clap;
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