Gonna give a kidney to get Otto one

[aharris2]

I start my test on June15th. They again stressed to me that this is a long shot, they are worried I am not being realistic and understanding the chances. I do understand that this probably won't help  but you just never know. Miracles happen

I believe in miracles. You rock Lola! This is for you and Otto: 
I hope you are successful and I hope the wait is short.

Alene

[Sluff]

Good Luck Lola.   

[lola]

  well just got home from Dani's appt at the U and told her Dr I'm joining the paired exchange program and he's not real happy even though Dani is doing good he's concerned that when it's her time to need a kidney I will regret this if we find Otto a kidney this way. I am soooooooooo confused as to what to do

[paris]

I don't have any real advice, just a gut reaction.  You and your family need Otto, NOW!  So many things will change before Dani needs a kidney. And when that time comes, there is no guarentee that you will be there to give her one.  Nothing is a given in the future.  One step at a time, and right now it seems like the step is to get Otto healthier.   Now, as a mother, I know how much you are worried about Dani's future.  You are torn between husband and child and no one should be in that position.   The neph seems more worried about what might happen instead of what is happening.   I am sorry you are in such internal conflict.  What are family and friends telling you?  What does Otto think?   We are here for you, whatever you decide and we love you.   

[willowtreewren]

I agree with Paris. So much can change over time in the area of research that it may be easier for Dani to be treated when the time comes.

Otto is in need right now.

I know this is a hard decision. My daughter is going to need a kidney, too. I am not able to donate, but I wrestled with whether to wait to give her one before I knew that and decided that it did not make sense for me to wait.

Caring thoughts for you. 

[lola]

Otto has really never wanted me to give up a kidney 4 him, but he knows once I put mind on something there is NO changing it. I have no real support from either sides of the family as they are worried sick that I will give up a kidney and Otto's new one will explode. It sucks that we saw the worst side of things as we ALL are scared of it happening again. Like I said I'm sooooooooo confused, I NEED Otto and would go to the ends of the earth for him but this sucks to have no real support but also have Dani to think about. I have so much HOPE for Dani but the reality is she also will need a kidney also. Thanks for the advice as I said I don't really have anyone on my side

[okarol]

You might want to post your situation on Living Donors Online - there are many people who have varying stories regarding their attempts to donate - with many different reasons and outcomes too - I know you'd get some good support there. http://www.livingdonorsonline.org

[lola]

Mt heart is heavy as I have decided to not go threw the testing. Otto was never trilled with me doing this, but we just heard from Dani's Dr and it looks like we need to do another 24hr on her in August as her counts are back to where they were before we started to new meds so we will need to increase her dose. Thanks for all the Love you guys mean the world to me.........

[cherpep]

Lola - hang in there.  Your answer is out there somewhere.  Keep the faith, you are strong. 

[paris]

Oh Lola, I know you are so stressed with worry for Otto and Dani.  It is just too much for one person.  We love you and your family and wish there was an easy answer.  With other diseases, there is a clear cut course of action.  With kidney disease, it seems like there is a lot of trial and error and Otto has lived through some of the "error" part.  We are here for you and support you 100% in any decision you make.   

[okarol]

Sorry lola honey - I know you'd do anything you could to help Otto. I was thinking about Dani last night too, and what a tough dilemma you've got. There's no easy answer. You can always explore options later if things change. Sending you lots of LOVE. 

[aharris2]

Mt heart is heavy as I have decided to not go threw the testing. Otto was never trilled with me doing this, but we just heard from Dani's Dr and it looks like we need to do another 24hr on her in August as her counts are back to where they were before we started to new meds so we will need to increase her dose. Thanks for all the Love you guys mean the world to me.........

Lola,

I've looked at this thread many times never quite sure how to comment. The question is the kind that takes the wisdom of Solomon to answer.

I wish you (and Dani) the best for her 24hr test in August. I have a question, are you a match for Dani or is that something that remains unknown until... ? Hopefully Dani will take forever to progress to that stage.

 

[Cari63]

You might want to post your situation on Living Donors Online - there are many people who have varying stories regarding their attempts to donate - with many different reasons and outcomes too - I know you'd get some good support there. http://www.livingdonorsonline.org

I have read a lot on this site, and I find many older posts (2007) before I noticed the dates I thought I was learning a lot- is most of it still relevant in 2009? I looked up donor buddies and all the posts I found her old- I felt odd emailing someone who posted something two years ago, yanno?
Sorry to intrude on someone elses post.

[twirl]

 Lola at your age 99, you are amazing 

[okarol]

You might want to post your situation on Living Donors Online - there are many people who have varying stories regarding their attempts to donate - with many different reasons and outcomes too - I know you'd get some good support there. http://www.livingdonorsonline.org

I have read a lot on this site, and I find many older posts (2007) before I noticed the dates I thought I was learning a lot- is most of it still relevant in 2009? I looked up donor buddies and all the posts I found her old- I felt odd emailing someone who posted something two years ago, yanno?
Sorry to intrude on someone elses post.

Are you taliking about www.livingdonorsonline.org? I am not sure what you mean. If you went to find living donor buddies http://www.livingdonorsonline.org/buddies/ldbkidney.htm the posts are older because they donated a while ago. That's what is helpful, someone who has been through donating and is living with one kidney.

[lola]

Lola at your age 99, you are amazing 

Twirl- Ancient Chinese secret 

[Des]

eating bananas and acting like a devil..... I am going to be  120 then.