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Author Topic: Hello from Australia  (Read 3409 times)
moonshadow22
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« on: December 04, 2008, 11:06:34 PM »
Hi everyone,

I am 44 years old, married with 2 children, one son 24, and a daughter 12.  Plus 2 dogs, 4 cats, and a sulphur-crested cockatoo.  Nothing like unconditional love, they accept you on your good and bad days - no matter how bad you look or feel.  I would be lost without them.  My husband however that is another story.  >:D  There are several fish tanks around the house which are soothing to watch, but that is my husband's hobby.

I have been on home dialysis for 2 years officially this Christmas, - it was one hell of a Christmas present 2 years ago.  Although I have only been a dialysis patient for 2 years, I have been a lifetime renal failure patient.  So I knew this was coming it was just a matter of when.

I am looking forward to corresponding with other people, sharing experiences as some days even just looking at my dialysis machine i feel utter comtempt, borderline hate for it.  But then it is a necessary evil, and down deep (I mean real deep) I mean abyss type deep  :Kit n Stik;- I am eternally grateful that it is there.

Happy to have found this forum, and looking forward to learning, chatting and sharing.
« Last Edit: December 04, 2008, 11:08:46 PM by moonshadow22 » Logged
RichardMEL
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« Reply #1 on: December 04, 2008, 11:11:01 PM »
g'day moonshadow22 and welcome :) Sounds like you share a few frustrations with a number of us. Happy upcoming dialysisversary I guess. I'm just coming up on 2.5 years in centre. blech...

I look forward to seeing your posts, and meow to your 4 cats from another aussie cat lover :)  :grouphug;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Joe Paul
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« Reply #2 on: December 04, 2008, 11:24:56 PM »
Welcome moonshadow22 , good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Lucinda
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Life is great!
« Reply #3 on: December 05, 2008, 12:03:59 AM »
Hi Moonshadow....where do you live?  Welcome to the board.  Everyone here is terrific.  I am in Sydney and there are quite a few Aussies on here.  Looking forward to your posts.  xx
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charee
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« Reply #4 on: December 05, 2008, 01:14:18 AM »
Hi and welcome great to see another Aussie here , I live in country NSW but currently staying in Sydney after a transplant , i did home dialysis for 18 months before my sister donated her kidney to me 5 weeks ago . hope to hear more from you
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Home Hemo  18 months
Live donor transplant 28th October 2008
from my beautiful sister
Royal Prince Alfred Sydney Australia

Live donors rock
G-Ma
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« Reply #5 on: December 05, 2008, 02:27:19 AM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #6 on: December 05, 2008, 05:05:52 AM »
 :welcomesign;  Post often.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
Zach
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"Still crazy after all these years."
« Reply #7 on: December 05, 2008, 07:43:10 AM »
Glad to have you here!
 :beer1;
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Uninterrupted in-center (self-care) hemodialysis since 1982 -- 34 YEARS on March 3, 2016 !!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
No transplant.  Not yet, anyway.  Only decided to be listed on 11/9/06. Inactive at the moment.  ;)
I make films.

Just the facts: 70.0 kgs. (about 154 lbs.)
Treatment: Tue-Thur-Sat   5.5 hours, 2x/wk, 6 hours, 1x/wk
Dialysate flow (Qd)=600;  Blood pump speed(Qb)=315
Fresenius Optiflux-180 filter--without reuse
Fresenius 2008T dialysis machine
My KDOQI Nutrition (+/ -):  2,450 Calories, 84 grams Protein/day.

"Living a life, not an apology."
Katey
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« Reply #8 on: December 05, 2008, 07:59:34 AM »
Welcome moonshadow!!  you will absolutely love this site.  It has a little bit of everything so never hesitate to ask a question or just post something silly dependent upon how you are feeling.  Great to have you and look fw to your posts!!
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Diagnosed July 1985
Started CAPD 1995
Changed to Hemo 1996
Cadaver Transplant 1999
Back on Hemo Aug 2008
Found this wonderful site Nov 2008!!
willieandwinnie
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« Reply #9 on: December 05, 2008, 09:55:41 AM »
 :welcomesign; moonshadow. Love the name. We are a wonderful group and offer up information and support every chance we get. Hope to hear more from you.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
jessup
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Gemma - the tucker monster
« Reply #10 on: December 05, 2008, 12:53:22 PM »
 :ausflag; :ausflag; :ausflag; :ausflag;

G'day mate and  :welcomesign;
I live in the top end - you ?


 
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rookiegirl
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« Reply #11 on: December 05, 2008, 01:01:03 PM »
 :welcomesign; to the family.
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2000-Diagnosed IGA Nephropathy
2002-1st biopsy (complications)
2004-2nd biopsy
10/03/07-Tenckhoff Catheter Placement
10/22/07-Started Peritoneal Dialysis
03/2008-Transplant team meeting
04/2008-Transplant workup
05/2008-Active Transplant list
3/20/09-Cadaver Kidney Transplant
4/07/09-Tenckhoff Catheter removed
4/20/09-New kidney biopsy
Razman
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« Reply #12 on: December 05, 2008, 02:02:14 PM »
I'm glad that you joined and I hope that you visit often.  Your right about  "the machines" , they are a necessary evil. :waving;
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boxman55
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« Reply #13 on: December 05, 2008, 02:23:31 PM »
Hi and welcome to IHD. I look forward to getting to know, please post often and have some fun. It becomes real easy for this site to become your own.


Boxman,Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
moonshadow22
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« Reply #14 on: December 05, 2008, 08:50:45 PM »
Thanks everyone for the warm welcome,  just still looking around at the site at the moment, learning how it works and getting the feel of things.  Please excuse me for any mistakes or errors I make.  I live in Queensland, and at the moment we are presently in the process of moving.  We are moving only a few suburbs away, but, as I am hooked up to my "faithful friend" every 2nd day for 5 hours - life is a little bit hectic at the moment.  Hopefully in about a months time, will be able to spend more time raving and ranting.  This is wonderful site and I have a lot of reading to catch up on. :thx;

 :oops; sorry just read the do not reply.
« Last Edit: December 05, 2008, 09:56:14 PM by moonshadow22 » Logged
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #15 on: December 06, 2008, 01:47:41 AM »
Welcome to our community, moonshadow!   (no, you can reply in this section.  just don't ask questions that should be in a discussion thread).  it's great to welcome another Aussie among us.  this welcome is from one born under the Union Jack (Barbados, now living in the British Virgin Islands) and sharing the Commonwealth and Cricket!
As you would have seen, you have joined an absolutely superb international family, caring and sharing!  :grouphug;  So when you have the time, keep reading, and above all, keep posting!  Looking forward to hearing from you.



Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
RichardMEL
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« Reply #16 on: December 06, 2008, 03:05:31 AM »
Quote from: moonshadow22 on December 05, 2008, 08:50:45 PM
Thanks everyone for the warm welcome,  just still looking around at the site at the moment, learning how it works and getting the feel of things.  Please excuse me for any mistakes or errors I make.  I live in Queensland, and at the moment we are presently in the process of moving.  We are moving only a few suburbs away, but, as I am hooked up to my "faithful friend" every 2nd day for 5 hours - life is a little bit hectic at the moment.  Hopefully in about a months time, will be able to spend more time raving and ranting.  This is wonderful site and I have a lot of reading to catch up on. :thx;

 :oops; sorry just read the do not reply.

Good-o moonshadow22. I'm actually flying up to Brisbane tomorrow... so I will wave!!!! hehehe :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
annabanana
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« Reply #17 on: December 07, 2008, 02:39:15 PM »
 :welcomesign;
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caregiver to Randy:
HepC and stage 4 ckd
1 kidney removed (cancer)Aug07
pelagia
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« Reply #18 on: December 07, 2008, 03:24:18 PM »
 :waving; welcome to IHD
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
Ang
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« Reply #19 on: December 07, 2008, 05:07:44 PM »
 :welcomesign;Moonshadow22


  melbournite  here. :ausflag;
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live  life  to  the  full  and you won't  die  wondering
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