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lola
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« on: May 06, 2009, 04:32:57 PM » |
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Well I have decided to join the paired exchange program at the UofM. Talked to them and will have my work-up in June as a living donor. They did tell us he now HAS to have a 6/6 antigen match and no antibodies so we are in need of a miracle  . I can't watch him do Dialysis for the kids and I and not do everything possible to find him his HERO. Wish us luck |
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willieandwinnie
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« Reply #1 on: May 06, 2009, 04:51:55 PM » |
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lola, we will all be there with you the whole way. Bless your heart.  |
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"I know there's nothing to it, but I want to know what it is there's nothing to"
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Run8
Full Member
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Gender: 
Posts: 173
308-850-5711
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« Reply #2 on: May 06, 2009, 04:54:15 PM » |
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Lola,you are an angel.
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twirl
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« Reply #3 on: May 06, 2009, 04:55:06 PM » |
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we all need someone like you
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okarol
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« Reply #4 on: May 06, 2009, 04:59:26 PM » |
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You are an amazing person - I pray this is the answer to finding Otto a kidney.  |
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David13
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« Reply #5 on: May 06, 2009, 05:01:52 PM » |
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The paired donor program is a wonderful thing, and your generosity is extraordinary.
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
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willowtreewren
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« Reply #6 on: May 06, 2009, 05:09:03 PM » |
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This is wonderful, Lola!  We are cheering for you every step of the way. Aleta |
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Wife to Carl, who has PKD. Mother to Meagan, who has PKD. Partner for NxStage HD August 2008 - February 2011. Carl transplanted with cadaveric kidney, February 3, 2011.  |
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jbeany
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« Reply #7 on: May 06, 2009, 05:18:33 PM » |
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"Asbestos Gelos" (As-bes-tos yay-lohs) Greek. Literally, "fireproof laughter". A term used by Homer for invincible laughter in the face of death and mortality.  |
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petey
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« Reply #8 on: May 06, 2009, 06:52:55 PM » |
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Wonderful, Lola! ...and, hey, miracles happen every day...so, keep that in your mind. Certainly, if there's anyone who deserves a miracle, it's Otto. We're pulling for you. Keep us informed.
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Rerun
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« Reply #9 on: May 06, 2009, 07:01:09 PM » |
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Lola.... L O L A.... Lola  You will be someone's heroin. I think this is wonderful and I pray everything works for the best for all who are involved.  |
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monrein
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« Reply #10 on: May 06, 2009, 07:43:46 PM » |
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We're with you and Otto and the rest of the eventual donor/recipient chain all the way Lola. I know you'll keep us updated and we'll keep you supported with good wishes and prayers.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr. 2009
Second trx doing great so far...all lab values in normal ranges
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Sluff
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« Reply #11 on: May 06, 2009, 07:47:47 PM » |
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That is awesome Lola and I really do hope Otto finds his perfect match. There is not much more a person can do. You are one helluva individual.  |
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kellyt
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« Reply #12 on: May 06, 2009, 07:57:27 PM » |
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Miracles happen every day! We're with you all the way! You're amazing! GOOD LUCK OTTO! WE'RE PRAYING FOR YOUR PERFECT MATCH!!!! |
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1993 diagnosed with glomerulonephritis. Oct 41, 2007 - Got fistula placed. Feb 13, 2008 - Activated on "the list". Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta. Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  |
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pelagia
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« Reply #13 on: May 06, 2009, 07:59:53 PM » |
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Lola, you are a hero! |
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
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rose1999
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« Reply #14 on: May 06, 2009, 10:54:06 PM » |
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Lola you are amazing, I hope it all works out for you and Otto (and the others in the 'chain') - you certainly deserve your miracle I will be thinking of you |
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vandie
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« Reply #15 on: May 07, 2009, 10:00:52 AM » |
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Amy,
You make me so proud to know you.
All of my positive thoughts are headed your way.
xoxo
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Life is the journey, not the destination.
_________________________________________
I received a kidney transplant on August 4, 2007.
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G-Ma
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« Reply #17 on: May 07, 2009, 05:04:51 PM » |
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07. Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
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lola
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« Reply #18 on: May 07, 2009, 07:14:57 PM » |
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lola
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« Reply #19 on: May 08, 2009, 08:38:51 AM » |
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I start my test on June15th. They again stressed to me that this is a long shot, they are worried I am not being realistic and understanding the chances.  I do understand that this probably won't help but you just never know. Miracles happen |
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okarol
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« Reply #20 on: May 08, 2009, 08:49:43 AM » |
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I agree, doing something keeps your options open, you never know where it will lead.  |
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Wenchie58
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« Reply #21 on: May 08, 2009, 03:35:38 PM » |
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Miracles do indeed happen! You keep that positive attitude of yours and know that we are ALL pulling for you and otto!!!  |
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"
Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match 10/24/08
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KT0930
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« Reply #22 on: May 12, 2009, 06:28:56 PM » |
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Lola, it's awesome that you're doing this! Best of luck to you and Otto!! |
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"Dialysis ain't for sissies" ~My wonderful husband
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I received a 6 out of 6 antigen match transplant on January 9, 2008. Third transplant, first time on The List.
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