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Author Topic: Will This Ever End  (Read 31007 times)
G-Ma
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« Reply #50 on: November 10, 2008, 03:27:19 PM »

 :grouphug;
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Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #51 on: November 12, 2008, 09:39:43 AM »

I took Len to the hospital at 7:30 this morning for the nuclear emptying study. The machine they use is really wild. They gave Len the smallest hard boiled egg I have ever seen. He had to lay flat on this bed like thing for almost 3 hours. The tech ask me if I knew Len had gall stones and I told him yes we knew that, so that is another question for the GI doctor. Tech said that Len's stomach was slow to empty but wouldn't say much more, he said the films will be read by another doctor and forwarded to GI doctor. Doctors, doctors everywhere. I have to call the GI doctor now and schedule the endoscope (does it ever end). He's local Neph's office called saying Len's lab work is showing the prograf level at 5.7 and that is too high so we have to go get more labs done after Thanksgiving and depending on how they look Len could have morning prograf reduced to .5 also. Lord, something else for me to worry about. 1 mg a day of one medication doesn't sound like much to me when I read what other folks are taking. I must of been born a worry wart.

When we got home our oldest Granddaughter (Amanda) was here (pleasant surprise). She had a certificate from her high school that she is carrying a 4.0 grade average. She then told her Pop and I that she wants to be a teacher. How about that? We are so proud of her. I fixed breakfast for all of us and Amanda went back to school and Len is now curled up in his recliner with Willie, napping. The rain has started here and is suppose to continue through Saturday morning. Yuk.

Thank all of you for your messages and prayers. What would I do without you. I don't even want to think about that.  :grouphug;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
monrein
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Might as well smile

« Reply #52 on: November 12, 2008, 09:42:18 AM »

There's always something that's the only sure thing.  Good news about Amanda.  How sweet that she dropped by to let you know.
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Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
petey
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« Reply #53 on: November 12, 2008, 12:57:48 PM »

Okay, I can lighten up a little on the Len-worrying I've been doing.  (I won't completely quit worrying about him until w&w lets us know the full results.)  I'm feeling really upbeat about all of this.

Supposed to rain here today from this evening until Saturday.  Dreary weather.

Oh, Kathy -- Amanda wants to be a teacher?  I couldn't be any happier.  It's a good job and a wonderfully fulfilling way to spend one's life.  I don't think I'd want to be anything else.  Does she want to teach little kids or big ones?  Any area she's considering (English is a wonderful thing to teach...hint, hint)?  There are lots of scholarships out there for prospective teachers.  Tell her to go to "College Foundation, Inc." website and type in "teacher."  If she works in a disadvantaged system, she could even get loans "forgiven."
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willieandwinnie
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« Reply #54 on: November 12, 2008, 01:16:03 PM »

Thanks petey. It is raining pretty hard here right now but is suppose to ease up some later tonight, so the weather guessers say.

Amanda said she'd like to teach younger children and she excels in Biology, Science, English and Theater. I can even picture in my mind her doing Christmas shows. We went to her play last weekend, "Phantom of the Soap Opera., it was really funny. I will definitely tell her about the web sites as she is having a fit over the cost of schools around here. I might have to pick your brain over some of this as Len and I told her that we would help in anyway we can. Open mouth, insert foot.  :rofl;

Len actually said he feels pretty good this afternoon and he is starving, which always makes me happy. I try so hard to get him to take it slow but when he is hungry, he will eat, with or without my help.

I'll keep updating on his progress and what all these doctors are telling us.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
MIbarra
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Stopping to smell the bluebonnets

« Reply #55 on: November 12, 2008, 01:25:13 PM »

Yay for teachers!!  :cheer:  Oh.. shhh.. I'll be more quiet since Len is sleeping.
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Cadaver transplant April 29, 2007
G-Ma
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« Reply #56 on: November 12, 2008, 02:06:42 PM »

Thank God he is hungry...that is good.
Ann
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
Romona
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« Reply #57 on: November 12, 2008, 04:02:39 PM »

 :bandance; I hope Len continues to feel better.
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pelagia
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« Reply #58 on: November 13, 2008, 04:30:39 AM »

 :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
rose1999
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« Reply #59 on: November 13, 2008, 11:28:03 AM »

Kathy I'm sorry  I've only just read this thread, I'm still catching up on messages, I just wanted to say my thoughts and prayers are with you and Len.  :grouphug;
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2_DallasCowboys
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« Reply #60 on: November 13, 2008, 12:21:23 PM »

Kathy,

Just wanted to say I am still praying and pulling
for you and Len.

It is raining here also, a most depressing kinda day!

My daughter teaches high school English, and loves it!
She graduated Magna Caum Laude - so Mama is very
proud of her!  Sounds like your G.Daughter is a great kiddo!

Anne
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willieandwinnie
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« Reply #61 on: November 19, 2008, 09:11:24 AM »

The GI doctor called this morning himself and said that he got the results of Len's emptying study and wants to see Len tomorrow. Now I'm really worried. When the docs call you themselves and want to see you that quickly, you can't help but worry.  :banghead;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
okarol
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« Reply #62 on: November 19, 2008, 11:16:58 AM »


I hope the GI doc has a plan. Hopefully that's why he wants to see him. I am praying for the best outcome. SENDING LOVE!  :grouphug;
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Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
rose1999
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« Reply #63 on: November 19, 2008, 12:20:33 PM »

Sending my love and caring thoughts too  :grouphug;
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petey
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« Reply #64 on: November 19, 2008, 01:01:34 PM »

Maybe the doc is going out of town next week for Thanksgiving and doesn't want you guys to have to wait for the results...

Maybe the results are good, good, good, and the doc wants you to know immediately...

Maybe it's something that can be solved/improved if a treatment (meds or something) is started right away...


Maybe...

Maybe I'm trying to think of only positive stuff because I'm worried, too.  What time are you going to see the doc?  We want to know what you find out as soon as you can get back here and tell us.


Tonight will, undoubtedly, be stressful, restless, and agonizing for you two.  Sending you love and warm thoughts -- and prayers.  I'd say, "Try not to worry tonight," but I know that wouldn't do any good.  You're too much like me -- you'll worry anyway.

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G-Ma
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« Reply #65 on: November 19, 2008, 01:44:54 PM »

WW..I have had Dr's call me by themselves just because they were very caring people..not many tho.  I went in so stressed and felt so good when leaving.  I am sending a prayer for you two.
Ann
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
willieandwinnie
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« Reply #66 on: November 19, 2008, 01:56:21 PM »

petey, G-Ma, rose, okarol and Anne, that's another reason that I am worried. He is seeing Len at 12:30, which he said was he's lunch hour. My stomach has been in knots all afternoon and Len said he didn't want to talk about it. This is the GI doctor that said Len should get a feeding tube a few weeks back. Len has said hell no to that. I'll let you know tomorrow afternoon what he says.  :cuddle;
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"I know there's nothing to it, but I want to know what it is there's nothing to"
G-Ma
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« Reply #67 on: November 19, 2008, 05:09:11 PM »

We are all with you...I hope he just decided Len is a special enough person to fit in an appointment during lunch.  We will be waiting.
Ann :grouphug;
Logged

Lost vision due to retinopathy 12/2005, 30 Laser Surg 2006
ESRD diagnosed 12/2006
03/2007 Fantastic Eye Surgeon in ND got my sight back and implanted lenses in both eyes, great distance & low reading.
Gortex 4/07.  Started dialysis in ND 5/4/2007
Gortex clotted off Thanksgiving Week of 2007, was unclotted and promptly clotted off 1/2 hour later so Permacath Rt chest.
3/2008 move to NC to be close to children.
2 Step fistula, 05/08-elevated 06/08, using mid August.
Aug 5, 08, trained NxStage and Home on 9/3/2008.
Fistulagram 09/2008. In hospital 10/30/08, Bowel Obstruction.
Back to RAI-Latrobe In Center. No home hemo at this time.
GOD IS GOOD
monrein
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Posts: 8323


Might as well smile

« Reply #68 on: November 19, 2008, 06:01:49 PM »

I'll be thinking of you both tomorrow.  :grouphug;
Logged

Pyelonephritis (began at 8 mos old)
Home haemo 1980-1985 (self-cannulated with 15 gauge sharps)
Cadaveric transplant 1985
New upper-arm fistula April 2008
Uldall-Cook catheter inserted May 2008
Haemo-dialysis, self care unit June 2008
(2 1/2 hours X 5 weekly)
Self-cannulated, 15 gauge blunts, buttonholes.
Living donor transplant (sister-in law Kathy) Feb. 2009
First failed kidney transplant removed Apr.  2009
Second trx doing great so far...all lab values in normal ranges
jessup
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Gemma - the tucker monster

« Reply #69 on: November 19, 2008, 06:06:27 PM »

Lots of thoughts and love for you both
 :cuddle; :grouphug; :flower;
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okarol
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Photo is Jenna - after Disneyland - 1988

WWW
« Reply #70 on: November 19, 2008, 07:09:41 PM »

 :grouphug;
Logged


Admin for IHateDialysis 2008 - 2014, retired.
Jenna is our daughter, bad bladder damaged her kidneys.
Was on in-center hemodialysis 2003-2007.
7 yr transplant lost due to rejection.
She did PD Sept. 2013 - July 2017
Found a swap living donor using social media, friends, family.
New kidney in a paired donation swap July 26, 2017.
Her story ---> https://www.facebook.com/WantedKidneyDonor
Please watch her video: http://youtu.be/D9ZuVJ_s80Y
Living Donors Rock! http://www.livingdonorsonline.org -
News video: http://www.youtube.com/watch?v=J-7KvgQDWpU
paris
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« Reply #71 on: November 19, 2008, 07:21:37 PM »

Prayers for tomorrow   :cuddle;  We love you both.
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It's not what you gather, but what you scatter that tells what kind of life you have lived.
pelagia
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« Reply #72 on: November 19, 2008, 07:27:31 PM »

 :banghead;

Like everyone here, I want you and Len to have some smooth sailing for a change.  I'll be thinking of you both tomorrow.   :cuddle;
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As for me, I'll borrow this thought: "Having never experienced kidney disease, I had no idea how crucial kidney function is to the rest of the body." - KD
petey
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« Reply #73 on: November 20, 2008, 02:56:36 AM »

I went to bed thinking about Kathy and Len last night, and I woke up this morning thinking about Len and Kathy... I imagine they'll be on my mind all day. 

I'm thinking good thoughts, willieandwinnie!  I've got my fingers crossed and my prayers said.
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Wattle
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« Reply #74 on: November 20, 2008, 04:00:20 AM »

 :cuddle; :grouphug;
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PKD
June 2005 Commenced PD Dialysis
July 13th 2009 Cadaveric 5/6 Antigen Match Transplant from my Special Angel
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