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Author Topic: Will This Ever End  (Read 31009 times)
2_DallasCowboys
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« Reply #100 on: January 13, 2009, 07:08:37 AM »
Oh, W/W,

Does my heart go out to you!

I ampraying that Len feels better, and I can
only imagine your stress level - especially concerning
the fluids, and also that wt. loss

We watched my husband go from a very "Big Guy"
to 150 lbs when everything happened it seems almost at
once, after his bypass surgery.

Thank God, he is now back to 218 lbs, and is almost himself-
considering the kidney failure!

Stay strong, hug your doggies, and I will keep praying for all
of you

Anne
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monrein
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Might as well smile
« Reply #101 on: January 13, 2009, 08:04:18 AM »
My prayers are with you W&W.   :grouphug;
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
ODAT
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Nala - Mom's Cat
« Reply #102 on: January 13, 2009, 10:49:34 AM »
Just want you to know that I pray for you and Len. Caregivers turning into doctors happen all too often. One thing we have to do is remember that we can't know everything and to not beat ourselves up for that.  :cuddle;
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As is your sort of mind, so is your sort of search: you will find what you desire.
thegrammalady
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« Reply #103 on: January 13, 2009, 10:57:13 AM »
 :grouphug; here's hoping you get it all figured out  :grouphug;
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If you can smile when things go wrong, you have someone in mind to blame.

Lead me not into temptation, I can find it myself.

Life isn't about waiting for the storm to pass, it's about learning how to dance in the rain.

Some mistakes are too much fun to only make once.

Meddle Not In The Affairs Of Dragons
For You Are Crunchy And Taste Good With Ketchup
G-Ma
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« Reply #104 on: January 13, 2009, 01:44:27 PM »
Please take very good care of yourself also.  We are all praying for you both.
Ann
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
xtrememoosetrax
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« Reply #105 on: January 13, 2009, 02:33:31 PM »
I'm sending hugs and prayers to you and Len, and hoping things get better soon. :cuddle; :grouphug;
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Living donor to friend via 3-way paired exchange on July 30, 2008.

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Wattle
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« Reply #106 on: January 13, 2009, 02:44:20 PM »
 :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
jessup
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« Reply #107 on: January 13, 2009, 03:45:12 PM »
Lots of love and prayers for you both
 :grouphug;
and woof woof to the darling dogs - glad willie is better

Hope things are improving mate
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MIbarra
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Stopping to smell the bluebonnets
« Reply #108 on: January 13, 2009, 09:31:53 PM »
W&W,

I'm keeping you, Len, and your furry babies in my thoughts and prayers. Sending calming, shhh-ing vibes to the puppies so Len can rest. I wish they would find a solution to his suffering.   :cuddle;

Glad Willie is feeling better. I hope you can say the same for Len soon.

 :grouphug;
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Cadaver transplant April 29, 2007
Joe Paul
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« Reply #109 on: January 13, 2009, 09:59:43 PM »
Prayers are going up for Len and you, hope they get him fixed up soon  :grouphug;
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"The history of discovery is completed by those who don't follow rules"
Angels are with us, but don't take GOD for granted
Transplant Jan. 8, 2010
Mimi
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For any who do not like me I use - prayer.
« Reply #110 on: January 13, 2009, 11:00:36 PM »
Oh WW I am so sorry to hear all of this.  What stress you both must be going through.
Hang on as tight as you can to Jesus.  He will help ease you through this.  I will be praying for
you both.

Much love to you both,
Mimi
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Death is not extinguishing the light;
it is putting out the lamp because the dawn has come.
rose1999
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« Reply #111 on: January 13, 2009, 11:06:25 PM »
Just adding my caring thoughts to everyone else's  :grouphug;
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pelagia
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« Reply #112 on: January 14, 2009, 06:01:21 AM »
I am just checking in and hoping that today is a better day for Len and for you, too.  :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #113 on: January 14, 2009, 06:44:54 AM »
:grouphug;  :thx; Len didn't take any pain medication yesterday  :yahoo; I got him to eat some jello and some broth. Today we are going to try cream of wheat and scrambled egg and see how things go. I weighed him this morning and he is down to 139 and that makes me sad. We will just keep taking things as they are thrown at us. Thanks so much for all the good wishes, you guys are such a blessing.  :cuddle;
« Last Edit: January 14, 2009, 09:48:46 AM by willieandwinnie » Logged
"I know there's nothing to it, but I want to know what it is there's nothing to"
Romona
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« Reply #114 on: January 14, 2009, 09:19:48 AM »
 :grouphug;
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paris
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« Reply #115 on: January 14, 2009, 07:53:26 PM »
You and Len have been thrown so many curve balls and you just keep swinging at them.  I can't imagine how tired and worn out you are.  I just want to hug you right now.  :cuddle;  You are a true hero.  I think every kidney patient would be honored to have a care partner like you.  We all are surrounding you with love and when you can't stand up for another minute, imagine all of us around you helping to hold you up.   :grouphug;  We are all beside you in spirit.  Tell Len we all love him, too. 
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
pelagia
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« Reply #116 on: January 15, 2009, 05:33:54 AM »
Quote from: paris on January 14, 2009, 07:53:26 PM
You and Len have been thrown so many curve balls and you just keep swinging at them.  I can't imagine how tired and worn out you are.  I just want to hug you right now.  :cuddle;  You are a true hero.  I think every kidney patient would be honored to have a care partner like you.  We all are surrounding you with love and when you can't stand up for another minute, imagine all of us around you helping to hold you up.   :grouphug;  We are all beside you in spirit.  Tell Len we all love him, too. 

That is really well said Paris.  Yes, W&W, this is how we feel but I would never be able to say it so well.  Here's hoping that today is a good day for Len and you!
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
willieandwinnie
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« Reply #117 on: January 15, 2009, 10:14:51 AM »
I took Len this morning for labs (they probably won't be so good) and went to see the GI doctor. He suggested surgery again and Len said NO. He has had enough surgeries in the last 8 years to last a lifetime. GI doctor prescribed more pain medication and and said that this is how Len's life is going to be. We won't know when one of these attacks will hit and will have to have the pain medication ready at a moments notice. I'm kind of bummed out.  :'(
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"I know there's nothing to it, but I want to know what it is there's nothing to"
2_DallasCowboys
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« Reply #118 on: January 15, 2009, 10:49:31 AM »
Oh, Kathy,

So sorry to read this.  Maybe if given some
time, tho, he will improve on his own without
any more damn surgery.  (We do know Drs
can be wrong)

Keeping both of you and the pups in my thoughts
and prayers

Anne
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #119 on: January 15, 2009, 12:04:24 PM »

 :cuddle; Kathy - I don't blame you for feeling down. You've been through so much and it must seem like it will absolutely never end.
Sending you hugs and love, my friend. One day at a time is all you can do. Take care.
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
kitkatz
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« Reply #120 on: January 15, 2009, 01:13:25 PM »
Give yourself a hug.   :grouphug; These times will not last, they have to get better sometime.
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lifenotonthelist.com

Ivanova: "Old Egyptian blessing: May God stand between you and harm in all the empty places you must walk." Babylon 5

Remember your present situation is not your final destination.

Take it one day, one hour, one minute, one second at a time.

"If we don't find a way out of this soon, I'm gonna lose it. Lose it... It means go crazy, nuts, insane, bonzo, no longer in possession of ones faculties, three fries short of a Happy Meal, wacko!" Jack O'Neill - SG-1
monrein
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Might as well smile
« Reply #121 on: January 15, 2009, 01:16:04 PM »
Sending you and Len hugs, Kathy.  I understand Len's feeling of not wanting the surgery and I just hope that the painful attacks are few and far between.   :grouphug;
Logged
Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
pelagia
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« Reply #122 on: January 15, 2009, 01:32:40 PM »
 :grouphug; I'm sorry that it's more bad news for Len. Really sorry.  You truly deserve some good news. :grouphug;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
G-Ma
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« Reply #123 on: January 15, 2009, 02:17:29 PM »
Did I miss something?  Did you go to a different Dr? That may be an option if you havn't.  We are praying for you.
Ann
Logged
Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
MandaMe1986
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« Reply #124 on: January 15, 2009, 02:35:57 PM »
 I am sorry, I don't know what to say. I think we all know in one way another what it is like. I am so sorry.   :cuddle;
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Blessed are the poor in spirit, for theres is the kingdom of heaven.
Blessed are they who mourn, for they will be comforted.
Blessed are the meek, for they will inherit the land.
Blessed are they whohunger and thirst for righteousness, for theywill be satisfied.
Blessed are the merciful, for they will be shown mercy.
Blessed are the clean of heart, for they will see God.
Blessed are the peacemakers, for they will be called children of God.

Matthew 5:3-9
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