I Hate Dialysis Message Board
TRIBUTES FOR MEMBERS LOST => Tributes For Susie "Goofynina" Trevino => Topic started by: Sluff on February 13, 2008, 09:26:46 AM
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I am sorry to have to share this news with our family here at IHD. As most of you are aware Goofynina (Susie) went in to surgery on or around January 21st to have calcium deposits removed from her stomach area. The intended surgery was a success but unfortunately Susie developed an infection which was first thought to be peritonitis due to the fact that Susie does PD, this was later considered to be false and the Doctors are unable to find the source of her infection. The infection is causing her severe pain that is almost unmanageable leaving the Doctors with no other recourse but to send Susie home and offer hospice care. I talked with Susie's husband Sam this morning and learned that they are considering a two week window of which morphine is being administered to keep the pain to a minimum.
I will update when I learn more. I am trying to give her immediate family space and time to visit.
Sluff
UPDATE Noon FEB 13th
I heard from John (Susie's Brother-in-law) Susie has taken a turn for the worst and may not make it through the evening. Last night the family was there and she was alert for a very short time after doing dialysis. She has not been coherent except during that brief moment.
Sluff
http://oldbluewebdesigns.com/wonderfulworld.htm
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Oh man..this is very sad news :thumbdown; Not sure what to say
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i thought i had reached the limit of an emotional low, for me....
i was wrong.
:'(
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There are no words.
I sit in silence and with love for Susie.
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:'( heart breaking news :'(
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We can still pray for a miracle, "All things are possible in his name" "if it be the will of God"
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There are no words.
I sit in silence and with love for Susie.
I can say no more than this.
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my heart is breaking for Susie and Sam...but the positive thoughts will continue
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I sent this in a personal message last night, and my feelings are magnified today.
We are all in this together, good times (like Vegas) and bad - today. Heartbroken is an understatement.
It is comforting to know that we are not alone, and that Susie knows how much love we have for her.
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This is so sad to hear, but that lady is a fighter and with our prayers i hope she comes through this. If anyone gets to visit please give her my love and a great big :cuddle;
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I am sad.
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I am praying for a miracle and for strength for Sam. Also, strength for her IHD family. She is so loved by so many :cuddle; :'( :grouphug;
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Susie is someone who, in the short time I've 'known' her online, has touched my heart. I am so sad right now, I can't even believe this is happening to her. Prayers and loads of love for her.
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Susie is everyone's best friend. She is constantly the source of support and love and laughter here at IHD.
We love you. Be strong sister.
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:grouphug;
My love to Susie and Sam.
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Don't know what to say. So Sorry!
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My thoughts are with Susie and her family. God Bless her.
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Our hearts are crying.
We are praying for a miracle for Susie and strength for Sam.
Marvin and Petey
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I can't believe this please stay with us Susie :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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So heartbreaking. I'm praying for that miracle, Sluff.
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:'( This is so sad to hear. I will be praying for a miracle :grouphug;
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No words. Thinking of you Susie. Your strength, your humour, your goofy grace. Scared... and still hoping.
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My prayers are with Susie and her family.
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Such disturbing news -- Hard to believe. Don't know what to say except "Susie, you are loved so much by so many." I'm going to keep hoping.
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So that's it, doc's can't find source of infection so they will send her home for hospice care ! This is making me so angry.
With all of the available tests today they can't find it ?
Susie deserves so much more.
I hope the pain is being managed as much as possible, but also hope that the doc's aren't giving up finding out what is wrong and fast.
Massive Hugs for Susie, Sam and families. :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug; :cuddle; :grouphug;
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Updated Original Post.
PLEASE GO BACK TO FIRST POST AND READ THE UPDATE.
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Holy shit. Our poor girl. Love to Sam and to Susie's family.
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Oh no, oh Susie. I am praying hard for you. This is so sad. :cuddle;
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Oh, I am in shock and have no words except my prayers go oout to Goofynina, Sam and her family.
Don't give up Susie, keep fighting. We are with you, pulling for you.
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I am devastated by the news. I will continue to hope and pray for the best outcome for Susie and strength for Sam and Susie's mother and brother during this difficult time. Miracles do happen~ and couldn't happen to a more wonderful, supportive, wiitty, strong person than Goofynina!!!!!!!!
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I'm >:( , :( , and :'( . I haven't the words. :grouphug;
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Tears, tears, tears, and more tears!
I am so sorry to hear this.
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I just spoke to Susie's mom Mary and to Sam at the hospital. The family is there with Susie in her room. They have been hugging her and loving her and she is aware that they have all come together. I told her mom how much Susie appreciated all the help she provided the last couple of months, bringing meals when Susie didn't feel good, going to the doctor with her, stopping by on her way from work and hanging out with her until Sam got home. Susie called her a "Godsend." I told her, from one mom to another, that she did the best she could. Mary said she was grateful to hear that, and that she knows how much our forum here on IHD meant to Susie. Sam said he is staying with Susie and will call Sluff if anything changes. They decided not to do anymore dialysis now, to make Susie comfortable. Sam said she'll be with Epoman again, and that's a good thing.
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May god bless Susie with a turnaround and a complete recovery. I'm hoping that things will improve for the better.
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Don't know what to say. Praying for a miracle for Susie. Praying for strength for Sam and Susies family.
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I don't know what to say. I can't believe it. I'm still praying for a miracle. :grouphug;
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OMG how can this be? >:( :( :'(
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It is sad to hear. :(
I hope things will improve for her and she will recover.
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This is the saddest news....... :'( :'( :'( Please, we need her!
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I don't even know where to begin expressing how I feel. Susie, you've got to get well...you're our PD expert...all the new members need your enthusiasm, all the veterans need your strength and smiles! :grouphug;
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Just found this (time difference here in UK). I am in tears (but that won't help) I will pray VERY hard, please God let us have our Susie back.
Praying for her family too.
:grouphug;
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i'm in shock can't quite believe it, hang in there susie we need you :grouphug;
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Just called the church and asked Goofy and the family be put on the prayer chain for a healing, asking God to comfort us here at IHD as well. :grouphug;
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I just don't know what to say. I remember the first post about this when she said she was scared as hell and my god didn't she have good reason to be. I just can't believe this is happening. Susie is the life and soul of IHD and I should imagine everyone else in her life. I'm hoping for a miracle Susie. :grouphug;
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i am devastated by this news.. my prayers are with susie and her family.
come on susie u can pull through this.. :grouphug;
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Come on Susie fight with all the strength you have. We all need you with us.
I will be praying you find a way to fight through this. :grouphug; :grouphug;
Keep strong Sam. :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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How very sad this news is to all of us here at IHD and to her loving family.
All we can now do is pray and know that it is now in the hands of the Lord.
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:(
I am praying too.
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It's soooooooo hard :banghead; :banghead; :banghead; :banghead;
GOD please help us....i know you can hear us
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I can't believe this please stay with us Susie :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
Susie, please don't go!!! We need you. Sam needs you, and little Xena needs you.
I cannot believe this at all! An infection, its source can't be found and it can't be fought??? And I cannot take it! Susie belongs with us, WITH US!!! Her humor, her style of writing...
I am praying for her recovery and with all the prayers being said, I know they can be heard. I surely hope the answer is yes.
Alene
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I don't really understand what is happening, and I suspect there has been some confusion of the real story in its successive transmission from the doctor to the patient and from the patient to our reporter and then to us. In the modern world of medicine with its systemic antibiotics, it is not necessary to find the source of the patient's infection to be able to treat it, since an i.v. dose of strong antibiotics will attack micro-organisms everywhere in the body. Yet despite this, for some unexplained reason, the doctors are acting as though their inability to pinpoint the exact source of the infection is an excuse to give up on the patient and recommend hospice care?! If they can control the pain with morphine, control the toxins with dialysis, and address the unlocated infection by systemic antibiotics, what on earth is the problem?!
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They shouldn't give up on Susie. They don't know how much we need her!! I just can't lose another dialysis friend!
Yet, I don't want Susie to be suffering and in pain. I hope and pray that she is comfortable.
Susie, Peace be with you~
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You are right, Stauffenberg--there is more. It is a series of events that has brought it to this level. I have been crying all day and now I just want to scream or hit something. The doctors have been trying to work miracles. Susie has been much sicker than she wanted anyone to know. She has been in so much pain, even with the morphine. I am sure more details will be posted later. I can't say how sad I am today. :'(
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:( :'(
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Can this day get any worse! First my day at dialysis was bad(seizure) my car almost dies and then gets stuck in the snow and now I hear about Susie! I am so saddened and upset, I hope some miracle comes upon her! :grouphug;
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I just saw this thread and it is so sad. Like others said Susie was everybody's friend. I really enjoyed the few chats I had with her. She is a very special person. :( :grouphug;
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Amanda just called me to tell me the shocking and sad news. I pray that a miracle happens and she pulls through I'm sending my thoughts and prayers through to Susie and family to give her strength to get through this..
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Goofynina would be so proud at the determination of her IHD family.
I would explain this in more details if I could but I by no means want to distort the truth. Unfortunately we have to except what is happening even though we don't want to believe it. The way the infection has grown all through her body faster then her cells can keep up to fighting it off. John explained it to me in medical terms and I am so sorry I cannot relay the information as I heard it, maybe when Karol talks to him she will be able to better explain it.
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Goofynina would be so proud at the determination of her IHD family.
I would explain this in more details if I could but I by no means want to distort the truth. Unfortunately we have to except what is happening even though we don't want to believe it. The way the infection has grown all through her body faster then her cells can keep up to fighting it off. John explained it to me in medical terms and I am so sorry I cannot relay the information as I heard it, maybe when Karol talks to him she will be able to better explain it.
Sluff buddy, you are doing a fantastic job keeping Susie's IHD family in the loop about what is going on with our dear girl.
I thank you from the bottom of my heart. I know how difficult this must be for you. You two are very close and you love her so much.
You are appreciated, my friend.
Many hugs
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I hate this....my heart is hurting for her family, and for her, and for me, and for all of us. :grouphug; :'( :'(
and Thanks Sluff and Okarol for letting us know what you can...
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Sluff, we don't need all the details. Thank you so much for keeping us updated. I am sure this is one of the hardest days you've had. Please know you are also in my prayers. Thank you for being such a faithful leader. I need to say it loud and clear how important this site and everyone here is to me. I truly would be lost without all of you. Now all our focus is on Susie and Sam. Thanks, also, Okarol for all the calls and emails you have been making. My love to all of IHD :grouphug; :grouphug;
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Sluff or Karol,
Please let us know more as you soon as you hear it. You have been so good to keep us all informed. Without you, we wouldn't know what was happening, and we wouldn't have the chance to say a prayer and/or send positive thoughts for our Susie.
Come on, Susie girl, hang in there! And, please God, hear our cries and bring our Goofynina back to us.
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hang in there susie, we're all praying for you. :( :'( :grouphug;
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Absolutely, thank you Sluff and Karol for keeping us informed.
Susie and Sam, we're all thinking of you and praying that you pull through this.
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I felt a sense of dread when I saw goofynina's name in all caps I hoped it was good but knew it was not. All my prayers and well wishes Goofynina. I am sorry you have to endure this.
Thank you for being real road warriors Sluff and okarol I know it is hard to have to deliver bad news.
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My eyes have a riiver behind them and they keep dripping and my heart
is so heavy tonight. I didn't realize Susie was so ill. This is sooooooo hard!
for everyone.
Thanks for keeping us updated Sluff and Karol.
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Still praying hard for you susie... :grouphug;
sluff and Karol. :cuddle;
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Her brother says she's got about 15 family members with her, she's been sleeping for hours.
I feel her so strong right now - I know she can feel all the love from this group.
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I was afraid to read your post Karol. Thank God she's still with us. My love and prayers remain with Susie and her family. :grouphug;
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Thanks Karol and Sluff :cuddle;
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I too want to say thank you Sluff and Karol.
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My thoughts and prayers are with you Susie. :grouphug; :grouphug;
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I just can't believe this is happening
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I too, remember her post about being scared as hell. Oh Susie I am so sorry this has happened to you.
Sounds to me like she may have MRSA (staff Infection) Antibiotics will not touch it And hospitals are a breeding ground for it.
My prayers are with you Susie and Sam. Susie honey, keep fighting as hard as you can.
:'( :'( :'( :'( :'(
All my love,
Mimi
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For our Susie, let's hold hands all together in spirit and say a prayer for her, for the best. we love you Goofynina.
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Thank you Sluff and Karol for keeping us up to date, and for PMs Karol. You two are having a tough time and we all appreciate what you are doing. Much love to both of you :grouphug;. Prayers for Susie and Sam and family.
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C'mon Susie...hang on there hon!!! We are all rooting for you so hard and you mean too much to too many people to leave us so soon. You are an amazing soul and the world needs you more than you know.
I'm sending you and your family strong, positive healing vibes during this trying time.
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Keep fighting. I'm pulling for you so hard. As much energey as I have for you right now. This is the time to NEVER WEAKEN !!!!!!!!!!!
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Prayers for Suzie and her family.
She is so loved by so many!
Anne
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i don't know if i can type this, i'm sitting here in tears. my problems are nothing compared to this. i have no words, i can only leave it in gods hands, it is at his will even though we may not understand.
sluff and okarol, i appreciate your keeping us informed.
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Thanks Sluff and okarol for the updates you are doing a fantastic job. :grouphug;
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Okarol and Kitkatz and Victor made the trip and are visiting Susie and her family. Susie is resting pain free with the morphine.
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Thanks Sluff for keeping us updated. Great that some of the IHD family have managed to visit such a well loved member. I am glad that Susie is no longer in pain, I do hope and pray for a miracle - wouldn't it be good to have her back. xxx
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We love you Susie! :grouphug;
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Thanks for the latest update , i keep checking due to the time difference here. Sleep is a great healer , so lets hope its true and i hope its good news tommorrow.
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Thanks for all the updates. It helps to think of her surrounded by so many who love her.
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We BELIEVE in miracles. With all of our prayers, love, and positive energy coming your way Susie, we are very hopeful for the best. To Kitkatz, Victor, and Okarol, thank you for visiting Susie, for bringing our love and concern direct. To Sluff, :grouphug; , you deserve it.
Alene and Rolando
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I'm glad she is resting and pain-free.
It is good that Karol, Kitkatz and Victor can visit her on our behalf.
:grouphug; to all.
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I just talked to Okarol and Kitkatz. They say that Susie is heavily sedated so she isn't in pain. She is surrounded by all her family and someone is always holding her hand, touching her face, rubbing her arm. Okarol said it was wonderful to see how much her family loves her. Okarol said there were 30 people there--old, young, everyone gathered around. I picture them as angels around our dear Susie, helping her through this. Okarol and Kitkatz are on their way home and feel comforted that they were there and were so accepted by Susie's family. I keep crying and praying. I am so extremely sad. All around the world, people love Susie and are praying for her. :grouphug; :grouphug;
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The outpouring of love lifts all who are affected by this. Susie brings many together by the love that she is.
May this love comfort all hearts and bring peace to everyone who is suffering.
This truly is a beautiful family. Thank you for all the updates.
:grouphug;
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:'(
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All around the world, people love Susie and are praying for her. :grouphug; :grouphug;
:grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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All around the world, people love Susie and are praying for her. :grouphug; :grouphug;
:grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
:grouphug; :grouphug; :grouphug; :grouphug;
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I just got back on, and just now found out about our Susie on hospice. This is hitting home.
Of all the people on IHD, for it to be Susie. It just isn't right. My heart hurts. I never met her,
but I felt so close to her. I join my prayers with everyone else. We love you Susie.
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For some reason my post didn't show up so forgive me if there is a duplicate that shows up. I can't believe what I have read in this thread. Susie is a :boxing; though and if anyone can make a comeback it's her. Sending out extra :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; and support to her, her family and our IHD family in this time of need. :'(
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Wow, I have just read this terrible news. I am speechless to say the least. Words can't express how sad I am right now. However, I know Susie.. and I know if she doesn't pull around back to us, she is anxiously awaiting Epomans arms,th arms of a dear friend to welcome her home. We love you Susie. :grouphug; :grouphug; :cuddle; :cuddle; :grouphug;
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Missing Susie's spirit so much in the threads. :'(
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Susie, :'( I am so saddened reading about you, I said a special prayer. Dear Lord, You know my friend Susie so much better than I do. You know her sickness and the burden she carries. You also know her heart. Lord, I ask you to be with Susie now, working in her life. Let your will be done in my friend's life. If there is a sin that needs to be confessed and forgiven, Lord, please help her to see her need and confess. Lord, I pray for my friend because your Word says I should pray for her healing. I believe you hear this earnest prayer from my heart and that it is powerful because of your promise. I have faith in you to heal Susie, but I also trust in the plan you have for her life. Lord, I don't always understand your ways, and why my friend has to suffer, but I trust you. I ask that you look with mercy and grace toward Susie. Nourish her spirit and soul in this time of suffering and comfort her with your presence. Let my friend know you are there with her through this difficulty. And may you be glorified in Susie life and also in mine.
Amen
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Amen. That was a beautiful prayer.
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Thanks for praying what the rest of us are feeling.
Amen!!
Mimi
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beautiful prayer, willieandwinnie. I say, "Amen."
Love and peace to Susie.
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Kathy,
That was a beautiful prayer. Thank you,
I think it spoke what all of us are thinking.
OCarol, Kat, you are truly angels :angel;
I know you brought the love of all the people
from this website with you!
Prayers from my heart are going out for Suzie,
hoping for good news here
Anne
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Thank you karol, kit and victor. For showing your love and support to susie and her family.
This is still a shock to us all, still hoping for that mriacle.
:grouphug;
Amanda
>:(
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I had heard from Okarol that our Susie took a huge turn in her situation. I am just at a loss for words. My prayers and thoughts are full time for Susie...Box
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Our dear sister Goofynina passed away today at 4:05.
She was surrounded by her loving family.
RIP Susie. :grouphug;
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:grouphug; :grouphug; :grouphug; to Sam and all of Susie's family.
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rest in peace susie. :'(
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May you Rest In Peace Susie
Love Ya Forever Girlie :grouphug; :grouphug; :grouphug; :grouphug; :'( :'( :'(
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She was a friend..be happy in heaven Susie.
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I'm at a loss for words.
My thoughts are with Sam and Susie's family during this difficult time. She has touched the lives of so many and will live on in our memories.
Rest in peace Susie.
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words can't describe how i feel we will miss you Susie :grouphug;
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:'( Rest in peace Susie. :grouphug;
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:'( :'( I am heartbroken.
Susie,
May you find peace and happiness. I will miss your love, support and most of all your wonderful wit. You touched my heart.
:grouphug; :grouphug; :grouphug;
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Oh, our dear sweet girl. You have done so much for this community and are loved by so many.
You will be missed and never forgotten.
We love you.
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I will never forget you :'( :'( :'(
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:'( :'( :'( :'( I'm sending all my IHD family :grouphug; :grouphug; as we ALL have lost a family member. May your Angel wings soar Susie
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:'(
Rest now, you are safe. :grouphug;
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You'll be missed, Susie. :'(
She's with her "suckafish" (Epoman), though.
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the world has lost one of the most caring and thoughtfull people I have ever had the chance to experience. My God this is so sad...Box
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I hate this part of participating in the online community ... I keep telling myself that it is better to know someone and loose them then to have never known them. It's small comfort tonight but it is our lot. Goofynina is with Epoman - she'll never be alone. RIP
I could have missed the pain but I'd of had to miss the dance
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This is a very sad day.
My sympathies to the families.
Susie's and the IHD family.
Chuck and Joannie
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:'(
I can not even begin to express how heavy my heart is after reading the lastest update. I am thankful that her pain and suffering is over... but she was taken far to early.
She has truly been an inspiration to all of us here and will be deeply missed by all. May all the wonderful memories help her family and us during this time.
Susie, what a beautiful person inside and out, it's been an honor to call you my friend. I will miss you.
I know Susie entered Heaven to open arms from Bill....
:angel;
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:'( :'( :'( EPOMAN and Susie, together. Thoughts and prayers for her family and us. We have lost a special friend.
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Oh, God our hearts are heavy tonight.
I will miss her words of encouragement, her wit and kindness.
I am so sad I did not get to go to LV so we could meet, and now
the opporotunity is gone, but am glad we meet via the inernet.
I feel so bad for Sam and the family.
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Goodbye My dear kidney sister :'(
Rest peacefully
CW
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She was so full of life, I can't believe she's gone. Thinking of her all day, sending prayers out on the waves. Bye Goofy.
http://oldbluewebdesigns.com/wonderfulworld.htm
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Susie was our angel here and now she is our guardian angel in heaven. Missed and loved by us all.
:grouphug;
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Goodbye, Susie. :grouphug;
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R.I.P. Susie :grouphug;
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Rest in Peace Susie.. You wont be forgotten :'(
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Goodbye Susie. You won't ever be forgotten. At least in the Kingdom of God there is no such thing as dialysis, disease, pain or suffering. Rest in peace, Goofy.
Adam
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Susie:
Amillion times we've thought of you, and a million times we've cried.
If our love alone could have saved you, you never would have died.
In life we loved you dearly. In death we love you still.
In our hearts you hold a special place no one else can fill.
It broke our hearts to lose you, but you didn't go alone,
A part of us went with you, the day that you went home.
We will miss you forever
My condolances to Sam, Susie's family, and to all the IHD family.
Forever in our hearts.
Mimi
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What a terrible loss for so many people who love Susie. It wasn't that long ago that she was having fun in Vegas - just so hard to believe we will no longer be able talk with her here. While it is good that she is out of pain and with Epoman and others that she loves, she has left too soon. Huge hugs to Sam and the rest of her family - and to everyone here too. :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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Susie:
Amillion times we've thought of you, and a million times we've cried.
If our love alone could have saved you, you never would have died.
In life we loved you dearly. In death we love you still.
In our hearts you hold a special place no one else can fill.
It broke our hearts to lose you, but you didn't go alone,
A part of us went with you, the day that you went home.
We will miss you forever
My condolances to Sam, Susie's family, and to all the IHD family.
Forever in our hearts.
Mimi
That's beautiful Mimi. Thank you.
Adam
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Bye my friend :grouphug;
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Goofynina,
we have not met, yet I crumble when you go.
the love you share knows no boundaries,
it hasn't been said but it was felt through my soul.
Thank you for all your posts, for the knowledge you impart,
and most of all for the courage to face life.
You are an inspiration and will always ever be, always in my heart, in our family.
In one of your post you said that EPOMAN better put on some good words for you to GOD. He surely did.
GOD loves you so dearly that HE ended up all your physicall sufferings.
My love goes to your family and especially to your husband, your rock.
Till we meet again.
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well said mimi and cris.
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Sweet dreams forever, Susie.
:grouphug;
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I will miss Susie so much. She was always willing to listen. She will never be forgotten. I'm glad she has Epoman and the others that have gone on before us on this wonderful site.
Thank you Kit, Karol and Sluff. :grouphug;
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Goofynina,
RIP
:-*
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I hate this part of participating in the online community ... I keep telling myself that it is better to know someone and loose them then to have never known them. It's small comfort tonight but it is our lot. Goofynina is with Epoman - she'll never be alone. RIP
I could have missed the pain but I'd of had to miss the dance
This hurts so bad.
We were so looking forward to meeting Susie in Las Vegas in October, but then we couldn't go. And then, we were hoping to meet her in CA during our trip last month, but then came the surgery and she wasn't feeling so good so we felt it inappropriate to go to Fresno. Who knew that that would be our last chance here on earth...
:'(
Sam, Mom, and all of Susie's family including us here at IHD, you have our deepest condolences. Susie is missed.
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I'm deeply saddened to discover she's gone. You could tell she always had an amazing energy when she responded to people's posts offering encouragement and hope.
She is now in a much better place where Dialysis can no longer harm her.
Rest in peace and Godspeed.
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I was scared to log on this morning (UK 6.30 a.m.) and my worst fears have been realised. I echo what everyone has said, particularly Mimi and Cris.
Susie was such a beautiful, warm lady, she will be deeply missed but her legacy will live on, her words of help and comfort will forever be on these pages. I pray for Sam and Susie's close family and also for her extended family here on IHD. Many of you have known her longer than I and your loss is greater. God bless you Susie R.I.P. free from pain. :grouphug;
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Rest in peace Goofynina :angel;
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I was afraid to look this morning. My worst fears have been realized.
Our sister Susie is gone. We love you, Susie. Rest in peace, thiere
is no more pain, no more dialysis.
My condolences to Sam, her family, and extended friends, of which
there were so many. Susie is/was an amazingly loving person. She
was so full of life, everyone was her friend.
Till we meet again, may God be with you.
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I am so sad to hear of Goofiynina's passing. She was such a wonderful part of this community. I pray for comfort to her family during this time. She did so much for all of us here on the site.
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I am shocked and saddened to read what has happened this morning. Although i never met this wonderful lady,she holds a special place in my heart.My deepest sympathy to all her family.
R.I.P Susie.
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Our dear sister Goofynina passed away today at 4:05.
She was surrounded by her loving family.
RIP Susie. :grouphug;
I think this is the first time I have ever cried for an internet friend, one so far away and whom I have never event met in person.
Dear Susie - please RIP. You are pain free and dialysis free. Thank you for just being on IHD.
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May everlasting love and peace be with you Susie. You will be forver loved and missed. We can take comfort in knowing we have a beautiful Guadian Angel who will be watching over us. :grouphug;
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I don't even know what to say. I am totally devastated. I can't believe my girlfriend is gone. I can't talk nonsense with her on Yahoo anymore, filling our chats with those silly audibles. I called her number yesterday and got her voice message. Hearing her voice was bitter-sweet. Please thanbear with me. I am just rambling, because I am so messed up inside. I had hoped to be able to speak with her. I didn't know she was going so soon. But this morning I was a bit apprehensive because of something Sluff said yesterday. He said the nurse said that hearing is the last thing to go. That made me feel the end was near.
Susie, Goofynina, Girlfriend, I miss so so much. I accept that the Lord knows best. But I still feel the pain. You and I talked so much about some day meeting and getting to hug each other. But I always hugged you in my heart. I am so glad that your family was with you as you left us. That is a proper way to go for a caring people-person like you. But then, you are royalty!! I will love you forever. The "Vegas Princess" cup you sent me has become even more precious than it always was. Rest In Peace, Girlfriend.
To all the grieving IHD family: Please let us honour the memory of Goofynina and Epoman by making sure this site goes on from strength to strength. Let us continue to be a tightly-knit caring, sharing and loving family.
Thanks so much, Sluff! I only just saw the picture of Epoman and Goofynina that you put up. It was comforting to see them together and so alive! [Is there any way that this picture could become part of our website where we can always see it?]
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so sad, so sorry . . . . .
It was love at first post with Goofynina: When I first came to IHD, her posts just about jumped off the screen at me, filled as they were with warmth, light, and laughter, and she was a big part of what got me involved here. I feel privileged to have known her even for such a short while; what a shame to lose her so soon.
Goodbye Susie, and (as she would say) Godspeed my friend.
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wow! just found out and I'm speechless. :'( Susie will be missed, she was LOVED big time here at IHD. I will miss those big ole Goofyninas hugs she kept throwing my way. :cuddle; God Bless you
Susie RIP.
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I have always known that the one thing in life we can count on is death, but that doesn't make it any easier when it happens. I know I was fooling myself when I thought I would sign on toady and hear good news about Susie's condition but that is what I was hoping for most. I am very sadend by her passing but am glad that her pain and suffering is over and a new life can begin. My love and sympathy go out to Sam, Susies's family and friends and our IHD family. We have all lost someone very special in our lives and she will be missed.
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As soon as I get the funeral arrangement information I will post it right away.
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Rest well Susie and enjoy your wings. Have a peek down at us from heaven once in a while and know we're looking back up at you. Thank you for sharing so much of yourself while you were here.
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Rest in peace Susie. I dreaded coming on the site today because I was afraid I would see this news. This is so sad but at least Susie is no longer in pain.
My sincere condolences to Sam and the rest of Susies family including the IHD family.
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Be in peace Susie...know you've made a difference in so many lives...and that you were loved unconditioinally.
My deepest sympathies to Sam and the family.
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I am completely stunned, and do not have the adequate words to describe my sadness at the news of Susie's passing.
RIP dearest Goofynina!
My sincerest condolences to Susie's family.
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Sluff, not sure where to post these so please move if needed.
Photos Susie had shared with me.
3 amigas, friends in 2000 and her wedding with Sam.
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Karol, thank you for posting those photos. She is beautiful.
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The pictures are wonderful!
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My God, until this thread I didn't even know her name was Susie! In the short time I've been with IHD she was very kind to me and many, many others. So welcoming, loving and, well um...goofy! :) God Bless her and God Bless her husband, Sam. I will miss her. :'(
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Thanks for the pictures Karol :thumbup;
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Great pictures Karol.
Sam (Boston) if you read this I want you to know that Susie worshipped the ground you walked on :angel; ..well maybe not worshipped..( a little Goofynina humor) and she could not have found a better man. When we met in Las Vegas the Love you have for each other was so visible to the outside world. Watching as you unloaded those supplies and set her machine up and then break it all down again for a two day journey really takes someone special and requires that special love between two people that most never find. What a testament to all those caregivers in the world, God bless you all for being there through thick and thin. I know you are hurting and if we all miss Susie this much, I just can not imagine how bad you must be hurting to have lived day in and day out with such a loving person as she is. Please accept this as my condolence and know that I am only a phone call away and am available to talk anytime day or night.
We all loved your Susie so much, thank you for sharing your soul mate, your wife and at times your time to allow her to help those that needed her when perhaps it didn't always fit in to your schedule.
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Great pictures Karol.
Sam (Boston) if you read this I want you to know that Susie worshipped the ground you walked on :angel; ..well maybe not worshipped..( a little Goofynina humor) and she could not have found a better man. When we met in Las Vegas the Love you had for each other was so visible to the outside world. Watching as you unloaded those supplies and set her machine up and then break it all down again for a two day journey really takes someone special and requires that special love between two people that most never find. What a testament to all those caregivers in the world, God bless you all for being there through thick and thin. I know you are hurting and if we all miss Susie this much, I just can not imagine how bad you must be hurting to have lived day in and day out with such a loving person as she is. Please accept this as my condolence and know that I am only a phone call away and am available to talk anytime day or night.
We all loved your Susie so much, thank you for sharing your soul mate, your wife and at times your time to allow her to help those that needed her when perhaps it didn't always fit in to your schedule.
Oh Sluff. . . . Buddy, that was a beautiful testament to our Susie. We all know how much she loves Sam. Thank you for sharing.
xoxo
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:banghead;
How could this happen to such a fun loving person. Her spirits were always so high. Rest in peace Susie and thank you for making the lives of all the IHD community brighter!
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Sluff you started my waterfall all over again :'( you are so AWESOME. Sam there are no words to express how much I treasured Susie. Your IHD family will ALWAYS be there for you.
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I am right now in the classroom where I tutor students. I just gave my student a poem to do a Poetry Comprehension. I can't believe that this poem turns up today!
SWEET FAREWELL
Oh lovely rose
Quintessence of beauty
Only yesterday
You danced in the whispering wind;
Today,
Cupped in my hands
Are your golden petals
Your destiny and mine
Forever locked in sweet embrace
O blossom sweet
Today,
You smile,
Tomorrow,
You weep
And like a flash of lightning
In one fleeting breath
Sink into time's
Ceaseless ocean
Only a vision
Only a memory
Is it for this
Our sweet lives grow
Blossom, flourish
Perfume the world
With our sweet fragrances?
Only the glory of our lives
Only the beauty of our souls
Remain imperishable.
(Royards unpublished)
[Trying hard not to cry in front of my student]
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Great pictures Karol.
Sam (Boston) if you read this I want you to know that Susie worshipped the ground you walked on :angel; ..well maybe not worshipped..( a little Goofynina humor) and she could not have found a better man. When we met in Las Vegas the Love you have for each other was so visible to the outside world. Watching as you unloaded those supplies and set her machine up and then break it all down again for a two day journey really takes someone special and requires that special love between two people that most never find. What a testament to all those caregivers in the world, God bless you all for being there through thick and thin. I know you are hurting and if we all miss Susie this much, I just can not imagine how bad you must be hurting to have lived day in and day out with such a loving person as she is. Please accept this as my condolence and know that I am only a phone call away and am available to talk anytime day or night.
We all loved your Susie so much, thank you for sharing your soul mate, your wife and at times your time to allow her to help those that needed her when perhaps it didn't always fit in to your schedule.
Sluff.... {{{{{HUGS}}}}}} :cuddle;
That is beautiful.
I have always thought Susie and Sam were true soul mates. Thank you Sam for sharing your special girl with us. xoxox
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That's how I remember her. That beautiful smile. And she loved Sam so much.
Thank you Karol, for the pictures. It's good to see her in happier times, and to know
she is happy, the happiest she can be, she's safe now.
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I am right now in the classroom where I tutor students. I just gave my student a poem to do a Poetry Comprehension. I can't believe that this poem turns up today!
SWEET FAREWELL
Oh lovely rose
Quintessence of beauty
Only yesterday
You danced in the whispering wind;
Today,
Cupped in my hands
Are your golden petals
Your destiny and mine
Forever locked in sweet embrace
O blossom sweet
Today,
You smile,
Tomorrow,
You weep
And like a flash of lightning
In one fleeting breath
Sink into time's
Ceaseless ocean
Only a vision
Only a memory
Is it for this
Our sweet lives grow
Blossom, flourish
Perfume the world
With our sweet fragrances?
Only the glory of our lives
Only the beauty of our souls
Remain imperishable.
(Royards unpublished)
[Trying hard not to cry in front of my student]
Awww man... can I ever stop crying?? That is beautiful, and perfect for goofynina.
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I know I need to post--------------- I just can't yet. :'( :'( :'( :'( :'(
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I somehow knew that there would be bad news when I logged on.. such a short life for a very loving derserving woman. What makes me smile, is as I said before, she is now home, she is with her greatest of friends Epoman, and is no longer in the claws of dialysis and pain. May you rest in peace Susie, along side your loved ones watching down on the rest of your loved ones and many other's who love you with all our heart.
R.I.P Susie, you shall forever be in my heart. :grouphug; :cuddle;
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After reading what everybody ellse has posted I don't know what else to say. You guys have said it all. I really enjoyed the few times I chatted with susie in the chatroom. She was everybody's friend. Our heartfelt condolences to Sam, her family and friends. :grouphug;
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I feel so fortunate to have known Susie through this site.
She made a valiant effort living with this disease and is a wonderful example for us all.
I'll be having a special toast to you tonight Susie, and prayers for your family.
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I signed onto the site just recently and didn't have the chance to converse with Susie. However, I did read a lot of her posts before I joined. She always brought a smile to my heart and encouragement when I needed it most. My heart goes out to Sam, her mom, her brother, friends, and all of the IHD family.
Rest in Peace Susie. :grouphug;
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So so sad to read we have lost Suzie.
Her posts were the first ones I read on this
site when I was just lurking, and trying to
learn about this terrible trhing that happened
to my husband.
Her humor, sweetness and loyalty were really
something!
Please rest in peace, Suzie- All of us along with
Sam and your family are gonna miss you so much!
Anne
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I am speechless, :'(
My thoughts and prayers are with Sam and family
RIP Nina, you will be missed more then you will ever know, you were so positive... :'( :'(
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I am absolutely stunned.....can hardly read posts thru my tears.
We have lost a beautiful friend. Her words always made me laugh.....
kelli
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Every message in this thread is an out pouring of love and friendship, returned as received from Susie. Everyone special and unique, but no less meaning no matter how simple or well articulated. Susie is smiling down on all of us as she receives her heavenly rewards so justifiably earned.
Bajanne, That poem is so fitting, very special and powerful.
You are all special.
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OMG - I just got done reading this thread. I am so shocked, sad, crying, don't understand how this could have happened. Goofy's posts always stood out to me when I was a major lurker trying to learn about what I was going to go through with dialysis. Her posts were funny, friendly, caring, full of information, and everything else that the IHD family has said above me.
Sluff you posted a beautiful tribute to her and there isn't much else to say after reading that.
Not really much more one can say that hasn't already been said - everyone loves Susie and she will be remembered forever.
Much love to Susie's family.
Sandyb :grouphug;
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A couple of weeks ago I picked up several get well cards so I could sent Goofynina once every couple of days.
I came across one of those musical birthday cards, and was so excited because it played What a Wonderful World by Louis Armstrong.
I crossed out the birthday greeting and sent it to her, she got it and was so happy, according to her mom.
Here are the lyrics, I too will forever associate them with Susie.
"What a Wonderful World"
I see trees of green, red roses too
I see them bloom, for me and you
And I think to myself, what a wonderful world
I see skies of blue, and clouds of white
The bright blessed day, the dark sacred night
And I think to myself, what a wonderful world
The colors of the rainbow, so pretty in the sky
Are also on the faces, of people going by
I see friends shaking hands, sayin' "how do you do?"
They're really sayin' "I love you"
I hear babies cryin', I watch them grow
They'll learn much more, than I'll ever know
And I think to myself, what a wonderful world
Yes I think to myself, what a wonderful world
Oh yeah
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Karol - that is one of my absolutely all time favorite songs. The line I like the most is "I see friends shaking hands, sayin' "how do you do?"
They're really sayin' "I love you""
That is certainly what happens on the support boards/forums including this one. And is true now more than ever.
Take care.
Sandyb :grouphug;
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A couple of weeks ago I picked up several get well cards so I could sent Goofynina once every couple of days.
I came across one of those musical birthday cards, and was so excited because it played What a Wonderful World by Louis Armstrong.
I crossed out the birthday greeting and sent it to her, she got it and was so happy, according to her mom.
Here are the lyrics, I too will forever associate them with Susie.
"What a Wonderful World"
I see trees of green, red roses too
I see them bloom, for me and you
And I think to myself, what a wonderful world
I see skies of blue, and clouds of white
The bright blessed day, the dark sacred night
And I think to myself, what a wonderful world
The colors of the rainbow, so pretty in the sky
Are also on the faces, of people going by
I see friends shaking hands, sayin' "how do you do?"
They're really sayin' "I love you"
I hear babies cryin', I watch them grow
They'll learn much more, than I'll ever know
And I think to myself, what a wonderful world
Yes I think to myself, what a wonderful world
Oh yeah
Thats her song in my heart-
Goofy was the first person in my entire life who 'got it' when I talked to her about my weight....her understanding was a great gift- I will never forget her- My heart is hurting for her husband and family, even though I never met Sam, I felt the love when she talked about him (posted ), his heart must be so broken :'(
I know she could not have loved him more,and I am so glad she was so loved in return. I am so glad she was so special to all of the people here at IHD. I will miss her .
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This song was played at my best friend's funeral (friends since the 5th grade-did everything our whole lives together) then played at my daughter's wedding for their bride and groom's first dance. My daughter was named for my friend. Susie and I referenced it several times in posts----so even today, with tears still flowing and my heart breaking---- "I say to myself, what a wonderful world". :grouphug;
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Something over the past few days has been making me think of all you guys, but mostly mah favorite girl GoofyNina. She was such a wonderful, funloving, brave and hilarious person. How heartbreaking to come here and find out. You are all, more than ever, in my thoughts and prayers.
xoxoxoxo
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When I first joined the site and started exploring I found this thread. It was my introduction to Goofynina. The only thing I could think as I read this post was that I could feel the love Goofynina had for Epo. I know most of you have probably seen this one but I could not resist I had to revisit it.
http://ihatedialysis.com/forum/index.php?topic=3034.0
Thank you Goofynina for helping me admire and respect a man I never met.
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Finally, I am here on line. I was so tired last night when we got home at 9p.m. I could not check in here and had to sleep. Up almost 48 hours. Then I had work and dialysis today!
We had a nice ride up to Fresno. My husband is a God send because he drove the entire way there and back. We picked Karol up at her home and set out to see Goofynina. Not real sure of the reception we would get by a beginning to grieve family. When we arrived a 2a.m. in the morning, that family was warm and gracious to us. They accepted us s part of Goofynina's family. We sat with them until 2p.m. in the afternoon beside her in the room. I watched a multitude of people who loved Susie come in and out of the room. Memories of her were shared, we would laugh, quiet would come over everyone. We would look towards her. Then someone else would share. Her family loved her and she brought them together. There are going to hearts missing a friend all over from now on. I think Susie knew we were there, she got fairly agitated when Karol and I spoke to her. She was already in a comatose state but her family stated that she could hear us. In my sorrow I am glad we made the trip to see her. I was super angry at God and the unfairness of it all, however when i saw the family's acceptance of her leaving this earthly life, it soothed my anger.
I am so glad she was loved right until the end of her life. To Susie's family, you all are something special! To Sam, I know she loved you with all her heart and life.
Susie had heart!
kitkatz,moderator
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i too didn't turn my computer on yesterday, i almost wish i hadn't tonight. hopefully tears won't ruin the keyboard, cause it's gettin wet. susie and i e-mailed a lot. she sent the funniest and the sweetest stuff. it hasn't settled in yet that i won't be getting any more. the following does however come to mind, from one susie to another.
May the road rise up to meet you.
May the wind be always at your back.
May the sun shine warm upon your face;
the rains fall soft upon your fields and until we meet again,
may God hold you in the palm of His hand.
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God Bless you Susie, you are loved by all.. Until we meet again, my friend....
Walking Her Home
http://www.youtube.com/watch?v=PVZiWTmKNc0&feature=related
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Last year, when I had a cloud of dread and darkness hovering over me, I met this woman, Susie, and she was a ray of sunshine.
Quickly as I came to know her, I discovered that she had this unlimited capacity for love. From her computer in her home in Madera, she traveled the world, touching lives far far away, me in New York, others in Canada, England, the Caribbean, Australia and all over the United States.
As I got to know Susie, I found that this was common. She loved her husband so much, she married him three times. Susie saw the best in people. In the children that she cared for in her Day Care Centers – to her loving family who were always at her side. I remember one night when we were speaking on the phone and she’d say “here, say hi to my mom” and she’d hand the phone to her mother. Susie wasn’t shy about using the telephone and she wanted everyone in her life to know each other. Susie shared. Susie was easy to love because she had such capacity for love.
When I finally “met” Susie in Las Vegas, she was a vision in a purple boa, tiara and sash. What joy she brought when she walked into the room, the strength of a hug, the sound of her laughter, the depth of her compassion. Susie touched my life, and I am so happy to have known and loved her.
Her words are silenced now, and she lives on in our memories and our hearts. In that sense, the love that she brought into our world will live forever.
I miss you Susie, you left us too soon.
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Last year, when I had a cloud of dread and darkness hovering over me, I met this woman, Susie, and she was a ray of sunshine.
Quickly as I came to know her, I discovered that she had this unlimited capacity for love. From her computer in her home in Madera, she traveled the world, touching lives far far away, me in New York, others in Canada, England, the Caribbean, Australia and all over the United States.
As I got to know Susie, I found that this was common. She loved her husband so much, she married him three times. Susie saw the best in people. In the children that she cared for in her Day Care Centers – to her loving family who were always at her side. I remember one night when we were speaking on the phone and she’d say “here, talk to my mom” and she’d hand the phone to her mother. Susie wasn’t shy about using the telephone and she wanted everyone in her life to know each other. Susie shared. Susie was easy to love because she had such capacity for love.
When I finally “met” Susie in Las Vegas, she was a vision in a purple boa, tiara and sash. What joy she brought when she walked into the room, the strength of a hug, the sound of her laughter, the depth of her compassion. Susie touched my life, and I am so happy to have known and loved her.
Her words are silenced now, and she lives on in our memories and our hearts. In that sense, the love that she brought into our world will live forever.
I miss you Susie, you left us too soon.
I hadn't cried about Susie until I read your post, so now I'm sitting here crying :'( :'( :'( :'( :'(
Beautiful Words and Description of a Beautiful Lady :grouphug; :cuddle; :grouphug;
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I am so deveastated, jeez where do I start? To Sam and her family my deepest sympathy and codolences. Susie was an inspiration to us all. I too in my lurking days used to especially look for Goofynina posts. Her kindness, generosity of spirit and her hilarious sense of humour were spellbinding. So many of us have never met her and damn well wish we had had that honour but even so we all knew and loved her though her posts and work for IHD. I did speak to her once on the phone around the time of the Vegas meeting and I'll treasure that memory.
I think the thing that struck me the most about her apart from her genuine concern she had for us was how overjoyed and grateful she was when any of us showed concern for her. Susie I wish you could read these posts but really you don't have to because you must have known already how much we all love you. Rest in Peace Susie, we'll never forget you. :grouphug;
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Finally, I am here on line. I was so tired last night when we got home at 9p.m. I could not check in here and had to sleep. Up almost 48 hours. Then I had work and dialysis today!
We had a nice ride up to Fresno. My husband is a God send because he drove the entire way there and back. We picked Karol up at her home and set out to see Goofynina. Not real sure of the reception we would get by a beginning to grieve family. When we arrived a 2a.m. in the morning, that family was warm and gracious to us. They accepted us s part of Goofynina's family. We sat with them until 2p.m. in the afternoon beside her in the room. I watched a multitude of people who loved Susie come in and out of the room. Memories of her were shared, we would laugh, quiet would come over everyone. We would look towards her. Then someone else would share. Her family loved her and she brought them together. There are going to hearts missing a friend all over from now on. I think Susie knew we were there, she got fairly agitated when Karol and I spoke to her. She was already in a comatose state but her family stated that she could hear us. In my sorrow I am glad we made the trip to see her. I was super angry at God and the unfairness of it all, however when i saw the family's acceptance of her leaving this earthly life, it soothed my anger.
I am so glad she was loved right until the end of her life. To Susie's family, you all are something special! To Sam, I know she loved you with all her heart and life.
Susie had heart!
kitkatz,moderator
Thank you to you and Karol for including me in your visit. Karol held the phone to Susie's ear and it gave me a chance to tell her how much I and the members of IHD love her and how she would be missed. I truly love you all here at IHD, and I knew how much she loved us all, and I needed her to know that.
God Bless you Susie, you are loved by all.. Until we meet again, my friend....
Walking Her Home
http://www.youtube.com/watch?v=PVZiWTmKNc0&feature=related
Thank you Kathleen for posting such a nice song and video. Susie had a way of making us all feel 10 feet off the ground when she visited with us .
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>:( >:( >:( >:( :banghead; :banghead; :banghead; :banghead;
This is just too crazy and sad off course. Here after a very hectic week, I log on to find this thread and I thought What in the world. Susie was always there for me no matter what. I felt bad I couldn't go to Vegas. Now it bothers me I won't see her. I feel so much for her family and I don't know what to say but how very sad and sorry I am that this has happened.
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I havent been on lately cuz Ive been busy with school and all. So I come on here and hear about goofynina.......... Im shocked!! She has always been the firswt person to write after I posted something, and even tghough Ive never met her in person, this feels like a family loss.. Being young and on dialysis its nice to know that whenever your not feeling good and have to get somethiung off your chest that I could count on her to write back almost immediately and offer some kind words.. So I will miss her a lot!! I dont have any details on what arrangements have been made funeral wise. So if you all could let me know whats going on and if there is anything I can do to help I would do whatever is needed thanks...Matt :'(
EDITED: Merged threads - Sluff/ Admin
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Sluff has posted the funeral details, if you type funeral into the search it will come up (sorry I can't remember the link). It's hard to lose her isn't it, even though like you I never met her I always felt as if I knew her. Look after yourself and keep posting, it's what she would have wanted. :cuddle;
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Here ya go Matt. http://ihatedialysis.com/forum/index.php?topic=7019.0 :grouphug;
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Memories of Susie:
I see in my minds eye this lady with a purple boa around her neck. She has a sash that says Drama Queen. I had sent her to the drugstore in Vegas for that one. She is wearing a tiara and a button that says Queen of the entire F**ing Universe. She has a smile on her face and a hug for everyone. She would flip the boa back around her neck and get anyone sitting near her with a feather or two. The feathers would rip off of the boa and you could follow them from the elevator to her room. It made me laugh to follow a trail of feather sin that hotel in Vegas.
I see her and JillD taking a shot of Tequila in the hotel room. They both were almost in tears from it. Laughter.
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My heart is hurting. Even though I never personally met Susie, I felt close to her. I looked up to her like my big sister. She was one of the first person to greet and provide me advise about PD. I feel as I owe her my knowledge of PD.
Thank you Susie where ever you are. Until we meet again in God's heaven. :angel;
My love and prayers.
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I was in the grocery store today and on their muzak was James Taylor's "Fire and Rain". I must have looked like an indecisive idiot standing in front of the yogurt case for the duration of the song because I couldn't focus to make a decision on a flavor. :-\ The problem is, I never got to see her even the first time...I sure would have loved the chance to meet her.
Just yesterday morning they let me know you were gone
Susanne the plans they made put an end to you
I walked out this morning and I wrote down this song
I just can't remember who to send it to
I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you again
Won't you look down upon me, Jesus
You've got to help me make a stand
You've just got to see me through another day
My body's aching and my time is at hand
And I won't make it any other way
Oh, I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you again
Been walking my mind to an easy time my back turned towards the sun
Lord knows when the cold wind blows it'll turn your head around
Well, there's hours of time on the telephone line to talk about things
to come
Sweet dreams and flying machines in pieces on the ground
Oh, I've seen fire and I've seen rain
I've seen sunny days that I thought would never end
I've seen lonely times when I could not find a friend
But I always thought that I'd see you, baby, one more time again, now
Thought I'd see you one more time again
There's just a few things coming my way this time around, now
Thought I'd see you, thought I'd see you fire and rain, now
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Very nice KT. :grouphug;
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I didn't get to know Goofynina well, but I had the impression of a brassy lady with a lot of heart - I can tell she will be missed tremendously. I love that James Taylor song too - very fitting.
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KT,
That was perfect for our girl. Thank you.
xoxo
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I went to the chapel's website and lighted a candle on behalf of Susie. She and Sam looks so good together. I really feel as I have lost a close family member. I will miss her great humor in life.
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I will not die an unlived life.
I will not live in fear
of falling or catching fire.
I choose to inhabit my days,
to allow my living to open me,
to make me less afraid,
more accessible,
to loosen my heart
until it becomes a wing,
a torch, a promise.
I choose to risk my significance;
to live so that which came to me as seed
goes to the next as blossom
and that which came to me as blossom,
goes on as fruit.
fully alive - dawna markova
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wow.............
i am incredibly moved by those words, kitkatz...
love,
kelli
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Awesome words on how to live a life.
Mimi
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I haven't been on here for a few days.. well maybe a week... and I'm really shocked and feel quite stunned at this news.
Goofy was lovely.. and to think she was just 40.... *sigh* this just reminds all of us how cruel this disease can be and how it can stuff us out LONG before we are due.
My sincere condolences to Sam and everyone else effected by the loss of one of IHD's best.
RIP Goofy. I'll miss you.
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Perfect words for our Goofy, Kit. Thank you.
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Kit --
I absolutely love that poem by Dawna Markova. I taped it to the front of my lesson plan book a couple of years ago so I could see it every day. It's a true inspiration for a teacher, but it's extremely appropriate for Goofy, too.
Thanks for sharing it and letting me re-read it. Its words and message are strong.
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What amazing words. If only the whole world lived with such kindness and openness as Susie
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I never knew you, but from what it sounds like, I would have liked you. So many people thought so highly of you-obviuosly there is a reason.
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Rest in Peace Susie. My condolences to Sam and the rest of her family.
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I am so, so very sorry to hear about our dear Susie. :'( Sam, as difficult as it is for you right now, I hope you are able to take a little comfort knowing how immensely Susie loved you and was so proud of you. I lost my husband last year (he was the one on dialysis) so if I can help at all as far as lending an ear, or sharing what unfortunate knowledge I have acquired through this process, I hope you feel free to email me.
Sam, you and Susie, and both of your families, and everyone here on IHD will be in my thoughts and prayers as we all try to function during the difficult time.
Again, I am so very sorry. Susie really made this place and was just a beautiful and loving person anyone would be honored to know.
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God Bless you Susie, you are loved by all.. Until we meet again, my friend....
Walking Her Home
I've been hearing this song quite a bit on KLOVE Radio Station, and I always cry when I hear it, because it reminds me of June 1, 1980 when my Mother Passed away. Now it will also serve to remind me of our Lovely Goofynina!
Heavenly Father,
We don't know why you chose to take our beloved Goofynina home, but you do. All I ask now is that You place your loving arms around those of us who are left behind to mourn the passing of Goofynina. Lord, especially show your love and mercies to those of her direct family that were left alone by this sudden death.
In the name of Jesus, we pray this prayer.
:grouphug; to all of you reading this!
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God Bless you Susie, you are loved by all.. Until we meet again, my friend...
Heavenly Father,
We don't know why you chose to take our beloved Goofynina home, but you do. All I ask now is that You place your loving arms around those of us who are left behind to mourn the passing of Goofynina. Lord, especially show your love and mercies to those of her direct family that were left alone by this sudden death.
In the name of Jesus, we pray this prayer.
:grouphug; to all of you reading this!
Amen
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This song was played at my best friend's funeral (friends since the 5th grade-did everything our whole lives together) then played at my daughter's wedding for their bride and groom's first dance. My daughter was named for my friend. Susie and I referenced it several times in posts----so even today, with tears still flowing and my heart breaking---- "I say to myself, what a wonderful world". :grouphug;
Yesterday I was watching the basketball all star skills contest from New Orleans on TV. At the break in the middle they had a live performance - it was Dr. John singing "What a Wonderful World!" I jumped up, ok Susie, I thought, I know you're there. I was laughing and crying. That girl will always be near me, I just feel it.
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I started going through all of Susie's post's tonight (it's gonna be a long night :) ) and this one just stood out for me
http://ihatedialysis.com/forum/index.php?topic=556.msg3928#msg3928
I am not too sure which category this should or will fall in but i was thinking, We are so afraid that this disease is going to kill us but what we should be worried about is some of the small stuff that even healthy people need to worry about, such as, getting bit by a mosquito, contacting the bird flu, getting into a car accident, stuff like that. When it is our time to go, we are going to go no matter which way, it isnt necessarily going to be from dialysis people. I know it sounds dumb but i just had to get it off of my chest. Don't spend what time you have left wondering when and how your going to die cuz there is a good chance that it may not even be from this disease, i know the odds are against us anyways, but says who??? NOT ME!!! I am going to live everyday to the fullest and treasure what time i do spend here. I am tired of being so down and depressed, only I can change how i feel about my life and the way i live it. The way i see it, God gave me a second chance and i am happy He did. Transplant or no transplant, I am alive today and i look forward to tomorrow... i hope all of you learn to too.
I moved this thread from "Transplant Stories" to "General Disscussion" I think the post deserves it's own thread. It will make a very good discussion. :)
- Epoman
Owner/Admin
Beautiful Photo too :'(
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Thanks for posting that Tamara.
Im going to miss reading her posts. :'(
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:thx; Tamara. I have been re-reading her posts also. What wonderful humor.
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I have been here only briefly a few times in the last few months but today I felt compelled to make myself sit down to check on IHD -- such devastating news! She will be missed by all who knew this bright, vibrant, tender-hearted and funny woman. My condolences to everyone. :'( :'( :'(
I do not doubt that she and Bill will greet each other with open arms.
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I will not die an unlived life.
I will not live in fear
of falling or catching fire.
That's exactly what Susie's saying in her post that Tamara quoted. I'm going to print it out and try to remember every day the lesson she was teaching with the way she lived her life.
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I am VERY sad. A great loss....
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I am so sad, I hadn't signed on in a while and I just saw this. What a tremendous loss. Susie was one of the reasons I came to this site, and one of the reasons I stayed. I can only hope that she is happy where she is and that she's at peace. I'll miss her more than I can say.
This is so freaking hard, watching the people you really care about go. I don't know how you stand it for years and years. I've only been on dialysis 14 months and I just can't stand this. It is just sooooo sad. :grouphug;
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She was a great person to talk to & I will miss her posts on IHD. She was always a support. My thought go out to her family.
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Oh my goodness, I have been away too long since my laptop is down. I usually check on this and post while on dialysis myself. I knew I had been away too long. I am very sad, she had such a great spirit. I used to love to read her comebacks and the banter bewtween her and many of us. Bless her now and to her whole family. It must be very hard for them right now. Again, I amd sorry to hear this, and my heart and prayers go out to her family.
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(alene writing)
Some have posted that they are rereading Goofynina's posts. For me, it is too soon. Susie has been taken from us way, way, way prematurely and it hurts. But, in a funny way, although gone she's not gone. Susie is immortalized in her posts. After a while, I too will go back and read her posts and there will be comfort there. Even now, I will run across a thread and find that Susie had the most recent post. Reading it will make me smile.
I am so very happy that she made it to Las Vegas.
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I keep meaning to post how grateful I am to KitKatz and Victor. On Wednesday night I was sitting at home, sick with worry about Susie. Kit called the minute she got home from dialysis and said "Victor is willing to drive. Do you want to go up to Susie's?" I said "Really?? You're crazy." She said, "I know. Wanna go?" They made some calls to straighten out her work for the next day, and get someone to feed her pets, and were on their way. Victor is a machine, he drove the whole way without a break, and we arrived at 1:30 in the morning. Thank you so much K & V - I couldn't have made it without you - your strength made it possible to spend that last night with our Goofynina.
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I keep meaning to post how grateful I am to KitKatz and Victor. On Wednesday night I was sitting at home, sick with worry about Susie. Kit called the minute she got home from dialysis and said "Victor is willing to drive. Do you want to go up to Susie's?" I said "Really?? You're crazy." She said, "I know. Wanna go?" They made some calls to straighten out her work for the next day, and get someone to feed her pets, and were on their way. Victor is a machine, he drove the whole way without a break, and we arrived at 1:30 in the morning. Thank you so much K & V - I couldn't have made it without you - your strength made it possible to spend that last night with our Goofynina.
You guys are quite a team. I am glad you made it. Thanks.
Alene
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The lark's song once heard
never fades from memory
laughing lark fly high
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A beautiful Haiku BobT. I will miss Susie greatly and the great sense of fun she
brought to IHD. It's hard to come here at times like this, but I guess the information
and warmth I get will always be balanced by tragic news like this.
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With unrelenting crescendo,
The symphony of a life replete with melodic progression,
hastens to its finale.
And a friendship that is ours to share,
with its "largos" and "allegros" moves ever-lasting;
onward, in sweet memories.
Mimi
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I didn't want to do this....I don't want to say goodbye to such a wonderful friend. But I've put it off long enough. Susie meant so much to me, as she did to many others. She was my bestfriend, we would spend hours on the phone and she always talked about me coming to live with her. I never took her seriously, but it would of been fun to visit her. Then Friday night when I talked to Karol and found out Susie passed on. Karol told me that Susie had talked to Sam about me living with them...he agreed. I had NO idea Susie had done that. She was so incredible, such a huge heart and so giving of herself. To open her home to someone she's only met once. But we had such a great connection and strong friendship.
I would call her and when Sam found out it was me on the line...he would yell out something like..."Hey baby, how ya doin?" I'd be like, "I'm good sweety!" And Susie would go ballistic..."Watcha talkin to my man for, HUH? Oh I don't think so, He's mine!" It was all fun 'n games....God, I'm going to miss talking with her. I love you so much Susie!
Then last Thanksgiving she called me...she wanted me to give my family a thanksgiving wish from her. She told me to tell my family, "Gobble Gobble Gobble, thats from Susie!" She had a wicked sense of humor...I miss her voice so much. Sorry for rambling.......I wish I had more to say but I cant type anymore. I just wanted to share those memories.
Susie, my friend....
I love you
Your Little Roberto
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I didn't want to do this....I don't want to say goodbye to such a wonderful friend. But I've put it off long enough. Susie meant so much to me, as she did to many others. She was my bestfriend, we would spend hours on the phone and she always talked about me coming to live with her. I never took her seriously, but it would of been fun to visit her. Then Friday night when I talked to Karol and found out Susie passed on. Karol told me that Susie had talked to Sam about me living with them...he agreed. I had NO idea Susie had done that. She was so incredible, such a huge heart and so giving of herself. To open her home to someone she's only met once. But we had such a great connection and strong friendship.
I would call her and when Sam found out it was me on the line...he would yell out something like..."Hey baby, how ya doin?" I'd be like, "I'm good sweety!" And Susie would go ballistic..."Watcha talkin to my man for, HUH? Oh I don't think so, He's mine!" It was all fun 'n games....God, I'm going to miss talking with her. I love you so much Susie!
Then last Thanksgiving she called me...she wanted me to give my family a thanksgiving wish from her. She told me to tell my family, "Gobble Gobble Gobble, thats from Susie!" She had a wicked sense of humor...I miss her voice so much. Sorry for rambling.......I wish I had more to say but I cant type anymore. I just wanted to share those memories.
Susie, my friend....
I love you
Your Little Roberto
Tubes,
That was lovely. We all know how much Susie loved you and how close you two were. I am so sorry for your pain.
Much love. . . .xoxo
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:cuddle; Roberto :cuddle;
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I didn't want to do this....I don't want to say goodbye to such a wonderful friend. But I've put it off long enough. Susie meant so much to me, as she did to many others. She was my bestfriend, we would spend hours on the phone and she always talked about me coming to live with her. I never took her seriously, but it would of been fun to visit her. Then Friday night when I talked to Karol and found out Susie passed on. Karol told me that Susie had talked to Sam about me living with them...he agreed. I had NO idea Susie had done that. She was so incredible, such a huge heart and so giving of herself. To open her home to someone she's only met once. But we had such a great connection and strong friendship.
I would call her and when Sam found out it was me on the line...he would yell out something like..."Hey baby, how ya doin?" I'd be like, "I'm good sweety!" And Susie would go ballistic..."Watcha talkin to my man for, HUH? Oh I don't think so, He's mine!" It was all fun 'n games....God, I'm going to miss talking with her. I love you so much Susie!
Then last Thanksgiving she called me...she wanted me to give my family a thanksgiving wish from her. She told me to tell my family, "Gobble Gobble Gobble, thats from Susie!" She had a wicked sense of humor...I miss her voice so much. Sorry for rambling.......I wish I had more to say but I cant type anymore. I just wanted to share those memories.
Susie, my friend....
I love you
Your Little Roberto
Susie and I talked many times about you Tubes, she loved you very much also.
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I'm in shock! I have been ill this month and thought I had pneumonia. Luckily it was only Pleurisy but it has been causing me a great deal of pain. I am so sad to learn Susie has passed away. I can't believe it!
I didn't know her long or even in person but I could tell she was a wonderful person! I will miss her! This is so hard! :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'( :'(
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If love and tears lift a soul to heaven, Susie is there.
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{{{{{{{{{{{Tubes}}}}}}}}}}
Thanks for sharing your memories.
Love, Mimi
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During our Christmas exchange, I was lucky to get Susie as my secret Santa. She, along with a little help from Sam, burned several Cd's with all of the old favorites. I listened to the slow songs on my way to work this morning, crying like a baby. When I heard this one, I knew I had to share with all of you.
This is for our girl.
"O-o-h Child"
(As recorded by Five Stairsteps)
O-o-h child things are gonna get easier
O-o-h child things'll get brighter
O-o-h child things are gonna get easier
O-o-h child things'll get brighter.
Someday yeah, we'll put it together and we'll get it undone
Someday when your head is much lighter
Someday yeah, we'll walk in the rays of a beautiful sun
Someday when the world is much brighter.
O-o-h things are gonna be easier
O-o-h child things'll be brighter
O-o-h child things are gonna be easier
O-o-h child things'll be brighter.
Someday yeah, we'll put it together and we'll get it undone
Someday when your head is much lighter
Someday yeah, we'll walk in the rays of a beautiful sun
Someday when the world is much brighter.
La la la la la la la la la la
La la la la la la la la la la
La la la la la la la la la la
La la la la la la la la la la.
Someday yeah, we'll put it together and we'll get it undone
Someday when your head is much lighter
Someday yeah, we'll walk in the rays of a beautiful sun
Someday when the world is much brighter.
O-o-h child things are gonna get easier
O-o-h child things'll get brighter
O-o-h child things are gonna get easier
O-o-h child things'll get brighter
Right now.
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What a perfect song, although I am crying... I haven't heard from my mom yet but they get back tonight... I wish I could have been out there with her to meet you.
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What a perfect song, although I am crying... I haven't heard from my mom yet but they get back tonight... I wish I could have been out there with her to meet you.
I can't express how wonderful it was to finally meet your mom in person. She is just as amazing as I knew she would be. Wish you could have been here too.
xoxo
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I am so sorry. I feel like I knew her, and will miss her. She was a very special person.
DeLana
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This is how I best want to remember Susie..
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If love and tears lift a soul to heaven, Susie is there.
OMG, that is so beautiful Kitkatz and so true.
:grouphug;
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Sluff, great pictures! I wish I was in Vegas too. I gather that is where there the pictures were from. Who's in the pictures with her?
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1st picture is Susie, Elvis and Sam after Sluff Elvis wedding (best wedding I have ever been to!)
2nd picture is Susie with Jill D. taking the party to Susie's room. What happens in Vegas stays in Vegas!!
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I love those photos of susie.
:angel;
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Who's in the pictures with her?
JillD. from Michigan.
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Last night on David Letterman he had a guest from Australia who did hand puppet formations.
It was amazing really but during his presentation the music he had playing was What a Wonderful World.
Anyway I sat there watching it with tears streaming. I don't think I'll ever hear that song again without
thinking about Goofynna. I really miss her.
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Last night on David Letterman he had a guest from Australia who did hand puppet formations.
It was amazing really but during his presentation the music he had playing was What a Wonderful World.
Anyway I sat there watching it with tears streaming. I don't think I'll ever hear that song again without
thinking about Goofynna. I really miss her.
She's everywhere.
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She knows we still need her.
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WOW....I am so shocked to read this....I don't get online often anymore and wow....I have no words. She was always so kind to me in her posts and made me feel so comfortable and welcome, and to a newbie with a loved one facing such a serious condition, I will say it meant the world to me...what a kind woman and I will keep her family in my prayers....
Beth
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Ever since Susie's passing I'm sure in still in shock and can't believe that she is really gone.
Missing :angel; Susie's fun and loving Pm's
I can not begin to imagine how hard it is for her family and sam. What an amazing person to lose.
she will be remembered forever.
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I have excepted the loss of our Goofynina and I find myself taking a piece of her personality and applying it in my posts, and because of Goofynina I have a better appreciation for others. I have faced reality that life is so very fragile and as a person get older the impact is so great when you can talk to someone one day and the next day they are gone. I know that my last words to her is that IHD members really love you and I love you and don't worry about IHD, it is in good hands. I'm going to misss you hun. :'(
We need to be strong for our Epoman and Goofynina because I firmly believe that they are guiding us. Here is a picture that Epoman and I pulled a joke on Goofynina when we were on chat and this represents the kind of relation ship we had. We had a lot of laughs.
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That was beautiful Sluff, truly.
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I have excepted the loss of our Goofynina and I find myself taking a piece of her personality and applying it in my posts, and because of Goofynina I have a better appreciation for others. I have faced reality that life is so very fragile and as a person get older the impact is so great when you can talk to someone one day and the next day they are gone. I know that my last words to her is that IHD members really love you and I love you and don't worry about IHD, it is in good hands. I'm going to misss you hun. :'(
This is tremendous, Sluff (Sludge, Sulfa, Fluffy). IHD is definitely in good hands. The same way that it was after Epoman passed, the same way we will continue to make sure that this goes on from strength to strength. I continue to thank God that certain things were done before they passed that they would know how much we loved them. I think of the gifts to Epoman from IHD, and Susie's time in Vegas! How fitting that they felt our love before they left us!!
I agree that we have to use every opportunity to let people know how much they mean to us, when we have the time.
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I have excepted the loss of our Goofynina and I find myself taking a piece of her personality and applying it in my posts, and because of Goofynina I have a better appreciation for others. I have faced reality that life is so very fragile and as a person get older the impact is so great when you can talk to someone one day and the next day they are gone. I know that my last words to her is that IHD members really love you and I love you and don't worry about IHD, it is in good hands. I'm going to misss you hun. :'(
We need to be strong for our Epoman and Goofynina because I firmly believe that they are guiding us. Here is a picture that Epoman and I pulled a joke on Goofynina when we were on chat and this represents the kind of relation ship we had. We had a lot of laughs.
Sluff..... ditto from me! It truly is the laughs and the good times that we will remember most. Let's make sure we continue to do this in Epoman's and Goofynina's memories. It think they would want us to do that.
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It is strange but I feel sort of guilty or something because in December when my heart stopped
and I was revived and I made it but Goofynina didn't and she is younger than me and had a husband who
loved her dearly and mine did too but he is gone. But then I have 2 sons and a grandson. I guess it is just matter of
being your time to go or not time to go. It is not in our hands. I do know that I appreciate life much more
even through the tough times. Goofy lived each day to the fullest and that's what we all need to do.
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Sorry I haven't been online in awhile. This message was at the top of the list of unread mesages. Thought it was gonna be something funny with the topic Goofynina, but that thought was soon to turn into tragidy. I was shocked to read through the post. She was the one who got me to loosen up in the chat room with her humor. I will miss chatting with her, her comments, messages, and humor.
Peace be with you my friend.
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As a newbie I didn't know Susie personally but the past month I have read many of her posts before joining, she seemed such a wonderful kind hearted person..it is very sad to read of her passing, my condolences to her family and friends.
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This is not the first..... or second...... or third...... or even eighth time I have looked at these threads.... I keep coming back, hoping it was all a bad dream. No such luck. I will miss Goofynina so much. She always lightened my mood. Her loss is a deep one for all of us. My prayers are with Sam and the rest of her family. Peace be with you.
:grouphug;
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(http://i251.photobucket.com/albums/gg305/chevylee2008/SUSIE3.jpg)
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I loved that kathleen.
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Sweet.......... :thumbup;
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I haven't been on in awhile for reasons to deep to talk about. I was sent a message however when Susie passed. She was and still is a important part of this family. I will always remember her comments to many threads i wrote. And i thought i was sarcastic! I have come to a point in this madness where i have pushed away anything having to do with dialysis. When i heard of Susie's passing i was brought back into the reality of it all. I cannot imagine what her husband and family are going through. All i can say is i am so sorry. Goodbye sweet Susie. You are and will always be my friend.
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Our dear sister Goofynina passed away today at 4:05.
She was surrounded by her loving family.
RIP Susie. :grouphug;
I haven't been around a while (family and sickness) but my God to read this, I am so sorry and I wish I was able to be here when all this was happening. Suzie always had a kind word for me and gave me encouragement, she made me laugh. I will miss her. Thank you Sluff for taking charge and keeping us informed and thanks to everyone else who helped also. I lit a candle for her and left a little message. I still am in a shock.
Donna
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I just heard from Okarol. Very sad news. Goofynina represented the best in us all. I enjoyed her posts and wished I could have met her in person.
I am sorry I havn't logged very much since my transplant. But please remember all of you are my people, and are always in my thoughts.
RIP Goofynina, you will be missed by more people than you know.
Jaybird
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OMG!!! I feel horrible for being away for so long! I don't even know what to say! I'm crying right now! She made this place such a joy. Her humor made me laugh--a rare occurrence any more. I miss Susie so much. This isn't fair! Don't doctors give antibiotics anymore??!! I'm so pissed too!
:cuddle; :'( :cuddle; :'( :cuddle; :'( :cuddle; :'(
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Paddbear, good to see you post. Susie's problems were many. It was such an incredible time and we are all so sad. How are you doing? Please post and let us know how you are.
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I did. See http://ihatedialysis.com/forum/index.php?topic=7328.new;topicseen#new
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I miss Susie! :'(
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:( ME TOOOO! I think of her everyday. :'(
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My heart stopped when I got a PM from Goofynina a few days ago. It was from her sister but for just a moment, I thought------Susie! With Beth woriking on the Kidney Walk so much, Susie is a daily part of our conversations, but it doesn't make it easier. I miss her too :'( :'(
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I was listening to the Paul Potts CD last night and was sobbing my head off as thoughts of Susie came to me as he sang "Time to Say Goodbye". I miss my girlfriend so badly.
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i grew up with the notion that a man is a man and does not show his feelings ( I know, muy macho) but the other day i found myself crying and thinking of goofynina and icouldn't stop, so i ran her voicemail messages from skype... is just like listening to her all over again
:grouphug; :grouphug; :grouphug;
Rolando
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I watched Sluff and Christy's wedding video the other day and laughed and cried. I was sitting right next to Susie in the chapel and she was making little comments, she was really funny. I never imagined in a million years that the trip to Vegas would be the last time we'd be together.
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Still can hardly believe it. She was everybody's best friend on IHD and I miiss her terribly.
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Miss ya baby, 1month feels like it's been an eternity since you left. :-*
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Ken, you are right. Susie was everyone's best friend. A very loving, giving funny person, who related to ALL of us.
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I miss you girlfriend. I miss talking to you on Skype almost every night. You were always there and always had something to say to me. I just cannot bring myself to delete your name off my Skype or delete your phone numbers off of my cell phone. I guess I think you are still there if those numbers are still there. You would love the new smileys Sluff put on the site.
Say a good word the the big Man Upstairs for me. You know I don't mean to be throwing rocks with my prayers., I just cannot help it.
I miss my friend.
:basket: :big hug: :guitar: :mysty: :keefer: :bunny: :shy;
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I haven't been on this site in a very long time. I have been dealing with depression, the failure of home dialysis, permanent nerve damage in my legs making walking extremely hard, waiting for leg braces and a very long and cold winter. For the first time in the 10 years I have been sick, I wanted to end it all. I had lost the strength to fight any more. Somehow I have made it through the last year. My leg braces arrive next week and spring is on its way. Goofynina always made herself available to me. Even when I was ashamed to ask for help, she seemed to know I needed it. Unfortunately, my pride got in the way and I didn't take the help she offered. Today, I decided to log on and write her an email. I started to look through a thread first and noticed she hadn't made any comments. She always made comments no matter what the subject was and I always looked forward to reading what she had to say. I got a bad feeling and that is when I found this thread. I am devastated. I feel so empty and lost. She was so amazing and seemed so full of life. I don't know what else to say. I will miss her and feel so bad for her family. They are the lucky ones. I only knew her through a computer. They got to share their lives with her.
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I'm so sorry to hear of all you've been through, and just when you were picking up you found out the sad news of Goofynina's passing. I, like you, never met her except on here, but feel her loss, but I don't believe she was the sort of lady who would want folks to feel down about her going. Of course she'd want us to miss her, but from reading her posts, I believe she'd also want us to get on with life 'keep on keeping on' as she often said, so we owe it to her to keep smiling (even if we do shed a little tear some days) and keep on helping one another along life's path. Please don't ever feel ashamed of asking for help, the people here are wonderful, I've asked some dumb questions but never has anyone made me feel ashamed of silly for asking them.
Welcome back to the boards, please stay around :cuddle;
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ILOVEFLUID,
Hang in there. Things can be very rough sometimes, but don't give up. I'm sorry you found out about Goofynina this way. The fact you felt well enough to log-on to the sight is good news.
There are others here for you too.Hope the braces work out for you.
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ILOVEFLUID, just want to give you a hug. :cuddle; I still want to cry when I think of Susie.
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I hate to hear you've had such a bad year ILOVEFLUID. It seems it has been a hard year for lots of us on
IHD, and then we lost Susie. I know you must feel like you are in a free fall, but for all of us, tho, it can't take our sweet memories of Susie. I hope you will continue to post and let us know how you are doing. Let us know how
you are doing with your braces, too.
Love, Mimi
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ILOVEFLUID.... :grouphug;
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Goofynina is such a part of our daily lives with all the planning for the walk on Saturday. Don't know what I will do when it is over because I think I will feel a little lost. Susie, I miss you so much. I keep waiting for your smart remarks, your tears, your smile. Miss you, miss you, miss you :'( :'(
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Ilovefluid, we aren't Susie, but we are here if you want to talk to us. We'll listen. We're all hurting, and trying to get on with life, and sometimes that's just so darn hard.
:grouphug; :grouphug; :grouphug;
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I keep reading this site but not posting. She really did touch me through her humor. I miss her and so do so many of us. I never thought I would feel this way for someone I never really met. But we do get to say alot to each other here, even more than we do to the people we are with day in and day out. So I guess it does make some sense. :grouphug; for Susie...
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From Susie's niece Joanna yesterday:
Hi Karol,how have you been? Hope all is well. My grandma and I had a question for you. If the unfortunate may happen, we would like to know if there is a way to know that our kidneys would go to someone in the IHD family? I believe I am on the donation list from when I was tested for a match for Sue. But I'm not positive. Is there a way to find out? And my grandma really wants to make sure hers go to someone in IHD. Please let me know any info you can share with me. Thank you and God bless you and yours and all in IHD.
(My response: As it is now, only the living can designate who their kidney goes to. When it's a deceased donor the kidney is given to the patient that has waited the longest, and is the right tissue match. Tell Mary that whoever gets them will be a person very much like Susie, and they will be very grateful. And you never know, it could be someone from IHD, there's always a chance!)
From Joanna today:
Thank you for that info. My grandma is doing ok. She went to San Diego with my mom today and will be back on Fri. She wanted to get away, she couldn't before because she was taking care of Sue. Easter was pretty hard being the first of many holidays without her. Sam is doing ok also. He is going to my Tio Johns tomorrow for a week. Just getting away also. As for my mom and Tio John, they are doing good.
I need to let you know of a dream I had about 3 weeks ago. Its about Sue. here it goes. My cell phone was ringing and I noticed it was Sues' ring tone so I thought it was my Tio, when I looked at the phone it was her cell phone but I knew that her phone was already off. So I answered and the person on the other line was Sue. I asked her were she was and she said, "I'm here". I asked her how she was and she said,"I'm great, happy it is so beautiful here." She went on to ask me to please let everyone know that she is happy and perfect and that she luvs us all. The hardest part of this dream was saying goodbye again. But knowing that she is happy and at peace gave all of that I shared this dream with a sense of peace and comfort also. Please share that with all the IHD family and let them know that they were ALL loved by her so much and she is happy and great.
Thank you Karol for being there for us and continuing to be there and be a friend. Oh also my Tio Sam has mentioned that he is going to the IHD reunion in Oct. My grandma and my mom have also mentioned that they may go also. I'm hoping me and my husband will make it also but it's still a ways away. TTYL and one more question, is there a way to find out if I am already on the Kidney donation list?
(Me: Sobbing my eyes out :'( ) (Awww J, I know that was Susie calling, it's just like her to let us know she's ok and give us some peace. Damn tho, I still miss her like crazy. Thank you for sharing your dream with us.
This site allows you to sign up online to be an organ and tissue donor in California. http://www.donatelifecalifornia.org/)
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Oh thank you Karol, for sharing that. What a great tribute to our Susie. She is loved so much.
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From Susie's hubby Sam:
How are you doing? i miss you guys. im still here, i got people looking at the house next week, hope it sells, but i will be in vegas on oct 11 to see the family. i would not miss that, so tell every one i said hi thanks karol.
i would love to see you guy's before i sell the house. i remember susie told me that you guy's were planing to come over to visit. you guy's are welcome to come over any time.
sam
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Everytime I get on myspace I wait for Susie to get on and ask "how's my chica". I miss her and the love she always had to share.
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Although I have been on this website in brief, Susie was always so uplift and light up the mood here. I sure miss her posts. She is in a good place now. RIP.
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:'( :'( :'( :'( :'( :'( :'( :'( :'( Oh, I miss her so much! Her family is so kind!
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Thank you Okarol for sharing with us. Joanna's had me in tears. You are so right, Susie would want us all to know she is good and everything is beautiful. She has such a loving family. I am hoping many of them come to Vegas. It would be wonderful. And looking forward to seeing Sam again. :grouphug;
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:'( :'( That was a tear jerker! But thanks for sharing. What a wonderful group!
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oh my. That is so like Susie to do that. I'm weepy too, having read it. And to read how Sam is doing as well,
man, to be able to think of you guys after his loss, what a great guy! We already knew that, he was Susie's husband after all!
:kickstart; :sluff; :big hug: :big hug: :big hug:
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That is so cool about Susie letting everyone know she is good because not too long after Epoman passed Susie had a dream that she talked with Epoman and he told her he was fine. I believe that there are angels and they communicate in this way.
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I still expect to see her responses here on IHD. I'm glad Susie let her niece know she was alright. I believe people talk with the dead, BUT I don't want to BE ONE OF THEM. So, SUSIE stay away from me because I would FREAK OUT! That goes for my MOM and SISTER too. Ah ah, no dead people talking to me. No no.....
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i really adored her, absoulutely.
god speed, girlfriend.....
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And to read how Sam is doing as well,
man, to be able to think of you guys after his loss, what a great guy! We already knew that, he was Susie's husband after all!
MyssAnne -- I think we should also mention how terrifically good-looking Sam is (that's what Susie would have done, eh? :rofl; ). It's good to hear from her family; it sounds like even though it has been extremely difficult for them, they have found peace (probably thanks to the message from Susie).
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Petey, I so agree! I used to make comments to Susie about how good looking he is!!! She loved it!!! Every woman likes to know her
man is appreciated for his hotness!
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Every time Susie said something about how good-looking Sam was, I had to agree with her! He is a cutie -- but not quite as cute as my Marvin (almost, but not quite) :rofl; .
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Still missing a truly great person in this world...
"Some people come into our lives and quickly go. They awaken us to a new understanding with the passing whisper of their wisdom. They stay in our lives for a while, leave footprints on our hearts, and we are never ever the same."
Amanda
xxoo
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Still missing a truly great person in this world...
"Some people come into our lives and quickly go. They awaken us to a new understanding with the passing whisper of their wisdom. They stay in our lives for a while, leave footprints on our hearts, and we are never ever the same."
Amanda
xxoo
I second that! In fact, I third and fourth that, typing through my tears..............
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I agree, Amanda. My life will forever be changed because I had the honor to know Susie. I feel compelled to make more of a difference in the world, even if it is just my little corner of the world. :'( :cuddle;
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And you guys with your walk DID make a difference in your corner of the world (and you honoured Susie as you did it.)
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I had a dream with Susie in it last night. Because our cat was scratching at the door, I woke up in the middle the dream. I am feeling happy I got to see her. I tried to remember more this morning but couldn't, I just know we were hanging out, looking for something. I miss that girl!
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Susie is on my mind everyday... I never knew I would become so close of a friend with someone I unfortunately did not get to meet.... I am just thankful to have all the memories I have of her. :grouphug; Love ya Susie
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Susie is on my mind everyday... I never knew I would become so close of a friend with someone I unfortunately did not get to meet.... I am just thankful to have all the memories I have of her. :grouphug; Love ya Susie
You can say that again! But even if some of us didn't meet her, we KNEW her! Such a wonderful funloving caring person!
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Whenever I see Aurora's avatar, it gives me a jolt, because Susie is giving one of her big smiles.
I loved seeing her pics, she had such an infectious, BIG smile!
Good way to remember her....
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:) :'( :)
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I miss her too! :(
I love all you guys! :grouphug;
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:grouphug; She's with us, I feel her presence all the time. I miss her too, though, she always made me smile.
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I miss her.
Sometimes I just go through looking for her posts and reading them.
She always had encouraging words for all.
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I first "met" goofynina on another message board. She posted that she had a kidney donor, but for the transplant she had to lose a lot of weight & was finding it difficult. It was a sad post, full of dispair, hopelessness, not the Suzie you know.
Then a few weeks later I came across her again, here at IHD. The old Suzie was gone & she was a different person, happy, funny, chatty & certainly loved by all. It was like she found a home, the dispair was gone.
Epoman by founding IHD & Suzie finding IHD actually gave her a new life & an acceptance of herself.
She had so much fun here & they both were so good for each other.
She was blessed & her short life made so happy the day she found IHD & all the members who loved her so much.
Epo & Suzie, sleep with the Angels.
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It is so good to hear that Susie got so much from IHD, because she gave so much to everyone else, thanks for sharing that.
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mcjane what a nice post, I miss Susie's posts so much, what a hole she has left :'(
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I miss Suzie's posts so much. It sucks, but since she is gone, I find myself not coming here as often. Not because I dont care about you guys as much, just the pain of her not being here. I am trying to get back into it tho.
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Today I walked in my office and saw Susie smiling at me from the prayer card from her service. I got that gut wrenching ache of missing her and I had to sit down and cry for a minute. I understand how you feel donnia. I felt like not being here for a while too. But I guess somehow we have a responsibility to all the new people, as well as the ones who are gone. Epoman and Susie live through their contributions to IHD, and if we can help keep that going, we should.
:cuddle;
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I have felt very much the same thing.
I come online everyday to make sure everyone is okay, but there is so much going on, and with susie and all that has happend, i am finding it very hard.
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Remember that Susie would want us all to continue giving support to each other on IHD.com
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I told Okarol and Vandie at Susie's visitation that I couldn't make any more new friends because it hurt so much to lose them. But my life is so much richer for having known her. It was an honor to know her.
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Oh my girls, there is nothing Susie would want more than for us to come together like this and remember her and take care of each other on IHD. She was a light -- our light -- on IHD that will always shine.
xoxo
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Glad to see that it wasn't just me that stayed away and I know, that is not what Susie would have wanted.
So, I am back and hopefully will feel like reading and posting. Oh wait a minute, I am reading and I did just post. :yahoo;
It feels good to be back.
Thank you everyone and I miss you Goofynina.
Have a great night!
Joannie
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Great to have you back. Goofynina would have told you to 'keep on keeping on'! Now get posting!!!
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Thank you, Goofynina, for leaving behind all of your posts so that I can get to know you and love you like everyone else. You, obviously, were one hell of a beautiful woman!
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I had a very sad moment today. I was sending some pictures to some friends and as I scrolled through my Yahoo contact list, there was Epoman's email address, and soon after Goofynina's email address (twice - as Goofynina and then as Susie Trevino) . I am not even able to delete them. I miss them so much!
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Great to see you Joanniebop, hope things are going well with you. :grouphug;
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Thank you Sluff.
It's great to be back and things are going peachy keen. ;D
Joannie
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I was going through my email today and I found many of hers. I'm so glad I saved them. I was really fortunate to be on her email list. I could feel what a joyful person she was just through her words. I miss her joy and her heart. We love and miss you Goofynina.
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I feel I knew Susie but I got here after she was gone. No matter, she's made me laugh and I mean out loud and from the belly. What a huge heart and a personality to match. Some people are truly gifts to the world no matter how long they're actually in it and Goofynina was definitely one of those people.
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I just checked into the El Cortez in Vegas with a friend of mine and I almost broke down crying -- I could see Susie with her boa and tiara playing the slots... It is very bittersweet today.
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If you find any purple feathers you better save them. :waving;
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So sad to Here about GOOFYNINA. She seemed so full of life and fun reading GOOFYNINA posts. Nothing else to say, so many friends have past away on dailysis or because of dialysis.
God Bless Susie (GOOFYNINA)
You will not be forgot,
Kevno (UK)
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Good to see you Kevno, it's been awhile.
There's no one like our dear Goofynina... thanks for posting.
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Hi,
I also miss Suzie very much, eeven tho I got
to know her mostly when I was lurking here,
afraid to post. (Actually I was very afraid of
what was happening to my husband, and was
in a bit of denial about it) Suzie's posts were
always so great to read. She truly had a very
special way about her.
RIP, Goofygirl- you are so missed!!
Anne
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A lady working in the booth next to mine at the airport (Hertz) asked me about dilabetes and dialysis, because I use her computer sometimes to go on the Internet when I am at work and she saw the site I was on. I went to our members' pictures to show her my picture on dialysis (she knew absolutely nothing about it) and as I scrolled down, I saw a beautiful picture of Susie and Sam. It was hard to have to tell her that we lost Susie. I was laughing and crying at the same time. Susie was saying that you must remember that you gain 10lbs by a camera and that there must have been about 8 cameras on her that day! My special girlfriend!!
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I remember distinctly at least two times when my Son was feeling like the whole world hated him and I know he felt no one understood him and how he would want to go to his myspace in hopes that Susie had posted a comment for him. She was always so understanding, and took the time to ask him how he was doing and then she would call him on his cell phone. He always felt like he mattered to someone.( sometimes parents can't do it alone) I remember how saddened he was when she died, the look in his eyes said I finally found someone who is genuinely happy to talk to me and this is what happens.
I know right now Susie is very proud of Josh because he got a great score on his Asvab test today. 68 the national average is 41. :thumbup;
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That really made me cry Sluff.
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Thanks Sluff, I am glad Josh had some time with Susie. Funny how she made us all feel so special. And yet it seemed effortless. She's a real diamond in the rough.
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You can say that again!! She had a wonderful generous loving heart. Sometimes it was hard to imagine that we were so apart geographically, culturally and ethnically. Yet I felt so close to her! Unbelievable!!
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Haven't been here for a long time, what a terrible thing to come back to. My condolenses to goofs family. :grouphug;
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I was just listening to some hymns on my computer, and one of my favourite southern gospel songs, "Life's Railway to Heaven" came on my playlist, and the last line made me think of Susie.
As we roll across the trestle,
Spanning Jordan's swelling tide,
We behold the union depot,
Into which our train will glide,
There we meet the Superintendent,
God the Father, God the Son,
With a hardy, joyous greeting,
Weary pilgrim, welcome home.
I just thought of all the warmth she brought to everyone who knew her, and how her long journey is over and she's in God's (and Epoman's) embrace. I just wanted to share that (after wiping the tears of my computer :'( )
Adam
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:'( thanks Adam
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Thanks Adam.
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I was just thinking the other day how much she would have totally enjoyed these crazy threads that we have in the Off-Topic section. I could just imagine the kinds of comments she would have in the Last Post loves IHD Most Thread. I miss her so much!!
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She left a hole in so many hearts. Love you Susie, and think of you everyday. :cuddle;
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Susie, I miss you! I was just reading the old skype conversations we had. I hope you know what is going on down here with everyone! I miss our evening conversations over Skype.
I know you are with family and are watching over us!
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Susie had a heart bigger than life. In some way I feel like she's still with us, not posting, but watching. Miss you Susie. Love you!!
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I like to visualize Susie being greeted by all the angels (and Epoman) with the words "Welcome home, we have been waiting for you".
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Was doing lots of housekeeping on my computer today. Deleting old emails etc. In IHD I went to deal with my PM. I had hundreds. But I could not delete the ones sent by Goofynina. I have to keep them. especially those in which she talked about our friendship and love for each other. How could I delete them. And reading them made me feel I haven't lost her.
I still miss her so much.
I keep thinking about how much she would have enjoyed how strong IHD is these days. Epoman would have been so proud, too. You don't have to put in about hating dialysis for our group to be first in a Google search. We are first if you type "dialysis forum". He was aiming for that.
I am so happy that we have been able to keep this site going. A real tribute to Epoman and Goofynina.
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bajanne, you never know what might happen & you could lose Susie's emails. I would print them & put them in a scrapbook. I can see how much they mean to you.
I've lost things I can never get back & regret not making copies.
Jane
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bajanne, you never know what might happen & you could lose Susie's emails. I would print them & put them in a scrapbook. I can see how much they mean to you.
I've lost things I can never get back & regret not making copies.
Jane
That's great idea! Thank you so much. I will work on that right away.
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I miss Goofynina and her comments on myspace. :(
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I miss Goofynina and her comments on myspace. :(
I don't even like going on myspace anymore because she would always pop up and say hello my chica :'( I loved IM with her
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I am driving my son to skateboard camp on Sunday and it's near Susie's home. I plan to meet with Sam (and go to see where Susie's ashes are interred) and also visit her mom and sister too. I get so emotional. I hope I get through it.
:(
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Awww Karol... Be strong hun, remember the good times, and it's ok to show your love for her. :grouphug; :cuddle;
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Good luck Karol. I'm sure Sam will be very glad to have you there. IHD was such an important part of her life and she sure was an important part of IHD. :grouphug;
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Will be thinking of you Karol. Please give Sam a big hug from all of us and tell him we will see him in Vegas. :grouphug;
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That is so great, Karol. Please tell Sam and Susie's family how much I loved her and how much I miss her It still hurts.
Jane, you gave me such good advice. I now have all her PMs to me in a Word document and will print them shortly. Oh, I know what to do. I will email it to myself(all my email addresses) so it will always be on the Net and I can access it any time. Thanks again for your great counsel.
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I've been away for a year. I was looking forward to Goofynina's posts and replies. She was great! she made me laugh, she made me strong! I am sooooooooooooo very sad to learn of her passing.
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I am thinking about you girlfriend!
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Susie was in my thoughts all last night. Our family went to the Ringling Bros. circus and the clowns just made me smile. We all had red clown noses on and Susie would have hated all of it.
There was one clown act where two clowns were playing intruments and guess what they were playing? What a Wonderful World! Now, what are the chances of that? Clowns playing Susie's song!! As they were playing, my 5 yr old granddaughter was on my lap and she started singing the words. It was a heartwarming moment for me. "And I think to myself------" Miss you, Goofynina :cuddle;
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That's so nice Paris. :cuddle;
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So close to the one year mark. Miss that girl. :-*
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You showed us love. You made us laugh. And you broke our hearts when you left us. :'(
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Valentines Day will never be the same without our girl. Miss you dear sweet friend. :'(
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Who is that OLD woman next to her?? (I think it is me)
I miss you Nina. Cupid took you and my Uncle Gene on the same day 1 year ago. It was a sad day for me and I couldn't make either service.
I miss you both but look forward to the day we shall meet again.
:flower;
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Great picture Karol. She really liked that Vegas trip, it meant so much to her, and us.
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:cuddle; Miss you Susie xox
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Think of you often Susie, miss you :cuddle;
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:grouphug; :cuddle;
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I feel as if I haven't as yet dealt with the loss of Susie. It was all so sudden. I miss her so much. And today of all days, remembering those last day when I was still holding out hope and then to get the news that she didn't have much time. It still hurts. At least she knew how much she was loved, by her family and her IHD family.
Rest in peace, girlfriend. I still love you loads.
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I miss her so much. It took me until last weekend to finally take her numbers off of the cell phone. I said goodbye and love you as they left the phone. I think the hardest thing is to let go of everything except the memories.
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:grouphug; :'( Miss you!
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I never got to meet Susie even online, but through the memories of all of you I know much about
her. The love you all have for her shows what a gift she was to have on the earth. She watches over
all of you now...wearing a tiara and her purple boa....wishing you all peace and happiness. :)
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I miss her so much. It took me until last weekend to finally take her numbers off of the cell phone. I said goodbye and love you as they left the phone. I think the hardest thing is to let go of everything except the memories.
When I got my new phone they uploaded everything for me from my old phone and a bunch of people "vanished" and Susie was one and I broke down in the store as once in my phone your there for good. Miss my chica :'(
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I got a Facebook Friend Request from Susie a month or so ago. I just smiled. :) I love it when things like that happen. They happen with my Mom all the time. I just have to look for them.
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I still have her messages on Myspace- I miss her bringing everyone together- she had a way of making a person feel really good about themselves, even through the net. She was generous with her love, and her words of encouragement, this community is such a great testament to her and Epoman. But mostly- I just miss her, especially today.
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Very sad to hear about this. I pray she gets better. :'(
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Very sad to hear about this. I pray she gets better. :'(
We lost our chica a year ago :'( :'(
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I did a search on "ginger" trying to find some relief for the nausea and I found a post from Susie at the end of a thread that was talking about all the ginger cures. "Ginger, Ginger, Ginger.....it's all about Ginger. What about Maryann and Mrs Howell? I just had to smile. Such was her sense of humour. Everyone loves and misses you Susie :grouphug;
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:'(
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i miss my susie so much. :'( She had the biggest heart, the craziest sense of humor and she could cheer me up in a heart beat. I'll never forget our conversations...she loved to be "goosed". :rofl; On myspace messenger, there is a goose icon that I would send her and it made a goose sound...and she would be like..."LMAO, goose me again....I would...she'd tell me to do it over and over again. OMG, it cracked me up. LOL....
Kit, I still have her # in my phone. I dont' think I'll ever beable to delete it. Everytime I go throu my #'s and see it....
...smiles. :)
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Same here! We used to do a lot of foolishness with the Yahoo audibles. I saved all her PM's to me in a Word document. I was checking my contact list in my emails and came upon her name. I could never delete it.
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Me too Susie send me recipes and i can't delete them either :(
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Susie, We are walking in your memory again tomorrow. We will have our boas and tiaras on and every step we take will be to honor you. We miss you here at IHD, but know you and Epoman are having a good time "up there". I bet you were there to greet Flip when he went home. You two will have a great time together. You and tequilla and Flip and his vodka!! :rofl; I am just sure you have some kind of wireless connection up there and continue to read our posts and watch over us. We love you and miss you. :grouphug;
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Hey Susie. You came by today on line. I was talking to an IHD person and told them I was going to try for Circus Circus for the IHD.com get together. I got a whap on the head from you. You said you would not attend if it was held there. Something about clowns...
El Cortez here we come for Susie's sake! Miss you lots!
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and lots and lots!!!
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and more lots.
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love you goofynina
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Funny thing is she won... :rofl;
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My kids were over yesterday for a family dinner. My oldest, Todd, walked in the front door holding something up. "Hey Mom, I think this is for you" A purple feather was floating around in the front yard! So, the feather joined us for dinner. Susie shows up from time to time, you just have to watch for her. Always missing you - :cuddle;
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:'(
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Oh Paris, that is so neat! I would have been in tears if that happened to me! Goofy, we miss you soooooo much!!! Her sense of humor has yet to be matched. :grouphug;
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Someone sent this to me - and maybe you'd have to know Goofynina's sense of humor to appreciate it - I know it would make her laugh - and she'd have a few more tips to add.
http://www.youtube.com/watch?v=rGOOlcdpfLg
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My Facebook is always telling me to add her as a friend (her pict comes up) since we have friends in common - Okarol, Kitkatz, etc.
The other day I clicked on it and it said that the person would have to confirm that I was their friend!
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My Facebook is always telling me to add her as a friend (her pict comes up) since we have friends in common - Okarol, Kitkatz, etc.
The other day I clicked on it and it said that the person would have to confirm that I was their friend!
awwww :(
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I get the same thing every few days and it makes me smile and makes me sad. I haven't clicked on it :'(
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I get it too and makes me smile and hum Its a small world. :guitar:
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My Facebook is always telling me to add her as a friend (her pict comes up) since we have friends in common - Okarol, Kitkatz, etc.
The other day I clicked on it and it said that the person would have to confirm that I was their friend!
i get the same thing all the time, because it would make me want to cry, i started deleting the notification and it hasn't been coming up recently.
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I get it too!!
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funny... I have never once got it, boy she is still missed like it was yesterday, she was such an awesome positive person :pray;
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I get it too...
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She's already my facebook friend, and I won't delete her...
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I still miss her too, she always made me smile. She was one of the best people that ever came into my life- and I still can hardly beleive she is gone.
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I giggle at her posts often and I never even got the pleasure of meeting her. She had the same kind of humor that I do (quietly pornographic). She and I would have been great pals......or cell mates....one or the other.
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Wenchie, you and she would have got on like a house on fire! I know it!
I am so sorry you didn't get to 'meet' her.
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I periodically leave a note on her myspace.
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I wanted to say Thank you for the Purple feather boa feather in the parking lot the other day. My thoughts are with you!
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Another purple feather boa today, nowhere near any feather boas while I was out. Hello Susie!
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I still have her on my Skype list, you never know....
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I got a purple truck in her honor.
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I got a purple truck in her honor.
:thumbup; :'( :cuddle;
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GOOFYNINA FOREVER!!
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In your Memory Susie.
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:'(
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In your Memory Susie.
She would love that truck! :)
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Susie would want to go on the road with you! Wearing her purple boa and tiara and sitting up there with you. Wouldn't that be a sight?
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:'(
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Are you calling her, the truck, a name yet? Maybe the Nina?
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Man missing u big time tonight. The boys and I were talking about stripper poles(at work) and I started laughing about us making the IHD stripper calender. Man we had fun my lil chica :grouphug; :grouphug; :grouphug; :grouphug; :grouphug;
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Are you calling her, the truck, a name yet? Maybe the Nina?
Actually I just call her Susie.
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Are you calling her, the truck, a name yet? Maybe the Nina?
Actually I just call her Susie.
Thats Beautiful Sluff :flower;
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You made me cry. :'( She made us all laugh so much. How can one person, in such a short time, leave such a lasting impression? Miss you, Susie :cuddle;
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I do think about her, she gave me a 'talkin to' one night about not believing in myself- I still hear her voice, and I hate it that she is gone-but I will never foregt her- she was a special friend to so many people. :)
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She sounds like she was quite naughty!! I reckon she must have got in more trouble than any of us could dream of lol.
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She sounds like she was quite naughty!! I reckon she must have got in more trouble than any of us could dream of lol.
You have no idea how bad >:D OMG chat was sooooooooo naughty some nights.... >:D >:D
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She sounds like she was quite naughty!! I reckon she must have got in more trouble than any of us could dream of lol.
You have no idea how bad >:D OMG chat was sooooooooo naughty some nights.... >:D >:D
yea...those were some fun fun nights, er, I mean naughty naughty nights. :sir ken;
Susie was truly special. I miss her so much and think of her often.
I always wonder what would of happened if I actually got to live with her and sam. lol That would of been something else.
Love ya
~Robert
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I couldn't sleep last night so was going through old posts. Since we are nearing the anniversary, my mind kept going to Susie. I read all 22 pages again. It was like reliving those days all over. Lots of tears. She still is such an important part of IHD. Our family will participate in the Kidney Walk again this year, in Susie's honor. This year the walk isn't until May 2nd, but we are already forming our team and of course, gathering our boas and tiaras. I miss her posts. She made us all laugh; sometimes made us laugh at ourselves. She had so much love and compassion for every member. I am sure we will all be remembering her during this upcoming week. She was IHD's sweetheart.
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She was one in a million, a diamond in the rough, a bright light in the universe. That she died on Valentines Day makes sense, she loved LOVE and her man and all her family and friends. I feel so happy I knew her, and I miss her terribly. Happy VD Goofynina!
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Since that fateful day, every day is Valentines Day for Susie - yeah, she can't call us and laugh anymore, but she is still there, I am convinced.
Miss you Susie, and I hope you are having a laugh as you look down at us!
Anna
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I didn't know Goofynina, but sometimes I feel that she is somewhere laughing her head of at us - especially if there's a bit of argy bargy and someone gets in trouble! :rofl;
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Aww... seeing this thread pulled up made me think of her... I miss her. However, I know she is watching us having lots of laughs and wishing she could give us a piece of her mind.
<3
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I bet her and Epoman get plenty of laughs over some of the things that happen here. :waving; Thinking of you Susie.
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I miss you Goffy!
:flower;
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I didn't know Goofynina, but sometimes I feel that she is somewhere laughing her head of at us - especially if there's a bit of argy bargy and someone gets in trouble! :rofl;
She used to say she was LMFFAO -- laughing my f***ing fat ass off :rofl;
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Miss you Chica. :'(
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:guitar: Love you Susie girl.
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In church this morning, thinking of Susie. Good thing there was a hymn that was a sad one, because I could have tears and no one would notice. Vandie and Okarol, I am glad we shared that time. And so glad that Okarol, Kitkatz and Victor saw Susie in the hospital. Dear Sluff made sure there was the most beautiful flowers with an IHD banner to honor Susie. Life is precious---tell those around you that you love them. I think Susie knew how much we all loved her. :cuddle; :'(
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I miss my friend. I know she watches us. I find purple feathers periodically around me.
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:-* Susie :-*
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I miss you right now, Susie. Your wonderful sense of humor would help me right now.
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I am heartbroken to read this. Susie helped save my life 4 years ago and I'm not sure I ever expressed to her how much her support meant to me.
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:usaflag; Susie is Miss America everyday! (she sure loved tiaras!)
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Susie did a lot for a lot of members here. I just wish she hadn't left us so soon. Such an awesome personality she had.
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I got another Facebook Friend Request from Susie today. :(
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Hey Susie, against all odds, Paris got a transplant. Did you have anything to do with that? (I kinda think so!!) I just want to say, "Well Done!!!"
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:clap;
Her birthday is next month.
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:cuddle;
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Susie, thinking of you. I miss you and wish you were here.
Ro
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Another year passes without our Susie. What a fantastic person she was to many.
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:cuddle; Lots of love to our girl. :pray;
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Still get teary eyed thinking of her. She certainly gave such life to this site. What a privilege to have met her. :cuddle;
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She was the admin that approved my account. I think about her every time I log into IHD.
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She was a bright spot at IHD for sure.... :flower; :flower;
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To some people Susie was IHD. :cuddle;
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She's still is IHD Sluff. So is EPOMAN. They can't post anymore, but they are here.
Sometimes, I go back and read her posts to my training diary and remember how much love and support that she gave to us. I was so freaked out and alone when I was training to do NxStage, some of those days, I posted to my diary thread just to hear Susie's encouragement. I had so many doors slammed in my face by the time I started training, I thought that the rug would be pulled out from under me at any moment.
Of course it was pulled out, but that was almost a year later - I was ready for a fight then. And it killed me how all the people who didn't want anything to do with me when I was starting all of a sudden wanted to stand up for me. I laughed at them, and was happy that IHD was always there for me, and anyone who wanted to anonymously read or be a part of the IHD "family".
Sometimes, I look at the pictures from your wedding and I laugh about the boa and the tequila shots.
And all the time, I am so happy that at one of the lowest points of my life she was there. IHD was and still is: information when you need it, a cyber hug when you need it, a place to lose your temper when you need it and a place to feel the love and support that helps to drive away the loneliness and isolation that comes with the diagnosis of ESRD.
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Susie has been around me all week. I have heard her song on the radio this week at least four times. It's a wonderful world.
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Susie has been around me all week. I have heard her song on the radio this week at least four times. It's a wonderful world.
:cuddle;
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I still miss her something awful! :'(
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I love reading her old posts as well...so full of love, life, and light!! RIP Susie...
xo,
R
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I was thinking of leaving a message on her myspace but I can't remember my password. I used to leave messages every month. FAIL ::)
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I am so happy that at one of the lowest points of my life she was there. IHD was and still is: information when you need it, a cyber hug when you need it, a place to lose your temper when you need it and a place to feel the love and support that helps to drive away the loneliness and isolation that comes with the diagnosis of ESRD.
:-* Miss you Susie xox
:waving; Really miss your cooking lessons! :pray;
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She would be so happy to see IHD 6th Birthday.
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I have been hearing her song a lot lately.
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She would be so happy to see IHD 6th Birthday.
:clap;
I have been hearing her song a lot lately.
:'( Me too.
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http://www.youtube.com/watch?v=m5TwT69i1lU
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http://www.youtube.com/watch?v=m5TwT69i1lU
What a wonderful world...was her song?
That is so sweet!
xo,
R
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Missing you very much my friend. <3
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Tubes, she would be so excited for you right now. You two shared a special relationship. She loved you. :cuddle;
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Tubes, she would be so excited for you right now. You two shared a special relationship. She loved you. :cuddle;
:2thumbsup; She'll be watching over you and your mom.
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Boston Legal today- A lawyer afraid of clowns. Oh Goofynina I get the strangest inklings of you around me.
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Susie has been gone for 5 years now. I still miss her wit and laugh. Just wanted to keep her memory alive.
:cuddle;
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Saddest Valentine's Day ever. Biggest heart. Ever. :-*
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Thankful for this place which allows her to live on......... :grouphug;
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5 years? Impossible. I miss her like it was yesterday!
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5 years? Impossible. I miss her like it was yesterday!
Me too. :'(
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5 years? Impossible. I miss her like it was yesterday!
Me too. :'(
Me too!
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I think we had 1800 members when she left. I miss her as well.
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I see it has been another year since IHD lost such a valuable wonderful member.
I didn't have the privilege of knowing 'goofynina' as I only joined IHD about 6 months ago.
But I have read a number of her responses to postings.
She was a special person, freely giving of her love and support.
I do have to wonder if the Doctors learned what it was that took her, what they could have done better for the next person that may be afflicted with the same 'infection' that overwhelmed her systems.
I have to ask this as my Step=Mother was a micro-bacteriologist and taught me a great number of things of how these bugs are grown, isolated, identified, and destroyed in the lab in order to give the Doctors better tools to use.
We have made some progress in the past 6 years, there are still bugs that are 'treatment-resistant', but so far most all will succumb to the latest 'big gun' anti-biotics that have recently been approved.
I hope her passing has not been in vain as it would mean so much more to all to KNOW that she was able to help teach the Doctors even a little bit more that could help others.
Thanks Nina!