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Des
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« Reply #25 on: July 22, 2009, 06:27:56 AM » |
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I have just been to the doc.
The plan is .........
I will only have my left kidney removed the same time that I get a transplant. (not both yeah!)
My donor is starting her health clearance tests in the next day or two.
Once we have the results a doctors meeting "around the round table" will take place to discuss my case (again)
The coordinator will combine all our info/results and submit an application to the health department in our very efficient government (sarcastic) Then we wait for them to approve the non-relative transplant.
If and when we receive this golden ticket we can schedule the event. (hopefully before we both die of old age)
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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David13
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« Reply #26 on: July 22, 2009, 06:30:58 AM » |
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Great news, Des!  I hope it does not take too long. |
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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paul.karen
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« Reply #27 on: July 22, 2009, 06:47:04 AM » |
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Sometimes the ball rolls slowly. But im glad to hear your ball is rolling and in a positive direction. Hoping all works out for you Des.  |
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Curiosity killed the cat
Satisfaction brought it back
Operation for PD placement 7-14-09
Training for cycler 7-28-09
Started home dialysis using Baxter homechoice
8-7-09
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Des
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« Reply #28 on: July 22, 2009, 07:45:41 AM » |
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Thanks guys.... I forgot to add I AM SO HAPPY NOT TO HAVE BOTH REMOVED !!!!!!!!! It is a big weight of my shoulders..  |
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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rose1999
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« Reply #29 on: July 22, 2009, 07:52:44 AM » |
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good luck Des, keep us posted won't you. Hope the ball begins to roll a little quicker for you now.
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draven
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« Reply #30 on: July 22, 2009, 08:26:13 AM » |
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Thats good news des!!!!
for interests sake, here in Cape Town (South Africa) it took me a little over 6 months to get my transplant finalized once all the test had been done on my sister. and that was a live related donor.
All the best.
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Des
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« Reply #31 on: July 22, 2009, 11:15:24 PM » |
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Thanks all.
Draven..... I am hoping to schedule the whole thing for Jan... I just want to get it over with.
Its so cool that your sister donated. I don't have fam. I just hope all the donor's test come out ok.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Jean
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« Reply #32 on: July 23, 2009, 12:07:51 AM » |
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Hope it all works out well, we will all be thinking of you.
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One day at a time, thats all I can do.
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Wattle
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« Reply #33 on: July 23, 2009, 03:39:52 AM » |
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 Great News Des I didn't make it to the removal, strange how things happen. My hospital will not do the removal at the same time as the Transplant. That will mean you do not have to do any dialysis. 
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Des
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« Reply #34 on: July 27, 2009, 03:47:32 AM » |
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Thanks wattle.
It is SO cool that you got yours!!!
The doc's are meeting on the 3 Aug to discuss my "case" I know they are going to change their minds at least another 4 times.... heheheh... I will wait and see.
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Des
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« Reply #35 on: August 26, 2009, 02:56:15 AM » |
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Just an update on this EPIC tale.
My donor had preliminary blood tests done - and it is all smooth sailing so far. !!!!! Yeah
I need to get the angiogram first before they will send her for the next set of tests.... scans, sonar ect.
My medical aid paid for all her cost so far except the very first crossmatching. (very good news)
The meeting of the 3rd Aug could not take place .. because I ended up in ICU with the SVT (as you all know by now) Just another bump in the road.
to be continued.....
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« Last Edit: August 26, 2009, 02:57:43 AM by Des »
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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willowtreewren
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« Reply #36 on: August 26, 2009, 07:02:50 AM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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Des
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« Reply #37 on: August 28, 2009, 04:29:23 AM » |
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Angiogram is booked for Friday 4 Sept.
Doc said the contrast will cause some kidney damage. He said it is inevitalbe but he will use far less of it than he would in "normal" Angiogram. Lets hope.
......tbc
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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okarol
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« Reply #38 on: September 04, 2009, 06:01:46 PM » |
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Why are you having an angiogram?
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Des
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« Reply #39 on: September 05, 2009, 06:47:15 AM » |
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Hi,
All went well...... I NEVER want to do that again.
The doc found nothing wrong so ... the transplant is a go.
Okarol, I had to have it because a month ago I was in ICU because my bottom half of the heart stopped and the top half went at a pulse of 220. So... before they could continue with the transplant workup they had to make sure that there are nothing seriously wrong with it.
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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YLGuy
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« Reply #40 on: September 05, 2009, 08:50:54 AM » |
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Hi,
All went well...... I NEVER want to do that again.
The doc found nothing wrong so ... the transplant is a go.
Great news! |
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willowtreewren
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« Reply #41 on: September 05, 2009, 11:55:38 AM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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YLGuy
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« Reply #42 on: September 05, 2009, 12:03:04 PM » |
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Okay Des,
When the transplant happens have you planned how we are going to be kept informed? Do you have a family/friend who can post here? Does okarol have your emergency contact information? The waiting to hear how are members are doing can be excruciating.
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okarol
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« Reply #43 on: September 05, 2009, 12:34:39 PM » |
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Thanks YLGuy. H
He's right Des. As you have seen we like to follow and support our members!
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Des
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« Reply #44 on: September 06, 2009, 02:36:24 AM » |
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Yep, Okarol has hubby's email adress --- she can communicate with him... |
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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okarol
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« Reply #45 on: September 06, 2009, 10:47:42 AM » |
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willowtreewren
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« Reply #46 on: September 06, 2009, 01:03:01 PM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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Wattle
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« Reply #47 on: September 06, 2009, 09:24:02 PM » |
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 Great news Des 
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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Des
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« Reply #48 on: September 18, 2009, 05:28:08 AM » |
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Belinda, the transplant coordinator has just phoned me......
The panel sat and the surgeon and the nephrologist both agreed that I have to have the left kidney out.
They know that this will most probably push me to start D.
So.... I have to make an appointment to see the neph again.... I think I will get a fistula first (just in case)
I really only want this done in Jan. I want to go on leave (camping) (for old times sake) with the family in December. (before D starts and all....)
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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willowtreewren
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« Reply #49 on: September 18, 2009, 06:14:53 AM » |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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