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Des
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« on: June 19, 2009, 01:19:39 AM » |
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Hi,
A friend from work had a crossmathcing test done on Wed 17 Jun to see if she is a match for me.
We just heard that she is!!!
THIS IS SO EXCITING.!
I have never felt excited and scared at the same time.
I will see the surgeon on Mon 21 Jun and I know that he is going to arrange for my very enlarged kidneys to be removed and for me to go on dialysis until the transplant.
My donor must still have more tests done to see if she is healthy enough for the op ...... I just can't help being so optimistic.
I will be chatting about this a lot because it can take about 6 months before it actually happens.
I will keep you posted.
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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willieandwinnie
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« Reply #1 on: June 19, 2009, 03:36:48 AM » |
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 Des. We will keep our fingers and toes crossed. Keep us posted. 
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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willowtreewren
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« Reply #2 on: June 19, 2009, 03:50:18 AM » |
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Hi, Des, Waiting for a transplant can be a roller coaster ride. I will keep my fingers crossed for you.  Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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Des
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« Reply #3 on: June 19, 2009, 04:05:08 AM » |
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Yep,
I know by reading other posts that this can by a rollercoaster ride.
I already have a hickup..... I must go for a 24h urine test to see exactly where my function is.... we don't want to be too hasty... and remove some fairly healthy kidneys.
I am hoping that it's still good enough....
thanks
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Sluff
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« Reply #4 on: June 19, 2009, 04:07:17 AM » |
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It may be a roller coaster ride but at least you know you are not forgotten.
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Des
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« Reply #5 on: June 19, 2009, 04:09:59 AM » |
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Yep,
That is a good thing ......
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Des
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« Reply #6 on: June 19, 2009, 04:24:10 AM » |
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Aletta,
I see your hubby has PKD.
At what age did he start showing symptoms of his PKD?
Does anyone in his family have it?
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Romona
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« Reply #7 on: June 19, 2009, 04:36:43 AM » |
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 Best Wishes!
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staceyand joe92
Jr. Member
 Offline
Gender: 
Posts: 99
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« Reply #9 on: June 21, 2009, 07:45:34 AM » |
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I'm so happy for you .  |
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PKD
in center dialysis 3/week 3 hours for 16 months
11/2008 transplant list (active)
6 living donors denied
12/2009 Kidney Transplant
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kellyt
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« Reply #10 on: June 21, 2009, 11:32:26 AM » |
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Waiting on pins and needles (and eating popcorn) to hear the results!  I wish you nothing but the best of news!  |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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monrein
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« Reply #11 on: June 21, 2009, 02:08:30 PM » |
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Wishing you all the best.  |
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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rose1999
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« Reply #12 on: June 21, 2009, 02:16:52 PM » |
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Wishing you good luck when you see the surgeon tomorrow
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Des
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« Reply #13 on: June 24, 2009, 03:44:42 AM » |
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Not so good news.
The surgeon confirmed that they have to remove both my PKD kidneys before they do a transplant ( at least 6 weeks before the actual transplant)
However this is not going to happen now.... only when my GFR drops to 15 or below (stage 5) I am now stage 4
I must get much sicker .....
I hate waiting for anything.....
I am both happy and sad about this news.... I just want to get it over with.. now I am sort of wishing that my function drops .. but not really.
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Des
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« Reply #14 on: June 24, 2009, 03:53:05 AM » |
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Thanks all for the well wishes.....
It is so difficult....
I know it is good news?
what do you guys/gals think... Am I just being negative?
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Des
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« Reply #15 on: June 28, 2009, 11:35:03 PM » |
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Good news....
The doc phoned me on Friday.... this is it... the transplant is now closer than ever. My donor are going to have the workup tests done in the next three weeks.
My doc says it is best to have mine removed as they are making me very ill.
I will keep you posted.
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Joe Paul
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« Reply #16 on: June 28, 2009, 11:39:15 PM » |
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Good luck, I hope everything goes well for you |
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
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Des
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« Reply #17 on: June 29, 2009, 06:23:00 AM » |
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Thanks....
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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willowtreewren
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« Reply #18 on: June 29, 2009, 06:24:37 AM » |
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Thinking of you. |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011. |
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David13
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« Reply #19 on: June 29, 2009, 06:27:30 AM » |
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I am hoping everything works out the way you would like it to.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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Des
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« Reply #20 on: June 29, 2009, 06:31:37 AM » |
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Thanks but I think riding this roller coaster is going to kill me before the kidneys do....
The waiting and wondering... the what ifs...?
I wish I can stop and not think just for a day.....
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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MandaMe1986
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« Reply #21 on: June 29, 2009, 06:53:14 AM » |
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Try and get your mind off of it for a while. I know it isn't wasy.. Sorry. I did get to this late so YEY!!! Is needed too.  |
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.
Matthew 5:3-9
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Des
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« Reply #22 on: June 29, 2009, 06:58:19 AM » |
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You are right.....
YEAH!
I am taking a week's leave 13-17 July...... I am going to switch off.... (well, I am going to try)
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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Hanify
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« Reply #23 on: June 29, 2009, 03:10:41 PM » |
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Oh, oh, oh I'm so exited for you. Yes it's a roller coaster, and you must be so frantic about it, but just THINK how great it will be. Well done to your donor. What an amazing person.
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Diagnosed Nov 2007 with Multiple Myeloma.
By Jan 2008 was in end stage renal failure and on haemodialysis.
Changed to CAPD in April 2008. Now on PD with a cycler. Working very part time - teaching music. Love it. Husband is Paul (we're both 46), daughter Molly is 13.
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Des
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« Reply #24 on: July 21, 2009, 04:14:22 AM » |
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Just an update..
I am seeing the doc tomorrow to finalize the PLAN.
When, what, where and a lot of other questions I listed.
I will find out tomorrow if I will have both of mine out 6 weeks prior to putting the new one in . or at the same time?
I will find out if I will get a fistula soon (to do the dialysis for the 6 weeks)
I will have a date/month of when this is going to take place.
I will find out when my donor (also named Desray) have her tests done. (and schedule her appointment)
I will also find out which of my tests needs to be repeated and when to do so....
I will keep you posted....
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« Last Edit: July 21, 2009, 06:39:17 AM by Des »
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Logged
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Please note: I am no expert. Advise given is not medical advise but from my own experience or research. Or just a feeling...
South Africa
PKD
Jan 2010 Nephrectomy (left kidney)
Jan 2010 Fistula
Started April 2010 Hemo Dialysis(hate every second of it)
Nov 2012 Placed on disalibity (loving it)
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I Hate Dialysis Message Board
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