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Rebecca_HTC
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« on: November 10, 2008, 11:02:25 AM »
Hi there,

I just wanted to post quickly to introduce myself, per the community guidelines. I tried to register for this site over the summer a few times but was having trouble registering. At the time I was making plans with my boyfriend, who is on dialysis, to travel cross-country with his NxStage machine and he was going to fly back (I was moving to the East Coast). I found reading the forums very useful, but wish I could have asked some questions of my own! At any rate, I am glad to be able to become a member now. Since the summer, we did our road trip with no problems at all -- we checked into hotels and dialyzed every day. He flew back with a few hassles but no major problems or extra expenses. He also came back to visit me for a week and checked the machine on the plane both ways.

He and I have broken up since the last visit, but we are still friends and I care about him deeply. I decided to try and register again for the forums the other night when I found out he was in the hospital. He is probably going to be discharged tomorrow or the next day, so all is well. I have appreciated this site as a resource and look forward to continuing to use it.

Rebecca

(edited to correct spelling in the title! don't want to make a bad first impression!) :)
« Last Edit: November 10, 2008, 11:12:33 AM by Rebecca_HTC » Logged
paris
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« Reply #1 on: November 10, 2008, 11:30:57 AM »
 :welcomesign; Rebecca, we are glad you finally were able to log in.  I think you will have lots to share with us, especially those who want to do nxstage and travel with it.   We love caregivers or anyone who wants to know more about this disease and dialysis.  You must have a very caring heart, especially to stay good friends now.  How is he doing now?  Please post often.  This is a really strong, loving group who truly care about each other.  So, jump in and enjoy!   

Thanks for correcting the spelling  :2thumbsup;  That was a pet peeve of the founder of the site!!




paris, Moderator
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
willieandwinnie
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« Reply #2 on: November 10, 2008, 11:31:51 AM »
:welcomesign; Rebecca. So glad you joined us. Sorry about your boyfriend and you breaking up. We are a wonderful group with lots of information and support. Hope we can answer your questions and you should tell your friend to join.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
Rebecca_HTC
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« Reply #3 on: November 10, 2008, 12:30:11 PM »
Thanks! I have told him about the site, he really liked the name of it. Looking forward to participating in the discussion. Best to everyone, Rebecca
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jessup
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Gemma - the tucker monster
« Reply #4 on: November 10, 2008, 02:50:56 PM »
 :waving;
g'day and  :welcomesign;
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G-Ma
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« Reply #5 on: November 10, 2008, 02:55:47 PM »
 :welcomesign;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Might as well smile
« Reply #6 on: November 10, 2008, 02:57:51 PM »
 :welcomesign; Rebecca.  So glad you finally got registered and now are a part of this community.  We'd love to see some photos some time of the travels with the Nxstage.  
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
RichardMEL
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« Reply #7 on: November 10, 2008, 04:24:08 PM »
G'day Rebecca! I'm sorry you broke up with your bf, but it sounds like you are such a supportive and caring person to come back here and want to share even after that is very special. Specially since I'm sure reading stuff on here would remind you of the less fun aspects of your relationship I'm sure.. though doing the cross country thing is amazing and testiment to both of you wanting to LIVE LIFE and get on with it which is I think a cornerstone of this site and the community here. Thanks for coming back and registering(without problem!) and I'm sure you'll have a lot to add from your particular point of view. Your ex-bf is very lucky to have you on his side - even if things didn't work out between you!!

 :grouphug; :welcomesign;
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
boxman55
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« Reply #8 on: November 10, 2008, 04:34:30 PM »
Welcome Rebecca, So glad you joined up. We have a great search engine for you to look up your questions or just ask

Boxman, Moderator
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"Be the change you wished to be"
Started Hemodialysis 8/14/06
Lost lower right leg 5/16/08 due to Diabetes
Sister was denied donation to me for medical reasons 1/2008
Razman
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« Reply #9 on: November 10, 2008, 04:41:21 PM »
It's great to hear your story about traveling with NxStage.  I am jealous because they are not available in Canada.  Please stay in touch.
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Rerun
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Going through life tied to a chair!
« Reply #10 on: November 10, 2008, 05:16:02 PM »
Rebecca... run for your life!  I'm kidding in a way but in a big way I'm serious.  It would be really nice of you to be friends with this guy.  That would be great of you.  I'm glad you want to learn more about dialysis.

                              :welcomesign;

                                           
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Ang
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« Reply #11 on: November 11, 2008, 12:28:20 AM »
 :welcomesign;  rebecca
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live  life  to  the  full  and you won't  die  wondering
Normie
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Ellie
« Reply #12 on: November 11, 2008, 02:37:00 PM »
 :welcomesign;  Rebecca.

Glad you are finally able to get on the site.  It must have been very frustrating.  :banghead;   It took me awhile to figure things out around here.  :)

Normie      :grouphug;
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Normie

Kidney damage 4/22/07

Predialysis
pelagia
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« Reply #13 on: November 11, 2008, 04:51:13 PM »
 :welcomesign;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
RichardMEL
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« Reply #14 on: November 11, 2008, 04:56:19 PM »
Quote from: Normie on November 11, 2008, 02:37:00 PM
:welcomesign;  Rebecca.

Glad you are finally able to get on the site.  It must have been very frustrating.  :banghead;   It took me awhile to figure things out around here.  :)

Normie      :grouphug;

heh I've been here well over a year and still trying to find my way !!! :)
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3/1993: Diagnosed with Kidney Failure (FSGS)
25/7/2006: Started hemo 3x/week 5 hour sessions :(
27/11/2010: Cadaveric kidney transplant from my wonderful donor!!! "Danny" currently settling in and working better every day!!! :)

BE POSITIVE * BE INFORMED * BE PROACTIVE * BE IN CONTROL * LIVE LIFE!
Joe Paul
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« Reply #15 on: November 11, 2008, 11:23:09 PM »
Welcome Rebecca, good to have you aboard.
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Bajanne
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Goofynina and Epoman - Gone But Not Forgotten

WWW
« Reply #16 on: November 13, 2008, 07:38:56 AM »
Welcome to our community!  So glad that you joined us because of your caring concern for your friend.  You are going to learn lots here.  You will find that this is a wonderful family.  :grouphug;  So look around the site, have fun in the Off-topic section, learn all you can about dialysis.  You never know when someone else near to you might be going through this challenge.  Keep reading, and PLEASE keep posting.


Bajanne, Moderator
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"To be found in Him, not having a righteousness of my own ...but that which is based on faith"



I LOVE  my IHD family! :grouphug;
iowakitkat
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« Reply #17 on: November 15, 2008, 02:11:47 PM »
Rebecca --
Welcome aboard. You sound like a very caring person and those folks are always welcome in my world.
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