I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Sara on February 22, 2006, 03:48:29 PM
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Is there a difference in phosphorus (I assume that's the reason you shouldn't drink it) between regular and skim milk? What about soy or goat milk?
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Milk, nonfat, 1 cup 247 to 275 mg of Phosphorus
Milk, 1% lowfat 1 cup 235 to 273
Milk, 2% lowfat 1 cup (don't know)
Milk, Whole 1 cup 228
Buttermile 1 cup 219
So it is better to drink Buttermilk. :D I get Rice Dream for my cereal. It is rice milk. Gross by itself, but with cereal it is tolerable.
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I love milk also so when I have some I make sure to take tums with it, except when I have cereal at night and have just taken my thyroid med.. Do not use Tums 2 hrs before or after taking thyroid meds... neutralizes it... :o
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I love milk also so when I have some I make sure to take tums with it, except when I have cereal at night and have just taken my thyroid med.. Do not use Tums 2 hrs before or after taking thyroid meds... neutralizes it... :o
Not just Tums -- thyroid meds should be taken on an empty stomach -- either 1 hour before eating (including drinking milk) or 2 hours after. Using the sublingual natural Armour tabs makes that less of an issue. IMO, dialysis patients have enough to worry about w/o having to arrange food consumption around thyroid meds. Besides, the Armour may be better since it contains T4, T3, and small amounts of T2 and T1 -- synthetics, like Synthroid, only have T4.
Hubby tried Rice milk but didn't like it. He drinks 2%. Someone suggested eating your cold cereal w/ a fork to cut down on the amount of milk consumed -- wouldn't work for me, that milk left in the bottom of the bowl would be way too tempting. :)
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There's a guy @ work, who eats a huge bowl of mixed cereal (muesli, nutragrain & god-know waht else)
He even brought in a new bigger bowl, as it kept overspilling his previous one!
I really miss a bowl of weetbix or porridge or something. I stopped because it seemed such a 'waste' of
daily fluid :o ....but I bought a small box of weetbix this week & have had one bowl so far.
But I was very 'stingey' with the milk, only using about 1/2 what I used to. ;)
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No one told me to take them on an empty stomach... I take all my meds at once and some you are supposed to have food with them..
Also have to avoid grapefruit and grapefruit juice because of my lipitor... also blood pressure meds react to it also but I don't take any now... :o :)
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No one told me to take them on an empty stomach... I take all my meds at once and some you are supposed to have food with them.. ...
I'm not surprised you weren't told. When my mom started thyroid med she wasn't told either and was taking it with her breakfast.
The following quote is from webmd.com:
"...HOW TO USE
Take this medication on an empty stomach 1 hour before or 2 hours after a meal. ...
It is usually taken as a single daily dose before breakfast. ..."
If you get a print out from your pharmacy when you pick up your prescriptions this should be included somewhere in the print out.
Seriously consider the sublingual Armour natural thyroid, so you don't have the hassle of some meds w/ food and some w/o -- it's probably better for you than the synthetic anyway (despite what the drug companies which manufacture the synthetic say >:( ) and it's cheaper! Dialysis patients have enough to contend w/ -- make it easy on yourself. :)
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No one told me to take them on an empty stomach... I take all my meds at once and some you are supposed to have food with them.. ...
I'm not surprised you weren't told. When my mom started thyroid med she wasn't told either and was taking it with her breakfast.
The following quote is from webmd.com:
"...HOW TO USE
Take this medication on an empty stomach 1 hour before or 2 hours after a meal. ...
It is usually taken as a single daily dose before breakfast. ..."
If you get a print out from your pharmacy when you pick up your prescriptions this should be included somewhere in the print out.
Seriously consider the sublingual Armour natural thyroid, so you don't have the hassle of some meds w/ food and some w/o -- it's probably better for you than the synthetic anyway (despite what the drug companies which manufacture the synthetic say >:( ) and it's cheaper! Dialysis patients have enough to contend w/ -- make it easy on yourself. :)
I just take my thyroid med at medtime along with my Blood Pressure meds. Problem solved :)
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There's a guy @ work, who eats a huge bowl of mixed cereal (muesli, nutragrain & god-know waht else)
He even brought in a new bigger bowl, as it kept overspilling his previous one!
I really miss a bowl of weetbix or porridge or something. I stopped because it seemed such a 'waste' of
daily fluid :o ....but I bought a small box of weetbix this week & have had one bowl so far.
But I was very 'stingey' with the milk, only using about 1/2 what I used to. ;)
Good for you "Treat yourself" everyone cheats on there diet I know I do >:D Now where is my big bowl of "Fruit Loops" with about 4 cups worth of Whole Milk. :) I feel so sorry for people when I hear them say I haven't had a cup of milk in years or have a bannana or orange in years. It's sad really.
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Well, there goes the California Grapefruit Grower's annual dinner party! ;D
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There goes the Chiquite Banana Girlie Party I was invited to! Shucks!
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I know this is a thread about milk, but I am really upset with the fact that grapefruit seems to be contraindicated with nearly every important medication. And it particularly hurts if you read up on the origins of the fruit which once was called citrus barbadiensis. This quote comes from a website - The grapefruit was first described in 1750 by Griffith Hughes who called it the "forbidden fruit" of Barbados.
So here I am a barbadian who has not been allowed to eat this fruit. Everytime I stop a medication that was restricting me, I get another which does the same.
I just love the Jamaican dring "Ting" which is made from grapefruit.
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I really miss grapefruit also... Ting... hmmm .. we have an orange drink called Tang.. lol..
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And the Tang company wanted to stop the Jamaican company from using the name Ting since it seemed so close. There was even a court case. I guess the Jamaican company won, since they are still selling it. We have Tang here as well, but Tang is a breakfast drink, while Ting is a soda. Also 't'ing' is the way we Caribbean people say 'thing', e.g. 'Dat t'ing belongs to me.' and 'Dat is my t'ing'.
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I didn't have milk for a long time because my phos. and cal. were alway too high. I had parathyroid surgery last August and my phos. and cal. have been way back down.
I loved it when I was in the hospital for the surgery and my cal. was low and they already gave me all the cal. they could give me in pills and IV so they just kept getting me a glass of milk. I loved having the drs. telling me drink more milk. Of course I had to be carefull of the fluid but I figured what the heck I'm in the hospital any way so I told the dr. he would have to schedule me for some extra dialysis time if he was going to keep giving me all that milk to drink.
;D ;D ;D I really enjoyed that milk like never before.
Another thing seems like we all just love milk Could it be the whole forbidden fruit is the sweetest?
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I used to have to restrict my milk too, mainly because of the potassium. Which I only found out ages after I started dialysis. I tried to just have 1 cup a day which seemed ok. And I tried to take a binder before anything went in my mouth. But sometimes you just dont feel like it.
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I guess I am lucky as I put down close to two litres of 2% milk a day maybe its because I'm on home hemo and have to add a bit of phosporus ? and can regulate it that way ?
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Wow Len thats alot of milk!!! Are you on a restriction?? I find if I have too much milk I get bloated and thirsty. I am trying not to drink more than 1.5 litres a day (of any liquid).
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Hi Amber yes I feel a bit bloated now and then but even after my day off I came in at a total of 2.7 for the two days this time so not too shabby really .Also I have nothing left for output anymore , you figure? I cant ? I just love my milk lol
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2.7 not bad!! I just weighed myself and im 4 over :-\ Having BP trouble lately, so trying to catch up after a night of taking off no UF!
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I know some can easily do a 5 takeoff but when at the clinic doing 4 hour runs I was a mess if I had to take 3 off. I usually stuck to taking 2.5 after a weekend then even it up the next run. but with this home Hemo and the low pump speed I feel fine even after a 3.5 takoff Hey ? you signed up for the chat yet ?
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2% low fat comes in at 232 for Phos as for goats milk its 270 as I read in the nutritional book ...
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Does anyone know the potassium content of rice milk? I drink it every now and then, would be interested to know how much is in it.
Len, do you have trouble with potassium if you are drinking that much milk? 2 litres of milk is/was almost half of my K+ allowance for the day.
I dont know how one could take off 5 litres in 4 hours :o When I was on 5hr treatments I wouldnt take off more than 3.5, and even that left me feeling like crap. On nocturnal we arent aloud to UF more than 400/hr, so generally you dont get that washed out feeling or its not as bad. I have once run at I think it was 1000ml/hr, but I was in high dependancy dialysis and they had me laying almost upside down :-\
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1 Cup of whole milk =370mg
1 cup of 2% milk = 232
1 cup of rice dream= 57
1 cup of soydream = 100
My phos does run a bit high but not over the limits . my takeoff is usually under 2.5 last night it was 1.8
no idea how I get away with it as I have no output anymore ?
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I was asking about your potassium Len, not phosphate :) Are those milk values for potassium or phosphate?
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Damm now I have to go back and check hold on a few
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ok those were Phos in milk,rice and soy as for my potassium it runs high I thought I put a post in on my potassium ?
anyway I sometime take a few spoons of sodium polysytrene to knock my Potassium back to a normal level , not that often though only when I start tingling all over
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sign up for the chat Amber makes this stuff go a lot quicker .........
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ok here it is for potassium in milk
whole is 370
2% is 377
soy is 338 so looks like its pretty heavy eh ?
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I didn't think soy would be less than cows, weird. Do you have the K+ for rice milk? I think its listed on the pack I sometimes buy, but I'm not sure. Ill sign up for chat in the next few days. I got some bad news today so I'm just going to lay low for a bit while I get my head sorted out. Haven't been on the net all day, which is a first for me :-\
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Oh dear, Amber. I hope it's something tha can be sorted soon!!! :-\
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Got a call that a family friend had passed away. He was only a year older than me :'(
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I have "Rice Dream" on my cereal. My dietition said I could have it. I looked on the box and didn't see anything on potassium.
They have a website: www.TasteTheDream.com
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Got a call that a family friend had passed away. He was only a year older than me :'(
Sorry to hear that, Amber.
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Thanks Sara.....its just so terrible, such a waste of a nice guy :'(
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Rerun....I haven't had rice dream in years. Rice milk is in the "health food" section, where everything is expensive. I buy another brand of rice milk which is cheaper, but it has salt in it which I don't like. I like rice milk on its own or with cocoa pops :)
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Rerun....I haven't had rice dream in years. Rice milk is in the "health food" section, where everything is expensive. I buy another brand of rice milk which is cheaper, but it has salt in it which I don't like. I like rice milk on its own or with cocoa pops :)
Cocoa pops have a lot of phosphate doesn't it? And Potasium?
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Awwww, let the lady have her cocoa pops. I've read her posts and she seems like she does ok on her diet, a little splurge aint gonna hurt her...just BE CAREFUL....
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while moving I had a lot of fast food and was shocked that my bloodwork results were not bad at all. My phosphate was only a tiny bit high and my K was good. :) Good thing I took my binders with everything ;)
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i wish that could happen to me, i can eat a freaken french fry and blow up my charts, lol,
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i wish that could happen to me, i can eat a freaken french fry and blow up my charts, lol,
Ya I didn't realize I was this lucky because I had been afriad to be so bad :-[
I realize I am lucky and wonder how long this will last for :) After all I am just 32! Maybe when I am 50 I won't be so lucky but I am soooo glad I can have a little bit of a taste of normal life ;)
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You go girl, have some for me too, k, just let me know in detail how it tastes, lol, nah,, i have to admit i try to do good but with my hubby a fast food junkie, i do have to have just a little bit of something, and it is always the best tasting little bit of something i ever had, lol
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I really am not sure of the potassium or phosphate content. I just had a look at the box (yes I have some in my cupboard lol), and cocoa is only 3% of the ingredient, then after that is milk powder. I think if you had a small bowl of cocopops it would be ok providing you are good with your diet for the rest of the day, and take note that milk is high in both these things.
Before you all slap me on the wrist, I am on nocturnal, so I can eat chocolate, milk, whatever I want. Which reminds me, Im in-centre 2 days this week so I do need to be a little bit careful. Wrong week to do the grocery shopping!! :-\
Mind you when I was on conventional hemo, I couldnt even look at a tomato or sideways glance at an avocado without my potassium going past 6 >:(
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I really am not sure of the potassium or phosphate content. I just had a look at the box (yes I have some in my cupboard lol), and cocoa is only 3% of the ingredient, then after that is milk powder. I think if you had a small bowl of cocopops it would be ok providing you are good with your diet for the rest of the day, and take note that milk is high in both these things.
Before you all slap me on the wrist, I am on nocturnal, so I can eat chocolate, milk, whatever I want. Which reminds me, Im in-centre 2 days this week so I do need to be a little bit careful. Wrong week to do the grocery shopping!! :-\
Mind you when I was on conventional hemo, I couldnt even look at a tomato or sideways glance at an avocado without my potassium going past 6 >:(
I am lucky that I have been having no troubles with Potassium but I dont touch bananas even tho I love them and I dont touch orange juice or tomoto juice anymore or tomoto soup. I also have been trying to only have corn chips instead of potatoe chips (good thing my bp is low now and I dont have to worry about the salt so much anymore). :P But man do I ever miss my milk (my favourite drink in the world!!).
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I think Sara sent me a PM on this low Phosphorus milk, well half the phosphorus. The link is: www.dairydelicious.com
If you call (open 24 hours a day) 1-877-432-4797 and say you want a "sample" they send you 3- 8oz boxes. I've just ordered the sample and I'll let you know how it tastes. MMMMMMM can't wait!
Tell them ihatedialysis.com sent you!!!
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I think Sara sent me a PM on this low Phosphorus milk, well half the phosphorus. The link is: www.dairydelicious.com
If you call (open 24 hours a day) 1-877-432-4797 and say you want a "sample" they send you 3- 8oz boxes. I've just ordered the sample and I'll let you know how it tastes. MMMMMMM can't wait!
Tell them ihatedialysis.com sent you!!!
Oh wow thank you! I hope it is NOT one of those "must be American!!" sites though :(
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I think Sara sent me a PM on this low Phosphorus milk, well half the phosphorus. The link is: www.dairydelicious.com
If you call (open 24 hours a day) 1-877-432-4797 and say you want a "sample" they send you 3- 8oz boxes. I've just ordered the sample and I'll let you know how it tastes. MMMMMMM can't wait!
Tell them ihatedialysis.com sent you!!!
Oh wow thank you! I hope it is NOT one of those "must be American!!" sites though :(
Hey Angie,
If it is, let me know and I'll order the sample paclk and send you one.
Lorelle
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Just a couple of weeks ago we found out about a new product that my son loves. It is a phosphorous and potassium reduced milk. We order it by the caseload now. He had been on dialysis 7 years and struggled with his love of milk and bad labs as a result. We recently changed clinics and learned about DAIRY DELICIOUS there. They sent him some free samples before we ordered.
I have been amazed at the difference in quality of care just 30 miles apart!!
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Thanks to my nutritionist at the center I got a coupon for the 3 free boxes which arrived in the mail! Into the fridge they went to cool and were they ever delicious!!!!
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I think Sara sent me a PM on this low Phosphorus milk, well half the phosphorus. The link is: www.dairydelicious.com
If you call (open 24 hours a day) 1-877-432-4797 and say you want a "sample" they send you 3- 8oz boxes. I've just ordered the sample and I'll let you know how it tastes. MMMMMMM can't wait!
Tell them ihatedialysis.com sent you!!!
Are you guys not seeing this? You can call and get 3 free samples. ???
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I just called, here it is 11pm and they were happy to take my info and said they would send me samples right out,
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I think Sara sent me a PM on this low Phosphorus milk, well half the phosphorus. The link is: www.dairydelicious.com
If you call (open 24 hours a day) 1-877-432-4797 and say you want a "sample" they send you 3- 8oz boxes. I've just ordered the sample and I'll let you know how it tastes. MMMMMMM can't wait!
Tell them ihatedialysis.com sent you!!!
Oh wow thank you! I hope it is NOT one of those "must be American!!" sites though :(
Hey Angie,
If it is, let me know and I'll order the sample paclk and send you one.
Lorelle
Thank you :) I can ask you or Sandman :) That is good! I dialed it myself and it must ONLY be the USA because when I dialed I didn't even get a dial tone or an operator. Just silence. I dial .. I hear it dial .. but never rings .. just silence. Anyone else get this? Anyone else in Canada have the same problem? Can someone verify that it is only an American number? Thx.
edit: Oh he finally answered. I guess there is no indication that you are on hold but you are. So he picked up and took my info and said he will mail it out to me! Thanks for all your help! Can't wait til I can try it! Thx! :D
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Is the milk a US only thing?
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Is the milk a US only thing?
Hi Amber,
I called and asked for 3-pack free sample. If you order, a case of 27 (8 ounce) packs is $26.99. It is available for shipment to Canada for additional shipping of $14.96 :( , but is not available to Hawaii, Puerto Rico, Australia, or Europe -- forgot to ask about Alaska ::) Shipment usually arrives in 7 - 10 business days. Right now can only be ordered by phone or on-line.
When I get the sample pack do you want me to send you one?
Lorelle
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Awww, Lorelle, you are a sweetheart. See why i love this site, the things we do for each other, just like family.... i dont know any other website that would do that? do you? nope, didnt think so? Epoman, you did GOOOOOOOD...
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Im in australia so boo hoo to me lol That is a very kind offer Black!!! I would love one if its not too much trouble to send.
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I'm in Australia so boo hoo to me lol That is a very kind offer Black!!! I would love one if its not too much trouble to send.
Got the 3 samples today. I'd love to send one to you in Australia, but postage would be almost $24 US. :o :o :o
Lorelle
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I'm still waiting for mine :(
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Thats pretty expensive!! Thanks for the offer anyway!
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Might be of interest. From their website.
Q: Will DairyDelicious be used to make other low phosphorus, low potassium products for kidney patients?
A: Yes. The Delicious Milk Company is planning to introduce low phosphorus cheese sauce at the beginning of 2007 for Macaroni & Cheese, toppings, cheeseburgers, grilled cheese and all. ;D
They also plan to introduce low phosphorus puddings and other dairy products, such as delicious flavored milk and protein-enriched products.
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Might be of interest. From their website.
Q: Will DairyDelicious be used to make other low phosphorus, low potassium products for kidney patients?
A: Yes. The Delicious Milk Company is planning to introduce low phosphorus cheese sauce at the beginning of 2007 for Macaroni & Cheese, toppings, cheeseburgers, grilled cheese and all. ;D
They also plan to introduce low phosphorus puddings and other dairy products, such as delicious flavored milk and protein-enriched products.
Oh wow that is great!!
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Somebody please suggest that Dairy Delicious open a branch in Brazil ::). Brazil is a great country but sometimes it´s sooooo backward! We just recently (2 years ago maybe) got 2% milk.
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I got my samples the other day and if you ask me it has a funny after taste. I've had two of them, and to be honest I'd rather drink half as much real milk. But, that is just me.
By the way, since when can you store milk out of the refrigerator? It came in those little boxes like juice comes in or similar to Rice Dream.
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I got my samples the other day and if you ask me it has a funny after taste. I've had two of them, and to be honest I'd rather drink half as much real milk. But, that is just me.
By the way, since when can you store milk out of the refrigerator? It came in those little boxes like juice comes in or similar to Rice Dream.
Does it say you don't have to refridgerate it? It might still say you have to right on it.
And if it does not taste like milk then I probably won't like it because I am VERY particular about my milk... :-[ :-\
I wonder if I could get a sample in Canada .. I ordered SOMEthing .. but now I forget what lol :-[
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If its in juice type packaging and didnt come refridgerated, then it would be ultra heat treated, which means you can store it on the shelf until its opened.
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We ran out of milk and I used my son's on my cereal yesterday and liked it a lot. If I didn't need a lot of potassium at this point as a PKD pt (a real problem cooking a dialysis diet for him) I'd use it too and not even buy any regular milk. Avoiding the temptation for him.
Also I've cooked with it and so far no problems.
Mom 3