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Author Topic: Transplant Scheduled for August 12th - a new road  (Read 9665 times)
Phraxis
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« on: July 18, 2009, 04:10:37 PM »
Not having got "used" to dialysis -- does one ever? I start a new journey.

Does a transplant mean I don't get to post? (not really a serious question)
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willieandwinnie
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« Reply #1 on: July 18, 2009, 04:30:56 PM »
 :cheer: Congratulations Phraxis  :cheer: Please keep us posted.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
willowtreewren
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My two beautifull granddaughters

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« Reply #2 on: July 18, 2009, 05:44:48 PM »
Woo Hoo! Wonderful news!  :clap; :clap;

 :bandance; :cheer: :bandance; :cheer: :bandance;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
kellyt
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« Reply #3 on: July 18, 2009, 06:48:21 PM »
 :bandance;    Congratulations!  Aug. 12th will be here before you know it!   
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #4 on: July 18, 2009, 07:00:31 PM »
Of course you can always post!  How exiting.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
rookiegirl
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« Reply #5 on: July 19, 2009, 04:32:48 AM »
Wow! Congrats...pray all goes well.  Please continue to post to let us know how you are doing.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Romona
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« Reply #6 on: July 19, 2009, 06:32:06 AM »
 :yahoo; I am so happy for you!!
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Des
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« Reply #7 on: July 20, 2009, 07:39:02 AM »
So exciting.... and scary..... good luck and I hope everything goes according to plan.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
paris
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« Reply #8 on: July 20, 2009, 10:03:36 AM »
I'll mark the 12th on my calendar and you will be in our thoughts and prayers that day.  I am very excited for you.  Post often and share this journey.   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Phraxis
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« Reply #9 on: July 24, 2009, 08:30:46 AM »
an update

The transplant team has finally "surfaced" after no contact for more than two months. The Commander (my sister is a naval officer and donating the kidney) took action and it took exactly 4 minutes for a phone call to be received.  We now have all the requirements and are back on track.

In their defence they complete eight, a capital 8, transplants yesterday. The benefits of "swapping" among non compatible partners.  A new program that is showing great results in BC, Canada.

For my part, keeping busy with mini golf, bingo and bowling. A friend has committed to keeping me distracted with such important activities.  Thank you for all your thoughts and prayers.
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Phraxis
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« Reply #10 on: August 13, 2009, 10:09:46 AM »
UPDATE

A minor surgical mistep in the initial laphrascopy procedure to remove the kidney resulted in a blood vessal being punctured obscuring the view so the transplant was halted in a conservative move to rpotect the donor. Both of us a doing well and the transplant will likely occur in Sept but have no date yet.

Will update as developments occur.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #11 on: August 13, 2009, 10:12:24 AM »

OMG that's scary - I hope your sister is okay. This must be very difficult for you and your family. I hope it all works out in Sept.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #12 on: August 13, 2009, 10:16:09 AM »
Very scary.  Will she be going with laproscopic next time also?
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
paris
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« Reply #13 on: August 13, 2009, 01:31:50 PM »
How is your sister?  There always seems to be "one more thing" when it comes to this disease.  I am sorry for the delay. I am sure that was a let down.  Keep us updated so we know your new kidney date   :2thumbsup;
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
Phraxis
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« Reply #14 on: August 13, 2009, 02:42:52 PM »
Tiff, sister and donor, is doing very well. Well enough to make it quite uncomfortable for the surgeon while he explained what happened. She can be quite "feisty" -- she would hate me calling it that.

We are busy making plans to assemble again for the next round.
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willieandwinnie
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« Reply #15 on: August 13, 2009, 02:49:12 PM »
 :Kit n Stik; Tell your sister to do one of these on those doctors. Please keep us posted on how you are both doing.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
kellyt
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« Reply #16 on: August 13, 2009, 08:19:54 PM »
Give her a hug from us when you get a chance.  She's a trooper.  Keep us informed of the new date.  Sorry for the delay my Friend.  b :cuddle;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Chris
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« Reply #17 on: August 13, 2009, 09:14:57 PM »
Thought I posted here before. Anyway, sorry tohear about problems, but better to be safe than sorry.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
Phraxis
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« Reply #18 on: August 29, 2009, 12:18:59 PM »
We got word of Friday, the new date will be Sept 16th. So after our trial run, we are ready to go again.

While I wait, I have been gripped by lethargy. I am putting off meetings, avoiding projects, sleeping in and generally goofing off. Understandable, I suppose but unlike me.

On the humourous front, in response to the h1n1 scare my office has decided to implement a decomtamination project. And woe to he/she that walks into the office with a sniffle.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #19 on: August 29, 2009, 01:48:14 PM »
 :2thumbsup; Wow that's not too far off! I hope things work out this time.  :cuddle;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
lola
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I can fly!!!
« Reply #20 on: August 29, 2009, 02:02:40 PM »
2nd times a charm :grouphug;
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www.caringbridge.org/visit/ottomachado
Rerun
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Going through life tied to a chair!
« Reply #21 on: August 29, 2009, 02:18:28 PM »
Better luck this time and tell the surgeon to put his glasses on this time!

                 :Kit n Stik;
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willieandwinnie
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« Reply #22 on: August 29, 2009, 03:14:09 PM »
 :yahoo; Can't wait for updates.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #23 on: August 29, 2009, 05:31:36 PM »
Rest as much as you need to.  Listen to your body.  It's not too far to wait.  Fingers crossed.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Phraxis
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« Reply #24 on: September 07, 2009, 09:31:14 AM »
So last week I notice a little tickle that develops into sniffles -- a cold. Nothing serious. Unless of course one is planning to have a . . . transplant!!

I am resting but all the things that I used to do to overcome a rare cold, i.e drink plenty of fluids etc are off the menu. My intellect tells me all will be well. I have overcome, well more correctly ignored, a minor illness like this many times. But the animal part of me is a swirl of conjecture and "what if".

So I have a mission. One week to shake this cold.
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