I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: Joe Paul on February 20, 2008, 12:41:35 PM
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Well, I decided to have a Surgeon look at my belly, to see if he thinks I can do PD. Originally, my Neph ( who has since left the practice) told me with all my stomach operations and the mesh that was put in, he didn't feel I would be a good candidate for PD. After talking with the PD nurse though, she said it would at least be worth looking into, so she called the Surgeon (the one who did my fistula) and made me an appointment. It will be March 5th, right after dialysis. Please keep it in your prayers, Thanks
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Best of luck with your appointment JP. If they allow it PD will get you out of the unit and give you greater freedom and better dialysis as well. Fluid and diet restrictions will be loosened. I hope they give it a go and it happens for you.
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I'll keep you in my thoughts Joe Paul. Wouldn't it be great to get out of the clinic setting. I'll say a prayer for you. :cuddle;
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I will be thinking and praying for you! :)
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:2thumbsup; Hope you get the answer you want JP - :cuddle;
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:cuddle; Good luck JP.
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good luck jp. i'll say a prayer for you. :cuddle;
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Hope it works out for you JP :cuddle;
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Good luck
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Got my fingers and toes crossed, JP. Hope it's a "GO" on PD.
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Best of luck to you JP. I hope you get to do PD, it's way better than hemo.
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I'll keep my fingers XXXX for you and maybe even my toes XXXX I hope things go the way you want them to go. :) Susie swore by PD.
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Good Luck, Joe Paul! :2thumbsup;
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OH!!!!!
JP!!!! Oh I hope it works!!!!! Man oh man, how great would that be if it does!!!!
Let us know how it goes, please! That's not very long from now...what, almost 2 weeks????
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I will be praying for you. Keep us posted.
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Thanks everyone, I knew I could count on your thoughts and prayers! For sure, beside the Wife, you all here will be the first to know, and yeah the appointment is only 2 weeks away :thumbup;
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JP, that's awesome!!! And March 5th is my birthday...hopefully you'll get the gift, though! Can't wait to hear the good news! :clap;
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JP, that's awesome!!! And March 5th is my birthday...hopefully you'll get the gift, though! Can't wait to hear the good news! :clap;
KT, you know you are the one who got me thinking (previous rant). Thankyou, and hopefully I will be able to do this. The PD nurse said to me, "you will probably go through this and get all set up, then be called for a transplant". Oh, that would be a gift, but , I would just like to be able to be in control of my own dialysis until the transplant happens.
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Good Luck JP hope it works out :2thumbsup;
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That sounds like a good idea JP. Hope it all works out for you.
Mimi
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Fingers firmly crossed for you JP. Will be thinking of you on 5th March, I hope it's good news and then you ARE called for transplant, that would be the icing on the cake :2thumbsup;
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:2thumbsup; Best of luck and wishing you the best. I will have my PD placed Monday the 25th, fistula not ready and Nepho says I need to start asap. I am sick and tired of being sick! going to on the cycler is what my training nurse has said so I have been lurking and looking at the home dialysis posts, man i am glad I found IHD.
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Fingers toes and eyes, all xxed. It would be so great if you could get PD after all. Congrats on pushing it along!
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Best of luck ,I love PD and i think you will , its a big difference from hemo going off what folk say on here! I hope you get the go ahead and if you have any questions please ask :2thumbsup;
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:thumbup; You know I will be praying for the right answer!
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JP, that's awesome!!! And March 5th is my birthday...hopefully you'll get the gift, though! Can't wait to hear the good news! :clap;
KT, you know you are the one who got me thinking (previous rant). Thankyou, and hopefully I will be able to do this. The PD nurse said to me, "you will probably go through this and get all set up, then be called for a transplant". Oh, that would be a gift, but , I would just like to be able to be in control of my own dialysis until the transplant happens.
So glad I could help, JP! Wouldn't it be wonderful if you got the call for the transplant as soon as you got trained? Anyway, anytime you have questions, you know where to come. Once you get trained on manuals, definately ask about the cycler (if they don't offer it) then you do most of it at night, and have your days completely free.
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Good Luck Joe Paul. I felt way way better after being able to do PD. And, I was lucky enough to be able to get the cycler so only the evenings and nights were taken up. Gave back a little of my life.
Keeping all fingers and toes crossed for you.
Sandyb
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Praying for ya
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Good Luck, Joe Paul. PD and the cycler will give you much more freedom and it is so much better than being tied to a center. Fingers crossed for you.
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Thanks again for all the replies. The way I understood the PD nurse, I would do 1 month of the manual exchanges, then after that, start on the cycler. Thats looking way ahead, still have to see what the surgeon has to say but I am hopeful it'll be OK, not long now only 10 days away :thumbup;
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Thoughts and prayers for your consult with the surgeon, and hope that it goes your way.
Best of Luck!
Joannie
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"WISHING YOU THE VERY BEST" J.P. "GOOD LUCK !!!! "
big-h
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JP. It's now FIVE days!!!!!! :2thumbsup; :2thumbsup; :2thumbsup;
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I really need to stop looking at this thread...people are counting down to my birthday. Ack!!!
Anyway, best of luck to you, JP. Let us know what the surgeon says. Though it's my understanding that it's the neph who decides whether you're a good candidate or not for PD...that may not be able to be determined in your case until you start doing it and see how your numbers are the first month. Hope it's all good news for you! :2thumbsup;
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March 5th hopefully some good news. :grouphug;
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I know it's not until tomorrow, but I've been thinking about this a lot this morning, JP. Lots of good thoughts going your way!
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I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;
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I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;
You are about 6 hours ahead of JP (I think.)
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I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;
You are about 6 hours ahead of JP (I think.)
Then Rose should know the results 6 hrs before JP does on the 5th.
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I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;
You are about 6 hours ahead of JP (I think.)
Then Rose should know the results 6 hrs before JP does on the 5th.
Thanks Karol. I can always rely on Sluff to make me smile :2thumbsup;
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Thanks everyone :thumbup;
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I'm never sure of the time difference (are you ahead of or behind us? ???) so just to say GOOD LUCK Joe Paul, hope all goes well tomorrow (or today depending on that damn time difference). :thumbup;
You are about 6 hours ahead of JP (I think.)
Then Rose should know the results 6 hrs before JP does on the 5th.
Thanks Karol. I can always rely on Sluff to make me smile :2thumbsup;
So Rose, I expect to know the answer when I log in first thing tomorrow morning!
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Well its a go, I will have the Cath. put in on the 27th of this month - then 2 weeks after that the surgeon said I will see him again to have the stitches removed. A week after that, he said, a nurse will come by my house to do a fill and drain, and if its all good I will be starting training. KT, I know its a ways off yet, but I too hope the numbers are good enough, I really need a break from in center Hemo. Thanks again for all the well wishes :thumbup;
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:yahoo; Joe Paul, I'm so happy to hear this! I've been thinking about you all day. :yahoo;
As for the surgery, they use gas to inflate your belly so they can see, and the worst pain I had afterward was when that gas rose into my shoulder. It took about ten days for me to be able move comfotably, and probably close to a month to be able to wear jeans, but all that is SO worth it!
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:2thumbsup; Great news JP. I am sure you will do well on PD. Having a tube hanging out of your body does take a little while to get use to ::)
But you will have more control over your treatment, and less diet restrictions!! woohoo :bandance;
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:2thumbsup; That's great JP - I hope it all goes well!
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That is outstanding news JP! :bandance;
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:yahoo;
Good for you!!!
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Great news, hope all goes well :2thumbsup;
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Oh YAY!!!!!!!! :yahoo; :yahoo;
JP that is WONDERFUL!!!!!! You're gonna love love love it!!!!!!
As everyone has warned, the healing process IS painful, but it is worth it!!!!!!!
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Hi, JP,
So glad to read this good news!
Les is also considering PD- but after just
beginning to use his new fistula, and with
everything else going on with my Mom here,
we put off thinking about it for a while.
Anyway, glad to see this good news for you!
Anne
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i anm sure you will do fine I had my cath placed 02/25/08 and the only pain I had was from the Laper surgery blow this fat man up like the Michlen tire guy(whew). but I am looking forward to doing the Home P/D. :thumbup;
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Joe for some reason I've completely missed this thread. I hope everything goes OK. Are you going to be doing cycler or CAPD?. I get the impression that in the USA you have to train for CAPD first and then graduate to the cyler. Tell them balls to all that, get straight on the cycler. In England we have the choice right from the start and I did both cycler and capd training in the same week long training session and then went straight on to the cycler at home.
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He hasn't been on for awhile I wonder if he is moving forward with PD.
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Joe, How's the PD going, can you update us?
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Joe for some reason I've completely missed this thread. I hope everything goes OK. Are you going to be doing cycler or CAPD?. I get the impression that in the USA you have to train for CAPD first and then graduate to the cyler. Tell them balls to all that, get straight on the cycler. In England we have the choice right from the start and I did both cycler and capd training in the same week long training session and then went straight on to the cycler at home.
Ken, the reason for manual training is in-case of power failure. This will be one month, and, after the results of the first blood test I will graduate to the cycler, (provided, I'm told, the pd is working well). I have had 2 successful flushes, and the nurse says it is looking good. Due to a recent rush at our clinic for people switching to pd, my training wont start until the end of this month. There is a chance for being bumped up the training list, as another patient is having problems with his cath. Depending on how he works out, I could start a week from this coming Monday. I will post again, once I know exactly what is what. Either way, it wont be long now and I am excited!
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ooo!!! It's really happening!!! I so hope you like it so much better! I know I do!!!! :clap; :clap;
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Hope it all goes well for you Joe Paul.
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:waving; Hey Joe Paul! Thanks for the update!
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Thinking of you. Best of luck.
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Hope things go smoothly JP. Are you flying those planes yet? I noticed it has been near 70 degrees near your area.
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I hope you're doing good, JP. :thumbup;
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Hope things go smoothly JP. Are you flying those planes yet? I noticed it has been near 70 degrees near your area.
Not flying yet, waiting to see how much of my "hanger" area will go for PD supplies. I should get those sometime during the next week. This works out though, as even though it has been warm enough to fly, winds have been an issue.
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Nice to see you back! :waving;
Great weather we're having!
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Joe Paul, I am so glad the PD is working out. I would love to hear all about it and how you are feeling. Have you noticed any differences yet? How are your numbers? Lots of questions--sorry! Good to read your post!! :2thumbsup;
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It's good to see ya on the board JP.
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Great to hear that it's going well, JP! You're gonna love it!
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Joe Paul, I am so glad the PD is working out. I would love to hear all about it and how you are feeling. Have you noticed any differences yet? How are your numbers? Lots of questions--sorry! Good to read your post!! :2thumbsup;
Haven't started PD yet Paris, still waiting to be trained. That should start soon though :thumbup;
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I am anxious for you to start! PD will be my choice, so I will look forward to hearing all about it. Take care and keep us updated :2thumbsup;
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Joe Paul - be sure to keep us posted on your progress.
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Finally got the word today, I start my training this coming Tuesday :thumbup;
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:2thumbsup;
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YAY!!!!! :yahoo; :yahoo; :yahoo;
I so hope it works out welll for you!!! I like mine (well, as much as you can LIKE dialysis) for the freedom I have!!!
GO JP!!!!!!
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I have no idea how I missed this post....
JP I can't wait to read how your training is going... I am in week one of having my Cath placed.
Best of luck!!!!!
Kim
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Third day of training today Just wondering how it is going. :beer1;
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Joe Paul I've not been on the forum very much for the past two weeks so I've just caught up on this thread. I'm so pleased for you and the fact that you've had PD flushes and not mentioned any problems is looking good. Good luck with the training. Its all very easy to do, even the cycler. As we sometimes say in the UK 'It's a Piece of Piss' meaning easy.
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Sluff, I dont think JP starts training until the 29th. I hope all goes well JP. :cuddle;
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Glad to hear everything has been going well in your switch to PD! Let me know if you have any PD questions. I have a lot of PD experience! Five years with only one peritonitis infection, then now another four years with no infections. Back in the old days the PD machine was huge but at least there was space to hold my drink! ;)
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:waving; Thinking of you Joe Paul, and hoping you're doing well!
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I am doing good, thanks. Today was the "last" day for hemo ( I hope for a long time to come). Tomorrow morning I start training. Got my supplies today, even though I was told how much room it takes, actually seeing them in the room is a whole nother thing. Ah well, its well worth it specially with gasoline at 3 65 a gallon. I will update more as training progresses, stay tuned.
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Good luck Joe Paul. Keep us posted.
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Good luck, JP, I'll be thinking of you tomorrow! :bestwishes;
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Training went well. After watching the DVD the PD nurse gave me, was nothing new. Tomorrow I will do 2 exchanges, with the nurse watching, learn how to change the cath. extension in-case of emergency, then I will be on my own. I did have my wife come along, so she can see how this is done, just in-case something would happen where I need help. The nurse had a training smock, with a PD catheter, and had her do a couple "exchanges" and she did very well. It shouldn't take long for this to become second nature.
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Terrific Joe Paul. It must feel good to finally be at this point.
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Did my first exchanges in front of the PD Nurse yesterday, and they went well. She also taught me how to change the transfer set, in-case of emergency. I found I have to lay down to get a good drain. I am a little concerned with the fluid amount I am pulling off, so far its only been 800cc's. My dry weight should be 89.5 kilos, and as of this morning (with PD fluid in me) is 96.8. I have to call the Nurse this morning anyway, as she wants to know how my first treatments went at home, I will be sure to ask her about this. Right now I am using the 4.25 (red) bag & hope it starts pulling some serious fluid. I have no shortness of breath, my BP is 114/69 pulse is 92, and actually don't feel like I am holding that much fluid.
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Hopefully things are fine your numbers look good. Good for you JP (IHD's favorite pilot. :) )
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JP what would be the reason that your weight is so much lower?
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JP what would be the reason that your weight is so much lower?
I called the PD nurse & she said the 4.25 solution should take off the needed fluid. The reason I gained so much is because I haven't been very good at watching my fluid intakes, along with a huge decrease in urine output.
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Good to read your post Joe Paul. Hope the fluid situation gets resolved. You're always in my thoughts :cuddle;
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Glad it's going well for you, JP. As the nurse said, the 4.25 should pull off lots of fluid for you. That's amazing she taught you to change the transfer set, I never was given the option of that!
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:2thumbsup; Good news JP - happy to hear you're doing PD and it's going ok. Looking forward to more updates!
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Glad it's going well for you, JP. As the nurse said, the 4.25 should pull off lots of fluid for you. That's amazing she taught you to change the transfer set, I never was given the option of that!
I did the 4.25% 4 times yesterday & all I was able to get off was a little under 1 kilo, is this normal? When I gain fluid, it all goes to my belly, and, with the solution in there, I have to say it is MISERABLE, feels like I am going to explode!
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Glad it's going well for you, JP. As the nurse said, the 4.25 should pull off lots of fluid for you. That's amazing she taught you to change the transfer set, I never was given the option of that!
I did the 4.25% 4 times yesterday & all I was able to get off was a little under 1 kilo, is this normal? When I gain fluid, it all goes to my belly, and, with the solution in there, I have to say it is MISERABLE, feels like I am going to explode!
OK, maybe nobody here knows. Anyway. I was told to do my exchanges for today, go in center tomorrow to have the fluid removed, then Sunday, resume PD.
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Sorry to hear of your troubles, JP. I can't offer any advice, but I am hoping that things get better/easier/smoother very soon. :grouphug;
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JP, I'm sorry, I never really paid attention to my before and after weights, as I was told to weigh in the morning, and that's it. As long as it was stable, everything was good.
I paid more attention to how many ml's my net UF was for the night (on the cycler). Since you're talking about weight and I'm talking volume, I wouldn't know where to begin converting it. Sorry! :-\
I think I have heard of this problem from other people who are just starting PD, but I think they said that it stabilizes and all the extra fluid does eventually come off. As for the full, miserable feeling, you'll get used to the PD fluid being in there and you'll feel better.
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Thanks Ladies, I appreciate your kind words. Some good news is that I am down to 94.5 (without the solution) from 97.7 (with solution), but still have to go in the morning for a Hemo session. As you said Katie, the Nurse said sometime it takes time for the Pd to kick in, and she wants to start me from my normal weight, then go from there. Thank God I have a strong heart, and have had no issues with the extra fluid I been carrying, kind of down, but I have faith this will work out. Ive come too far to give up.....
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That's so disappointing but I hope it gets sorted out soon.
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Oh don't give up! From everyone that I have talked to , I can only think of a few people that don't prefer PD... hang in there, (I do love getting all this info before I start mine in a few weeks)
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Joe Paul, cheer up and don't give up. I had a hell of a time for the first month I was on PD. Drain pain and very small quantities of UF.....but it does get better. I went directly on the cycler and it is amazingly comfortable and easy now. My catheter did quit after my hip surgery and I am waiting for a minor repair, so am on hemo temporarily. I can't wait to get back on PD and have my freedom back to travel and have my days free. Hang in there. It will improve.
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Thanks Red, I feel much better today. I did go in center for a Hemo treatment, in which they were able to pull 6 kilos off. I start my PD routine again today only a half kilo over my dry weight, hopefully that wont be a problem for the solution to pull off. I will post again later, after my first exchange which should be around 11 am.
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Hang in there Buddy. :grouphug; Things will get better.
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Thanks Red, I feel much better today. I did go in center for a Hemo treatment, in which they were able to pull 6 kilos off. I start my PD routine again today only a half kilo over my dry weight, hopefully that wont be a problem for the solution to pull off. I will post again later, after my first exchange which should be around 11 am.
Well, my first exchange is not a good one. I put in 2000 & only got out 1200. The fluid is nice and clear, meaning there is nothing blocking the catheter. No signs of any fibrin, which again I was told can block the draining. I did the 2nd fill, and am hoping for a better drain in 4 hours.
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What do the Nurses think the problem is?
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I'm also curious about what the nurse says. Please let us know, JP! Was that last exchange with a 4.25%?
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The Nurse didn't say, other than to tell me it might take time for the PD to start working. The last 2 exchanges I did, I got 2100 out both times. That was at 3 hour dwells instead of the 4 hours I was told to do. The first today were 4 hours, 1200 & 1300. Also, of the 2 - 2100 exchanges, 1 was 2.5%, the other 4.25%. Clearly there is something not right, will wait for the Nurse to call in the morning to decide what to do next.
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Thanks Red, I feel much better today. I did go in center for a Hemo treatment, in which they were able to pull 6 kilos off. I start my PD routine again today only a half kilo over my dry weight, hopefully that wont be a problem for the solution to pull off. I will post again later, after my first exchange which should be around 11 am.
Well, my first exchange is not a good one. I put in 2000 & only got out 1200. The fluid is nice and clear, meaning there is nothing blocking the catheter. No signs of any fibrin, which again I was told can block the draining. I did the 2nd fill, and am hoping for a better drain in 4 hours.
How long did you leave the solution in before you tried to drain? If I leave in 1.5 for a long time I will absorb most of it, especially if I am somewhat dehydrated already. I hope you get this figured out!
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How long did you leave the solution in before you tried to drain? If I leave in 1.5 for a long time I will absorb most of it, especially if I am somewhat dehydrated already. I hope you get this figured out!
The first 2 yesterday were 4 hour dwells, the rest were 3. My bedtime dwell ended up being 3 1/2, with a drain of 3000!! Thats what I was hoping for, a couple more like that and I should be OK, so far as reaching my dry weight. Next drain is at around 8, hope it is as good as the last.
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Great to see that you are pulling the fluid Joe Paul , here's to a couple more ! :)
Tamara xxxx oooo :grouphug; :cuddle; :grouphug;
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Good for you JP glad things are improving. :2thumbsup;
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Hang in there JP. :thumbup;
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Thanks Guys :thumbup;
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glad it's working
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Thanks, Gammalady...things went well for the rest of the day yesterday. I got down to my dry weight, but had to stop the last treatment last night due to a blood test I had to have done this morning. The key I found is 3 hour dwells, and checking my blood sugars at least 6 times a day, and giving insulin accordinly, as the solution spikes my blood sugar, and if my blood sugar gets too high, the solution will not draw off any fluid.
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:waving; Thinking of you JP!
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Sounds like your body and you are sorting things out. That's great
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I'm glad you're getting things all figured out! =) :clap;
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:2thumbsup; Glad things are picking up Joe. It's strange how your body adapts but it does.
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Hey Joe Paul - How are you? Where are you? I miss you buddy, come back and give us an update please. I hope all is well! :cuddle;
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Hey Joe Paul
Thinkin of ya and how it is all goin for ya way down here ! :ausflag;
Take Care
Tamara xxx ooo :grouphug; :cuddle; :grouphug;
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Thanks for asking Karol & tamara, and for your well wishes. Ive had my ups and downs, but all in all not doing badly at all. I go this Wed. for my pet test, then to bo trained for the cycler. The main problem I have now is weight gain. I am now up to around 98 kilos, it seems my body loves the calories in the PD fluid. I did have my first blood test after starting PD, and it was good, other than the calcium level hovering on the high end. I cant tolerate any binder other than Phoslo, so my Doc increased my sensipar saying he would rather I have a low PTH, rather than the high calcium. I have been doing very well with my blood sugars, keeping it @ an average of 80. Once i get started with the cycler, I will still have to do 1 manual during the day, to start. Nurse says it may go to 2, wont know that until the following months bloodwork. Will update as I find out how things are going. Again, thanks for the thoughts and well wishes, JP
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Sounds like things are going fairly well. Glad to hear from you JP. :thumbup;
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:thumbup; Joe Paul, it sounds like your doing well on PD. Are you eating better on PD then you did on HD? Keep letting us know how you are doing. :cuddle;
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So glad to hear from you and hear that things are starting to work out for you. Our caring thoughts and prayers are with you all the way. :cuddle;
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Nice to hear from you. Hope you continue to do well. :2thumbsup;
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Update: I have come to the conclusion, I do not like the PET test. We have already found my body doesn't like longer than 3 hour dwells, and the 12 hour dwell I did for the test, my body absorbed a good bit of the fluid. Again, I filled up, after the 12 hour dwell, for the 4 hour part of the test, and only got 1300 of 2000 out, my legs, ankles and feet were so swollen, I was in a good bit of pain. What was bad too was that the exchange I did BEFORE the 12 hour, I got a poor drain, holding around 400 of the 2000. Keep in mind, most of the time, when I do hold fluid, it was in my hands mainly, so the legs & ankles was something new to me, and I repeat, it is painful! The same day as testing, I was trained for the cycler, and brought it home for my first run. I thought I would use a drain bag, just to see how much would come off, and let me tell you, that was a huge mistake, as it pulled off 3157 mls, plus the 10,000 of red I was told to use, to be rid of the fluid I had put on. That poor drain bag was so full, it looked as though it would burst, and was very hard to hold over the toilet to get rid of. Since then, I been using the extensions to reach my bathroom, no more carrying those bags for me. I will say it took 2 nights (9 hour runs) + 2 daily exchanges of the red bags to be rid of the fluid my body had absorbed. It is so nice to have my ankles back, and not look like a stuffed sausage. I am happy to say last night I was able to use green bags & go from 220 pounds, back down to 205. It wont be till sometime next week before the results of the testing come back, but for now, as I said, I do a 9 hour run on the cycler (which fills me at the end), a 3 hour dwell, another exchange & 3 hour dwell, then I am dry for the rest of the day. Depending on the test results this may change to more time on the cycler, or more exchanges during the day, all dependent on the clearance. I am still tired, but thats due to being new on the cycler, I wanted to stay up just to note what happens when, just for my own peace of mind. As I find out more, I will update.
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Oh JP, you sound like you have been through the ringer, I hope the bad is behind you now :)
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Good to hear from you Joe Paul. I hope that ultimately you're feeling better and no more fluid retention!
Take care and get some rest! :cuddle;
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Good to have you back, Joe Paul. I'm glad you're on the cycler now. It will take getting used to. Do you know yet whether you are a fast transporter or a slow one? My 9 hour cycles have 5 dwells of i hr and 20 mins each, using 2 green bags, and I get good UF of about 1350 eqch. If I have longer dwells, I wind up absorbing some of the dialysate. Lots of adjustments can be made until you are happy and comfortable with your clearance. You are right about the pet tests. They are a pain, but necessary.
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Good to have you back, Joe Paul. I'm glad you're on the cycler now. It will take getting used to. Do you know yet whether you are a fast transporter or a slow one? My 9 hour cycles have 5 dwells of i hr and 20 mins each, using 2 green bags, and I get good UF of about 1350 eqch. If I have longer dwells, I wind up absorbing some of the dialysate. Lots of adjustments can be made until you are happy and comfortable with your clearance. You are right about the pet tests. They are a pain, but necessary.
Red, the test results should be in sometime this week. As it is now, my cycler is set up for 4, 1 hour 46 minute dwells. Using 2 green bags, total ufs are around 1300 average.
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Hang in there buddy.
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Got my PET test results & they aren't so good. My clearance is low, so I will be going to 2500 mls for the overnights. Nurse also said that I will be starting on Extraneal (Icodextrin) solution, as soon as Baxter OKs me for it, for my daily dwells. I will have that in me for the whole day as it takes 8 - 16 hours for it to do its best. I was told I will need 2 days of training for this solution. I hope the new combination works as I am just about fed up with the whole dialysis thing. I don't want, and probably will not go back to in center, I have had enough of that place. Those of you who pray, please pray that the new combination of PD works, or I get a transplant soon.
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Joe Paul - I am a relatively new caregiver and I don't really understand all of this, but I will pray for you. :grouphug;
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Hi Joe Paul. . I am also on icodextrin all day and it works just fine for me. The 5 cycles of 1 hour 20 mins overnight also work well. Don't give up. It takes a while for your body to get used to everything.
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Just wanted to send you some good thoughts and hope the changes will help and you start to feel better soon.
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Just to let you know that you are still in my thoughts and prayers. :grouphug;
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Hey Joe Paul,
It sounds pretty frustrating, I hope you get the right system working for you.
Best wishes my friend :cuddle;
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hang in there joe paul :cuddle;