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Author Topic: Kidney still not kickin in :(  (Read 12526 times)
donnia
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me and my donor Joyce

« on: May 04, 2009, 07:15:07 AM »

Creatinine back up to 4.7.  They will do a kidney biopsy today. PLEASE tell me what to expect.  I'm scared!  We will also do dialysis again today. :'( :'( :'( :'(
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
paul.karen
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« Reply #1 on: May 04, 2009, 07:44:30 AM »

I just want to say goodluck and ill say a prayer that all goes smoothly.
Im not sure what you should expect??
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
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okarol
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« Reply #2 on: May 04, 2009, 08:03:33 AM »


The biopsy is quick and they take a tiny bit of tissue. They'll numb the area first. Then you keep pressure on the area and lie flat for a couple of hours. Hopefully this will give them more info on rescuing the kidney. Best wishes Donnia!! :grouphug;  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
willieandwinnie
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« Reply #3 on: May 04, 2009, 08:25:17 AM »

 :cuddle; Oh Donnia, I sure hope they act fast with whatever they are going to do. I'll keep praying.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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« Reply #4 on: May 04, 2009, 08:28:09 AM »

All my thoughts and prayers are with you Donnia and I'm hoping that the biopsy can give them the info the need to know how best to get things back on track.  So sad that this is happening.   :grouphug; :cuddle; :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
David13
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« Reply #5 on: May 04, 2009, 08:30:49 AM »

Donnia, I hope they are able to figure out what is going on with the new kidney.  I am sending positive energy your way.  Take care and keep us updated.   :grouphug;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
donnia
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me and my donor Joyce

« Reply #6 on: May 04, 2009, 08:34:02 AM »

Thanks everyone  :grouphug;

I am going to dialysis in about 10 minutes.  Please say some prayers for my kidney, 'Hope' is what my donor and I named her... she is my hope.  She wont let me down... I will stay positive.... I will get through this.... :boxing;

Would still like more information on how the biopsy works.... how painful is it, etc...  Thanks Okarol for the info.
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
David13
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A meow massages the heart.

« Reply #7 on: May 04, 2009, 08:36:43 AM »

Donnia, I found some really good information on the kidney biopsy procedure here:

http://kidney.niddk.nih.gov/kudiseases/pubs/biopsy/

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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
Romona
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« Reply #8 on: May 04, 2009, 09:11:41 AM »

My prayers are with you! :grouphug;
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lola
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« Reply #9 on: May 04, 2009, 09:30:18 AM »

 :grouphug; :grouphug; :grouphug; :grouphug;
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twirl
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« Reply #10 on: May 04, 2009, 09:51:31 AM »

Donna,
I am praying for you
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rose1999
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« Reply #11 on: May 04, 2009, 11:35:41 AM »

Prayers for you and Hope  :cuddle;
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okarol
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« Reply #12 on: May 04, 2009, 11:36:29 AM »

Jenna had no pain at all during the procedure as the transplanted kidney is right under the surface (unlike native kidneys which is much more involved.)
They do an ultrasound to guide the needle biopsy gun, it's a quick stick. Jenna had 2 biopsies, one had mild bleeding so she had to lie still an extra hour. She never had any pain, slight soreness the next day. I pray it goes as smoothly as it did for Jenna.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rookiegirl
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« Reply #13 on: May 04, 2009, 11:38:41 AM »

Hi Donna,

I had my first transplant kidney biopsy 2 weeks ago.  It wasn't painful at all.  They took me in radiology and I laid slightly to my left since my new kidney is on the right.  They did an ultrasound of my kidney to see where would be a good place to go in.  After several pics from the ultrasound, the doctor came in and they prep the area and they gave me local shot of pain medicine in the area.  They actually did 4 biopies of the kidney and I didn't feel any pain.  They went in the same hole each time.  After that I was wheeled back to my room where I had to lay flat on my back for 2 hours and the remaining 2 hours I was able to sit up on the bed but not allowed to get up completely until the total 4 hours was up.  After 4 hrs. I got up to collect a urine sample.  Since there were no blood in my urine.  I was released within an hour.

I pray all works out for you.

Take care,
RG
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Brightsky69
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« Reply #14 on: May 04, 2009, 12:11:09 PM »

I hope that kidney starts working soon!! And lasts you for lots of years!!   :cuddle;

I had a kidney biospy a few years back. Please make sure they give you something for pain. They were getting ready to do the procedure on me and they hadn't given me anything for pain or even a local. They were gonna stick that needle in and I made them stop and give me something. The guy doing it said "We don't usually give you anything for this type of procedure." I said "OH well....cause before you stick that big needle in me your going to give me something." Everyone was pissed off they had to stop and give me something but I didn't care.
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Transplant June 11, 1991 (1st time) my mom's kidney
Received my 2nd kidney transplant Oct. 19th 2010.
jbeany
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Cattitude

« Reply #15 on: May 04, 2009, 04:21:25 PM »

Go Brightsky!

donnia, I hope all goes well.   :cuddle;
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Wenchie58
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« Reply #16 on: May 04, 2009, 04:55:21 PM »

After going through a transplant the biopsy is a walk in the park.  My thoughts go out to you and "hope".  Keep thinking positive, even though I know its hard.
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Live your life in such a way that when your feet hit the floor in the morning Satan shudders and says "Oh s**t, she's awake!"

Right nephrectomy 1963
Diagnosed ESRD 2007
"Listed" summer 2007
Transplant 3/6 match  10/24/08
chris73
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« Reply #17 on: May 04, 2009, 05:10:57 PM »

sorry you are going through this! Hope things  go well for you after the biopsy and they find out why your numbers are so high.
maybe a slight increase in your meds will resolve your issues. Will be thinking of you during these difficult times.. God Bless !! Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
G-Ma
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« Reply #18 on: May 04, 2009, 06:49:02 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MIbarra
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Stopping to smell the bluebonnets

« Reply #19 on: May 04, 2009, 09:22:00 PM »

Donnia,

Saying a prayer for you and your kidney. Hope everything goes smoothly and they can find the cause and get it working!

 :cuddle;
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Cadaver transplant April 29, 2007
Rerun
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Going through life tied to a chair!

« Reply #20 on: May 04, 2009, 10:57:42 PM »

Praying that "Hope" will get you through this.

                         :flower;
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Wattle
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« Reply #21 on: May 05, 2009, 01:20:17 AM »

Thinking of you Donnia. I hope all goes well with the biopsy.   :cuddle;

Do they think it was the anesthetic for the hip surgery or the change in meds that pissed "hope" off?
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
andykinney
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« Reply #22 on: May 05, 2009, 02:02:59 AM »

Keep us posted - praying that everything works out okay  :grouphug;
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"Out of the night that covers me, Black as the pit from pole to pole.
I think whatever gods may be, For my unconquerable soul."
 
 Diagnosed with PKD in 2003 - consider myself a mutant, since
no ancestor seems to have had it.

 Started dialysis in 2007; much of the time between catheter
surgery and 1st dialysis is hazy (if I don't think about it, it ain't true!)
 
 Was on dialysis only 2 1/2 years and am blessed to have
received a kidney from a remarkable guy and family!

Deceased donor transplant on May 7, 2009.
pelagia
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« Reply #23 on: May 05, 2009, 06:11:24 AM »

I am praying for you Donnia.   I hope they can get Hope started again.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
MandaMe1986
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« Reply #24 on: May 05, 2009, 08:06:57 AM »

You and your kidney have my prayers.  As for the biopsy its no big deal. As for a little Atavan or something to clam you down before  you go in. It feels weird, but dosn't hurt. You will be more then alright promise. Let us know how it goes.
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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