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Author Topic: Transplant Scheduled for August 12th - a new road  (Read 9957 times)
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #25 on: September 07, 2009, 03:27:42 PM »
Be positive and rest al lot.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
Phraxis
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« Reply #26 on: September 12, 2009, 06:05:08 PM »
Cold gone. Clan arriving starting tomorrow. Preparations made including cabbage rolls (idea taken from another poster but unable to recall who, so my apologies to it's orginator). All is ready for Wednesday.

Thank you for all your words of encouragement.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #27 on: September 12, 2009, 07:02:04 PM »
 :yahoo; Good luck!!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #28 on: September 12, 2009, 07:23:34 PM »
Good luck. We will all be waiting to hear how it all goes.    :2thumbsup;       I made cabbage rolls this week. Del talked about them a couple of weeks ago and I couldn't stop thinking about them, so made a big batch.  So, I raise my cabbage roll to you and toast to your new kidney!   :clap; 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willowtreewren
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My two beautifull granddaughters

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« Reply #29 on: September 13, 2009, 11:29:17 AM »
 :thumbup; :thumbup; :thumbup;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
tyefly
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This will be me...... Next spring.... I earned it.
« Reply #30 on: September 13, 2009, 02:18:41 PM »
   Iam so jealous......   cant wait to hear how well everything goes.......    :clap;
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IgA Nephropathy   April 2009
CKD    May 2009
AV Fistula  June 2009
In-Center Dialysis   Sept 2009
Nxstage    Feb 2010
Extended Nxstage March 2011

Transplant Sept 2, 2011

  Hello from the Oregon Coast.....

I am learning to live close to the lives of my friends without ever seeing them. No miles of any measurement can separate your soul from mine.
- John Muir

The clearest way into the Universe is through a forest wilderness.
- John Muir
willieandwinnie
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« Reply #31 on: September 13, 2009, 02:21:40 PM »
 :pray;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Jessmomto3
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Logan's mom!
« Reply #32 on: September 13, 2009, 07:09:03 PM »
Saying prayers all goes well this time around!   :bestwishes; 
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Phraxis
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« Reply #33 on: September 21, 2009, 03:27:56 PM »
Everything went fantastic. Both Tiff (donor) and I are fine, and the new kidney is some kind of UBER-kidney with creatine level at 115.

PS now I am looking for animation team to produce series of shorts about CKD, dialysis, transplant. (Yes woke up with head clear as a bell, even made phone call before painkillers knocked me back out)
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #34 on: September 21, 2009, 03:40:57 PM »
 :bandance; Yay Phraxis!
I am so glad to hear you came through it ok!
Tell your sister I think she is a Goddess!
Congrats and best wishes for a speedy recovery for you both!
 :yahoo; :yahoo; :yahoo;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
monrein
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Might as well smile
« Reply #35 on: September 21, 2009, 04:07:45 PM »
Great news Phraxis!!!   All the best to you and Tiff.  Keep us in the loop as you continue to enjoy your newfound health.   :beer1;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
willowtreewren
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My two beautifull granddaughters

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« Reply #36 on: September 21, 2009, 04:09:11 PM »
Super!!!!!

 :flower;

This is just great news, Phraxis!

Hugs to your sister AND to you!  :grouphug;
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Wife to Carl, who has PKD.
Mother to Meagan, who has PKD.
Partner for NxStage HD August 2008 - February 2011.
Carl transplanted with cadaveric kidney, February 3, 2011. :)
Des
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« Reply #37 on: September 21, 2009, 11:35:42 PM »
GREAT NEWS!!!!!!!!

Get well soon.....!
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...

South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
Jessmomto3
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Logan's mom!
« Reply #38 on: September 22, 2009, 12:53:29 PM »
 :bandance; :bandance; :bandance;

YAY!  That is awesome!   :cheer: :cheer:
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Jessica--mommy to Cristian (8), Jaden (4), and our miracle boy Logan (2/23/08)

Logan had PD cath, g-tube, and mediport placement at 4 1/2 months-- 7/2008
started PD at 5 1/2 months--8/2008
Listed--12/2008--inactive
Activated--8/2009

Cadaveric Kidney Transplant 9/4/2009 (18 months old)!!!!!
Hanify
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Hadija, Athol, Me and Molly at Havelock North 09
« Reply #39 on: September 26, 2009, 09:56:10 PM »
Yahoo.  How exiting.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008.  Now on PD with a cycler.  Working very part time - teaching music.  Love it.  Husband is Paul (we're both 46), daughter Molly is 13.
sico
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wheres my bike gone?
« Reply #40 on: September 27, 2009, 04:29:49 AM »
Congratulations Phraxis, how cool is your sister?
I hope things continue to go well for you and that new kidney.
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
lola
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I can fly!!!
« Reply #41 on: September 27, 2009, 06:30:04 AM »
 :bandance; :bandance; :bandance; :bandance; :flower;
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www.caringbridge.org/visit/ottomachado
Phraxis
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« Reply #42 on: October 09, 2009, 10:42:18 PM »
Three week update.

Feeling fantastic! Head clear and data coming back. Incision healing and perma cath gone. Had first shower in nine months -- it took two hours and was glorious.

Small scare ten days ago with creatinine level spiking but aggressive and immediate treatment and all was put in order. Now level back to 113. it was actually a good thing to have gone through the process so early, eliminates the unknown. But those steroids are something to behold-- I mean the joke is "Guy on steroids,NOT a good picture." But I just stayed low and let someone run interferance for me for the week.

I am walking, eating and sleeping. Expect to be cleared to return to work Nov 2nd.

Sister update. She is back at work and kicking butt. Though she had them put a couch in her office for napping. She is most definately the "tuff" one in our clan.
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rose1999
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« Reply #43 on: October 10, 2009, 01:10:49 AM »
 :bandance; fantastic, keep on doing what you are both doing. Love and healing wishes  to you both  :cuddle;
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Chris
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« Reply #44 on: October 10, 2009, 02:57:57 PM »
Good tohear. Wow that's a long time without a shower! I agree, washing up is just not the same.
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Diabetes -  age 7

Neuropathy in legs age 10

Eye impairments and blindness in one eye began in 95, major one during visit to the Indy 500 race of that year
   -glaucoma and surgery for that
     -cataract surgery twice on same eye (2000 - 2002). another one growing in good eye
     - vitrectomy in good eye post tx November 2003, totally blind for 4 months due to complications with meds and infection

Diagnosed with ESRD June 29, 1999
1st Dialysis - July 4, 1999
Last Dialysis - December 2, 2000

Kidney and Pancreas Transplant - December 3, 2000

Cataract Surgery on good eye - June 24, 2009
Knee Surgery 2010
2011/2012 in process of getting a guide dog
Guide Dog Training begins July 2, 2012 in NY
Guide Dog by end of July 2012
Next eye surgery late 2012 or 2013 if I feel like it
Home with Guide dog - July 27, 2012
Knee Surgery #2 - Oct 15, 2012
Eye Surgery - Nov 2012
Lifes Adventures -  Priceless

No two day's are the same, are they?
kellyt
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« Reply #45 on: October 11, 2009, 05:20:52 PM »
Excellent news!  I'm super glad your sister is doing well, too.  The couch was a great idea.  My donor (sis-in-law) said she was super for weeks after surgery.

Keep the updates coming!   :clap;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #46 on: October 11, 2009, 11:37:39 PM »
 :yahoo; Yeah! I needed this good news - Keep drinking water and healing - best wishes to you and sis's kidney!
Logged

Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Phraxis
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« Reply #47 on: October 30, 2009, 03:45:27 PM »
Update Oct 30th

last bit of plastic, stent, removed. Nice relief but when I signed consent for surgery no one mentioned the eight inch stent and its removal I assure you -- I would have remembered that!  :sarcasm;

I am feeling great, green lit for graduated execise. Sister is doing fantastic. Back to work on Monday. My Dad painted my office while he was helping me these past six weeks. He is returning home -- Mom wants her chef back.
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okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #48 on: October 30, 2009, 03:47:30 PM »
 :clap; Great!!
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
sico
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wheres my bike gone?
« Reply #49 on: October 30, 2009, 05:14:26 PM »
Good to hear. :2thumbsup;
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Brad      "Got myself a one way ticket, going the wrong way" - Bon Scott

6/11/08 diagnosed with ESRF, dialysis that day

HD and PD

8th of April 2010 Live kidney transplant from my father.
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