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Author Topic: How many IHD family members have you met personally?  (Read 18087 times)
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

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« on: September 03, 2009, 08:55:55 AM »
I was just re-reading the thread where Jessica met Kitkatz.  I am thinking that Kitkatz is probably the person who has met the most of the IHD family personally.
My list is easy - Livecam
                     Everyone who went to the Las Vegas 2008 Reunion!
« Last Edit: September 03, 2009, 08:57:57 AM by Bajanne » Logged
"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
willowtreewren
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My two beautifull granddaughters

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« Reply #1 on: September 03, 2009, 09:02:08 AM »
For me, just one - Mizar.

My goal is to meet many, many more.
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
okarol
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« Reply #2 on: September 03, 2009, 09:38:37 AM »
I have been fortunate to attend 2 Las Vegas IHD Meet-ups and one in Chicago. Got to meet a couple people at RSN meetings and saw some members on my trip to New York.
Let's see if I can do this:
Kitkatz, Sluff, Mrs. Sluff, Bajanne, LilBajanne, Boxman, Chris, Patton, Zach, Goofynina, Vandie, Epowife, Epokid, Jill D, Meinuk, Bill Peckham, Rerun, AHarris, Epofriend, Paris, AlohaBeth, Tubes, thegrammalady, Jess21, peleroja, flip, Hemodoc, kellyt, xtrememoosetrax, florida.flyer, hmmmm not sure who I am leaving out. I have also met Kitkatz's hubby, sister and mother, Paris's hubby, Jess's mom, Jill D's hubby, Tubes's grandparents, thegrammaldy's daughter April, and a few other family members/friends that I am blanking on names at the moment. (Please forgive me if I forgot someone - let me know!)
Sadly 2 members I have met have passed away.   :(
Three have gotten transplants.  :)
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Wenchie58
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« Reply #3 on: September 03, 2009, 11:04:39 AM »
I haven't met anyone from IHD  YET, but plans are in the works to make a subtle Wench attack on Southern California......beware peoples!!   :rofl;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
charee
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« Reply #4 on: September 03, 2009, 02:17:37 PM »
well for me i have met  Amanda,  Rose and there parents , Lucinda and  Paul ,Richard, hoping sometime soon to meet Some of the other Melbourne gang will have to work on that happening soon :ausflag;
« Last Edit: September 04, 2009, 12:23:21 AM by charee » Logged
Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
monrein
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Might as well smile
« Reply #5 on: September 03, 2009, 03:32:10 PM »
Just one, Razman.   
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Jean
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« Reply #6 on: September 03, 2009, 03:51:00 PM »
Just one, but a good one.... Kitkatz
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One day at a time, thats all I can do.
twirl
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« Reply #7 on: September 03, 2009, 04:19:52 PM »
none
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pelagia
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« Reply #8 on: September 03, 2009, 04:21:01 PM »
NOT ENOUGH!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
kitkatz
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« Reply #9 on: September 03, 2009, 07:01:00 PM »
Jean
Okarol
People at IHD.com #1 and #2 in Las Vegas
Livecam
Big Steve at an RSN meeting

I knew I forgot someone

Jess21
« Last Edit: September 04, 2009, 06:13:56 AM by kitkatz » Logged


lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
Jess21
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« Reply #10 on: September 03, 2009, 10:32:21 PM »
Thanks for remembering me, kitkatz!  :sarcasm;  :rofl;
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Hospitalized w/ renal failure- Nov. 2007
Diagnosed w/ ESRD w/ unknown cause- Jan 2008
Lower arm AV Fistula created- March 2008
On IL transplant list- Oct. 8th, 2008
On WI transplant list- June 25th, 2009
Pediatric 2 kidney transplant- July 6th, 2009 (3/6 antigen match)
YLGuy
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« Reply #11 on: September 03, 2009, 11:06:40 PM »
Quote from: Wenchie58 on September 03, 2009, 11:04:39 AM
I haven't met anyone from IHD  YET, but plans are in the works to make a subtle Wench attack on Southern California......beware peoples!!   :rofl;

That would be great! You sure would be  :welcomesign; here.

Mickey and Minnie would love to see you too!
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KarenInWA
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« Reply #12 on: September 03, 2009, 11:55:09 PM »
I've met Wallyz, and I would like to meet Bill Peckham, since he and I both live in the Seattle area. 
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1996 - Diagnosed with Proteinuria
2000 - Started seeing nephrologist on regular basis
Mar 2010 - Started Aranesp shots - well into CKD4
Dec 1, 2010 - Transplant Eval Appt - Listed on Feb 10, 2012
Apr 18, 2011 - Had fistula placed at GFR 8
April 20, 2011 - Had chest cath placed, GFR 6
April 22, 2011 - Started in-center HD. Continued to work FT and still went out and did things: live theater, concerts, spend time with friends, dine out, etc
May 2011 - My Wonderful Donor offered to get tested!
Oct 2011  - My Wonderful Donor was approved for surgery!
November 23, 2011 - Live-Donor Transplant (Lynette the Kidney gets a new home!)
April 3, 2012 - Routine Post-Tx Biopsy (creatinine went up just a little, from 1.4 to 1.7)
April 7, 2012 - ER admit to hospital, emergency surgery to remove large hematoma caused by biopsy
April 8, 2012 - In hospital dialysis with 2 units of blood
Now: On the mend, getting better! New Goal: No more in-patient hospital stays! More travel and life adventures!
RichardMEL
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« Reply #13 on: September 04, 2009, 01:32:23 AM »
Lucinda, Charee, Amanda. Have spoken with Tamara on the phone.. and she ran off when she heard my voice :)

Am DYING to get to Vegas to meet with the IHD crowd, as well as certain other IHD members that are on my "hit list" (or is that hit ON list??  :rofl;) when I am able to travel again!!! :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
kitkatz
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« Reply #14 on: September 04, 2009, 06:12:54 AM »
Oh and Jess 21     :guitar:
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #15 on: September 04, 2009, 06:12:09 PM »
None, yet. Chris and I (and my husband) will be meeting in Chicago next weekend when we go up for the U2 concert. We might be meeting Jess too if she'll ever respond to the post I left on her Facebook page!!!  Hint, hint Jess, check your page!    ;D  ;)
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
del
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del and willowtreewren meet
« Reply #16 on: September 04, 2009, 07:01:17 PM »
None!!
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Don't take your organs to heaven.  Heaven knows we need them here.
Wenchie58
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Always carrying the big silly grin!
« Reply #17 on: September 04, 2009, 08:02:41 PM »
Quote from: YLGuy on September 03, 2009, 11:06:40 PM
Quote from: Wenchie58 on September 03, 2009, 11:04:39 AM
I haven't met anyone from IHD  YET, but plans are in the works to make a subtle Wench attack on Southern California......beware peoples!!   :rofl;

That would be great! You sure would be  :welcomesign; here.

Mickey and Minnie would love to see you too!

Ohhh It will be fun.  Think I will wait til Cali stops burning and NY looks snowy.  Mickey, Minnie and I are old pals....I have met up with them on BOTH coasts!   :yahoo;
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
Chris
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« Reply #18 on: September 04, 2009, 10:29:03 PM »
I've met Okarol, Sluf, Mrs. Sluff, Patton (and fiance), Aharris, Epofriend (and family members), Paris and Mr. Paris, Jess21 and her mom, Flip and girlfriend. I hope I got everyone from the Chicago meet.
 
Will soon meet paddbear and husband, maybe a few  :pics; ,without me that is  :rofl; :rofl;
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Razman
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« Reply #19 on: September 05, 2009, 03:42:32 PM »
  Just one ,  Monrein , but we have met several times . Lots of time to talk when someone is hooked up to dialysis.  They're not going anywhere !   :rofl;
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paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #20 on: September 05, 2009, 07:49:47 PM »
Quote from: Chris on September 04, 2009, 10:29:03 PM

Will soon meet paddbear and husband, maybe a few  :pics; ,without me that is  :rofl; :rofl;

No way Jose! You're getting your picture taken Chris!!   :P
Logged
********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
Chris
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« Reply #21 on: September 05, 2009, 08:18:24 PM »
Only way that happened was when olarol took one while I was drinking a beer and one out of surprise on my blind side. :o
Logged
Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
paddbear0000
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Dogs & IHDer's are always glad to see you!

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« Reply #22 on: September 05, 2009, 08:50:22 PM »
I've seen more pictures of you than that! I've seen you in posed shots before. Nice try!
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********************************************************
I HAVE DESIGNED CKD RELATED PRODUCTS FOR SALE TO BENEFIT THE NKF'S 2009 DAYTON KIDNEY WALK (I'M A TEAM CAPTAIN)! CHECK IT OUT @ www.cafepress.com/RetroDogDesigns!!

...or sponsor me at http://walk.kidney.org/goto/janetschnittger
********************************************************
Twitter.com/NKFKidneyWalker
www.facebook.com/profile.php?id=1659267443&ref=nf 
www.caringbridge.org/visit/janetschnittger

Diagnosed type 1 diabetic at age 6, CKD (stage 3) diagnosed at 28 after hospital error a year before, started dialysis February '09. Listed for kidney/pancreas transplant at Ohio State & Univ. of Cincinnati.
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #23 on: September 05, 2009, 11:41:15 PM »
Quote from: Chris on September 05, 2009, 08:18:24 PM
Only way that happened was when olarol took one while I was drinking a beer and one out of surprise on my blind side. :o

I did NOT get him all liquored up so I could shoot him!  :rofl;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Ang
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« Reply #24 on: September 05, 2009, 11:50:00 PM »
none :bow;
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live  life  to  the  full  and you won't  die  wondering
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