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Author Topic: Kidney still not kickin in :(  (Read 12525 times)
okarol
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Photo is Jenna - after Disneyland - 1988

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« Reply #25 on: May 06, 2009, 05:29:27 PM »
 :grouphug; :grouphug; :grouphug;

Today's update:

   
Hello all......
 
Well... I don't really know exactly what to say.  Things are still unknown.  We are still waiting for the results of my kidney biopsy.  I WILL say I have urinated quite a bit today.  I don't feel as if I'm retaining near as much fluids.  My right leg (surgery leg)  is still VERY VERY swollen. I do have home health and physical therapy coming to my house all week.  The physical therapy nurse said that all the swelling in my surgery leg is normal.  I have not had labs done since yesterday.  My creatinine was 3.3 yesterday.... Maybe it's just wishful thinking.. I don't know, but I do believe 'HOPE' (my kidney ... named by Joyce and me) is trying to fight back (Joyce did tell me that her kidney 'aint no quitter')! 
 
My emotional, physical and psychological well being has realllllly suffered.  I am really trying to keep positive.  I am just a really upset person right now.  I think my medical care left alot to be desired (not by Dr. DeMory... he is the only one who made me feel safe!!!)... but that's another story.  We are going to try to keep it positive right now.
 
I am so very sore!  I hurt so bad!  It wears me out just to walk to the bathroom with my walker.  Getting back in bed is a terror.... all I can say is... thank God for Juan and Dr. DeMory!
 
Thanks for the support and sorry for the rant :(
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
Rerun
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« Reply #26 on: May 06, 2009, 07:29:53 PM »
You want a constant monitor on your wrist of your creatinine.  You want one of those sugar monitors they have for diabetics only for creatinine.  But 3.3 is better then the last one.  It is coming down.  Keep drinking water and make it work a little harder.  HOPE!

                                   :yahoo;
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pelagia
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« Reply #27 on: May 06, 2009, 07:37:51 PM »
Hang in there Donnia!  Hopefully the numbers will continue to drop and you'll start feeling better soon.  In the meantime, I'll be keeping you in my thoughts and prayers.  I'm going to keep imagining that you are peeing up a storm.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
paris
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« Reply #28 on: May 06, 2009, 07:39:55 PM »
Donnia, you and "hope" are in my thoughts and prayers.   :cuddle;   
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
kellyt
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« Reply #29 on: May 06, 2009, 08:01:29 PM »
Absolutely, "Hope" and prayers coming your way!
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
Romona
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« Reply #30 on: May 07, 2009, 04:01:15 PM »
 :grouphug;
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donnia
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me and my donor Joyce
« Reply #31 on: May 07, 2009, 10:39:41 PM »
Short little update:

Preliminary biopsy results show either allergic reaction to antibiotics used in surgery or rejection.  Allergic reaction would be treated with  steroids, which Dr. DeMory started immediately anyway.  Rejection would be treated by me going back to Lubbock and my transplant team treating me. 

Had dialysis today.... yep, you guessed it.... it sucked =}
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
rose1999
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« Reply #32 on: May 07, 2009, 10:56:02 PM »
I hope they can sort 'hope' out for you, we're all rooting for you.  :cuddle;
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circleNthedrain
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« Reply #33 on: May 08, 2009, 12:27:04 AM »
Thinking of you Donnia and sending prayers your way!
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1979 Diagnosed with kidney failure
1979 Right arm fistula
1979 Start hemodialysis
1980 CAPD catheter
1980 Start CAPD
1989 Cadaveric kidney transplant
1995 2nd cadaveric  kidney transplant
2007 Start hemodialysis
2010 Still drawin' wind
Joe Paul
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« Reply #34 on: May 08, 2009, 01:00:22 AM »
Thinking and praying for you Donnia  :thumbup;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Maxridex
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« Reply #35 on: May 08, 2009, 05:34:27 AM »
Donnia the best of luck from me :) Hope to hear your latest news soon
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'' Never give up '' & '' You will never walk alone ! ''

* ARSENAL FC for life *
* AVRIL LAVIGNE FAN *

Feel free to contact me on my msn.
matthew_as123@hotmail.com
donnia
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me and my donor Joyce
« Reply #36 on: May 08, 2009, 08:22:29 AM »
 :cheer: :cheer: :cheer:  NO REJECTION!!!!!!!!!!!!!!!   :cheer: :cheer: :cheer:

It was an allergic reaction to antibiotic given during surgery!  My dr started treating with steroids immediately.... which is how you would treat this to begin with :)  Labs were done yesterday and hopefully we will receive the results when I go back to dialysis tmr.  Retest labs Tuesday.  With time, this should go completely away :)
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Born with one kidney 1972
Ureter re-constructured 1975 (reflux had already damaged the kidney)
Diagnosed and treated for high blood pressure 2000
Diagnosed ESRF October 2006
Started dialysis September 2007
Last dialysis June 4, 2008
Transplant from my hero, Joyce, June 5, 2008
rose1999
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« Reply #37 on: May 08, 2009, 08:23:44 AM »
Oh Donia that IS good news, I have been worrying about you.  :bandance;
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okarol
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« Reply #38 on: May 08, 2009, 08:24:14 AM »
 :yahoo; Wow Donnia!! That's awesome - really made my day!  :bandance;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
David13
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A meow massages the heart.
« Reply #39 on: May 08, 2009, 08:25:44 AM »
Great news!   :yahoo;

I am so sorry you had to go through all of this, but at least in the end it is turning out to be alright.   :2thumbsup;
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“The first human being who hurled an insult instead of a stone was the founder of civilization” - Sigmund Freud
paul.karen
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« Reply #40 on: May 08, 2009, 08:36:08 AM »
 :thumbup;

Glad to hear it is/was just a reaction.
This must have made your day :clap;
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Curiosity killed the cat
Satisfaction brought it back

Operation for PD placement 7-14-09
Training for cycler 7-28-09

Started home dialysis using Baxter homechoice
8-7-09
Maxridex
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« Reply #41 on: May 08, 2009, 08:38:44 AM »
really great news Donnia :D  :bandance;
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'' Never give up '' & '' You will never walk alone ! ''

* ARSENAL FC for life *
* AVRIL LAVIGNE FAN *

Feel free to contact me on my msn.
matthew_as123@hotmail.com
willieandwinnie
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« Reply #42 on: May 08, 2009, 09:12:10 AM »
 :yahoo; Oh Donnia. I was so happy to read your post. Thank you.  :cuddle;
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Laurie
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May 13, 2008
« Reply #43 on: May 08, 2009, 10:04:36 AM »
 :2thumbsup; What a relief!!! Glad to hear it's not rejection.
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March 7, 2001 - Complications after C-section caused kidney failure
March 2001 - December 2001 - Hemo Dialysis
December 2001 - Kidney function improved dialysis no longer necessary
October 2006 - Kidney function started to decline
May 9, 2007 - Listed at Baylor Dallas and Fort Worth
October 12, 2007 - Started PD
May 13, 2008 - Kidney Transplant from a deceased donor
kellyt
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« Reply #44 on: May 08, 2009, 11:35:58 AM »
Fabulous news!  Hurry up and get back to normal!  Sorry you had to go through this, but "what does not kill us makes us stronger".

 :beer1;
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1993 diagnosed with glomerulonephritis.
Oct 41, 2007 - Got fistula placed.
Feb 13, 2008 - Activated on "the list".
Nov 5, 2008 - Received living donor transplant from my sister-in-law, Etta.
Nov 5, 2011 - THREE YEARS POST TRANSPLANT!  :D
kelliOR
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« Reply #45 on: May 08, 2009, 11:44:25 AM »
Donnia  !

I read this post with great worry....so happy to get to the end to hear great news !!

Keep on truckin'.......... :)

peace, kelli
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Shoot for the Moon.....Even if you miss, you'll end up among the Stars ........


Denied PKD for years (Boy, was I good at it!)
Dragged kicking and screaming to dialysis (in center hemo)
Transplant from a friend March 24, 2006 at OHSU
glitter
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« Reply #46 on: May 08, 2009, 12:27:55 PM »
 :cheer: :cheer:

so glad to hear this- hope your peeing wonderfully in no time  :cheer: :cheer:
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Jack A Adams July 2, 1957--Feb. 28, 2009
I will miss him- FOREVER

caregiver to Jack (he was on dialysis)
RCC
nephrectomy april13,2006
dialysis april 14,2006
monrein
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Might as well smile
« Reply #47 on: May 08, 2009, 01:38:49 PM »
Donnia, this is the best news ever.  I was ever so happy to read your post and was cheering aloud as I did.  I now want to hear that your creatinine is nice and low.  Big hugs to you girl.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
charee
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« Reply #48 on: May 08, 2009, 07:11:10 PM »
 :bandance; :bandance;
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
chris73
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its me ...Chris

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« Reply #49 on: May 08, 2009, 07:14:17 PM »
thanks for keeping "us" updated....sounds like everything is gonna work out!!!  BTW.. how was the biopsy procedure? bad as you thought is was gonna be? anyways its done and over with...be glad when all this is behind you!!...God Bless !  Chris
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11/10/07 esrd
12/07/07 permcath placed
dialysis started 2 days later
transplant 4/15/08  from close friend and coworker  of 12 yrs. Thanks Jeff!!
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